Ese nawe uhura n'ikibyimba gitunguranye? Reka twige ku bijyanye na Angioedema n'umuti C1 Esterase Inhibitor, Recombinant!

Ese hari igihe wumva iminwa yawe, amaso yawe, ururimi rwawe, cyangwa ibindi bice by'umubiri wawe bibyimba mu buryo butunguranye? Ushobora no kugira ikibazo cyo guhumeka. Iyi ndwara tuyita angioedema . Ishobora kuba ikintu giteye ubwoba kandi kidashimishije. Uyu munsi rero tugiye kuvuga ku muti wihariye utangwa kugira ngo ugabanye kubyimba gutunguranye iyo angioedema ibaye. Ni ukuvuga urukingo rwitwa C1 Esterase Inhibitor, Recombinant . Ushobora kuba warabyumvise ku izina rya RUCONEST .

Uyu muti ni iki? Kuki utangwa?

Muri make, iyi C1 Esterase Inhibitor, Recombinant ni umuti ufasha kuvura indwara zo kubyimba zitunguranye zibaho mu ndwara yitwa Angioedema .

Tekereza kuri ibi, imibiri yacu igomba kugira uburyo butandukanye bwo guhuza imiti kugira ngo ikomeze kugira ubuzima bwiza. Hari abantu bashobora kuba bafite poroteyine yitwa C1 esterase inhibitor mu mibiri yabo, cyangwa ishobora kudakora neza. Iyo iyi poroteyine ibaye nke, nk'uko babivuze, umubiri utangira kubyimba ahantu runaka, ari byo byitwa angioedema.

Rero, icyo uru rukingo rukora ni ugufasha kugarura imikorere y'umuti ubuza C1 esterase kubura cyangwa udafite ubushobozi bwo kuyivura. Ibi bifasha mu kugabanya kubyimba no gutanga ihumure ku murwayi. Ubusanzwe uhabwa abantu bafite indwara ya angioedema (HAE) yo mu muryango . Uyu muti ushobora no gukoreshwa ku zindi ndwara; baza muganga wawe cyangwa umufarumasiye wawe.

Ni iki wagombye kubwira muganga wawe mbere yo gufata uyu muti?

Mbere yuko uhabwa uru rukingo rwa C1 Esterase Inhibitor, Recombinant, hari ibintu bimwe na bimwe ugomba kubwira umuganga wawe cyangwa itsinda ryita ku barwayi. Kuko ayo makuru azabafasha gufata icyemezo niba uyu muti ukubereye cyangwa utagukwiriye n'uko ukwiye gutangwa. Noneho reka turebe ibyo bintu:

• Niba ufite amateka yo kuvura amaraso: Niba wigeze kugira ikibazo cyo kuvura amaraso mu mubiri wawe mbere, haba mu mitsi miremire, mu bihaha, cyangwa mu bwonko, kandi ukaba waravuwe, menya neza ko ubitubwira. Uyu muti rimwe na rimwe ushobora kongera gato ibyago byo kuvura amaraso.
• Niba waragize ikibazo kidasanzwe cyangwa ufite ubwivumbure ku muti ubuza C1 esterase, inkwavu, cyangwa indi miti, ibiryo, amarangi, cyangwa imiti irinda indwara:Ibi ni ingenzi cyane. Kubera ko uyu muti ukorwa hakoreshejwe ikoranabuhanga rya genetike (recombinant), sisitemu y'uturemangingo ikoreshwa ishobora kuba ikomoka ku nkwavu. Niba rero ufite ubwivumbure ku nkwavu, ugomba kubitubwira. Nanone, niba ufite ubundi bwivumbure ku miti, ibiryo, cyangwa amarangi, tubitubwire. Hanyuma muganga ashobora kwitonda cyane cyane mu gihe aguha uyu muti.
• Niba utwite cyangwa ugerageza gutwita: Bwira muganga wawe niba usanzwe utwite cyangwa uteganya kubyara umwana vuba. Umutekano w'uyu muti mu gihe utwite nturamenyekana neza, bityo muganga wawe ni we uzafata icyemezo cyo kuwuguha.
• Niba wonsa: Niba wonsa, ugomba kandi kubwira muganga wawe niba uyu muti ujya mu mashereka yawe ndetse niba uzagira ingaruka ku mwana wawe.

