Whakaarohia kei te kōrero koe ki tētahi, kei te mātaki pouaka whakaata rānei, ā, kātahi anō ka tīmata te kati pūmau o ō kanohi, te neke rānei o tō kauae ki tētahi taha... Ka puta ēnei mea, kāore e taea e koe te whakahaere. Kua pā tēnei ki a koe? Kaua e manukanuka. He tohu pea tēnei o tētahi mate pūnaha io onge e kiia nei ko te Meige Syndrome . Me kōrero noa tātou i tēnei rā.
He aha te Meige Syndrome?
He mate onge te Meige Syndrome e pā ana ki tō tātou roro me te pūnaha io. Ka puta he uaua e ngoki ana, he rite ki te wiri, kāore e taea e tātou te whakahaere. Ka taea e tēnei te whakapūmau i tō kauae me te kati pūmau o ō kanohi. I ētahi wā ka mamae ēnei wiri uaua.
Ko te tikanga ka pā tēnei āhuatanga ki ēnei e whai ake nei:
- Ki ngā uaua o tō mata o raro
- Ki te matau
- Ki te arero
- Mō ngā uaua huri noa i ngā kanohi
He mate tēnei e kiia nei ko te dystonia . Ko te Dystonia he rōpū mate e neke haere ana ngā uaua o te tinana me te kore e taea te whakahaere. I ētahi wā ka whakamahia e ngā tākuta ētahi atu ingoa hauora mō tēnei mate, engari tera pea ka maumahara koe ki te Meige Syndrome.
He aha ngā tohu o tēnei mate? Me pēhea te mōhio ki tēnei?
Ko te nuinga o te wā ka pā te Mate Meige ki ngā nekehanga o tō mata me tō kauae. Tērā pea ka pāngia koe e ngā nekehanga kanohi maha kāore e taea e koe te whakahaere, ahakoa kāore koe e hiahia kia pērā. Me titiro tātou ki ēnei tohu.
| Wāhanga e pāngia ana | Ngā tohu noa e kitea ana |
|---|---|
| Mata me te kauae |
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| Ngā kanohi |
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| Arero me te korokoro |
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He mea tino nui: I ētahi wā, ki te pāngia tō korokoro me ō ara manawa e tēnei māuiuitanga uaua, ā, ka uaua ai tō manawa, he āhuatanga ohorere tēnei . Ki te puta tēnei, me haere tonu koe ki te Tari Ohorere o te hōhipera (ETU).
I te tīmatanga, kotahi anake te kanohi ka pāngia e ēnei tohu, engari i roto i te wā, ka pāngia pea ngā kanohi e rua. Tērā pea ka kino haere ēnei tohu i a koe e pakeke haere ana.
He aha tēnei e tupu nei? He aha te take?
Ina hoki, kāore anō kia kitea e ngā tākuta tētahi tino take o te Meige Syndrome. Heoi, e rua ngā āhuatanga e whakaponohia ana koia te take:
1. Ngā āhuatanga ira: Ko ētahi huringa e puta ana i roto i tō tātou DNA.
2. Ngā āhuatanga taiao: Ētahi whakaohooho i roto i te taiao.
E whakapono ana ngā tākuta ko te pūtake o tēnei he hapa i roto i tētahi wāhanga o tō tātou roro e kiia nei ko te 'Basal Ganglia' . Ki te kī māmā noa, ko ngā nekehanga o tō tātou tinana e whakahaeretia ana, e whakahaeretia ana hoki e tēnei wāhanga e kiia nei ko te basal ganglia. Nō reira, ina he tetahi mea i reira, ka puta ēnei momo nekehanga kāore i te whakahaeretia.
He aha ngā mea e whakaoho ana i te whakanui ake i ngā tohu?
Ka taea e ētahi mea te whakanui ake i ēnei tohu mō te wā poto. Ka kiia ēnei he mea whakaoho.
- Mārama kanapa: Te pānga o te rā me ngā rama o mua o te waka.
- Ngenge: Ina tino ngenge te tinana.
- Te ahotea: Ina pāngia koe e te pēhanga, te manukanuka rānei.
- Hau kaha: Ina pā te hau kaha ki tō mata.
Me pēhea te tautuhi i tēnei mate? He aha ngā maimoatanga?
