Kua kite ohorere koe i tētahi rerekētanga o ō kanohi, e rua pea ngā kanohi e kitea ana, kaua ko te kotahi, e kore rānei e taurite te āhua ina hikoi koe? Kei te māharahara anō hoki koe ina kōrero koe? Ehara ēnei i te mea noa iho, i ētahi wā he āhuatanga onge kei muri i tēnei e kiia nei ko te Miller Fisher Syndrome. I tēnei rā, ka kōrerohia e tātou tēnei me te taipitopito, he tino māmā noa iho.
He aha rawa te mate Miller Fisher?
Ki te kī māmā noa, he mate pūnaha io onge te Miller Fisher Syndrome , e whakaeke hē ai tō tātou ake pūnaha ārai mate i ō tātou ake pūtau io hauora. He rite ki ngā kaitiaki o tō tātou tinana e whakaeke ana i ō tātou ake whānau.
I tēnei āhua, ko ngā io o tō mata te mea tuatahi ka pāngia. Ina koa ka pakaru ngā io e whakahaere ana i ō kanohi, ka uaua pea te neke haere i ō kanohi. Ehara i te mea koinā anake, engari ka pā anō hoki ki tō taurite, ki tō taunga, me ō urupare. He maha ngā wā ka puta mai ēnei tohu i muri i te korenga o te mate huaketo, kitakita rānei.
Ko wai te mea ka nui ake te tūponotanga ka pāngia e tēnei mate?
Ahakoa ka taea e te tangata te pāngia e te Miller Fisher Syndrome (MFS), he nui ake te tūponotanga ka pāngia ētahi tāngata. Ko ētahi o ēnei ko:
- Ngā tāngata o Āhia: Kua kitea e ngā rangahau he nui ake te tūponotanga o te pāngia o te hunga o ngā whenua o Āhia e tēnei mate i ngā tāngata o ngā whenua o te Hauāuru.
- Tāne: E rua ngā wā ka nui ake te tūponotanga o te tāne ki te pāngia e tēnei mate i ngā wāhine.
- Ngā tāngata neke atu i te 55 tau te pakeke: Te āhua nei ka piki ake tēnei mōrearea i te kaumātuatanga.
He aha te rerekētanga i waenga i te Miller Fisher Syndrome (MFS) me te Gilen-Barre Syndrome (GBS)?
Kua rongo pea koe i te mate Guillain-Barré (GBS). Ko te mate Miller Fisher (MFS) he momo mate GBS. Ka taka ēnei mate e rua ki roto i te wāhanga o ngā mate pūnaha ārai mate, arā, ko ngā āhuatanga e whakaekehia ai e te pūnaha ārai mate o te tinana a ia anō. Ka puta pinepine ēnei mate e rua i muri i te mate.
Heoi anō, he maha ngā rerekētanga matua.
- I te MFS , ka tīmata ngā tohu i ngā wāhanga o runga o te tinana, inā koa te mata me ngā kanohi.
- I roto i te GBS , ka tīmata ngā tohu i ngā wāhanga o raro o te tinana (waewae, pūkahukahu) kātahi ka horapa haere ki runga.
- He mea noa te mamae o te tuara, te uaua ki te manawa, me te ngoikore o ngā uaua o ngā peka me ngā waewae i roto i te GBS.
- He mate e kitea whānuitia ana te GBS i roto i te hapori nui atu i te MFS.
He mate hopuhopu te mate Miller Fisher (MFS)?
He pātai tēnei e pātaihia ana e te tini tāngata. Kāo, ehara te Miller Fisher Syndrome (MFS) i te mate hopuhopu.Ko te tikanga o tēnei, kāore e horapa mai i tētahi tangata ki tētahi atu. Kāore koe e mōhio kua pā atu koe ki tētahi tangata he mate pēnei tōna.
He pēhea te noa o tēnei āhuatanga?
He tino onge te mate Miller Fisher Syndrome (MFS). Kotahi, e rua rānei ngā tāngata i roto i te miriona e pāngia ana e te mate puta noa i te ao. Nō reira, ka kitea te onge o tēnei mate.
He aha ngā tohu o te Miller Fisher Syndrome (MFS)?
Ka puta ohorere pea ngā tohu o tēnei mate, ā, ka puta ake i roto i ētahi rā. I te nuinga o te wā, ka puta ēnei tohu i te 10 rā i muri i te mate huaketo, kitakita rānei. Heoi, i ētahi wā, kāore pea ngā tohu e puta mō ētahi wiki.
Ko ngā tohu matua e kitea ana e te nuinga o te tangata ko:
- Ngā raruraru taurite: Tērā pea ka rite koe ki te mea kei te ngaro tō taurite i a koe e hikoi ana.
- Ngā panonitanga o te tauira hikoi: Tērā pea ka tīmata koe ki te hikoi i tētahi ara rerekē, rerekē i tō hikoi noa.
- Te tirohanga pōuriuri, te tirohanga pōuri rānei: Ka puta pea tēnei i te āhua o ngā mea e rua, i te tirohanga pōuriuri rānei.
