Tiyeni tiphunzire zambiri zokhudza Tuberous Sclerosis. Musachite mantha, tiyeni tikambirane!

Nthawi zina m'miyoyo yathu, timamva za matenda osaganiziridwa komanso achilendo pang'ono, sichoncho? Eya, matenda omwe anthu ambiri sanamvepo, koma ndi ofunikira kwambiri kudziwa, ndi Tuberous Sclerosis Complex (TSC) , kapena kungoti Tuberous Sclerosis . Chomwe chimachitika apa ndi chakuti zotupa zopanda khansa, kapena zotupa, zimakula m'mbali zosiyanasiyana za thupi lanu, makamaka m'malo monga ubongo, khungu, impso, mtima, ndi mapapo. Uwu ndi matenda a majini. Koma musadandaule, tidzakambirana chilichonse momveka bwino komanso mosavuta.

Kodi chifuwa chachikulu cha Tuberous Sclerosis n'chiyani kwenikweni?

Mwachidule, tuberous sclerosis (TSC) ndi matenda osowa kwambiri omwe amapezeka m'majini. Angayambitse zotupa zopanda khansa kupangika m'mbali zosiyanasiyana za thupi lanu, monga ubongo, khungu, impso, mtima, maso, ndi mapapo. Ndikofunikira kukumbukira kuti zotupa izi si khansa . Izi zikutanthauza kuti si zotupa zoopsa zomwe zimafalikira kuchokera mbali imodzi ya thupi kupita ku ina. Komabe, zotupa izi zingayambitse mavuto osiyanasiyana azaumoyo, kutengera komwe zimapezeka komanso kukula kwake.

Anthu ena sakhudzidwa kwambiri ndi vutoli. Amatha kukhala moyo wabwinobwino. Koma kwa ena, limatha kukhala loopsa kwambiri ndipo lingayambitse mavuto osiyanasiyana. Matendawa amayamba pang'onopang'ono. Zizindikiro zina zingayambe ali aang'ono, koma zina zingatenge zaka kuti ziwonekere. Chifukwa chake, munthu amene ali ndi vutoli amafunika upangiri wachipatala komanso kuyang'aniridwa kwa moyo wake wonse.

Ndani amene amakhudzidwa kwambiri ndi vutoli? Kodi ndi lofala bwanji?

Matenda a chifuwa chachikulu (TSC) ndi matenda omwe amapezeka akangobadwa . Pafupifupi theka la ana amapezeka ndi matendawa akafika miyezi 7. Komabe, nthawi zina zizindikiro sizimaonekera bwino, ndipo sizingadziwike kwa zaka zambiri. Ngakhale matendawa atapezeka ali ana, zizindikiro zatsopano zingawonekere akakula.

Matendawa angakhudze aliyense, mosasamala kanthu za jenda, fuko, kapena fuko. Izi zikutanthauza kuti palibe gulu linalake lomwe lingakhale pachiwopsezo.

Tangoganizirani momwe izi zilili zachilendo. Matenda a chifuwa chachikulu (TSC) ndi matenda osowa kwambiri . Pali anthu pafupifupi 50,000 okha ku United States omwe ali ndi matendawa. Padziko lonse lapansi, pali anthu pafupifupi miliyoni imodzi. Ndiye mutha kuganiza momwe matendawa alili osowa.

Kodi chifuwa chachikulu cha tuberous sclerosis (TSC) chimakhudza bwanji thupi?

Chotsatira chachikulu cha tuberous sclerosis (TSC) ndichakuti maselo m'thupi amakula pamodzi kukhala tinthu tating'onoting'ono (zotupa). Izi nthawi zambiri zimachitika muubongo . Kuphatikiza apo, mutha kuwonanso kusintha pakhungu lanu, makamaka mukakhala aang'ono kwambiri. Ndipotu, kusintha kwa khungu kumeneku nthawi zambiri kumakhala chizindikiro choyamba chakuti munthu ali ndi matendawa.

