Kodi inuyo kapena munthu amene mumamudziwa ali ndi vuto la magazi lotchedwa Paroxysmal Nocturnal Hemoglobinuria , kapena mwachidule PNH ? Zingamveke zovuta, koma mwachidule, ndi vuto lomwe maselo ofiira a magazi m'thupi lathu amawonongeka msanga. Izi zingayambitse mavuto angapo, kuphatikizapo kuchepa kwa magazi m'thupi, kutopa, ndi magazi kuundana. Lero tikambirana za katemera wotchedwa Pegcetacoplan (wotchulidwa: peg-seta-co-plan) womwe wabweretsa chiyembekezo chatsopano kwa anthu ambiri omwe ali ndi vutoli.
Kodi Pegcetacoplan ndi chiyani? Imagwira ntchito bwanji?
Taganizirani maselo ofiira athu ngati magalimoto ang'onoang'ono omwe amanyamula mpweya m'thupi lonse. Mwa munthu amene ali ndi PNH, chitetezo cha mthupi (gulu lankhondo lomwe limatiteteza ku matenda) molakwika chimaganiza kuti maselo ofiira awa ndi mdani ndipo chimawaukira ndi kuwawononga. Izi zimachitika chifukwa cha vuto la gawo la chitetezo cha mthupi lotchedwa Complement system .
Apa ndi pomwe mankhwala otchedwa Pegcetacoplan amabwera. Katemerayu ali ngati chitetezo chanzeru. Amagwira ntchito poletsa gawo la chitetezo cha mthupi lomwe limaukira ndikuteteza maselo ofiira athu molakwika. Izi zimawongolera kuwonongeka kwa maselo ofiira amagazi ndipo zimachepetsa kwambiri zizindikiro za PNH.
Mwachidule, Pegcetacoplan ndi mankhwala omwe amagwira ntchito ngati chishango chomwe chimateteza maselo ofiira a magazi anu.
Zinthu zomwe muyenera kuuza dokotala wanu musanagwiritse ntchito mankhwalawa
Popeza mankhwalawa ndi ofunikira kwambiri, ndikofunikira kukambirana zinthu zina momasuka ndi dokotala wanu musanayambe kulandira chithandizo. Kuti mukhale otetezeka, musabise zinthuzi.
- Kodi muli ndi matenda aliwonse pakadali pano? Uzani dokotala wanu za matenda aliwonse, monga malungo, chimfine, chifuwa, kapena zilonda za pakhosi.
- Kodi muli ndi vuto lina lililonse la ziwengo? Osati mankhwala awa okha, komanso mankhwala ena aliwonse, chakudya, kapena zosungira, chonde tidziwitseni za iwo.
- Kodi muli ndi pakati? Kapena mukukonzekera kutenga pakati? Ndikofunikira kufunafuna upangiri wa dokotala musanasankhe kugwiritsa ntchito mankhwalawa panthawi ya mimba.
- Kodi ndinu mayi woyamwitsa? Muyeneranso kulankhula ndi dokotala wanu za kugwiritsa ntchito mankhwalawa mukamayamwitsa.
Kodi mankhwalawa angagwiritsidwe ntchito bwanji?
Pegcetacoplan ndi jakisoni yomwe mungadzipatse nokha kunyumba. Ndi jakisoni wopangidwa pansi pa khungu . Poyamba zingawoneke zoopsa pang'ono, koma musadandaule.
Kawirikawiri, dokotala wanu kapena namwino wophunzitsidwa bwino adzakuwonetsani momveka bwino momwe mungachitire katemerayu moyenera.
- Momwe mungakonzekerere botolo la mankhwala.
- Kuchuluka koyenera kwa mankhwala oti mutenge mu syringe.
- Malo oyenera obayira jakisoni (nthawi zambiri m'mimba, m'chiuno).
- Momwe mungayeretsere khungu.
Adzakuthandizani kuzolowera zonsezi. Zotsatira zabwino zimapezeka mwa kulandira katemera monga momwe dokotala wanenera, pa masiku okonzedweratu, komanso pafupifupi nthawi yomweyo .
Kutaya singano ndi ma syringe mosamala
Izi ndizofunikira kwambiri. Musataye singano ndi ma syringe ogwiritsidwa ntchito kale m'zinyalala wamba. Ndi zoopsa kwambiri kwa inu, banja lanu, komanso chilengedwe.
Pali chidebe chapadera cha sharps chomwe chapangidwira cholinga ichi. Mutha kufunsa dokotala wanu kapena ku pharmacy komwe mumapeza mankhwala anu. Afunseni momwe angatayire chidebecho mosamala chikadzaza.
Zinthu zoyenera kusamala nazo mukamagwiritsa ntchito mankhwalawa
Muyenera kusamalira thanzi lanu pang'ono mukamamwa mankhwalawa.
