Dokotala wanu akakupatsani mankhwala a Nitisinone kwa inu kapena mwana wanu wokondedwa, ndi zachilendo kukhala ndi mafunso ambiri. Izi zili choncho chifukwa si mankhwala a matenda wamba omwe aliyense amakumana nawo. Kotero lero, tiyeni tikambirane za mankhwala otchedwa Nitisinone, zomwe amachitadi, momwe angagwiritsire ntchito, komanso njira zodzitetezera zomwe muyenera kutsatira, zonse m'njira yosavuta yomwe mungamvetse.
Kodi mankhwala awa ndi amtundu wanji? Kodi chimachitika ndi chiyani ndi Nitisinone?
Mwachidule, Nitisinone ndi mankhwala omwe amachepetsa liwiro ndikuwongolera liwiro lomwe thupi lathu limaphwanya amino acid yotchedwa tyrosine. Taganizirani za tyrosine ngati chomangira chomwe chimagwiritsidwa ntchito popanga mapuloteni m'matupi athu.
Mankhwalawa amagwiritsidwa ntchito makamaka pochiza matenda osowa kwambiri, obadwa nawo otchedwa Hereditary Tyrosinemia Type I. Kwa anthu omwe ali ndi vutoli, thupi silingathe kuwononga bwino (kugaya) tyrosine. Kenako imasonkhana m'thupi ndikusintha kukhala zinthu zapoizoni zomwe zingawononge chiwindi, impso, ndi dongosolo lamanjenje. Chifukwa chake chomwe Nitisinone imachita ndikuletsa zinthu zovulaza kuti zisapangidwe.
Zinthu zomwe muyenera kuuza dokotala wanu musanayambe kumwa mankhwala
Musanayambe kumwa mankhwalawa, muyenera kufotokozera dokotala wanu momveka bwino zinthu izi. Izi ndizofunikira kwambiri pa chitetezo chanu.
- Ngati muli ndi vuto la ziwengo chifukwa cha Nitisinone kapena mankhwala ena aliwonse, chakudya, kapena utoto.
- Ngati muli ndi pakati kapena mukufuna kutenga mimba.
- Ngati ndinu mayi woyamwitsa.
Kodi ndiyenera kugwiritsa ntchito bwanji mankhwalawa?
Ndikofunikira kwambiri kumwa mankhwala monga momwe dokotala wanenera, mu mlingo wake weniweni.
- Momwe Mungamwere: Nthawi zina mutha kusungunula piritsilo m'madzi pang'ono ndikupatsa mwana wanu pogwiritsa ntchito sirinji yakumwa. Kapena, mutha kuphwanya piritsilo ndikusakaniza pang'ono ndi china chake monga applesauce ndikupatsa mwana wanu. Komabe, zivute zitani, muyenera kugwiritsa ntchito mankhwalawa nthawi yomweyo mukangopanga.
- Pa nthawi yake: Khalani ndi chizolowezi chomwa mankhwala anu nthawi yomweyo tsiku lililonse. Musamwe pafupipafupi kuposa momwe dokotala wanu wanenera.
- Musasiye kumwa mankhwalawa mwadzidzidzi: Musasiye kumwa mankhwalawa popanda upangiri wa dokotala. Kuchita zimenezi kungapangitse kuti vuto lanu likhale loipa kwambiri.
Kodi mankhwalawa angaperekedwe kwa ana aang'ono?
Inde, mankhwalawa akhoza kuperekedwa ngakhale kwa mwana wakhanda amene ali ndi vutoli. Koma ayenera kuperekedwa moyang'aniridwa ndi dokotala wa ana. Pali zinthu zina zofunika kuziganizira popereka mankhwalawa kwa ana.
Chofunika kudziwa: Mankhwalawa aperekedwa kwa inu nokha. Musagawane ndi wina aliyense pazifukwa zilizonse.
Mfundo zapadera zoganizira mukamamwa mankhwala
Pali zinthu ziwiri zofunika kwambiri zomwe muyenera kuziganizira mukamamwa mankhwalawa.
1. Mayeso ndi mayeso okonzedwa
Ndikofunikira kupita kuchipatala kukayezetsa monga momwe dokotala wanu wanenera. Mukamamwa mankhwalawa, muyenera kuyezetsa magazi nthawi zonse kuti muwone kuchuluka kwa magazi anu komanso momwe chiwindi chanu chikugwira ntchito. Musadumphe mayesowa.