Sizimenezo zokha, komanso matenda a tuberous sclerosis (TSC) angakhudzenso mtima ndi impso zanu. N'zofala kuti mitundu yosiyanasiyana ya ziphuphu zipangidwe m'ziwalo izi. N'zofala kuti ziphuphu zipangidwe m'malo ena.

Kodi zizindikiro zake ndi ziti? Kodi zimaonekera bwanji?

Zizindikiro za tuberous sclerosis (TSC) zimatha kusiyana kwambiri kutengera chiwalo kapena gawo la thupi lomwe lakhudzidwa. Zizindikiro zitha kugawidwa m'magulu atatu akuluakulu:

• Zizindikiro zokhudzana ndi ubongo
• Zizindikiro zokhudzana ndi khungu
• Kusintha kwina kwamkati mwa thupi

Tiyeni tsopano tiwone chilichonse mwa izi padera.

Zizindikiro zokhudzana ndi ubongo

Zizindikiro zokhudzana ndi ubongo zimachitika pamene zotupa kapena ma cortical tubers (hamartomas) apangika mu ubongo chifukwa cha tuberous sclerosis (TSC). Ngakhale kuti zotupazi si khansa, zimatha kuwononga ubongo ndikusokoneza ntchito ya ubongo. Zitsanzo zina ndi izi:

• Subependymal giant cell astrocytoma (SEGA) : Izi ndi zotupa zomwe zimapangidwa pamwamba pa ubongo, makamaka pamwamba pa ma ventricles ang'onoang'ono odzaza madzi mkati mwa ubongo. Izi nthawi zina zimatha kuletsa kuyenda kwa madzi a m'mitsempha ya ubongo, zomwe zimapangitsa kuti madzi azisonkhana mu ubongo ndi kuzungulira ubongo. Matendawa amatchedwa hydrocephalus .
• Ma cell a Cortical tubers (hamartomas) : Awa ndi magulu a maselo omwe si khansa. Magulu a maselo amenewa amapangika mkati mwa ubongo, pafupi ndi komwe ayenera kukhala, koma mwanjira yosokonezeka pang'ono. Izi zili choncho chifukwa maselo ambiri apangidwa ndipo palibe malo okwanira oti akule.

Kawirikawiri, tuberous sclerosis (TSC) ingayambitse matenda ena, omwe ali ndi zizindikiro zofanana:

• Kugwidwa ndi khunyu : Izi zimachitika kawirikawiri.
• Kuchedwa kukula ndi mavuto amisala : Mwachitsanzo, mwana akhoza kuchedwa kulankhula, kuyenda, ndi zina zotero. Mavuto a kuphunzira angachitikenso.
• Matenda okhudzana ndi kukula kwa ubongo: Matenda monga autism spectrum disorder kapena attention-deficit/hyperactivity disorder (ADHD) .

Ngakhale kuti khunyu ndi matenda amisala ndi zofala kwambiri pa matenda a chifuwa chachikulu (tuberous sclerosis (TSC), si aliyense amene ali ndi matendawa amene angakhale nawo. N'zothekanso kukhala ndi khunyu payekha popanda matenda amisala.

Zizindikiro zokhudzana ndi khungu

Zizindikiro za pakhungu nthawi zambiri zimakhala chizindikiro choyamba cha tuberous sclerosis (TSC). Akatswiri amati 90% ya anthu omwe ali ndi matendawa amakumana ndi chimodzi kapena zingapo mwa izi:

