Iyo muganga wawe ababwiye wowe cyangwa umwana wawe ko mufite indwara yitwa Hypophosphatasia (HPP), mushobora kubwirwa gukoresha urukingo rwitwa Asfotase alfa (Strensiq) nk'ubuvuzi. Ni ibisanzwe kumva ufite ubwoba no kurengerwa iyo wumvise iby'urukingo n'uko warufata buri munsi. Ariko ntugahangayike. Muri iyi nkuru, tuzavuga kuri uyu muti, uko wakoreshwa, n'ibyo ugomba kwitondera.
Asfotase alfa (Strensiq) ni iki mu by'ukuri?
Mu magambo make, ibi ntabwo bimeze nk'umuti dusanzwe dukoresha. Mu ndwara yitwa Hypophosphatasia (HPP), hari igabanuka cyangwa ibura rya enzyme ikenewe kugira ngo amagufwa n'amenyo bikure neza mu mubiri wacu. Rero, Asfotase alfa ni uburyo bwo kuvura buha umubiri iyo enzyme yagabanutse iturutse hanze. Ubu ni uburyo bwo kuvura bugenzura ibimenyetso kandi bukagufasha kubaho ubuzima bwiza, aho gukiza indwara burundu. Mu yandi magambo, ubu ni uburyo bwo kuvura indwara, ntabwo ari uburyo bwo kuvura.
Ibintu ugomba kubwira muganga wawe mbere yo gufata uyu muti
Mbere yo gutangira ubu buvuzi, ugomba kuganira kuri ibi bibazo na muganga wawe.
- Niba ufite amabuye mu mpyiko cyangwa izindi ndwara zifitanye isano n'impyiko.
- Niba ufite allergie kuri Asfotase alfa cyangwa undi muti, ibiryo, cyangwa irangi.
- Niba utwite cyangwa utegereje umwana .
- Niba uri umubyeyi wonsa .
Aya makuru ni ingenzi cyane kuri muganga kugira ngo aguhe ubuvuzi bukwiye kandi bwizewe.
Ni gute wakoresha urukingo neza?
Uru rukingo rutangwa nk'urushinge rwo munsi y'umubiri. Ntugahangayikishwe n'ibi. Umuganga cyangwa umuforomo wabihuguwe azagusobanurira neza uburyo bwiza bwo kuguha. Bityo uzahabwa amahugurwa akenewe kugeza igihe uzabasha kubikora ubwawe.
- Fata igipimo gikwiye, mu gihe gikwiye: Fata igipimo gikwiye, mu gihe gikwiye, nk'uko muganga yabigutegetse. Ntukigere wongera igipimo cyangwa ngo ugikoreshe kenshi kuruta uko wabigutegetse.
- Inshinge n'inshinge byakoreshejwe: Ibi ni ingenzi cyane. Ntukigere ujugunya inshinge n'inshinge byakoreshejwe mu myanda. Hari agakoresho kabigenewe, kitwa 'agakoresho ka sharps.' Niba udafite, saba muganga wawe cyangwa umuforomo wawe.
- Gukoresha abana:Uyu muti ukoreshwa ku bana bato n'impinja ku nama za muganga. Ariko, hari ingamba zihariye zo kwirinda. Vugana na muganga w'abana ku bijyanye na byo.
- Bite ho niba urenze urugero? Niba ufashe imiti myinshi kurusha uko ubyifuza, hamagara ikigo cy’igihugu gishinzwe amakuru ku burozi mu bitaro by’igihugu bya Colombo . Cyangwa ujye mu ishami rishinzwe kuvura byihutirwa (ETU) ry’ibitaro biri hafi yawe.
- Bite ho niba wabuze dose? Niba wabuze dose, fata ako kanya wibuka. Ariko, niba igihe cyo gufata dose ikurikira kigeze, rekeraho dose yabuze hanyuma ufate dose ikurikira ku gihe cyagenwe. Ntukigere ufata dose ebyiri icyarimwe.
