Uburyo bugezweho bwo kuvura thalassemia: Icyo ukeneye kumenya kuri Betibeglogene Autotemcel (ZYNTEGLO)

Niba wowe cyangwa uwo ukunda arwaye Beta Thalassemia, ushobora kuba uzi ukuntu birushya guterwa amaraso kenshi. Ariko, bitewe n'iterambere ry'ubumenyi bw'ubuvuzi, ubu hari icyizere gishya cyongewe kuri iyi ndwara. Uyu munsi, tugiye kuvuga ku bumwe mu buryo bushya kandi bugezweho bwo kuvura. Izina ryabwo ni Betibeglogene Autotemcel. Buzwi cyane ku izina rya ZYNTEGLO.

Mu magambo make, iyi Betibeglogene Autotemcel ni iki?

Iki si ikinini cyangwa capsule isanzwe. Iki ni uburyo bwihariye bwo kuvura imiterere y’uturemangingo . Intego nyamukuru y’ibi ni ugufasha umubiri w’umuntu urwaye beta thalassemia gukora uturemangingo tw’amaraso dutukura dufite ubuzima bwiza kandi dukora neza.

Tekereza ko hari akantu gato mu ruganda gakora uturemangingo dutukura mu mubiri wacu. Ibyo ni ko biba muri thalassemia. Ubu buryo bushya bwo kuvura bufasha gukosora iyo kantu. Iyo bugenze neza, bushobora kugabanya cyane gukenera guterwa amaraso kenshi. Mbega ukuntu byaba ari ihumure, si byo se?

Ubu buvuzi butangwa bute?

Ubu buryo bwo kuvura buragoye gato. Kubwibyo, iki si ikintu gishobora gukorwa mu rugo. Ibi bigomba gukorerwa mu bitaro, biyobowe n'itsinda ry'abaganga b'inzobere.

Igikomeye ni uko ubu buryo bwo kuvura bukorwa ukoresheje uturemangingo twawe bwite . Yego, uturemangingo tw’ubudahangarwa twakuwemo duhindurwa muri laboratwari hakoreshejwe uburyo bwihariye, duhabwa ubushobozi bwo gukora uturemangingo tw’amaraso dutukura dufite ubuzima bwiza, hanyuma twongera kwinjizwa mu mubiri wawe binyuze mu mutsi. Ubu ni ikoranabuhanga ritangaje koko.

Ubu buvuzi bushobora guhabwa abana barengeje imyaka 4. Ariko, bisaba imyiteguro n'uburyo bwo kwirinda byihariye. Muganga wawe azabigusobanurira.

Ibintu ugomba kubwira muganga wawe mbere yo gutangira kuvurwa

Mbere yo gutangira ubuvuzi nk'ubwo bugezweho, ni ngombwa cyane ko muganga wawe amenya amateka y’ubuzima bwawe bwose. Niba hari kimwe muri ibi bikurikira kikureba, menya neza ko ubimubwiye.

• Niba ufite indwara nka VIH cyangwa SIDA .
• Niba uherutse guhabwa urukingo , cyangwa ugiye kuruhabwa vuba (cyane cyane urukingo rurimo virusi nzima).
• Niba ufite ikibazo cy'ubwivumbure kuri uyu muti, indi miti, ibiryo, amarangi, cyangwa imiti irinda ubushyuhe.
• Niba utwite cyangwa ugerageza gutwita . (Ibi ni ingenzi cyane!)
• Niba uri umubyeyi wonsa .

Ibintu ugomba kwitondera cyane mu gihe cyo kuvurwa

Itsinda ry'abaganga bawe rizagukurikiranira hafi mu gihe ufata uyu muti ndetse na nyuma yawo, kandi ni ngombwa ko umenya ibi bintu.

Gutwita no kuboneza urubyaro

Iki ni ikibazo gisaba kwitonda cyane.

• Ku bagore: Gutwita mu gihe ufata ubu buvuzi bishobora gutera ubumuga bukomeye bwo kubyara. Kubwibyo, hazakorwa ikizamini kugira ngo umenye neza ko udatwite mbere yo gutangira kuvurwa. Ugomba gukoresha uburyo bwo kuboneza urubyaro, nka agakingirizo cyangwa diaphragm, mu gihe cyo kuvurwa no mu gihe cy'amezi 6 nyuma yo guhagarika kuvurwa.
• Ku bagabo: Umugabo ufata ubu buryo agomba gukoresha agakingirizo mu gihe akoranye imibonano mpuzabitsina n'umugore ushobora gusama. Ugomba gukomeza gukoresha ubu buryo bwo kwirinda mu gihe cy'amezi 6 nyuma yo guhagarika ubwo buryo. Ibi biterwa nuko iyo umukunzi wawe atwite, hari ibyago byo kwangiza umwana uri mu nda. Niba ufite amakenga ko umukunzi wawe atwite, bwira muganga wawe ako kanya.

Izindi ngingo z'ingenzi

• Irinde gutanga amaraso: Ntugatange amaraso mu gihe ufata ubu buvuzi cyangwa igihe icyo ari cyo cyose nyuma yo kubuhagarika.
• Ingaruka za kanseri: Ubu buryo bwo kuvura bushobora kongera gato ibyago byo kurwara ubwoko bumwe na bumwe bwa kanseri. Ntugahangayikishwe n'ibi, ahubwo menya neza ibi byago uganira n'itsinda ry'abaganga bawe.
• Indi miti: Bwira muganga wawe imiti yose ufata (harimo na vitamine n'imiti y'ibimera). By'umwihariko, imiti ikurikira ishobora kugira ingaruka kuri ubu buvuzi.
• Ikintu gitera imbaraga mu miterere ya Granulocyte-colony
• Imiti igabanya ubushyuhe mu byuma
• Urukingo rwa virusi nzima

Ni izihe ngaruka mbi zishobora kubaho?

Nk’uko bigenda ku buvuzi ubwo aribwo bwose, ingaruka mbi zishobora kubaho. Zimwe muri zo zigomba guhita zitangazwa, mu gihe izindi akenshi ziba zitari zikomeye. Izi ngaruka zishobora kumvikana neza uhereye ku mbonerahamwe iri hepfo.

Niba ukeka ko wafashe umuti ku bw'impanuka, hita ubibwira Ishami rishinzwe Ubuvuzi bwihutirwa (ETU) ry'ibitaro. Ushobora kandi kuvugana n'Ikigo cy'Igihugu gishinzwe Amakuru ku Burozi mu Bitaro by'Igihugu bya Colombo kugira ngo bakugire inama kuri ibyo bibazo.