Kāore he whakamātautau motuhake hei tautuhi i te Meige Syndrome. Ina kite koe i te tākuta, ka whakarongo pai rātou ki ō tohumate, ka tirotirohia hoki koe. Tērā pea ka whakahaerehia e rātou he whakamātautau toto, he whakamātautau whakaahua rānei hei whakarite kāore he mate kē atu āu e puta ai ngā tohumate rite.
Ahakoa kāore anō kia kitea he rongoā mō tēnei, kaua e manukanuka. He tino whai hua ngā maimoatanga hei āwhina i te whakahaere i ngā tohumate, hei whakangāwari ake hoki i tō oranga o ia rā.
| Tikanga maimoatanga | Ka ahatia? |
|---|---|
| Ngā rongoā | Ka tohua e te tākuta ngā momo rongoā hei āwhina i te whakaiti i ngā mamae me ngā kōpiritanga o te uaua. |
| Ngā werohanga paitini botulinum (Botox®) | Koinei te maimoatanga tino whai hua e whakamahia ana i te nuinga o ngā wā. I roto i tēnei, he iti noa te nui o tēnei rongoā ka werohia ki roto i ngā uaua raruraru (huri noa i ngā kanohi, i roto i te kauae). Mā tēnei ka ngoikore ngā uaua mō te wā poto, ā, ka mutu te wiri o aua uaua. Me wero pea koe i tēnei werohanga i ia toru marama. |
| Te Whakaoho Roro Hōhonu (DBS) | He tikanga pokanga tēnei. Ka whakaurua he hiko tino angiangi ki roto i te wāhi e pāngia ana o te roro, ā, ka tukuna atu ngā tohu hiko iti mā roto hei whakahaere i ngā mahi rerekē o te roro. He rite tēnei ki te 'pacemaker' mō te roro. |
| Te rongoā kōrero me te horomi | Ka āwhina tēnei maimoatanga ki te whakapakari i ngā uaua o te kauae me te korokoro, me te whakaiti i te kaha o ngā uaua e pupuhi ana. |
Ngā tinihanga māmā ka taea e koe te whakamātau i te kāinga
Ki tā ētahi tāngata, he āwhina ngā mahi a ngā kare ā-roto ki te whakahaere i ō rātou tohumate. Ka whakararuraru ēnei i te wāhanga o te roro e puta ai ngā tohumate mō tētahi wā poto.
- Te ngaungau i te kāpia.
- Te pupuri i tētahi mea pērā i te titi niho i roto i tō waha.
- Te pā o te ringa ki te ngutu, ki te kauae rānei.
- E titiro ana ki raro.
Kei te hiahia koe ki te kite i tētahi tākuta?
Āe, tino tika. Ki te pā mai ētahi o ngā tohu kua whakahuatia i roto i tēnei tuhinga, kaua e whakaaro noa , engari me toro atu ki te tākuta tonu. Māna e taea te tātari tika i tō āhua, me te whakarato i te maimoatanga tino tika ki a koe.
Ā, hoki,
- Mena ka pāngia koe e ngā pānga taha i te wā e rongoatia ana.
- Mena ka kino haere ngā tohu ahakoa te maimoatanga.
- Mena he uaua rawa te horomi i te kai.
I roto i ēnei āhuatanga, me whakamōhio atu ki tō tākuta.
Ehara te Meige Syndrome i te mate e morearea ana ki te ora. Ko te tikanga tēnei kāore e pā ki tō roanga o te ora. Heoi, ka pā pea ki te kounga o tō oranga. Tērā pea ka whakama koe, ka whakama rānei ki te tū atu ki te hapori me te kōrero ki te tangata. He mea nui hoki kia rapu tohutohu mai i tētahi kaitohutohu hauora hinengaro i ēnei wā.
Karere Tangohia ki te Kāinga
- Ehara te Meige Syndrome i te mate i puta mai i tōu ake he. He mate onge tēnei e pā ana ki te mahi a te roro me te pūnaha io.
- Ko ngā tohu matua ko te wiriwiri kore e taea te whakahaere o ngā uaua o te mata, o ngā kanohi, me te kauae.
- Ahakoa kāore he rongoā katoa mō tēnei, he maha ngā maimoatanga whai hua hei āwhina i a koe ki te whakahaere i ngā tohu me te noho i te oranga noa.
- Ki te puta mai ēnei tohu, kaua e whakapae noa, engari me rapu tohutohu hauora.
- Ki te uaua koe ki te manawa, ki te horomi rānei, whakaarohia he āhuatanga ohorere tēnei, ā, haere tonu ki te Tari Ohorere (ETU) o te hōhipera.
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