• Madontho a masamba a phulusa : Awa ndi melanin pakhungu.Malo omwe ali ndi utoto wochepa (mtundu womwe umapatsa khungu mtundu wake). Madontho awa amaoneka ngati masamba a imvi. Nthawi zina, amavuta kuwaona mwa anthu omwe ali ndi khungu lopepuka. Madontho awa amawala pansi pa kuwala kwapadera kwa ultraviolet (UV) .
• Zizindikiro za Confetti : Izi zimawoneka ngati madontho. Komabe, ngakhale kuti madontho wamba ndi akuda kuposa khungu lozungulira, zizindikiro za confettizi zimakhala zopepuka kuposa khungu lozungulira. Izi zitha kuchitikanso ali aang'ono.
• Ma fibroma a nkhope : Awa ndi matuza omwe si khansa omwe amapangika pakhungu la nkhope. Akakula, kapena angapo akakhala pafupi, amatha kuoneka ngati ma plaques akuluakulu otchedwa "plaques." Angakhale akuda kuposa khungu lozungulira.
• Ma fibroma a m'zikhadabo za m'manja ndi m'mapazi : Izi zimafanana ndi ma fibroma a nkhope, koma zimapangidwa mozungulira kapena pansi pa misomali ya zala ndi zala. Nthawi zambiri zimawonekera pa nthawi ya kutha msinkhu ndipo zimatha kukula moyo wonse.
• Mabala a Shagreen : Awa ndi malo a minofu ya ulusi yomwe imapanga pansi pa khungu lakunja (epidermis). Nthawi zambiri amapezeka pansi pa msana. Amafanana ndi khungu la lalanje kapena mphesa.

Kumbukirani, kungoona madontho kapena ziphuphu pakhungu lanu sizitanthauza kuti muli ndi matenda a tuberous sclerosis. Ndikofunikira kupita kuchipatala kukawonana ndi dokotala.

Kusintha kwina kwamkati mwa thupi

Zotupa kapena ma cysts omwe amapezeka ndi tuberous sclerosis (TSC) amatha kuchitika m'malo ena ambiri a thupi. Kusintha kwina kungachitikenso. Zina mwa izo ndi:

• Kusintha kwa pakamwa : Ma fibro (zotupa) amakula mkamwa, ndipo mano amatuluka chifukwa cha kutayika kwa enamel ya dzino. Kusintha kumeneku kwa enamel ya dzino kumawonekera pafupifupi kwa aliyense amene ali ndi TSC. Mkamwa ukhoza kupweteka ndi kutuluka magazi chifukwa cha ziphuphu. Kutuluka kwa enamel kungayambitsenso mabowo.
• Matenda a impso : Izi zikayamba mu impso, zimatha kusokoneza ntchito ya impso. Zizindikiro zake zingakhale kupweteka kumbuyo kapena m'mbali, magazi mu mkodzo, ndi miyala mu impso. Nthawi zina, kulephera kwa impso ndi mtundu wina wa khansa ya impso yotchedwa renal cell carcinoma zimathanso kuchitika.
• Zotupa za mitsempha ya retina kapena ya maso : Zotupa izi zingayambitse mavuto a maso, koma izi sizofala.
• Matenda a mtima (cardiac rhabdomyomas) : Matendawa ndi oopsa kwambiri mwa makanda. Chiwopsezochi chimachepa ndi ukalamba. Matenda akuluakulu amatha kuletsa kuyenda kwa magazi mumtima, koma izi sizachilendo.
• Matumbo a m'mapapo : Ngati izi zikukula kwambiri, zingayambitse kupuma movutikira.

Kodi n’chiyani chimayambitsa matenda a chifuwa chachikulu (tuberous sclerosis) (TSC)?

Matenda a chifuwa chachikulu (TSC) ndi matenda a majini . Izi zikutanthauza kuti amayamba chifukwa cha kusintha kwa DNA yathu . Maselo ambiri m'thupi lathu amagawikana ndipo amalowedwa m'malo ndi maselo atsopano. Njirayi imayendetsedwa ndi mapuloteni oletsa chotupa.

Mapuloteni awa amalamulira liwiro lomwe maselo amagawikana komanso kukula kwa maselo. Tangoganizirani zomwe zimachitika ngati mapuloteniwa sali bwino? Kenako, maselo omwe ndi akuluakulu kwambiri, ambiri, amayamba kukula. Akasowa kopita, amakula mosalamulirika ndipo amapanga zotupa. Ndicho chimene chimachitika mu tuberous sclerosis.

Kodi izi ndi zinthu zomwe zimachokera ku mibadwomibadwo?