- Ptosis, uaua rānei ki te whakahaere i ngā uaua o te kanohi: Tērā pea ka āhua piko tetahi, e rua rānei ngā kamo. Tērā pea ka uaua hoki ki te whakahaere i ngā āhua o te kanohi.
- Te ngaronga o ngā urupare o ngā uaua: Tērā pea ka ngoikore, ka ngaro rānei ngā urupare i ngā wāhi pēnei i te pona waewae, te turi, me te ringa. Ka kitea tēnei ina patupatua e te tākuta ki te hama iti.
- Te uaua ki te neke i ngā kanohi: Tērā pea he uaua ki te neke i ngā kanohi mai i tetahi taha ki tetahi taha, mai i runga, mai i raro.
- Ngā nekehanga uaua koretake, pōrearea rānei: Kāore pea e taea e koe te whakahaere tika i ō ringaringa me ō waewae, ka pōrearea ai ō mahi.
Whakaarohia, he tangata ko Nimal tōna ingoa. Tata ki te wiki kua pahure ake nei, i pāngia ia e te makariri nui, ā, kua ora ake. Ināianei, ohorere ana, ka hikoi ia me te koretake, me te mea he tangata kua inu waipiro. Ina titiro ia ki te whakaata, ka kite ia kua paku heke tetahi o ōna kamo. Ina mātaki ia i te pouaka whakaata, ka kite ia i ngā whakaahua e rua i te wā kotahi. Koinei te mea ka tupu.
Haunga ēnei tohu matua, ka pāngia pea ētahi tāngata e ngā tohu pēnei i:
- Te uaua ki te manawa
- Te ngoikore o ngā uaua o ngā ringa me ngā waewae
- Te uaua ki te horomi
- ngoikore o te arero
He aha te pūtake o te Miller Fisher Syndrome (MFS)?
Hei whakamārama ake, ka puta te MFS ina tīmata te pūnaha ārai mate ki te whakaeke i ō tātou ake io i te hē. Arā, i a tātou e whawhai ana ki tētahi iroriki kua uru ki te tinana, ka whakaeke hē ō tātou ake pūtau ārai i ngā pūtau io hauora, me te whakaaro he hoariri rātou.
Ko ētahi mate huaketo me ngā mate kitakita ka pāngia e te MFS ko:
- Mate pukupuku Campylobacter - He mate puku tēnei e puta pinepine ana i te kai poke.
- Haemophilus influenzae - He huakita tēnei e pangia ai te pūnaha manawa.
- Huaketo Ārai Mate Tangata (HIV)
- Mononucleosis (Mononucleosis - huaketo Epstein-Barr) - He kirika tēnei e kiia ana ko te "mate kihi".
- huaketo Zika
He mea tēnei nō ngā whakatipuranga?
Ahakoa kei reira ētahi taunakitanga e whakaatu ana ka taea te tuku iho i te MFS, he tino onge te pāngia o te tokorua i roto i te whānau kotahi e te mate, nō reira he iti noa ngā taunakitanga e tohu ana he mea tuku iho i te ira.
Me pēhea koe e tino mōhio ai mēnā kei a koe te Miller Fisher Syndrome (MFS)?
Engari, kāore he whakamātautau kotahi hei tautuhi i te MFS. Ka tirotirohia koe e te tākuta, ka arotakehia ō tohumate, ka tangohia hoki tō hītori hauora (ina koa ngā mate pāwera o nāianei). Mena kua pāngia koe e te kirika, e te mamae puku rānei, me kōrero koe ki tō tākuta mō tēnā.
Mena kei te whakapae tō tākuta kei a koe te MFS, ka whakahaerehia pea e rātou ētahi whakamātautau, pēnei i:
- Ngā whakamātautau toto: Ka taea e ēnei te tirotiro mō ngā taumata tiketike o ētahi momo paturopi i roto i te toto. Ko ngā paturopi he pūmua e hangaia ana e tō tātou pūnaha ārai mate hei whawhai i ngā mate. I roto i te MFS, ka kitea he momo paturopi motuhake (ngā paturopi Anti-GQ1b) i roto i ngā taumata tiketike i roto i te toto.
- Te Electromyography (EMG): Mā tēnei ka ine i te pai o te urupare a ō uaua ki ngā tohu mai i ō io.
- Rangahau kawe io (NCS): Ka ine tēnei whakamātautau i te tere o te haere o tētahi tohu hiko i roto i tētahi io. Tērā pea ka whakaroahia tēnei tere i roto i te MFS.
- Te pokanga tuaiwi/te weronga lumbar: Ko te tikanga tēnei me tango he tauira iti o te wai e karapoti ana i tō tuaiwi, ka whakamātautau mō ētahi paturopi me ngā taumata pūmua teitei.
Me pēhea te rongoā i te Miller Fisher Syndrome (MFS)?
Kāore he rongoā mō te Miller Fisher Syndrome (MFS). Heoi, kei reira ngā maimoatanga hei āwhina i te aukati i tō pūnaha ārai mate kei whakaeke i ngā io hauora. Ko te wawe o te tīmatanga o ēnei maimoatanga, ko te pai ake o ngā hua.
