Nhasi tichataura nezvenyaya inonetsa, uye inokatyamadza vabereki vazhinji. Ndiyo dambudziko rekuzvarwa naro rinonzi Anencephaly. Ungave usina kumbonzwa nezvezita iri. Zvisinei, zvakakosha kuti chero ani zvake anotarisira mwana mutsva azive izvi. Kuverenga izvi kunogona kuita kuti unzwe kusuruvara uye kutya. Asi tiri kutaura nezvazvo kuti tikudzidzise, kwete kuti tikutyise. Saka ngatitaurei nezvazvo zvakadzama uye zviri nyore.
Zvichitaurwa zviri nyore, chii chinonzi Anencephaly?
Anencephaly chirwere chakakomba, chinoberekwa nacho (chiripo panguva yekuzvarwa) . Muchidimbu, muchirwere ichi, mwana anozvarwa asina zvimwe zvikamu zvakakosha zveuropi nedehenya. Ichi chirwere chinosuwisa zvikuru.
Uropi hunodzora mashandiro ese ari mumuviri wedu. Kubva pakufema kusvika pakufunga nemanzwiro, uropi hunokosha pane zvese. Saka, nekuti zvikamu zveuropi hazvina kuumbwa zvakanaka, mwana anozvarwa neAnencephaly ane mukana mudiki wekurarama. Kazhinji, pamuviri wakadaro unoguma nekubviswa pamuviri kana kuzvarwa akafa. Kunyangwe kana vakazvarwa, vana ivavo vanongorarama kwemaminitsi mashoma, maawa mashoma, kana mazuva mashoma.
Izvi zvinoitika sei? Chii chinonzi neural tube?
Kuti tinzwisise izvi, tinofanira kudzokera kumavhiki ekutanga ekukura kwemwana. Funga nezvazvo, mukati memavhiki ekutanga ekukura kwemwana, kunyanya pakati pemavhiki echitatu nemana ekuzvitakura , sisitimu yetsinga yemwana inotanga kuumbwa. Inotanga sechidimbu chenyama yakati sandara. Nyama iyi inopetwa yoita sechubhu. Tinoidaidza kuti tsinga yeropa .
Iyi tsinga yetsinga ndiyo hwaro hwehurongwa hwese hwetsinga dzemwana.
- Uropi nedehenya zvinoumbwa kubva pamusoro pechubhu .
- Muzongoza unobuda kubva pakati pechubhu .
- Chikamu chepazasi chechubhu chinoumba musana.
Anencephaly inoitika kana chikamu chepamusoro che neural tube chikasavhara zvakanaka . Izvi zvinoreva kuti uropi nedehenya hazvivhari zvakanaka pazvinofanira kuvharwa. Nekuda kweizvozvo, zvikamu zvakakosha zveuropi hwemwana, zvakaita se forebrain ne cerebrum, hazvikure. Kunyange zvazvo zvimwe zvikamu zveuropi zvichiumbwa, zviri kunze, zvisina kufukidzwa nedehenya kana ganda. Tinowanzodaidza marudzi aya ezvikanganiso zveNeural Tube Defects (NTDs) .
Kune mhando huru dzeanencephaly here?
Ehe, kune mhando nhatu huru dzeanencephaly. Mhando dzose nhatu dzinouraya mwana ari mudumbu.
- Meroanencephaly: Murudzi urwu, zvikamu zveuropi neuropi hwepakati zvinokura zvishoma. Uropi hunogonawo kunge husina kuvharwa zvakanyanya neganda nezvikamu zvedehenya.
- Holoanencephaly: Kurwara kwemusoro:Iyi ndiyo mhando yechirwere che anencephaly chinowanzoitika. Mumamiriro ezvinhu aya, uropi hahuna kukura zvachose.
- Craniorachischisis: Iyi ndiyo mhando yakanyanya kuipa. Muchiitiko ichi, uropi, dehenya, nemusana hazvikure zvachose.
