I ētahi wā, ka rongo pea koe i tētahi mea pēnei i te puku iti i tētahi wāhi o tō tinana. Tērā pea ka rongo koe i te ngau, te mamae, te āhua rerekē rānei. Ko tētahi take mō ēnei mea ko te mate e kiia nei ko te 'Schwannoma'. He ahua uaua, he whakamataku hoki te ingoa, kāore? Kaua e manukanuka. I roto i tēnei tuhinga, ka kōrerohia e tātou he aha tēnei mea, he aha i puta ai, he mea morearea, me te aha te maimoatanga.
He aha te Schwannoma?
He puku te schwannoma. Engari ka puta mai i tētahi momo pūtau motuhake i roto i tō tātou tinana. Ka kiia e tātou ko ngā 'pūtau Schwann'.
Tērā pea kei te whakaaro koe he aha ēnei 'pūtau Schwann'. Whakaarohia ngā io puta noa i ō tātou tinana he waea hiko. Ka haria e ēnei io ngā karere mai i te roro ki ngā wāhanga katoa o te tinana. He hipoki kirihou kei te taha o taua waea hiko hei tiaki, tika? Waihoki, he hipoki anō hoki kei ō tātou io hei tiaki i a rātou, hei āwhina hoki i a rātou ki te kawe karere tere ake. He 'pūtau Schwann' te mea hanga o taua hipoki. Nō reira, mō ētahi take, ina tīmata te tipu haere o ēnei pūtau Schwann, ka puta he pukupuku ki reira. Koinei te mea e kiia nei e tātou he Schwannoma.
Ko te rongo pai, ko te nuinga o ēnei pukupuku ehara i te matepukupuku (pai) . Ko te tikanga, kāore e horapa ki ētahi atu wāhanga o te tinana. Ā, he puhoi te tipu, i ētahi wā ka maha ngā tau.
Engari, he tino onge, arā, he tino onge, ka taea hoki e ēnei te huri hei matepukupuku (mate kino). Kātahi ka kiia hoki ko te 'sarcoma kiko ngohengohe'. Engari he tino onge tēnā. I roto i te 90% o ngā take, ka kitea ēnei hei pukupuku kotahi.
Kei hea te nuinga o te wā ka puta mai ngā Schwannoma?
Ka taea e ēnei pukupuku te whanake i ngā wāhi katoa o te 'pūnaha io ā-taha', arā, te pūnaha io e kawe ana i ngā karere mai i tō tātou roro me te taurakira ki te toenga o te tinana.
Engari he momo motuhake tēnei e kitea pinepinetia ana. Ko te 'vestibular schwannoma' te ingoa. Ko ētahi e kī ana ko te 'acoustic neuroma'. Ka puta tēnei i roto i te io e haere ana mai i tō tātou roro ki tō tātou taringa, e āwhina ana i a tātou ki te whakarongo me te taurite. He maha hoki ngā wā ehara tēnei i te mate pukupuku, ā, he momo puhoi te tipu.
Hei tāpiritanga, ka taea hoki e ēnei te whakawhanake i roto i te io sciatic i te waewae, te plexus brachial i te ringa, me ngā io i te tuara o raro.
He pukupuku roro tēnei?
He pātai tēnei nā te tini o te tangata. Ko te whakautu, tērā pea, kāore rānei. Kei te wāhi kei reira te pukupuku te mea e tika ana.
Ko ngā momo i kōrerotia i mua ake nei, pērā i te 'vestibular schwannoma', ka puta ake i roto i ngā io o roto i te roro. Koia i kiia ai he pukupuku roro. Engari nā te mea ka puta te schwannoma i ngā wāhi katoa o te tinana, hei tauira, i roto i te io o te ringa, o te waewae rānei, ehara i te mea he pukupuku roro katoa.
He aha ngā tohu o te Schwannoma?
Nā te mea he puhoi rawa te tipu o ēnei pukupuku, ka taea e rātou te noho mō ngā tau maha me te kore e whakaatu i tetahi tohu. Mēnā ka puta mai ngā tohu, ko te āhua o aua tohu ka whakawhirinaki ki te wāhi kei reira te pukupuku me tōna rahi.