Ko ngā maimoatanga e whakamahia whānuitia ana ko:
- Te rongoā Immunoglobulin intravenous (IVIG): Kei roto i tēnei ko te hoatu i te plasma parakore (te wāhanga wai o tō toto) me ngā paturopi hauora mai i ngā kaituku hauora. Ka āwhina ēnei paturopi hauora ki te ārai i ō ake paturopi kei whakaeke i ngā kiko hauora.
- Te whakawhiti toto / te whakawhiti toto: Ko te tango i ō toto, te tātari i te toto, kei roto pea ngā paturopi kino, me te whakahoki i te toenga o te toto ki tō tinana. He rite ki te "horoi" i ētahi o ō toto.
- Whakaora tinana: Ka mahi tahi koe me tētahi kaiwhakaora tinana, kaiwhakaora mahi rānei, ki te mahi i ngā mahi whakakori tinana me te whakangungu hei whakahoki mai i te kaha o te uaua, te ngāwari, me te taunga o te tinana. Mā rātou koe e ako ki ngā tikanga hei whakapai ake i tō taurite, tō haere, me ngā mahi o ia rā.
Ka taea te ārai i te Miller Fisher Syndrome (MFS)?
Engari, kāore he huarahi motuhake hei ārai i te whanaketanga o te Miller Fisher Syndrome (MFS), nā te mea ka puta mai i te huringa o te mahi a tō tātou ake pūnaha ārai mate.
Heoi, ka taea e koe te mahi i ngā mahi hei tiaki i a koe mai i ngā mate huaketo me ngā mate kitakita ka puta ai tēnei. Ko te tikanga:
- Whakaitihia te whakapā tata ki te hunga e mate ana.
- Taupokina tō waha me tō ihu ina maremare, ina tihe rānei.
- Horoia ngā mata e pāngia pinepinetia ana (ngā kakau tatau, ngā tēpu) ki te paturopi.
- Kaua e pā ki tō mata me te kore e horoi pai i ō ringaringa.
- Horoia ō ringaringa i ia wā ki te hopi, ki te whakamahi rānei i te wai horoi ringa.
He aha te heke mai mō te tangata e pāngia ana e te Miller Fisher Syndrome (MFS)?
He pai te tirohanga whānui mō te hunga e pāngia ana e tēnei mate. Kāore i te maha ngā wā ka mate. Kāore hoki e puta he raruraru hauora nui mō te wā roa. Ko te nuinga o te tangata ka ora i roto i ngā marama e rua ki te ono. Ahakoa he iti noa ngā hauātanga o ētahi mō tētahi wā, ka hoki te nuinga ki te oranga noa.
Āhea ahau me toro atu ki te tākuta?
Ki te pā mai he raruraru ohorere ki ngā urupare, te taunga, te nekehanga uaua rānei, me toro atu ki te tākuta tonu. Ka rite pea ngā tohu o te Miller Fisher Syndrome (MFS) ki ērā o ētahi atu mate e pā ana ki ngā io me ngā uaua.
He mea whakamataku pea te kite i ngā panonitanga o ō kanohi, o ō uaua, o tō taurite rānei. Engari kia mahara, he mate tino onge te MFS, nō reira kaua e whakaaro kei a koe te MFS nā te mea kei a koe ēnei tohu. Heoi, he tohu ēnei kei te hē tetahi mea. Nō reira, ki te pāngia koe e tētahi mamae pēnei, he pai ake te toro atu ki te tākuta i te wā e taea ai. Kātahi ka taea e te tākuta te tirotiro i ō uaua, ō io, me tō hauora whānui, ka waihanga i tētahi mahere maimoatanga e pai ana mōu.
Ko te mea nui hei maumahara mā tātou i roto i ngā kōrero kua kōrerotia e tātou (Karere hei tango mā te kāinga)
Āe, kua mārama kē koe ki te mate Miller Fisher i kōrerohia e tātou i tēnei rā. Anei ētahi mea hei maumahara māu:
- He mate pūnaha io tino onge te MFS.
- Ko te mea ka tupu i tēnei , ka whakaekehia e tō tātou ake pūnaha ārai mate ō tātou ake io.
- Ko ngā tohu matua ko ngā raruraru kanohi (tirohanga takirua, te kamo, te uaua ki te neke i ngā kanohi), ngā raruraru taurite, me te ngoikore o ngā urupare ā-tinana.
- Ehara tēnei i te mate hopuhopu.
- He maha ngā wā ka puta mai i muri i te mate huaketo, kitakita rānei.
- Ahakoa kāore he whakamātautau motuhake, ka taea te tautuhi mā roto i ngā tohu me ētahi atu whakamātautau.
- Ka taea e ngā maimoatanga pēnei i te IVIG me te plasma exchange te whakaputa hua pai.
- Ka ora ake te nuinga o te tangata i roto i ētahi marama.
- Ki te pāngia koe e ēnei tohu, rapua tonutia he tohutohu hauora.
Kaua e mataku, engari he mea nui kia tūpato. Kia ora koutou ko tō whānau!
Te Mate Miller Fisher, ngā mate io, te pūnaha ārai mate, te mate Gilen-Bere, te tirohanga, te taurite, te ngoikore o te uaua
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