Dokotala wanu akakupatsani mankhwala otchedwa Nitisinone kwa inu kapena mwana wanu, ndi zachilendo kumva mantha pang'ono komanso mantha. Izi zili choncho chifukwa si mankhwala omwe amagwiritsidwa ntchito kwambiri. Koma musadandaule. Munkhaniyi, tikambirana za mankhwalawa m'njira yosavuta yomwe mungamvetse. Monga momwe mnzanu angakufotokozereni.
Kodi mankhwala awa otchedwa Nitisinone ndi chiyani?
Mwachidule, Nitisinone ndi mankhwala omwe amachepetsa kusweka kwa amino acid tyrosine m'thupi lathu. Amagwiritsidwa ntchito makamaka pochiza matenda osowa kwambiri, a majini otchedwa hereditary tyrosinemia type I.
Tangoganizirani, munthu amene ali ndi vutoli sangathe kugaya bwino kapena kuswa tyrosine. Kenako imatha kusonkhana m'thupi ndikuwononga ziwalo monga chiwindi ndi impso. Mankhwala a Nitisinone amaletsa kusonkhanitsa koopsako. Mankhwalawa amabweranso pansi pa dzina lodziwika bwino la Orfadin.
Kodi ndiyenera kumuuza chiyani dokotala ndisanayambe kugwiritsa ntchito mankhwalawa?
Dokotala wanu asanakupatseni mankhwala awa, ndikofunikira kudziwa mbiri yonse ya thanzi lanu. Chifukwa chake, onetsetsani kuti mwamuuza izi:
- Tiuzeni ngati muli ndi vuto la ziwengo chifukwa cha Nitisinone kapena mankhwala ena aliwonse, chakudya, kapena utoto .
- Ngati muli ndi pakati, kapena mukuyembekezera mwana posachedwa, nenani zimenezo.
- Ngati ndinu mayi woyamwitsa, tiuzeninso za izi.
Kutengera ndi izi, dokotala wanu adzasankha ngati mankhwalawa ndi oyenera kwa inu kapena ngati mlingo wake uyenera kusinthidwa.
Kodi mumagwiritsa ntchito bwanji mankhwalawa molondola?
Kuti mupindule kwambiri ndi mankhwala, ndikofunikira kuwagwiritsa ntchito moyenera.
- Imwani mankhwalawa ndi kapu ya madzi.
- Chofunika kwambiri ndikumwa mankhwalawa osachepera ola limodzi musanadye. Musamwe pamodzi ndi chakudya. Izi zili choncho chifukwa kumwa pamodzi ndi chakudya kumachepetsa kuyamwa kwa mankhwalawa m'thupi.
- Ngati mukupereka kwa ana aang'ono, mutha kutsegula kapisolo mosamala, kusungunula ufa wa mankhwalawo mu madzi pang'ono, formula, kapena applesauce, ndikuwapatsa ndi supuni. Komabe, muyenera kuwapatsa nthawi yomweyo mutatha kusungunula, ndipo si bwino kusunga.
- Imwani mlingo woyenera monga momwe dokotala wanu wanenera. Musamwe mankhwala opitirira muyeso womwe mwauzidwa pazifukwa zilizonse.
- Musasiye kumwa mankhwala mwadzidzidzi popanda upangiri wa dokotala.
Mankhwalawa ndi a inu nokha. Musagawane ndi wina aliyense pazifukwa zilizonse.
Akapatsidwa ana aang'ono
Mankhwalawa amaperekedwanso kwa makanda obadwa kumene pazifukwa zinazake. Komabe, chonde kambiranani izi ndi dokotala wanu wa ana ndipo tsatirani malangizo ake mosamala.
Nanga bwanji ngati nditamwa mankhwala ochulukirapo?
Ngati mukuganiza kuti mwamwa mankhwala ochulukirapo kuposa omwe mwapatsidwa, imbani nthawi yomweyo ku National Poisons Information Centre ku Colombo National Hospital, kapena pitani ku Emergency Treatment Unit (ETU) ya chipatala chapafupi.
Kodi mumatani ngati mwaphonya nthawi yokumana ndi dokotala?
Imwani mlingo womwe mwaphonya nthawi yomweyo mukakumbukira. Komabe, ngati nthawi yatsala pang'ono yoti mutenge mlingo wotsatira, thawani mlingo womwe mwaphonya ndi kumwa mlingo wotsatira panthawi yomwe mwakonza. Musamwe mlingo wowirikiza kawiri kuti mubwezeretse mlingo womwe mwaiwala.