Kudzidza nezvechirwere ichi kunogona kurwadza vabereki zvikuru. Asi kuziva zvinhu zvakaita seizvi kunogona kukubatsira kutora matanho ekudzivirira panguva yekuzvitakura.
Chirwere ichi chakajairika zvakadii? Ndezvipi zviratidzo zvinogona kuonekwa panguva yekuzvitakura?
Anencephaly chirwere chinowanzoitika mutsinga dzemuuropi. Ongororo dzinoratidza kuti chinoitika pamunhu mumwe chete pavanhu 1,000 vane pamuviri. Zvisinei, sezvatakambotaura, nekuti mimba zhinji idzi dzinoguma nekubviswa pamuviri, huwandu chaihwo hwevana vanoberekwa vaine chirwere ichi hwakaderera zvikuru.
Dambudziko iri rinogona kuonekwa nekukurumidza kuburikidza nekuongororwa kwakaitwa panguva yekuzvitakura. Pane zviratidzo zvakawanda zvinogona kuratidza izvi.
| Chiratidzo | Tsananguro iri nyore |
|---|---|
| Mazinga e alpha-fetoprotein (AFP) akakwira | Iri ipuroteni inogadzirwa nechiropa chemwana. Mumamiriro ezvinhu akadai seanencephaly, puroteni iyi inodonhera zvakanyanya muropa raamai nemumvura inoyerera yakakomberedza mwana. Izvi zvinogona kuonekwa nekuongororwa kweropa kunoitwa mumwedzi mitatu yechipiri yekuzvitakura. |
| Polyhydramnios | Kana huwandu hwemvura yemudumbu yakakomberedza mwana hwakanyanya, zvinogonawo kuva chiratidzo chedambudziko. Chiremba anogona kuona izvi panguva yekuongorora kweultrasound. |
| Zvinhu zvisina kumira zvakanaka zvakaonekwa pascan | Kuongororwa uku kunogona kuratidza zvakajeka kuti zvikamu zvedehenya remwana nehuropi hwake hazvina kana kuti zviri pachena pasina nyama yeuropi yaanozvifukidza. Musoro wemwana unogona kunge uri mudiki zvakanyanya kupfuura zvaitarisirwa. |
Ndezvipi zviratidzo zvechirwere ichi mumwana achangoberekwa?
Izvi zvakaomawo kutaura nezvazvo. Nekuti mwana anozvarwa aine anencephaly haana zvikamu zvikuru zveuropi, haana ruzivo kana ruzivo rwechinhu chero chipi zvacho.
Izvi zvinoreva kuti,
- Havagoni kuona .
- Havanzwi .
- Havanzwi kurwadziwa .
Dzimwe nguva, kana uropi hwemwana hwanyatsokura, mwana anogona kunge aine mafungiro ake . Izvi zvinoreva kuti anogona kuvhunduka zvishoma paunomubata. Izvi zvinogona kunyaradza vabereki zvikuru. Zvisinei, tinofanira kunzwisisa kuti izvi hazvirevi kuti mwana anoziva, kuti anogona kukunzwa, kana kuti anogona kurarama kwenguva yakareba. Chinhu chinongoerekana chaitika.
Ndezvipi zvikonzero uye zvinhu zvinokonzera anencephaly?
Zvakaoma kuziva chikonzero chimwe chete chechirwere ichi. Zvinofungidzirwa kuti chinowanzo kukonzerwa nekusanganiswa kwezvinhu zvakaita semajini nezvinhu zvakatikomberedza.
Izvi zvinobva kuzvizvarwa nezvizvarwa here?
Anencephaly haigamuchirwi nhaka. Kazhinji, inokonzerwa nekuchinja kwemajini kunoitika nguva nenguva, pasina nhoroondo yemhuri.