- Kupimidwa nthawi zonse ndi dokotala: Dokotala wanu nthawi zambiri amakupemphani kuti mupimidwe magazi. Onetsetsani kuti mwachita izi kuti muwone momwe chithandizocho chikugwirira ntchito. Onetsetsani kuti mwapita kukaonana ndi dokotala wanu.
- Dzitetezeni ku matenda: Popeza mankhwalawa amaletsa kugwira ntchito kwa gawo la chitetezo chamthupi, chiopsezo chotenga matenda ena chikhoza kuwonjezeka pang'ono. Chifukwa chake, ngati mukumva zizindikiro monga malungo, kuzizira, kupweteka pakhosi, chifuwa, mabala osachira, kapena kupweteka mukamakodza , musadzipatse mankhwala ndipo imbani dokotala nthawi yomweyo . Chepetsani kupita kwanu kumalo komwe anthu akudwala.
Zotsatirapo zomwe zingakhalepo chifukwa cha mankhwalawa
Monga mankhwala ena aliwonse, Pegcetacoplan ingayambitse zotsatira zina zoyipa. Zina mwa izi ziyenera kunenedwa nthawi yomweyo, pomwe zina sizowopsa kwenikweni.
| Mtundu wa zotsatira zoyipa | Zizindikiro |
|---|---|
| Zinthu zoti muuze dokotala wanu nthawi yomweyo | |
| Matenda a ziwengo | Kutupa pakhungu, kuyabwa, kutupa kwa nkhope, milomo, lilime kapena pakhosi, komanso kuvutika kupuma. |
| Zizindikiro za Matenda | Malungo, kuzizira, chifuwa, kupweteka pakhosi, mabala osachiritsa, matenda opatsirana m'mitsempha ya mkodzo, ndi kufooka kwa thupi. |
| Zinthu zomwe nthawi zambiri sizili zazikulu, koma ziyenera kufotokozedwa kwa dokotala ngati zikupitirira | |
| Kusamva bwino pamalo obayira jakisoni | Ululu, kufiira, kapena kutupa pang'ono pamalo omwe jakisoniyo adabayidwa. |
| Zovuta zina zazing'ono | Kutsegula m'mimba, kutopa, kupweteka m'mimba. |
Nanga bwanji ngati ndaphonya mlingo wa mankhwala?
Ngati mwaphonya mlingo, imwani mwamsanga mukangokumbukira. Komabe, ngati nthawi yatsala pang'ono yoti mutenge mlingo wotsatira, thawani mlingo womwe mwaphonya ndikumwa mlingo wotsatira panthawi yomwe mwakonza. Musamwe milingo iwiri nthawi imodzi.
Nanga bwanji ngati nditamwa mankhwala ochulukirapo?
Ngati mukuganiza kuti mwamwa mankhwala ochulukirapo mwangozi, nthawi yomweyo muyenera kupita ku Dipatimenti Yoona za Zadzidzidzi (ETU) yapafupi kapena kuyimbira foni ku National Poisons Information Centre ku Colombo National Hospital .
Kodi mankhwalawo angasungidwe bwanji?
- Sungani mankhwalawa mufiriji . Musasunge mufiriji/mufiriji.
- Tulutsani katemera mufiriji pafupifupi mphindi 30 musanapereke ndipo mulole kuti afike kutentha kwa chipinda.
- Ndi bwino kuisunga m'bokosi loyambirira lomwe idabwera, kuti itetezedwe ku kuwala.
- Sungani pamalo omwe ana ndi ziweto sangafikire.
- Musagwiritse ntchito mankhwala omwe atha ntchito.
Mankhwalawa ndi a inu nokha. Dokotala wanu adakupatsani, choncho musawagawire ndi wina aliyense.
Uthenga Wopita Nawo Kunyumba
- Pegcetacoplan ndi jakisoni woperekedwa pansi pa khungu womwe umaletsa kuwonongeka kwa maselo ofiira a magazi mu matenda osowa magazi otchedwa PNH.
- Musanayambe kumwa mankhwalawa, uzani dokotala wanu za matenda anu onse komanso ziwengo.
- Ndikofunikira kwambiri kumwa mankhwala panthawi yoyenera komanso mu mlingo woyenera.
- Ngati mukupeza zizindikiro za matenda monga kutentha thupi ndi chifuwa, funsani upangiri wa dokotala nthawi yomweyo.
- Musataye singano ndi ma syringe ogwiritsidwa ntchito kale m'zinyalala. Gwiritsani ntchito chidebe chapadera (Sharps Container) pa izi.
- Ngati muli ndi mafunso okhudza mankhwalawa, musazengereze kufunsa dokotala wanu.
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