Ese uri umuntu urwaye Hemophilia A? Cyangwa hari umuntu wo mu muryango wawe ufite iyi ndwara? Niba ari uko bimeze, ushobora kuba uzi akamaro ko kugenzura kuva amaraso iyo bibayeho. Uyu munsi tugiye kuvuga ku rukingo rw'ingenzi rukoreshwa muri urwo rwego, urukingo rwa Antihemophilic Factor (AHF) cyangwa Factor VIII. Reka tuvuge gusa icyo ari cyo, uko rukoreshwa, n'ibintu ugomba kwitondera.
Uyu muti witwa Factor VIII ni uwuhe?
Mu magambo make, abantu barwaye hemophilia A baba bafite Factor VIII nke cyangwa nta na kimwe, poroteyine ikenewe kugira ngo amaraso avure. Bityo, ndetse n'igikomere gito gishobora gutera kuva amaraso menshi. Uru rukingo rukora mu guha umubiri Factor VIII idafite akamaro.
Ibi bikoreshwa cyane cyane kuri:
- Kugira ngo hirindwe cyangwa hagenzurwe kuva amaraso mu barwayi ba hemophilia A.
- Niba uri kubagwa, genzura amaraso ashobora kuva muri icyo gihe.
- Hari ubwo ubwoko bumwe bw'uyu muti bukoreshwa no kuvura indi ndwara yo kuva amaraso yitwa indwara ya von Willebrand.
Uyu muti ushobora kugurishwa mu mazina atandukanye nka Advate, Kogenate, Humate-P, XYNTHA, n'ibindi. Izina ryose wahawe, ririmo Factor VIII imwe.
Ibintu ugomba kubwira muganga wawe mbere yo gufata imiti
Mbere yo gutangira ubu buvuzi, ni ngombwa cyane kuganira kuri ibi bibazo neza na muganga wawe.
- Allergie: Tubwire niba warigeze kugira allergie ku bantu cyangwa inyamaswa (nk'inyama z'inka, hamster, imbeba, ingurube), indi miti, ibiryo, imiti irinda ubushyuhe, cyangwa amarangi.
- Gutwita: Niba utwite cyangwa ugerageza gutwita, menyesha muganga wawe.
- Niba uri umubyeyi wonsa: Niba uri umubyeyi wonsa, ugomba no kubivugaho.
Ashingiye kuri aya makuru, muganga azaguhitiramo uburyo bwiza kandi bwizewe bwo kuvura. Rero ntugire icyo uhisha.
Uyu muti nkwiye kuwukoresha nte?
Uru ni urushinge mu mitsi . Ubusanzwe rutangwa n'umuganga wabyigiye mu bitaro cyangwa mu ivuriro. Ariko, hari abarwayi bigishwa uburyo bwo gutanga uru rushinge mu rugo. Niba uhawe uru rushinge mu rugo, ugomba gukurikiza amabwiriza neza . Niba utazi neza uburyo bwo kuvanga umuti cyangwa gutera urushinge, ongera ubaze muganga wawe.
Igihe bihabwa abana bato?
Uyu muti ushobora guhabwa abana b'imyaka iyo ari yo yose, uko bikenewe. Ariko, ukeneye kwitabwaho by'umwihariko. Kubwibyo, niba uha umwana wawe uyu muti, vugana n'umuganga w'abana ku bijyanye nawo kandi umugire inama.
Wakora iki niba ufashe imiti myinshi?
Niba ubona ko wafashe uyu muti urenze urugero mu buryo butari bwo, hamagara ikigo cy’igihugu gishinzwe amakuru ku burozi mu bitaro by’igihugu i Colombo . Cyangwa ujye mu ishami ryita ku butabazi bw’ibanze (ETU) ry’ibitaro biri hafi yawe. Ntugapfushe umwanya.
Ingingo zihariye zo kwitabwaho
- Jyana ikarita y'indangamuntu: Niba urwaye hemophilia, ni ngombwa cyane gutwara ikarita y'indangamuntu igihe cyose. Ishobora kurokora ubuzima bwawe mu gihe cy'impanuka. Iyo karita igomba kuba irimo izina ryawe, izina n'ingano y'imiti ufata, izina na nimero ya terefone bya muganga wawe, hamwe n'amakuru y'umuntu ushobora kuvugana nawe mu gihe cy'impanuka.