Iyo uvuze ibi bintu neza, muganga ashobora kugufasha mu buryo butekanye.

Ukoresha uyu muti ute?

Uyu muti witwa C1 Esterase Inhibitor, Recombinant, uterwa nk'urushinge mu mitsi . Akenshi utangwa n'inzobere mu by'ubuzima mu bitaro cyangwa mu ivuriro. Ibi bivuze ko umuganga cyangwa umuforomo wabyigiye azaguha uru rushinge.

Ariko, mu bihe bimwe na bimwe, niba muganga wawe ahisemo, ushobora gukoresha uyu muti mu rugo. Niba ari uko bimeze, uzahabwa amahugurwa meza ku buryo bwo gutegura no gutanga uyu muti. Ugomba gukurikiza amabwiriza ya muganga nk'uko abivuga. Ntukagerageze ibi wenyine, utazi icyo gukora, sibyo?

Icy'ingenzi kurushaho! Ntukigere ujugunya inshinge zawe n'inshinge zawe zakoreshejwe mu myanda. Zigomba gushyirwa mu kintu cyabigenewe gikoreshwa mu gutwika . Niba udafite, saba umufarumasiye wawe cyangwa muganga wawe. Ibi ni ingenzi ku bidukikije no ku mutekano w'abandi.

Ese uyu muti ushobora guhabwa abana?

Yego, hari igihe abana nabo baba bakeneye guhabwa uyu muti. Ariko bisaba kwitabwaho by’umwihariko . Kubwibyo, niba ushaka guha umwana wawe uyu muti, vugana na muganga w’abana kandi ukurikize amabwiriza ye.

Wakora iki niba ufashe imiti myinshi? (Ingano irenze urugero)

Niba ubona ko wafashe uyu muti urenze urugero, ni ukuvuga urenze urugero rwatanzwe, hamagara ikigo gishinzwe kurwanya uburozi cyangwa icyumba cy’ubutabazi bwihuse. Ntugapfushe ubusa umwanya.

Icyitonderwa: Uyu muti wanditswe kuri wowe gusa.Ntukigere ubisangira n'abandi, kabone n'iyo baba bafite ibimenyetso bimwe nawe. Umuti ukwiye n'ingano yawo biratandukanye.

Bite se nintakaza dose?

Iki kibazo ntabwo gikenewe hano. Kubera ko, uyu muti witwa C1 Esterase Inhibitor, Recombinant atari umuti ukoreshwa buri munsi (si uwo gukoreshwa buri gihe) . Utangwa gusa iyo habayeho kubyimba gutunguranye kwa angioedema. Bityo ntuzagira 'imihango ibura'.

Ni iyihe miti yindi ishobora kugira ingaruka kuri uyu muti?

Ku bijyanye n'uko bizwi ubu, nta mikoranire ikomeye iteganijwe hagati y'uyu muti n'indi miti.

Ariko, ibuka ko uru rutonde rutagaragaza buri kimwe cyose kijyanye n'imiti. Kubwibyo, bwira muganga wawe imiti yose, ibyatsi, imiti idasaba muganga, cyangwa inyongeramusaruro ufata. Nanone, bwira muganga wawe niba unywa itabi, unywa inzoga, cyangwa ukoresha ibiyobyabwenge bitemewe n'amategeko. Hari ibintu bishobora kugira ingaruka ku miti yawe.

Ni iki nkwiye kwitondera mu gihe nkoresha uyu muti?

Iyo uhawe uyu muti, umuganga wawe cyangwa inzobere mu by'ubuzima azakurikirana neza ikibazo cyawe .

Nanone, niba ibimenyetso byawe bitarushijeho kuba byiza cyangwa ngo birusheho kuba bibi nyuma yo gufata uyu muti, hita ubibwira muganga wawe cyangwa umuganga wawe. Ntugategereze. Uko ubabwira vuba, niko bashobora kugira icyo bakora.

Ni izihe ngaruka mbi nagira kuri uyu muti?

Kimwe n'indi miti yose, uru rukingo rwa C1 Esterase Inhibitor, Recombinant rushobora guteza ingaruka mbi ku bantu bamwe na bamwe. Si buri wese urwakira, ariko ni byiza kumenya izishoboka.