2. Zakudya Zapadera
Ichi ndiye chinthu chofunikira kwambiri . Kutsatira zakudya zapadera ndikofunikira monga, kapena kuposa, kumwa mankhwala awa.
Muyenera kutsatira zakudya zapadera mukamamwa mankhwalawa. Muyenera kuchepetsa kuchuluka kwa amino acid otchedwa Tyrosine ndi Phenylalanine muzakudya zanu. Lankhulani ndi dokotala wanu za izi, komanso ngati pakufunika, katswiri wazakudya ku chipatala cha boma, ndipo tsatirani malangizo awo mosamala. Ngati simutsatira zakudya izi moyenera, simudzapindula mokwanira ndi mankhwalawa.
Kodi zotsatirapo zake zingakhale zotani chifukwa cha mankhwalawa?
Monga mankhwala ena aliwonse, Nitisinone ingayambitse zotsatira zina zoyipa. Tiyeni tigawane izi m'magulu awiri.
| Zotsatirapo zoyipa zomwe ziyenera kufotokozedwa kwa dokotala nthawi yomweyo | |
|---|---|
| Zizindikiro za ziwengo | Kutupa pakhungu, kuyabwa, kutupa kwa nkhope, milomo, kapena lilime. |
| Kusintha kwa maso | Kusintha kwa masomphenya, kufiira kwa maso, kupweteka kwa maso, komanso kukhudzidwa ndi kuwala. |
| Mavuto a chiwindi | Maso kapena khungu kukhala lachikasu, mkodzo wakuda, ndowe zochedwa, kupweteka kumtunda kwa mimba. |
| Zizindikiro zina zazikulu | Kutupa kapena kutuluka magazi kosazolowereka, kutopa kwambiri, kumva kutentha thupi, kusowa chilakolako cha chakudya, nseru, ndi ziphuphu zopweteka m'manja ndi m'mapazi. |
| Zotsatirapo zomwe nthawi zambiri sizili zoopsa, koma ziyenera kufotokozedwa kwa dokotala ngati zikupitirira | |
|---|---|
| Kutsegula m'mimba | Kutupa m'mimba |
| Khungu louma | Khungu louma |
| Kutaya tsitsi | Kutaya tsitsi |
Mndandandawu suli ndi zotsatirapo zonse zomwe zingachitike. Ngati muwona china chilichonse chachilendo, lankhulani ndi dokotala wanu.
Kodi mungachite chiyani ngati mwaphonya mlingo ndipo mwamwa mowa wambiri?
Nanga bwanji ngati ndaphonya mlingo wa mankhwala?
Ngati mwaiwala kumwa mlingo, imwani mwamsanga mukangokumbukira. Koma ngati nthawi yanu yotsatira yayandikira, thawani mlingo womwe mwaphonya ndi kumwa mlingo wotsatira panthawi yomwe mwakonza. Musamwe mlingo wowirikiza kawiri kuti mubwezeretse mlingo womwe mwaiwala.
Nanga bwanji ngati nditamwa mankhwala ochulukirapo?
Ngati mukuganiza kuti mwamwa mankhwala ochulukirapo, imbani National Poisons Information Centre ku Colombo National Hospital nthawi yomweyo . Kapena, pitani ku chipatala chapafupi cha Emergency Unit (ETU) mwachangu momwe mungathere.
Kodi ndiyenera kusunga bwanji mankhwalawo?
- Sungani pamalo omwe ana sangafikire .
- Sungani kutentha kwa chipinda (pakati pa madigiri 20 ndi 25 Celsius).
- Tayani mankhwala otha ntchito.
Uthenga Wopita Nawo Kunyumba
- Nitisinone ndi mankhwala apadera omwe ayenera kumwedwa monga momwe dokotala wanenera komanso mu mlingo wovomerezeka.
- Kuwonjezera pa kumwa mankhwalawa, ndikofunikiranso kutsatira zakudya zapadera (zochepa mu tyrosine ndi phenylalanine) .
- Musasiye kumwa mankhwala popanda upangiri wa dokotala.
- Pitani kuzipatala pa masiku omwe akonzedwa ndipo mukayeze magazi onse ofunikira.
- Ngati muwona zotsatirapo zoyipa zilizonse, monga chikasu cha maso kapena mabala osazolowereka, dziwitsani dokotala wanu nthawi yomweyo.
- Sungani mankhwala pamalo otetezeka omwe ana sangawafikire.
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