Kodi mwana wanu nthawi zambiri amadwala malungo popanda chifukwa? Tiyeni tikambirane za matenda a SAID (Systemic Autoinflammatory Diseases)

Kodi mwana wanu amangodwala malungo nthawi zonse? Kodi amachira atatha kutentha kwa masiku angapo, kenako n’kudwalanso malungo patatha masiku angapo? Mwina mukudabwa chifukwa chake izi zimachitika popanda kachilombo kapena matenda a bakiteriya. Izi zitha kukhala chifukwa cha matenda osowa otchedwa SAIDs (Systemic Autoinflammatory Diseases) , omwe anthu ambiri sanamvepo. Musadandaule, tiyeni tikambirane za izi mwachidule ndikumvetsetsa chilichonse.

Kodi ma SAID ndi chiyani? Tiyeni timvetse mosavuta.

Mwachidule, ma SAID ndi gulu la matenda omwe amayambitsa malungo obwerezabwereza popanda matenda aliwonse (monga mavairasi kapena mabakiteriya). Choyambitsa izi ndi kulephera kwa chitetezo chamthupi cha mwana wathu. Izi kale zinkatchedwa 'Periodic Fever Syndromes'.

Tsopano mwina mukudabwa, kodi iyi ndi matenda a 'autoimmune'? Nthawi zambiri timamva za matenda a autoimmune monga Rheumatoid Arthritis kapena Lupus. Ayi, izi ndi zosiyana.

Tangoganizani kuti tili ndi gulu lankhondo loteteza thupi lathu, lomwe ndi chitetezo chathu chamthupi. Gulu lankhondoli lili ndi zigawo ziwiri zazikulu:

1. Chitetezo cha Mthupi Chobadwa Nacho: Ili ndi gulu lankhondo lomwe timabadwa nalo, ndipo ndi loyamba kuukira kachilombo kalikonse.

2. Chitetezo cha Mthupi Chosinthika: Ili ndi gulu lankhondo lomwe laphunzitsidwa mwapadera kuti lithane ndi majeremusi osiyanasiyana pamene tikukula.

Mu SAIDs, vuto limakhala ndi chitetezo chamthupi chobadwa nacho. Chitetezo chamthupicho chimasokonezeka ndipo chimayambitsa nkhondo m'thupi popanda mdani aliyense. Zotsatira za nkhondoyi ndi kutupa m'thupi ndi malungo.

Koma m'matenda a autoimmune omwe tidakambirana, vuto lili ndi gulu lankhondo lotha kusintha lomwe limaphunzitsidwa pambuyo pake. Gulu lankhondo limenelo silingathe kuzindikira maselo abwino m'thupi lake ndipo limayamba kuwaukira.

Matenda a SAID ndi osowa kwambiri kuposa matenda a autoimmune. Nthawi zambiri amayamba chifukwa cha majini , zomwe zikutanthauza kuti amabadwa nawo. Zizindikirozi nthawi zambiri zimayamba mwana ali wamng'ono kwambiri , monga ali mwana kapena ali mwana. Mwadzidzidzi mwana amakhala ndi nthawi kapena matenda okhala ndi malungo ndi zizindikiro zina, zomwe nthawi zambiri zimatha mkati mwa masiku ochepa. Mwanayo akhoza kukhala wathanzi kwathunthu akadwala. Ngakhale palibe mankhwala, pali mankhwala othandiza omwe angachepetse zizindikiro.

Kodi mitundu ikuluikulu ya SAIDs ndi iti?

Ofufuza apeza mitundu pafupifupi 60 ya ma SAID mpaka pano, ndipo mitundu yatsopano ikupezedwa nthawi zonse. Nazi zina mwa mitundu yodziwika bwino.

Kodi zizindikiro zofala za matenda amenewa ndi ziti?

Chizindikiro chachikulu komanso chodziwika bwino cha matenda a SAID ndi malungo obwerezabwereza . Komabe, kuwonjezera pa malungo, zizindikiro zina zingabwerenso kutengera mtundu wa matenda.

N’chifukwa chiyani matenda amenewa amapezeka? Kodi zimayambitsa matenda amenewa ndi chiyani?

Monga tanenera kale, matenda ambiri a SAID ndi matenda a majini . Izi zikutanthauza kuti matendawa amayamba chifukwa cha kusintha kwa majini enaake.

Kodi chingachitike n’chiyani ngati chithandizo choyenera sichikuperekedwa?