Uyu muti wanditswe kuri wewe gusa. Ntukigere uwusangira n'undi muntu uwo ari we wese.
Ni izihe ngaruka mbi zishobora guterwa no gufata umuti?
Nk’uko bimeze ku muti uwo ari wo wose, Asfotase alfa ishobora gutera ingaruka zimwe na zimwe. Zimwe muri zo ni mbi cyane, izindi zikaba zisanzwe. Ni ngombwa kuzimenya.
| Ingaruka mbi | Ibisobanuro |
|---|---|
| Ingaruka mbi zikomeye zigomba kumenyeshwa muganga wawe ako kanya | |
| Ubushobozi bwo kugira ubwivumbure | Ibimenyetso nko kurwara uduheri ku ruhu, kuribwa, kubyimba mu maso, ku minwa, cyangwa ku rurimi. |
| Amaraso mu nkari | Kubabara mu nda yo hasi cyangwa mu mugongo, kubabara iyo uri kunyara, n'amaraso mu nkari. |
| Impinduka mu cyerekezo | Kubona nabi cyangwa izindi mpinduka izo ari zo zose. |
| Umuriro cyangwa ubukonje | Umuriro cyangwa ubukonje nta mpamvu. |
| Kuruka | Kuruka bidashira. |
| Ingaruka mbi ubusanzwe zitari zikomeye (ariko zigomba kumenyeshwa muganga mu gihe zikomeje) | |
| Kuribwa umutwe, isesemi, kubura amahoro | Ibi akenshi biza bikanagenda. |
| Ububabare/umutuku aho umuntu yatewe inshinge | Kubabara, gukomereka, gutukura, cyangwa kubyimba aho bateye urushinge. |
| Uruhu rubyimbye cyangwa rukagira aho rubohokera | Gutera inshinge ahantu hamwe inshuro nyinshi bishobora gutuma uruhu rukomera cyangwa rukamera imyobo. Kubwibyo, hindura aho inshinge zigeze. |
Ni gute wabika umuti neza?
Ni ingenzi cyane kubika uyu muti neza.
- Bika muri firigo: Buri gihe bika uducupa tw'umuti tudafunguye ku bushyuhe buri hagati ya dogere selisiyusi 2 na 8, ni ukuvuga mu gice gisanzwe cya firigo.
- Ntugakonjeshe: Ntukabike muri firigo. Ntukareke umuti ukonjeshe.
- Ntukazunguze icupa: Ntukazunguze icupa mbere yo kurikoresha.
- Rinda urumuri: Bika agacupa k'umuti mu gasanduku kawo kugeza igihe cyo kuwukoresha kigeze kandi ukirinde urumuri.
- Nyuma yo kuyikoresha: Igomba gukoreshwa mu isaha imwe nyuma yo kuyikura muri firigo.
- Niba hari umuti usigaye: Niba hari umuti usigaye mu icupa rifunguye, jugunya. Nanone, jugunya amacupa y'imiti yarengeje igihe utayakoresheje.
Ubutumwa bwo kujyana mu rugo
- Asfotase alfa ni umuti wihariye w’imisemburo ivura Hypophosphatasia (HPP). Igenzura indwara, ariko ntiyikiza burundu.
- Kurikiza amabwiriza ya muganga wawe neza. Fata igipimo gikwiye ku gihe gikwiye.
- Ntugasimbuke gahunda za muganga n'ibindi nko gupima amaraso, gupima impyiko, no gupima amaso.
- Menya ingaruka mbi zikomeye (allergies, impinduka mu maso, amaraso mu nkari). Niba ubonye kimwe muri ibi bimenyetso, bwira muganga wawe vuba.
- Buri gihe shyira umuti muri firigo neza. Ntuzigere usangiza uyu muti undi muntu uwo ari we wese.
💬 Comments (0)
Kwipimisha kanseri y'ibere, kwisuzuma no kwirinda byakozwe byoroshye. Kanseri y'ibihaha
Ishyirireho intego ya calorie hanyuma ubare itariki yo kugabanya ibiro.