I ētahi wā ka pēhia ō uaua, ka tio tō tinana, ā, kāore e taea te neke? Ki ētahi, he mea noa tēnei mō te wā poto, engari ki ētahi atu, nā tētahi mate hauora nui i puta. I roto i te rongoā, ka kiia tēnei he Spasticity . Hei whakahaere i tēnei mate, ka hoatu tuatahitia e ngā tākuta he rongoā ā-waha. Engari ina tino kino te mate, ā, kāore e taea te whakahaere mā aua rongoā, ka kiia he tikanga maimoatanga motuhake e kīia ana e ngā tākuta ko te Baclofen Pump. Āe, me kōrero tātou mō ngā mea katoa i roto i ngā kupu māmā i tēnei rā.
He aha te tikanga o tēnei papu Baclofen?
Whakaarohia he rite ki tētahi kōpae porowhita iti, he mea whakarewa. Koinei te papu. He taputapu tēnei e whakatōkia ana ki raro i te kiri o tō puku i te wā o tētahi pokanga iti. Ka whakauruhia he ngongo angiangi, ngāwari (e kiia ana tēnei he catheter ) e hono ana ki tēnei papu ki roto i te wai e karapoti ana i tō taurakira (te awa tuaiwi) i tō tuara.
He whakarāpopototanga noa iho, he puna kei roto i tēnei papu hei pupuri i te rongoā, he pākahiko, me te kaiwhakahaere rorohiko. Ka whakamahia e te tākuta tētahi taputapu rorohiko motuhake kua whakanohoia ki tō kiri, ā, ka hoatu he whakahau ki tēnei papu. Arā, i ngā wā rerekē o te rā, ka whakaritea te nui o te rongoā e hiahiatia ana e koe kia tukuna ki roto i te wai huri noa i te taurakira mā roto i taua ngongo i te wā tika. Ka karangatia hoki tēnei tikanga ko te Intrathecal Baclofen Therapy (ITB) .
Nā, he aha te ingoa o tēnei rongoā ko Baclofen?
He rongoā whakangāwari uaua angaiwi a Baclofen. Ina hoatu tika ki roto i te taurakira,
- Ka whakaora i ngā uaua tino piripono (te pakari o te uaua).
- Ka whakaiti i ngā mamae uaua kāore e hiahiatia.
- Ka whakapai ake i te nekehanga me te mahi a ngā uaua.
He aha te momo tūroro e tika ana mō tēnei maimoatanga?
Ehara te Papu Baclofen i te mea mā te katoa. He maha ngā wā ka tūtohu ngā tākuta i tēnei mea mā te hunga he nui te mate pāwera e kore e taea te whakahaere mā te rongoā ā-waha. Ko ētahi o ngā āhuatanga ka puta ai tēnei āhuatanga ko:
- Te Mate Pukupuku Maha
- Te Whara o te Taura Tuaiwi
- Te Pararutiki Hinengaro
- Te Whara Roro Kino (TBI)
- Whiu
I mua i te whakatau mēnā he tika tēnei maimoatanga māu, ka whakahaerehia e tō tākuta tētahi whakamātautau motuhake. I roto i tēnei, ka werohia he horopeta iti o te rongoā Baclofen ki roto i te wai e karapoti ana i tō taurakira, ā, ka tirotirohia tō tinana mō ētahi haora kia kite ai i te pai o te mahi a te papu māu. Mā ngā hua ka whakatauhia te whai huatanga o te papu māu.
Me pēhea te mahi i te pokanga, ā, he aha ngā mea ka tupu i muri mai?
He pokanga tēnei e mahia ana e te taote pokanga roro, e te tohunga whakahaere mamae rānei.
- I mua i te pokanga: Ka tukuna koe ki raro i te rongoā whakamoe whānui, kia kore ai koe e mamae.
- I te wā e pokangahia ana: Ka tapahia e te tākuta he wahi iti ki roto i tō puku, ka whakaurua te papu mā roto. Kātahi ka tapahia anō he wahi iti ki roto i tō tuara o raro, ka whakaurua he ngongo (catheter) mai i te papu ki roto i te āputa huri noa i tō taurakira. Hei whakamutunga, ka whakakīia te papu ki te rongoā, ā, ka whakaritea kia tukuna te rongoā e hiahiatia ana e koe. E rua hāora te roa o tēnei pokanga.
- I muri i te pokanga: Me noho koe ki te hōhipera mō ētahi rā. Kātahi, i mua i te hokinga ki te kāinga, ka tukuna pea koe ki te wāhi whakaora hauora hei āwhina i a koe ki te taunga ki ō taputapu hou me te mahi i te āhua noa.