Kusintha kwa majini komwe kumayambitsa tuberous sclerosis (TSC) kungachitike m'njira ziwiri:

• Zolakwika zosayembekezereka : Izi ndi zolakwika zomwe zimachitika nthawi yomweyo mimba itangotenga pakati (ndiko kuti, umuna ndi dzira zitalumikizana kuti zipange mluza). Zili ngati cholakwika m'buku lomwe likusindikizidwa. Izi ndizofala kwambiri kuposa milandu yobadwa nayo.
• Cholowa : Pafupifupi gawo limodzi mwa magawo atatu a odwala matenda a chifuwa chachikulu (TSC) amalandira matendawa kuchokera kwa kholo lawo.

Kodi matenda a tuberous sclerosis (TSC) amawapeza bwanji?

Akatswiri amagawa zizindikiro za matendawa m'magulu awiri akuluakulu: zizindikiro zazikulu ndi zizindikiro zazing'ono . Kuti mudziwe bwinobwino kuti muli ndi chifuwa chachikulu (TSC), muyenera kukhala ndi zizindikiro zazikulu ziwiri kapena zingapo. Popeza zizindikiro zimatha kuonekera pakapita nthawi, dokotala angasankhe matenda anu ngati "TSC yotheka" ngati muli ndi chizindikiro chimodzi chokha kapena zizindikiro ziwiri zazing'ono.

Zinthu zazikulu

• Madontho osachepera atatu a masamba a phulusa (malo aliwonse ayenera kukhala osachepera 5 mm mulifupi).
• Kukhala ndi ma fibroma osachepera awiri pankhope kapena chimodzi cholembedwa pankhope/mutu.
• Kukhala ndi fibroma ya chala chimodzi kapena chala chachikhadabo.
• Kukhala ndi chigamba chimodzi cha shagreen.
• Kukhala ndi zotupa zingapo za retina.
• Kupezeka kwa minofu inayake mkati kapena pamwamba pa ubongo.
• Mtundu wapadera wa kukula mumtima.
• Kukhala ndi mtundu winawake wa chotupa chosakhala khansa (chotupa chosaopsa) chomwe chimakhudza mapapo, impso, kapena ma lymph nodes.

Zinthu zazing'ono

• Kutupa kwa khungu la Confetti.
• Kukhala ndi mabowo anayi kapena kuposerapo mu enamel ya mano.
• Kukhala ndi zotupa ziwiri kapena zingapo mkamwa.
• Ma nodule a retinal.
• Kukhala ndi ma cyst angapo mu impso.
• Ziphuphu zopanda khansa (zomera zosavulaza) m'ziwalo zina kapena m'malo ena.

Mayeso ozindikira matenda

Popeza chifuwa chachikulu (TSC) chingayambitse zizindikiro zosiyanasiyana ndi zotsatira zake, pali mayeso ambiri omwe angachitike. Mayesowa amasiyana malinga ndi zizindikiro zanu. Dokotala wanu akhoza kufotokoza bwino mayeso omwe mukufuna komanso chifukwa chake akuchitidwa. Pansipa pali mayeso ena odziwika bwino a chifuwa chachikulu (TSC). Kuyesa majini ndi gawo lomaliza potsimikizira matenda a TSC ndikuzindikira kusintha kwa majini a TSC.

Mayeso a zizindikiro zokhudzana ndi ubongo

Ngati muli ndi zizindikiro zokhudzana ndi ubongo, makamaka ngati muli ndi khunyu (kapena ngati pali umboni woti muli ndi khunyu), mungakhale ndi mwayi waukulu wopeza zithunzi zoyezetsa matenda ndi mayeso ena. Kujambula ndi mayeso awa akuphatikizapo:

• Kujambula kwa CT (Kujambula kwa kompyuta - Kujambula kwa CT)
• Kujambula kwa MRI (Kujambula kwa maginito - Kujambula kwa MRI)
• EEG (Electroencephalogram - EEG) (Izi zimayesa ntchito yamagetsi ya ubongo)

Ngati dokotala akukayikira kuti muli ndi vuto la maganizo, angakulangizeni mayeso enaake okhudza ubongo. Mayesowa amathandiza kuzindikira mavuto okhudza momwe ubongo wanu ndi njira zanu zoganizira zimagwirira ntchito. Izi nthawi zambiri zimaphatikizapo mavuto kapena ntchito zokhudzana ndi zinthu monga kukumbukira, kuweruza, ndi kupanga zisankho.