- Inkomoko y'imiti: Imwe muri iyi miti ikorwa mu maraso y'umuntu. Hari ibyago bike cyane byo kwanduzanya virusi cyangwa bagiteri muri zo. Ariko, iyi miti yose itunganywa cyane kugira ngo yica virusi na bagiteri nyinshi. Niba ufite ikibazo kuri ibi, ntutindiganye kuvugana na muganga wawe.
- Ntugasangire umuti: Uyu muti ni uwawe gusa. Ntukigere uwusangiza undi muntu uwo ari we wese.
Ingaruka mbi zishobora guterwa n'uyu muti
Kimwe n'indi miti iyo ari yo yose, iyi ishobora kugira ingaruka mbi. Ni ngombwa kumenya ibyo ari byo n'icyo wakora mu gihe ibaye.
| Ingaruka mbi | Ibisobanuro n'icyo gukora |
|---|---|
| Niba ibi bimenyetso bigaragaye, menyesha muganga wawe ako kanya. | |
| Indwara zo kwangirika kw'umubiri | Uruhu rushyushye, kuribwa, kubyimba mu maso, iminwa cyangwa ururimi, no kugorwa no guhumeka. |
| Kubabara mu gatuza | Kubabara mu gituza hamwe n'umutima utera vuba cyangwa utera ku buryo budasanzwe. |
| Kuzungera no gucika intege | Kuzungera mu buryo butunguranye, kutabona neza, cyangwa kumva unaniwe. |
| Umuriro n'ibimenyetso bisa n'ibicurane | Ibimenyetso nko kugira umuriro, ubukonje no guhinda umushyitsi. |
| Gucika intege mu maguru | Kubura ibyiyumvo cyangwa kubura ibyiyumvo mu biganza cyangwa ibirenge. |
| Ibara ry'umuhondo ry'amaso cyangwa uruhu | Ibara ry'umuhondo ry'amaso cyangwa uruhu. |
| Niba ibi bikomeje cyangwa bikabatera ikibazo, bwira muganga wawe. | |
| Kuribwa umutwe, isesemi, kuruka | Kuribwa umutwe gake, isesemi, cyangwa kuruka. |
| Kureba nabi | Kutabona neza gato. |
Ni gute wabika umuti?
Niba ukoresha umuti mu rugo, ni ngombwa cyane kuwubika neza.
- Bika kure y'abana.
- Ibicuruzwa byinshi bigomba kubikwa muri firigo ku bushyuhe buri hagati ya dogere selisiyusi 2 na 8 (2-8 °C). Ntukigere ubibika muri firigo.
- Tara umuti uwo ari wo wose warengeje igihe utarawukoresha.
- Iyo amazi yo gukingira amaze kuvangwa, agomba gukoreshwa mu gihe cy'isaha 1 kugeza kuri 3. Amazi yose asigaye jugunywa.
Niba hari amabwiriza yihariye yerekeye ibicuruzwa uhabwa, uyakurikize neza.
Ubutumwa bwo kujyana mu rugo
- Factor VIII ni umuti w'ingenzi cyane ugarura uburyo amaraso agwa butari bukenewe mu mubiri w'abarwayi ba hemophilia A kandi ukagenzura kuva amaraso.
- Bwira muganga wawe amakuru yose yerekeye ubwivumbure bwawe n'amakuru y'ubuzima mbere yo gutangira kuvurwa.
- Kurikiza amabwiriza yo gukoresha no kubika umuti neza. Niba ushidikanya, ongera ubaze.
- Buri gihe ujye witwaza ikarita ndangamuntu igaragaza ko uri umuntu urwaye amaraso menshi.
- Niba ugize ingaruka mbi zikomeye nko kugira ubwivumbure bukomeye, kubabara mu gatuza, cyangwa guhumeka nabi, shaka ubufasha bwa muganga byihutirwa.
- Uyu muti ni uwo gukoresha ubwawe gusa. Ntukigere uwusangira n'abandi.
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