Dokotala wanu akakuuzani inu kapena wokondedwa wanu kuti ali ndi cystic fibrosis (CF), mwina mumakhala ndi mafunso ambiri okhudza mankhwala omwe adzakupatsani. Popeza ndi vuto lovuta, ndikofunikira kudziwa bwino za mankhwala omwe adzakupatsani. Lero tikambirana za mankhwala amodzi otere. Ndi piritsi lophatikizana lotchedwa ORKAMBI, lomwe ndi kuphatikiza kwa mankhwala awiri otchedwa Lumacaftor ndi Ivacaftor.
Kodi mankhwala awa ndi amtundu wanji? Kodi kwenikweni amagwira ntchito yanji?
Mwachidule, cystic fibrosis (CF) ndi vuto lomwe limayamba chifukwa cha vuto la puloteni m'thupi lathu. Izi zimapangitsa kuti madzi m'mapapo ndi ziwalo zathu, makamaka ntchofu, zikhale zokhuthala komanso zomata. Taganizirani izi, nthawi zambiri ntchofu m'mapapo mwathu imakhala yothamanga pang'ono, kotero imatuluka mosavuta. Koma ntchofu mwa munthu yemwe ali ndi ntchofu imakhala yokhuthala, ngati guluu. Ntchentche yokhuthala iyi imamatira m'mapapo, zomwe zimapangitsa kuti munthu avutike kupuma, kukhosomola, komanso matenda opatsirana pafupipafupi.
Lumacaftor; Mankhwalawa otchedwa Ivacaftor amagwira ntchito popita ku puloteni yolakwika yomwe ndatchulayi ndikuikonza pang'ono. Zili ngati kukonza chipata chosweka. Puloteniyi ikayamba kugwira ntchito bwino, momwe mchere ndi madzi zimayendera m'maselo a thupi zimakhala bwino. Kenako mamina okhuthala, omata amakhala ochepa pang'ono ndipo amayamba kuchotsedwa mosavuta m'mapapo. Izi zitha kuletsa zizindikiro zambiri za CF.
Koma chinthu chimodzi choyenera kukumbukira ndi chakuti iyi si njira yothetsera matenda a cystic fibrosis (CF). Ndi njira yongothandiza kuchepetsa zizindikiro ndikupangitsa moyo kukhala wosavuta.
Zinthu zomwe muyenera kuuza dokotala wanu musanamwe mankhwala
Musanayambe kumwa mankhwalawa, ndikofunikira kwambiri kudziwitsa dokotala wanu za mbiri yanu yonse ya thanzi. Chifukwa matenda ena amafunika chisamaliro chapadera mukamagwiritsa ntchito mankhwalawa. Ngati muli ndi vuto lililonse mwa zotsatirazi, onetsetsani kuti mwadziwitsa dokotala wanu.
| Matenda kapena mwayi | N’chifukwa chiyani muyenera kuuza dokotala? |
|---|---|
| Matenda a chiwindi | Mankhwalawa angakhudze chiwindi. Ngati muli kale ndi vuto la chiwindi, mlingo wanu ungafunike kusinthidwa kapena mungafunike kuunikanso pafupipafupi. |
| Matenda a impso | Ndikofunikiranso kuda nkhawa ndi momwe impso zimagwirira ntchito. |
| Kuthamanga kwa magazi | Mankhwalawa angayambitse kukwera kwa kuthamanga kwa magazi, choncho ndikofunikira kudziwa zimenezo. |
| Ngati muli ndi pakati kapena mukufuna kutenga mimba | Muyenera kulankhula ndi dokotala wanu za chitetezo cha mankhwalawa panthawi ya mimba. |
| Ngati mwana akuyamwitsa | Kambiranani ndi dokotala wanu ngati mankhwalawo apita kwa mwana kudzera mu mkaka wa m'mawere ndi zotsatira zake. |
| Matenda a chifuwa cha mankhwala ena, zakudya, kapena utoto | Izi ndizofunikira kudziwa ngati muli ndi vuto la chifuwa cha mankhwalawa kapena chilichonse mwa zosakaniza zake. |
Kodi mumagwiritsa ntchito bwanji mankhwalawa?