Mayeso a zizindikiro zokhudzana ndi khungu

Kuyezetsa thupi ndikofunikira kwambiri pozindikira matenda a tuberous sclerosis (TSC). Zizindikiro zambiri za matendawa zimatha kuwoneka ali ana. Pali mayeso ena omwe angathandize dokotala kutsimikizira ngati muli ndi matenda a TSC. Odziwika kwambiri ndi awa:

• Kuwunika nyali ya Wood : Iyi ndi njira yoyesera yosawononga chilengedwe yomwe imagwiritsa ntchito kuwala kwa ultraviolet kuti ione ngati madontho a masamba a phulusa akuwala.
• Kujambula khungu : Kachidutswa kakang'ono ka khungu kamatengedwa ndikuwunikidwa.

Mayeso a kusintha kwa mkati mwa thupi

Kuyesa majini ndi chida chofunikira kwambiri pozindikira matenda a TSC. Pakati pa 75% ndi 95% ya odwala ali ndi kusintha kwa majini a TSC1 kapena TSC2. N'zotheka kukhala ndi matendawa popanda kusintha komwe kungadziwike, koma izi sizichitika kawirikawiri.

Kusintha kwakukulu komwe kumachitika chifukwa cha matenda a TSC kumayamba munthu akamakula ali mwana m'mimba. Madokotala nthawi zina amatha kuzindikira kusinthaku panthawi ya chithandizo chamankhwala cha nthawi zonse, makamaka panthawi yoyezetsa magazi , kapena pogwiritsa ntchito CT kapena MRI scans zomwe zimachitika atangobadwa kumene.

Kodi mankhwala a chifuwa chachikulu (TSC) ndi otani?

Matenda a chifuwa chachikulu (TSC) sangachiritsidwe kwathunthu . Komabe,Matenda ambiri amatha kuchiritsidwa. Njira zochiritsira nthawi zambiri zimadalira mtundu wa zizindikiro zomwe muli nazo. Mankhwala omwe amagwiritsidwa ntchito kwambiri ndi awa:

• Mankhwala : Mankhwala angathandize ndi zizindikiro zambiri za TSC. Mankhwala ena amatha kuwongolera zizindikiro zokhudzana ndi ubongo, monga khunyu. Mankhwala ena amatha kuchiza zizindikiro zomwe zimayambitsidwa ndi zotupa ndi zotupa m'mbali zosiyanasiyana za thupi.
• Opaleshoni : Nthawi zina, opaleshoni imafunika kuti muchotse zotupa zomwe zapangika m'thupi.
• Chithandizo cha matenda a khungu : Izi zimachotsa mbali zooneka za ziphuphu (konse kapena pang'ono) pakhungu kapena pansi pake.

Mankhwala

Kutengera ndi zizindikiro zanu, dokotala wanu angakupatseninso mankhwala ena. Komabe, nthawi zambiri izi zimadalira zinthu zambiri, monga zizindikiro zanu, mbiri yanu yaumoyo, zosowa zanu, ndi zomwe mumakonda.

Mitundu yosiyanasiyana ya mankhwala ingathandize kuchiza zizindikiro za TSC. Pali mankhwala omwe amachepetsa, kuletsa, kapena kuchepetsa kukula kwa zotupa. Mankhwala ena odziwika bwino ndi omwe amaletsa khunyu. Khunyu ndi chimodzi mwa zizindikiro zodziwika bwino komanso zoopsa za TSC.