Kei te ripanga i raro nei ētahi o ngā tohumate e tino kitea ana.
| Tohu | Whakaahuatanga |
|---|---|
| He pona e kitea ana | I ētahi wā, ka rongo koe i tētahi puku iti i raro i tō kiri, ā, ka mamae pea ina pēhia. |
| Te wiri, te āhua rānei e oma haere ana ngā pōpokorua | Ina pēhia te io e te pukupuku, ka rongo pea koe i te ngau kino i te wāhi e kawe ana ngā karere e te io. I roto i te kupu hauora, ka kiia tēnei ko te 'paresthesia'. |
| ngoikore o te uaua | Nā te mea kāore e mahi tika ana ngā uaua e whakahaeretia ana e ngā io, tera pea ka ngoikore koe i taua wāhi. Hei tauira, tera pea ka uaua ki te hopu i tetahi mea i roto i tō ringaringa. |
| Mamae | Ka taea e te pēhanga o ngā io te whakararu i te mamae puhoi, te wera, te koi rānei. |
Ngā tohu motuhake e rerekē ana i runga i te wāhi o te pukupuku
- Vestibular Schwannoma: Kei roto i te io taringa tēnei, ka ngaro te rongo i te taringa kotahi.Tērā pea. Tērā pea ka pāngia koe e te tangi o te taringa (tinnitus), te whanoke, me te ngaro o te taurite.
- Io o te Kanohi: Mena ka puta he pukupuku ki tēnei rohe, ka uaua pea te horomi, ka uaua te neke i ngā kanohi, ka rerekē te reka, ka pararutiki rānei te kanohi.
- Te io Sciatic: Ki te puta he pukupuku ki te io matua e haere ana ki te waewae, ka pā te mamae mai i te tuara ki raro i te waewae, he rite ki te mamae tuara, ki te 'raruraru kōpae' rānei .
He aha i puta ai tēnei Schwannoma?
Ina hoki, e 90% o ēnei take ka puta noa i ētahi wā, kāore he take motuhake . Kāore anō kia kitea he take motuhake.
Heoi, he tokoiti noa iho pea he take ira. Hei tauira, ko te hunga whai mate ira pēnei i te Neurofibromatosis 2 (NF2), Schwannomatosis, Carney complex rānei, he nui ake te tūponotanga ka pāngia e ēnei pukupuku neke atu i te kotahi. Ko te hunga whai mate ira nei he hapa kei roto i ngā ira e whakahaere ana i te hanganga pukupuku i roto i ō rātou tinana.
Me pēhea te kitenga a te tākuta i tēnei?
Ina haere koe ki te tākuta me ngā tohumate, ka tirotirohia koe e rātou, ā, ki te whakapae rātou kei te pāngia koe e tēnei mate, ka tukuna koe kia whakamātauria ētahi whakamātautau whakaahua. I ētahi wā, ka kitea pea tēnei pukupuku i te wā o te matawai mō tētahi atu take.
Ko ngā whakamātautau matua e whakamahia ana mō tēnei ko:
- Matawai MRI (Atahanga Āhua-Mate): Koinei te whakamātautau pai rawa atu, mārama rawa atu hoki hei kite i te schwannoma. Ka whakamahia he papa aukume me ngā ngaru reo irirangi hei tango pikitia tino mārama o roto o te tinana. Ka taea e te MRI te āwhina ki te whakatau i te wāhi tika, te rahi, me te pānga ki ngā io tata.
- Matawai CT (Tomography Rorohiko): Ka whakamahia e tēnei he maha ngā hihi X-ray hei tango whakaahua whakawhiti-wāhanga o te tinana. Ahakoa kāore i te tino mārama pērā i te MRI, ka taea hoki e ia te āwhina i te tautuhi mate.
- Matawai Ultrasound: Ka whakamahia tēnei hei rapu i ngā mea pēnei i ngā pukupuku iti, inā koa i raro i te kiri.
- Kohikohi: I ētahi wā, ka whakatau pea te tākuta ki te tango i tētahi wahi iti o te puku ki te ngira ka tirotiro. Ka kiia tēnei he 'kohikohi'. Mā tēnei ka whakaū 100% mēnā he schwannoma tūturu, mēnā rānei he pūtau matepukupuku kei roto.
He aha ngā maimoatanga mō tēnei?
He maha ngā āhuatanga e whakawhirinaki ana ki te maimoatanga. Ka whakaarohia e tō tākuta ngā mea pēnei i te wāhi o te puku, tōna rahi, te tere o tōna tipu, me ō tohumate.
E toru ngā kōwhiringa maimoatanga matua.