Nkhaniyi ndi yofunika kwambiri. Ndikofunikira kuwongolera vutoli mwa kulandira chithandizo choyenera. Chifukwa, ngati pali kutupa kosalekeza m'thupi motere, kungayambitse matenda otchedwa Amyloidosis . Mwachidule, mtundu wina wa mapuloteni ukhoza kuikidwa mu impso zathu, zomwe zimapangitsa kuti impso ziwonongeke kwamuyaya. Chifukwa chake, ndikofunikira kwambiri kuzindikira matendawa ndikuchiza mwachangu.

Kodi dokotala amazindikira bwanji matendawa?

Kunena zoona, kuzindikira matenda a SAID kungakhale kovuta chifukwa zizindikiro zake zimatha kufanana ndi za matenda ena akuluakulu, monga lupus.

Choncho, chofunika kwambiri ndikuonana ndi dokotala yemwe ndi katswiri wa matenda amtunduwu. Dokotala yemwe ndi katswiri wa matenda okhudzana ndi mafupa ndi chitetezo chamthupi amatchedwa Rheumatologist .

Dokotala wanu adzaganizira zinthu zingapo kuti adziwe ngati ali ndi matendawa. Mwina adzakufunsani za zizindikiro za mwana wanu komanso ngati pali mbiri ya banja la matendawa. Dokotala wanu angaganize kuti ali ndi matenda a SAID, makamaka ngati:

• Ngati mwana akudwala malungo pafupipafupi.
• Ngati pali wina m'banjamo amene wakhala akudwala matenda ngati chimfine nthawi ndi nthawi.
• Popeza matenda amenewa ndi ofala pakati pa mafuko ena, zimenezo zikuganiziridwanso.

Ndi mayeso ati omwe amachitidwa?

Dokotala angakulangizeni mayeso angapo kuti atsimikizire matendawa.

• Mayeso a magazi (Mayeso a labu): Mayeso monga C-reactive protein (CRP) ndi CBC (Full Blood Count) amatha kuwona kutupa m'thupi. Mayesowa amawonjezeka panthawi ya matenda ndipo amabwerera pamlingo wabwinobwino thupi likachira.
• Kuyesa mkodzo: Kuyesa kuchuluka kwa mapuloteni mu mkodzo. Mu matenda ena, monga MKD, kuyesa mkodzo kumatha kuzindikira ma asidi enaake.
• Kuyesa majini: Kuyesa kumeneku kumatha kuzindikira kusintha kwa majini. Komabe, nthawi zina, mwana akhoza kukhala ndi SAID koma mayeso a majini sangazindikire. Chifukwa chake, ngakhale zotsatira za mayeso zili zoipa, sizinganenedwe 100% kuti matendawa salipo.

Kodi mankhwala ochizira izi ndi otani?

Chithandizo cha SAIDs chimadalira mtundu ndi kuopsa kwa matendawa. Ngakhale kuti matendawa sangachiritsidwe kwathunthu, mankhwala amatha kuletsa zizindikiro zake kwambiri.

• FMF: Mankhwala otchedwa Colchicine amagwiritsidwa ntchito pa izi. Amachepetsa kutupa m'thupi. Ngati mankhwalawa sagwira ntchito kwa mwana, akhoza kugwiritsa ntchito mankhwala monga Canakinumab .
• PFAPA: Ma steroids monga Prednisone angaperekedwe kwa kanthawi kochepa kuti achepetse msanga nthawi ya matenda.
• MISAMBO: CanakinumabMankhwalawa ndi othandiza kwambiri. Komanso, mankhwala oletsa kutupa monga glucocorticoids amagwiritsidwa ntchito.
• MKD: Mankhwala a Canakinumab nawonso ndi othandiza pa izi. Pa nthawi ya matenda, NSAIDs (mankhwala ochepetsa ululu) kapena ma steroids angathandize.
• Matenda a NLRP3: Mankhwala osintha chitetezo chamthupi monga Canakinumab , Rilonacept , ndi Anakinra amagwiritsidwa ntchito bwino pa izi.
• Matenda a Blau: Kutengera ndi zizindikiro, mankhwala oletsa chitetezo chamthupi, zoletsa za TNF, ndi mankhwala a maso angagwiritsidwe ntchito.

Kodi vutoli lidzachiritsidwa kwathunthu?

Ma SAID ena ndi a moyo wonse. Komabe, ena, monga PFAPA, amatha kutha okha pamene mwana akukula. Ngakhale kuti ndi matenda a moyo wonse, kuchuluka kwa matenda ndi kuopsa kwa zizindikiro kungachepe pakapita nthawi. Dokotala wanu adzakupatsani tsatanetsatane wokhudza matenda a mwana wanu.

Kusamalira mwana amene ali ndi vutoli kungakhale kovuta. Koma mothandizidwa ndi akatswiri oyenerera, mungathe kuthana ndi zizindikiro za mwana wanu ndikumupatsa ubwana wabwino kwambiri.