Chithandizo chaposachedwa chomwe chimabwezeretsa maso! Tiyeni tiphunzire za Voretigene Neparvovec

Kodi pali aliyense m'banja mwanu, kapena munthu amene mumamudziwa, amene ali ndi vuto la maso lobadwa nalo? Nthawi zina izi zimachitika chifukwa cha matenda a majini omwe amapatsirana kuchokera ku mibadwomibadwo. Tsiku ndi tsiku, masomphenya amatha kuchepa, ndipo pamapeto pake samawonekera konse. Chifukwa chake, lero tikambirana za chithandizo chaposachedwa kwambiri mu sayansi ya zamankhwala chomwe chimachiritsa matenda osowa komanso obadwa nawo a maso. Dzina lake ndi Voretigene Neparvovec.

Mwachidule, kodi Voretigene Neparvovec ndi chiyani?

Mankhwala awa si ofanana ndi mapiritsi, makapisozi, kapena mafuta odzola omwe timagwiritsa ntchito nthawi zambiri. Mankhwalawa amatchedwa Gene Therapy . Dzina la mankhwala awa ndi LUXTURNA .

Mankhwalawa amagwiritsidwa ntchito pochiza vuto linalake la maso lomwe limakhudza diso la maso athu. Makamaka, limachiritsa vuto la maso lomwe limayamba chifukwa cha vuto la jini la RPE65 m'thupi lathu.

Ndiye, kodi chithandizo cha majini ichi n’chiyani?

Tangoganizani kuti pali buku lalikulu lokhala ndi malangizo okhudza momwe chilichonse m'thupi lathu chiyenera kugwirira ntchito. Bukuli ndi majini athu. Nthawi zina, patsamba limodzi la bukuli, ndiko kuti, mu jini imodzi, pakhoza kukhala cholakwika, cholakwika. Cholakwika mu jini yotchedwa RPE65 ndi chimodzi mwa zinthu zotere.

Chithandizochi, chotchedwa Voretigene Neparvovec, chimagwiritsa ntchito kachilombo kopanda vuto ngati chonyamulira kuti chiyike kopi yolondola ya jini m'maselo omwe ali ndi jini yolakwika. Zili ngati kusintha tsamba ndi malangizo olakwika ndi tsamba latsopano ndi malangizo olondola. Pambuyo pa izi, maselo a maso amatha kugwiranso ntchito bwino, ndipo kudzera mu izi, masomphenya otayika amatha kubwezeretsedwanso pamlingo wina kapena kuletsa kutayika kwina kwa masomphenya.

Zinthu zomwe muyenera kuuza dokotala wanu musanalandire chithandizochi

Popeza uwu ndi mankhwala enieni, ndikofunikira kuti dokotala wanu adziwe mbiri yonse ya thanzi lanu. Onetsetsani kuti mwamuuza izi:

• Matenda ena a maso: Matenda ena aliwonse a maso kapena vuto la maso lomwe muli nalo kale (monga matenda a katarakitala, glaucoma).
• Matenda a ziwengo: Chonde tiuzeni ngati muli ndi vuto lililonse la ziwengo ndi mankhwalawa (voretigene neparvovec), mankhwala ena aliwonse, chakudya, utoto, kapena zosungira.
• Mimba ndi kuyamwitsa:Ngati muli ndi pakati, mukuyesera kutenga pakati, kapena kuyamwitsa, onetsetsani kuti mwadziwitsa dokotala wanu.

Kodi mumagwiritsa ntchito bwanji mankhwalawa?

Iyi si njira yochizira matenda kunyumba. Iyi ndi jakisoni m'diso . Izi zimachitika ndi dokotala wodziwa bwino ntchito ya maso pamalo oyera komanso olamulidwa bwino, monga chipinda chochitira opaleshoni kuchipatala. Choncho palibe chodetsa nkhawa, chitetezo chanu chimatsimikizika momwe mungathere.

Kodi izi zingaperekedwe kwa ana aang'ono?

Inde. Chithandizochi chingaperekedwe kwa ana aang'ono ngati chaka chimodzi, malinga ndi momwe zinthu zilili. Komabe, chisankho chomaliza chokhudza chithandizochi chimapangidwa ndi dokotala wa ana ndi dokotala wa maso amene amafufuza mwana wanu. Ngati mukupereka chithandizochi kwa mwana, ndikofunikira kwambiri kulankhula ndi gulu lachipatala za vutoli mokwanira ndikufotokozera zonse.

Nanga chimachitika ndi chiyani ngati mwamwa mankhwala ochulukirapo?

Popeza izi zimaperekedwa kuchipatala, motsogozedwa ndi madokotala, mwayi woti 'kuchuluka kwa mankhwala' kuchitike ndi wochepa kwambiri. Komabe, ngati pali kukayika kulikonse kuti chinthu chotere chachitika, ogwira ntchito kuchipatala adzachitapo kanthu nthawi yomweyo. Nthawi zambiri, pankhaniyi , National Poisons Information Centre ku Colombo National Hospital kapena Emergency Treatment Unit (ETU) yapafupi imadziwitsidwa.

Zinthu zofunika kuziganizira panthawi ya chithandizo komanso pambuyo pake

Munthawi ya chithandizo komanso mukatha kulandira chithandizo, madokotala adzakuyang'anirani mosamala. Mulinso ndi udindo waukulu.

Kodi zotsatirapo zake zingakhale zotani?

Monga momwe zimakhalira ndi chithandizo chilichonse chamankhwala, pali zotsatirapo zina zomwe zingachitike. Dziwani izi makamaka.

Mndandandawu sungakhale ndi zotsatirapo zonse zoyipa. Ngati mukukumana ndi zizindikiro zachilendo, lankhulani ndi dokotala wanu za izo.

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