Opaleshoni

Kutupa komwe kumachitika ndi TSC nthawi zina kungayambitse mavuto, kutengera komwe kumachitika. Nthawi zina, opaleshoni imafunika kuti ichotse kutupa komwe kumayambitsa mavuto m'ziwalo zosiyanasiyana kapena machitidwe a thupi. Dokotala wanu angakuuzeni zambiri za opaleshoni ndi njira zina zamankhwala zomwe zilipo kwa inu.

Chithandizo cha matenda a khungu

Zizindikiro zambiri za TSC zimaonekera. Izi zingakupangitseni kukhala ndi nkhawa, manyazi, komanso manyazi. Dokotala wa khungu angathandize kuchepetsa kapena kuthetsa kusintha kwa khungu komwe kumabwera ndi TSC. Ngakhale kuti mankhwalawa nthawi zambiri amakhala akanthawi, angathandize kwambiri thanzi lanu la maganizo.

Zitsanzo zina za mankhwala a khungu pa zizindikiro za khungu zokhudzana ndi TSC ndi izi:

• Kuphwanyidwa kwa minofu ( kuwononga minofu pogwiritsa ntchito kuzizira kwambiri)
• Kukonzanso khungu pogwiritsa ntchito laser (kukonzanso khungu pogwiritsa ntchito laser )
• Kuchotsa khungu loyera kapena kupukuta (dermaplaning )
• Kuchotsa chilonda ( opaleshoni yaying'ono, yofanana ndi kuchotsa chizindikiro cha kubadwa)
• Zopangira khungu

Zovuta/zotsatira zoyipa za chithandizo

Zotsatirapo kapena zovuta zomwe zingachitike chifukwa cha chithandizo cha TSC zimasiyana kwambiri, makamaka popeza pali zizindikiro zosiyanasiyana komanso njira zosiyanasiyana zochiritsira. Pachifukwa ichi, dokotala wanu angakufotokozereni bwino zotsatirapo kapena zovuta zomwe mungakumane nazo. Angakuuzeninso nthawi yomwe zingatenge kuti muchire kuchokera ku chithandizo.

Kodi chiopsezo cha tuberous sclerosis (TSC) chingachepe kapena kupewedwa?

Ndipotu, palibe njira yopewera matenda a chifuwa chachikulu (TSC) . Ngati wina m'banja mwanu (kholo kapena m'bale wanu) ali ndi matenda a chifuwa chachikulu (TSC), uphungu wa majini ungakuthandizeni kumvetsetsa chiopsezo choti mwana wanu alandire matendawa komanso ngati pali njira zina zomwe mungachite kuti muchepetse vutoli. Akatswiri nthawi zambiri amalimbikitsa uphungu uwu.

Kodi mungayembekezere chiyani ngati muli ndi chifuwa chachikulu (TSC)?

Anthu ambiri omwe ali ndi TSC amafunika kuyezetsa zithunzi nthawi zonse, makamaka MRI scans, kamodzi kapena kawiri pachaka. Izi nthawi zambiri zimayamba ali ana aang'ono ndipo zimapitirira mpaka atakwanitsa zaka 21. Anthu ena amafunika kuyesedwa nthawi zonse m'miyoyo yawo yonse, kaya kuti aone ngati pali zotupa zatsopano kapena kuti ayang'anire zotupa zomwe zilipo kale.

Zotsatira za TSC zimatha kusiyana kwambiri kutengera kuopsa kwake:

• Matenda ofatsa : Anthu omwe ali ndi matenda ofatsa angafunike kumwa mankhwala kapena kulandira chithandizo nthawi zonse, koma vutoli silikhudza kwambiri miyoyo yawo. Anthuwa nthawi zambiri amayembekezera kukhala ndi moyo wofanana ndi anthu omwe alibe matenda a TSC.
• Matenda apakati : Mu matenda apakati, zizindikiro zimatha kusokoneza. Komabe, ndi chithandizo chamankhwala komanso chithandizo chamankhwala nthawi zonse, zotsatirazi zimatha kuthetsedwa. Anthuwa nthawi zambiri amatha kuyembekezera kukhala ndi moyo wabwinobwino kapena wocheperako pang'ono.
• Matenda aakulu : Anthuwa akhoza kukhala ndi vuto la maganizo, khunyu lalikulu, kapena mavuto ena. Ena sangakhale ndi moyo wodziyimira pawokha, kapena angafunike chithandizo chamankhwala cha akatswiri kwa moyo wawo wonse kapena pafupifupi.