Ingaruka mbi zigomba kumenyeshwa muganga wawe cyangwa umuganga wawe byihutirwa:

• Ubwivumbure bw'uruhu: Kuryarya, kubyimba kw'uruhu, kubyimba mu maso, ku minwa, cyangwa ku rurimi. Niba ubonye kimwe muri ibi, bwira muganga wawe vuba kuko bishobora kuba bikomeye.
• Ibimenyetso n'ibimenyetso by'amaraso yangiritse:
• Ibibazo byo guhumeka
• Impinduka mu kureba - kureba nabi mu buryo butunguranye, kureba kabiri
• Kubabara mu gatuza
• Kuribwa umutwe cyane, bitunguranye
• Ububabare, kubyimba, ubushyuhe mu kuguru - cyane cyane ku kuguru kumwe
• Kuvuga nabi - kuvuga amagambo make, kumva ko udashobora kuvuga icyo ushaka kuvuga
• Gucika intege cyangwa intege nke mu maso, ku kuboko cyangwa ku kuguru - cyane cyane ku ruhande rumwe rw'umubiri

Niba ubonye kimwe muri ibi bimenyetso, bishobora kuba ari ikibazo cyihutirwa , bityo shaka ubufasha kwa muganga byihutirwa.

Ingaruka mbi akenshi zidasaba inama za muganga (ariko niba zikomeje cyangwa zibangamiye, ugomba kubimenyesha muganga wawe ):

• Impiswi
• Umutwe - umutwe usanzwe
• Isesemi - kumva ugiye kuruka

Uru rutonde rushobora kuba rudakubiyemo ingaruka mbi zose zishobora kubaho. Niba ubonye ikintu kidasanzwe, vugana na muganga wawe. Ushobora kandi gutanga raporo ku ishami rishinzwe ibiribwa n'imiti rya FDA (umubare wabyo ni 1-800-FDA-1088, ariko muri Sri Lanka ni byiza kubimenyesha muganga wawe).

Ni hehe nabika imiti yanjye?

Uyu muti ugomba kubikwa ahantu abana batagera . Ibyo ni ibisanzwe ku miti yose.

Niba ukoresha uyu muti mu rugo, uzahabwa amabwiriza y'uburyo wabika uyu muti. Bishobora kuvugwa ko ugomba kuwubika muri firigo cyangwa ku bushyuhe bw'icyumba. Kurikiza ayo mabwiriza neza.

Tara umuti wose utakoreshejwe warengeje igihe cyo kurangira ku cyapa. Ntuwubike.

Amaherezo, ibuka ibi (Ubutumwa bwo kujyana mu rugo)

Sawa, rero ndizera ko ubu usobanukiwe neza umuti twavuze uyu munsi witwa C1 Esterase Inhibitor, Recombinant.

Wibuke ko uru ni urushinge rwihariye rutangwa kugira ngo rurinde kubyimba gutunguranye mu gihe umuntu yarwaye Angioedema. Rukoreshwa gusa iyo muganga aguhaye inama.

• Mbere yo guhabwa uyu muti, ntukibagirwe kubwira muganga wawe byose ku bijyanye n'ubuzima bwawe, aleriji, n'indi miti ufata .
• Mu gihe ukoresha umuti, menya ibimenyetso bidasanzwe, cyane cyane ingaruka z'ubwivumbure cyangwa ibimenyetso byo kuvura amaraso . Niba ubonye kimwe muri ibi, bwira muganga wawe vuba.
• Niba ukoresha mu rugo, menya neza ko wahawe imyitozo ikwiye kandi ukurikize amabwiriza. Shyira ibintu bisongoye n'ibindi bikoresho mu mutekano.
• Uyu ni umuti uhabwa wowe wenyine. Ntukawusangire n'abandi.

Indwara ya angioedema ni indwara iteye ishozi, ariko iyo uyivuje neza kandi ukayitabwaho neza, ishobora kugenzurwa neza. Ntugatinye, ganira na muganga wawe byose kandi ukurikize amabwiriza ye. Hanyuma ushobora gukira vuba!

Irinda C1 esterase, recombinant, angioedema, RUCONEST, kubyimba, allergie, urukingo, imiti