Me pēhea te tiaki i te papu?
Kāore e taea te papu kotahi noa iho, ka waiho noa iho. Pērā i te hinu e ringihia ana ki roto i te motuka, me whakakī anō tēnei papu i ngā wā katoa. I te nuinga o te wā, me mahi tēnei i ia 1-6 marama. Hei mahi i tēnei, ka werohia e te tākuta he ngira ki raro i tō kiri, ka werohia te rongoā ki tētahi wāhi motuhake o te papu (te putanga whakakī).
Ko te mea nui: Kaua e mahue te wā whakakī anō a tō tākuta mō tetahi take. Ki te pena koe, ka pau te rongoā i roto i te papu, ā, ka pāngia pea koe e ngā tohumate whakaroa kino.
He aha ngā painga me ngā ngoikoretanga o tēnei maimoatanga?
Pērā i ngā tikanga rongoā katoa, he painga, he ngoikoretanga hoki tō tēnei. Me titiro tātou ki ēnei.
| Ngā Painga | Ngā Tūponotanga/Ngā Raruraru |
|---|---|
| He tino angitu te whakahaere i te uaua pīrori. | Te mate urutā me te toto i te wāhi i pokangahia. |
| He iti ake ngā pānga taha i ngā rongoā ā-waha. | Te turuturu o te wai tuaiwi. |
| Ka whiwhi tonu te tinana i te rongoā i taua ara anō. | Te rahunga ā-mīhini o te papu, o te catheter rānei. |
| Ka taea te whakarerekē i te horopeta o te rongoā i ngā wā rerekē o te rā, ki te hiahiatia. | Ngā tohu whakaroa ka puta mēnā ka mutu ohorere te rongoā. |
| Te āheinga o te tango pokanga mēnā e tika ana. | Ka puta te horomanga nui rawa ina nui ake te horopeta o te rongoā. |
Ngā āhuatanga ohorere me mōhio koe!
Koinei te wāhanga tino nui o tēnei tuhinga. He mea tino nui kia mōhio koe me tō whānau ki ngā tohu o te whakamutu ohorere, te nui rawa rānei o te rongoā. He āhuatanga kino ēnei ka mōrearea pea te ora.
| Āhuatanga ohorere | Ngā tohu |
|---|---|
| Te tango i te Baclofen (Mēnā ka pau te rongoā i te papu, ka hē rānei te mahi) |
|
| Te nui rawa o te Baclofen (Tērā pea ka puta tonu i muri i te whakakī anō i te rongoā, i te whakarerekē rānei i te kaupapa) |
|
Ki te puta mai tētahi o ngā tohu o runga ake nei, me haere tonu ki te Tari Whawhati Tata (ETU) o te hōhipera tata! | |
Ētahi atu mea iti...
- Kia pēhea te roa o te wā e ora ai i muri i te pokanga? E 6-8 wiki te roa. I taua wā, me karo koe i ngā mahi uaua.
- Pūhiko papu: E 6-7 tau te roa o te mahi. Ina tata pau te pākahiko, ka tukuna he tohu e te papu hei whakamōhio atu. Kātahi ka hiahiatia he pokanga iti anō hei whakakapi i te papu.
- Ngā tohu o te mate: Mena he whero te wāhi i pokanga, he pupuhi, he mamae, he turuturu te wai, he kirika rānei koe, me whakamōhio tonu atu ki tō tākuta .
Ko tō tākuta anake e rongoā ana ka taea te whakatau pai mō te tika o tēnei maimoatanga māu. Nō reira, kia tuwhera, kia pono hoki ki tō tākuta mō ngā pātai, ngā āwangawanga, ngā āwangawanga rānei kei a koe mō tēnei.
Karere Tangohia ki te Kāinga
- He maimoatanga motuhake te Baclofen Pump mō te mate pāwera nui e kore e taea te whakahaere mā te rongoā ā-waha.
- He taputapu tēnei i whakatōkia ki te pokanga, ā, he mea nui kia whakakīia anō te rongoā i muri i tētahi wā kua whakaritea.
- Kaua rawa e wareware i ngā rā whakakī anō mō te rongoā. Ka arahi pea tēnei ki ngā tohumate whakaroa kino.
- Kia tūpato ki ngā tohu o te tango me te nui rawa o te rongoā māu ake me tō whānau. Mēnā ka kite koe i tētahi o ēnei tohu, haere tonu ki te rūma whawhati tata (ETU).
- Kōrerohia ki tō tākuta mēnā he tika tēnei maimoatanga māu me ngā take katoa e pā ana.
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