1. Te Tirotiro (Te Tirotiro / "Te Mātaki me te Tatari")
Mena ehara te pukupuku i te mate pukupuku, he puhoi rawa te tipu, ā, kāore he tohu e pā ana ki a koe, ka mea pea tō tākuta, "Me tatari tātou kia kite." Ko te tikanga ka mahi ia i ngā mahi pēnei i te matawai MRI i ngā wā katoa kia kite ai mena kei te huri te rahi o te pukupuku. Mena ka tīmata te tipu o te pukupuku, mena rānei kei a koe ngā tohu, ka tīmata ia ki te rongoā.
2. Tango pokanga (Pokanga)
Mena kei te tere te tipu o te pukupuku, kei te pāngia rānei koe e ngā tohu, ka tūtohu pea tō tākuta kia pokangahia hei tango. Nā te mea ka tipu ēnei pukupuku i roto i te pūkahukahu huri noa i te io, i te nuinga o te wā ka taea te tango katoa i te pukupuku me te kore e kino te io . Heoi, i roto i ngā take pēnei i te 'vestibular schwannoma', tera pea ka ngaro te rongo i muri i te pokanga.
3. Te Whakaora Irahiko
Ko te stereotactic radiosurgery (SRS) tēnei. Kei roto i tēnei ko te whakamahi i te tini o ngā hihi irahiko tino tika te arotahi hei whakangaro i te pukupuku. He rite ki te pokanga, engari kāore he maripi e whakamahia ana. Ka tūtohu pea tō tākuta i tēnei maimoatanga mēnā kei roto te pukupuku i tētahi wāhi uaua, mōrearea rānei mō te pokanga (hei tauira, e tata ana ki ngā uaua toto nui, ki ngā io rānei).
Ko te mea nui ko te whiriwhiri a tō tākuta me tana tīma hauora i te maimoatanga e pai ana mōu. Nō reira, kōrero ki a rātou mō ō pātai, ō āwangawanga rānei.
Kei te pēhea te āhua i muri i te maimoatanga?
I te nuinga o te wā, he tino pai te āhua o te mate i muri i te maimoatanga. Ina koa mēnā ka tangohia katoatia te pukupuku, he tino iti te tūponotanga ka hoki mai anō.
Heoi, ko te nui o ngā raruraru ka puta i muri i te pokanga ka whakawhirinaki ki ngā āhuatanga e whai ake nei:
- Mena he nui te pukupuku
- Mena kei roto rawa te pukupuku i te tinana
- Mena kei te io ulnar te pukupuku, he io nui kei te ringa
Heoi, i te nuinga o te wā, he tino pai te matapae mō te schwannoma.
Kāore e taea te ārai i tēnei mea?
Engari, kāore he huarahi hei aukati i te whanaketanga o ngā schwannoma, nā te mea, e ai ki tā mātou i kōrero ai i mua ake nei, he maha ngā wā ka puta noa mai, kāore he take.
Heoi, ki te mōhio koe kei tētahi o tō whānau he mate ira pēnei i te neurofibromatosis 2 (NF2), he mea pai kia kōrero koe ki tō tākuta mō tēnei mea. Tērā pea ka taea e ia te tuku i a koe ki te whai i te tohutohu ira.
Karere Tangohia ki te Kāinga
- He pukupuku te schwannoma e puta mai ana i ngā pūtau Schwann e kapi ana i ngā io. Ko te nuinga o ēnei ehara i te matepukupuku (he pai) .
- Ka whakawhirinaki ngā tohu ki te wāhi o te puku. Tērā pea he puku, he ngau, he mamae, he ngoikore rānei te uaua. Ko te momo e tupu pinepine ana i te taha o te taringa ka pā ki te whakarongo me te taurite.
- Kāore e hiahiatia ana te maimoatanga i ngā wā katoa. Tērā ētahi kōwhiringa pēnei i te tirotiro i te pukupuku, te tango pokanga, te rongoā irahiko rānei.
- I te nuinga o te wā, he tino pai te putanga mai o te mate i muri i te maimoatanga.
- Ki te kite koe i tētahi puku hou i tō tinana, ki te mamae tonu rānei, ki tētahi wāhi rānei, kaua e warewaretia, engari me toro atu ki tō tākuta tonu . Kaua e mataku, kāore pea he mea nui, engari he mea nui kia tirohia koe.
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