Zinthu zoyenera kusamala nazo mukamagwiritsa ntchito mankhwalawa
Pali zinthu zingapo zofunika zomwe muyenera kuziganizira mukamamwa mankhwalawa.
1. Kupita kuchipatala nthawi zonse: Pitani kwa dokotala wanu nthawi yake. Mungafunike kuchita kafukufuku wofunikira wa magazi kuti muwone momwe mankhwalawo akugwirira ntchito m'thupi lanu. Musawasiye.
2. Zakudya Zapadera: Ichi ndi chinthu chofunikira kwambiri komanso chofunikira. Mukamamwa mankhwalawa, muyenera kuchepetsa zakudya zomwe zili ndi amino acid monga tyrosine ndi phenylalanine . Dokotala wanu komanso katswiri wazakudya adzakupatsani mndandanda womveka bwino wa zakudya zomwe muyenera kudya ndi zomwe simuyenera kudya. Kutsatira kwambiri zakudya izi ndikofunikira kuti chithandizo chipambane.
Kodi zotsatirapo zake zingakhale zotani chifukwa cha mankhwalawa?
Monga mankhwala ena aliwonse, Nitisinone ingayambitse zotsatirapo zoyipa. Ngakhale kuti si aliyense amene amalandira, ndikofunikira kudziwa za izo.
| Kugawa zotsatira zoyipa | |
|---|---|
| Zotsatirapo zoyipa zomwe muyenera kuuza dokotala wanu nthawi yomweyo | |
| Matenda a ziwengo | Kutupa pakhungu, kuyabwa, kutupa kwa nkhope, milomo kapena lilime. |
| Mavuto a maso | Kusintha kwa masomphenya, kupweteka kwa maso, kufiira, komanso kumva kuwala. |
| Mavuto a chiwindi | Mkodzo wakuda, ndowe zotumbululuka, kupweteka kumtunda kwa kumanja kwa m'mimba, maso kapena khungu kukhala lachikasu (monga jaundice). |
| Zizindikiro zodziwika bwino | Kusowa chilakolako cha chakudya, nseru, malungo, ndi kutopa. |
| Zizindikiro zina zazikulu | Kutuluka magazi kapena kuvulala kosazolowereka, ziphuphu zopweteka m'manja ndi pansi pa mapazi. |
| Zotsatirapo zomwe nthawi zambiri sizili zoopsa, koma ziyenera kufotokozedwa kwa dokotala ngati zikupitirira | |
| Kusasangalala m'mimba | Kutsegula m'mimba (kudzimbidwa). |
| Kusintha kwa khungu ndi tsitsi | Khungu louma, tsitsi lotayika. |
Ngati muwona chinthu chachilendo chomwe sichili pamndandandawu, lankhulani ndi dokotala wanu za icho.
Kodi mumasunga bwanji mankhwala kukhala otetezeka?
Kuti mankhwala awa akhale abwino, ndikofunikira kwambiri kuwasunga bwino.
- Onetsetsani kuti mwasunga mufiriji. Iyenera kusungidwa kutentha kwa madigiri 2 mpaka 8 Celsius (36 ndi 46 Fahrenheit).
- Musasunge mufiriji pazifukwa zilizonse. Musalole kuti mankhwalawo azizizira.
- Musachisiye pamalo pomwe ana angachigwire.
- Tayani mankhwala otha ntchito.
Tsamba lazidziwitso ili ndi chidule chabe. Ngati muli ndi mafunso ena, chonde musazengereze kufunsa dokotala wanu.
Uthenga Wopita Nawo Kunyumba
- Nitisinone ndi mankhwala apadera omwe amaperekedwa pochiza matenda osowa kwambiri a majini otchedwa hereditary tyrosinemia type I.
- Mankhwalawa ayenera kumwedwa ola limodzi musanadye . Musamwe pamodzi ndi chakudya.
- Musasiye kumwa mankhwala mwadzidzidzi popanda upangiri wa dokotala.
- Zakudya zapadera ndizofunikira kwambiri panthawi ya chithandizochi. Tsatirani malangizo omwe dokotala ndi katswiri wa zakudya wapereka.
- Ngati mukukumana ndi mavuto aakulu monga kupweteka kwa maso, khungu kukhala lachikasu, kapena kutuluka magazi kosazolowereka , dziwitsani dokotala wanu nthawi yomweyo.
- Sungani mankhwalawo mosamala mufiriji , pamalo omwe ana sangafikire.
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