Ichi ndi gawo lofunika kwambiri. Ngati simugwiritsa ntchito mankhwalawa moyenera, zotsatira zake zitha kuchepa.
- Imwani ndi chakudya chamafuta: Ili ndiye lamulo lofunika kwambiri . Kuti mankhwala awa alowe bwino m'thupi, ayenera kumwedwa ndi chakudya chamafuta. Mwachitsanzo, imwani ndi china chake monga mazira, batala, tchizi, mtedza, avocado. Ngati mupatsa mwana wamng'ono, mutha kumupatsa ndi mkaka wa m'mawere, mkaka wophikidwa kapena mkaka wothira mafuta monga yogurt, tchizi.
- Imwani monga momwe dokotala wanu wanenera: imwani mlingo woyenera, panthawi yoyenera. Pitirizani kugwiritsa ntchito mpaka dokotala wanu atakuuzani kuti musiye.
- Musamwe ndi madzi a mphesa: Pewani kumwa madzi a mphesa kapena mphesa mukamamwa mankhwalawa.
- Akapatsidwa ana: Mankhwalawa akhoza kuperekedwa kwa ana azaka zopitirira 6. Komabe, dokotala wanu adzakupatsani malangizo apadera okhudza izi.
Nanga bwanji ngati nditamwa mankhwala ochulukirapo?
Ngati mukuganiza kuti mwamwa mankhwala opitirira mlingo womwe mwapatsidwa, imbani nthawi yomweyo ku National Poisons Information Centre ku Colombo National Hospital, kapena pitani ku Emergency Department (ETU) ya chipatala chapafupi.
Nanga bwanji ngati nditaiwala mlingo?
Ngati mwaiwala kumwa mlingo, imwani mwamsanga mukangokumbukira. Komabe, ngati patatha maola osakwana 6 kuti mutenge mlingo wotsatira, musamwe mlingo womwe mwaphonya. Dumphani ndi kumwa mlingo wotsatira panthawi yomwe mwakonza. Musamwe mlingo iwiri nthawi imodzi.
Mankhwala ena omwe angagwirizane ndi mankhwalawa
Ichi ndi chinthu choyenera kusamala nacho kwambiri. ORKAMBI imatha kuyanjana ndi mankhwala ena ambiri. Izi zikutanthauza kuti kumwa mankhwalawa pamodzi ndi mankhwala ena kungasinthe zotsatira za ORKAMBI, kusintha zotsatira za mankhwala ena, kapena kuyambitsa zotsatira zoyipa kwambiri.
Choncho, muyenera kuuza dokotala wanu za mankhwala onse omwe mukumwa (mankhwala a matenda ena, mavitamini, mankhwala azitsamba, mankhwala a Ayurvedic, ndi zina zowonjezera zakudya).
Pansipa pali mankhwala ochepa chabe omwe angagwirizane ndi mankhwalawa. Mndandanda uwu sunathe.
| Musamwe mankhwalawa pamodzi ndi mankhwala ena aliwonse. | |
|---|---|
| Artemether, lumefantrine | Ranolazine |
| Lurasidone | Mankhwala ena operekedwa kwa kachilombo ka HIV ndi Hepatitis C |
| Chonde dziwitsani dokotala wanu chifukwa izi zingakhudze mankhwala anu. | |
| Maantibayotiki ena (monga Clarithromycin, Erythromycin) | Mankhwala oletsa bowa (monga Fluconazole, Ketoconazole) |
| Mankhwala a khunyu (kukomoka) (monga Carbamazepine, Phenytoin) | Mankhwala ochizira kuvutika maganizo kapena nkhawa |
| Mankhwala oletsa chitetezo chamthupi (monga Cyclosporine, Tacrolimus) | Mitundu ya ma steroid (monga Prednisone) |
| Mapiritsi oletsa kubereka (mahomoni a Estrogen/Progestin) | Warfarin (mankhwala ochepetsa magazi) |
| Mankhwala ochepetsa ululu monga ibuprofen | Wort wa St. John (mankhwala azitsamba) |
Zinthu zina zofunika kuziganizira mukamamwa mankhwala
- Kuyezetsa magazi nthawi zonse: Dokotala wanu adzakuuzani kuti mubwere ku chipatala nthawi zonse. Pitani nthawi yoyenera ndipo mukayeze magazi. Ngati zizindikiro zanu sizikutha, muuzeni za vutoli.