Kodi chifuwa chachikulu cha tuberous sclerosis (TSC) chimatenga nthawi yayitali bwanji?

Matenda a chifuwa chachikulu (TSC) ndi matenda osatha, omwe amakhalapo kwa moyo wonse .

Kodi ndimadzisamalira bwanji?

Ngati dokotala wanu wakupatsani mankhwala, muyenera kumwa monga momwe mwalangizidwira. Musasiye kumwa mankhwalawo popanda kulankhula ndi dokotala wanu. Kusiya mwadzidzidzi kungapangitse kuti zizindikiro zanu zibwererenso kapena kukulirakulira.

Njira zina zomwe muyenera kudzisamalira zimatha kusiyana malinga ndi munthu. Zinthu zambiri zimakhudza izi. Dokotala wanu ndiye munthu wabwino kwambiri wokupatsani malangizo pazomwe muyenera kuchita komanso zomwe mungachite kuti mudzisamalire nokha komanso kusamalira vuto lanu.

Ndiyenera kupita kwa dokotala liti?

Ngati muli ndi matenda a tuberous sclerosis (TSC), mwina mungafunike kupita kwa dokotala nthawi zonse pa moyo wanu wonse. Izi zimathandiza dokotala wanu kuyang'anira vuto lanu ndikuyang'anira kusintha kulikonse. Zonsezi ndizofunikira kwambiri kuti mupewe mavuto aakulu omwe angachitike ndi TSC.

Kodi ndiyenera kupita ku Dipatimenti Yothandiza Anthu Odwala Pangozi (ETU) liti?

Kutengera ndi zizindikiro zanu komanso komwe khunyu lanu lili, pali zizindikiro zina zomwe zikusonyeza kuti mukufunika thandizo lachipatala mwachangu. Chimodzi mwa zizindikirozi ndi Status Epilepticus (SE) .

SE ndi pamene muli ndi khunyu lomwe limatenga mphindi zoposa zisanu, kapena khunyu ziwiri kapena kuposerapo motsatizana popanda nthawi yochira. SE ndi vuto lachipatala lomwe lingayambitse imfa . Ngati muli ndi munthu amene akudwala khunyu ndipo ali ndi chimodzi mwa zizindikirozi, muyenera kuyimbira 911 (kapena nambala yanu yadzidzidzi yapafupi) nthawi yomweyo.

Zizindikiro zina zomwe zimafuna thandizo lachipatala zingasiyane. Dokotala wanu angakuuzeni bwino zizindikiro zomwe muyenera kuziyang'anira komanso zomwe mungachite ngati mutaziwona kapena kuziona.

Pomaliza, zinthu zoti muzikumbukira

Matenda a chifuwa chachikulu (TSC), kapena chifuwa chachikulu, ndi matenda osowa kwambiri omwe amayambitsa matenda osakhala khansa m'thupi, makamaka ubongo kapena khungu.

Musadandaule. Chifukwa cha kupita patsogolo kwa zamankhwala amakono ndi ukadaulo wojambulira zithunzi, vutoli nthawi zambiri limatha kuyang'aniridwa ndikuchiritsidwa ngati pakufunika pa moyo wonse. Anthu ambiri omwe ali ndi TSC amatha kukhala ndi moyo wautali komanso wathanzi.

Ngati muli ndi mafunso ena kapena nkhawa zokhudzana ndi izi, onetsetsani kuti mwalankhula ndi dokotala wanu. Iwo ndi omwe angakupatseni upangiri wolondola komanso wabwino kwambiri.

Matenda a chifuwa chachikulu , matenda a majini, zotupa muubongo, mawanga pakhungu, khunyu, kuchedwa kukula, chithandizo