- Samalani maso anu: Mankhwalawa ali ndi chiopsezo chochepa choyambitsa matenda a maso, makamaka kwa ana. Chifukwa chake, muyenera kuyang'aniridwa maso anu ndi dokotala wa maso nthawi ndi nthawi mukamamwa mankhwalawo. Ngati muwona kusintha kulikonse m'maso mwanu, uzani dokotala wanu nthawi yomweyo.
- Samalani ndi njira zolerera: Izi ndizofunikira kwambiri ngati mukugwiritsa ntchito mapiritsi olerera a mahomoni. ORKAMBI ingapangitse kuti asamagwire bwino ntchito. Chifukwa chake, onetsetsani kuti mwalankhula ndi dokotala wanu za kugwiritsa ntchito njira ina yolerera, monga kondomu kapena diaphragm .
Zotsatirapo zomwe zingachitike chifukwa cha mankhwala
Monga mankhwala ena aliwonse, mankhwalawa angayambitse mavuto ena mwa anthu ena. Ena ndi oopsa, ena ndi ofatsa.
| Zotsatirapo zoyipa zomwe ziyenera kufotokozedwa kwa dokotala nthawi yomweyo | |
|---|---|
| Matenda a ziwengo | Kutupa pakhungu, kuyabwa, kutupa kwa nkhope, milomo, lilime kapena pakhosi. |
| Kuvuta kupuma kapena kupweteka pachifuwa | Ngati mukuvutika kupuma kapena mukumva chifuwa chanu chikulimba. |
| Zizindikiro za kuwonongeka kwa chiwindi | Kupweteka kumtunda kwa kumanja kwa m'mimba, kusowa chilakolako cha chakudya, nseru, ndowe zowala, mkodzo wakuda wachikasu kapena bulauni, maso kapena khungu kukhala lachikasu, komanso kutopa kwambiri. |
| Kuthamanga kwa magazi kowonjezeka | Dokotala adzafufuza izi. |
| Kusintha kwa masomphenya | Ngati maso anu akuwoneka osawoneka bwino. |
| Zotsatirapo zomwe nthawi zambiri sizimakhala zachangu, koma ziyenera kufotokozedwa kwa dokotala ngati zikupitirira | |
| Kuwawa kwam'mimba | Gasi |
| Kutsegula m'mimba | Kusanza |
| Mutu | Kutopa |
| Kusamba kosakhazikika kwa akazi | |
Kodi mumasunga ndi kutaya bwanji mankhwalawo?
- Kusunga: Sungani mapiritsi pamalo omwe ana ndi ziweto sangafikire . Sungani kutentha kwa chipinda (pakati pa madigiri 20-25 Celsius). Musagwiritse ntchito mankhwala otha ntchito.
- Kutaya: Njira yabwino yotayira mankhwala omwe atha ntchito kapena omwe sakufunikanso ndikutenga mapiritsiwo m'chidebecho, kuwasakaniza ndi zinthu monga khofi wogwiritsidwa ntchito kale, dothi, kapena zinyalala za amphaka, kuwayika m'thumba lotsekedwa bwino, ndikutaya m'zinyalala. Musatulutse mankhwala kuchimbudzi pokhapokha ngati dokotala wanu wakuuzani.
Uthenga Wopita Nawo Kunyumba
- Nthawi zonse imwani ORKAMBI (Lumacaftor; Ivacaftor) pamodzi ndi chakudya chamafuta monga batala, tchizi, kapena mazira.
- Mankhwalawa ndi a inu nokha. Musagawane ndi wina aliyense.
- Uzani dokotala wanu za mankhwala ena onse, mavitamini, ndi mankhwala azitsamba omwe mukumwa.
- Fufuzani thandizo lachipatala mwamsanga ngati mukukumana ndi mavuto aakulu monga kusintha kwa masomphenya, kuvutika kupuma, kapena kupweteka kumtunda kwa kumanja kwa m'mimba mwanu.
- Sungani masiku ndi mayeso anu a kuchipatala omwe mwakonzekera ndi dokotala wanu.
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