Zvisinei, kana wakambova nemwana ane chirwere chetsinga dzemutsinga (semuenzaniso spina bifida) , njodzi yako yekubereka mumwe mwana ane chirwere chakafanana yakapetwa ka20 kupfuura munhuwo zvake.
| Chinhu Chinokonzera Njodzi | Tsananguro |
|---|---|
| Kushaikwa kweFolic Acid | Ichi ndicho chinhu chikuru uye chinogona kudzivirirwa. Kusawana folic acid (vhitamini B9) yakakwana usati wava nepamuviri uye panguva yekuzvitakura kunowedzera njodzi yekukanganisika kwetsinga dzeropa. |
| Chirwere cheshuga | Kana amai vane chirwere cheshuga uye vasingadzore huwandu hweshuga muropa ravo panguva yekuzvitakura, zvinogona kukanganisa mwana ari kukura uye kuwedzera njodzi yezvirwere izvi. |
| Mimwe mishonga | Mimwe mishonga inoshandiswa kurapa pfari, migraines, kana bipolar disorder (semuenzaniso, phenytoin, carbamazepine, valproic acid) inogona kuwedzera njodzi iyi. Kana uchironga kubata pamuviri, zvakakosha kutaura nachiremba wako nezvemishonga yese yauri kutora. Usamborega kutora chero mushonga usati watanga wabvunza chiremba wako. |
| Kushandisa Opioid | Kushandiswa kwemishonga yakaita seheroin kana mimwe mishonga inorapa marwadzo (semuenzaniso hydrocodone) mumwedzi miviri yekutanga yekuzvitakura kunogonawo kukonzera kukuvara kwetsinga dzemuuropi. |
Nzira yekuziva sei chirwere ichi panguva yekuzvitakura?
Nekushandisa tekinoroji iripo, chirwere che anencephaly chinogona kuongororwa nemazvo kuburikidza nekuongororwa kwemwana asati aberekwa. Kuongororwa uku kunowanzoitwa pakati pemavhiki gumi nemasere kusvika makumi maviri epamuviri.
- Chinongedzo cheQuad Marker: Iyi bvunzo inoitwa paropa rakatorwa kubva kuna amai. Inotarisa zvinhu zvina zviri muropa raamai. Iyi bvunzo inotarisawo huwandu hwealpha-fetoprotein (AFP) hwatakambotaura nezvahwo. Kana huwandu hweAFP hwakakwira zvakanyanya, chiratidzo chekusakwana kwetsinga dzeropa.
- Ultrasound: Ichi chinhu chinozivikanwa nevanhu vazhinji. Chinoshandisa mafungu eruzha kutora mifananidzo yemwana. Pano, chiremba anogona kutarisa kukura kwedehenya remwana, uropi, uye musana. Anencephaly inogona kuonekwa zvakajeka nekuongorora uku.
- Kuongororwa kweMRI yemwana asati aberekwa: Dzimwe nguva, kana zvichidikanwa kusimbiswa, chiremba anogona kukutumira kunoongororwa kweMRI. Izvi zvinogona kuburitsa mifananidzo yakajeka uye yakadzama yeuropi nemusana.
- Amniocentesis: Muongororo iyi, tsono yakatetepa kwazvo inopinzwa muchibereko uye mvura yeamniotic yakakomberedza mwana inotorwa. Mvura yacho inoongororwa kuti ione huwandu hweenzyme inonzi AFP uye acetylcholinesterase. Kana huwandu uhwu hwakakwira, chiratidzo chakasimba chekusashanda zvakanaka kwetsinga dzemuuropi.
Kurapwa uye tarisiro yacho ndeyei?
Izvi zvinorwadza mwoyo zvechokwadi. Parizvino hapana mushonga wechirwere che anencephaly, sezvo uropi husingakwanise kupora kana hwarasika.
Dambudziko iri rinouraya. Zvinoreva kuti mwana haana mukana wekurarama. Kazhinji, mwana ari mudumbu anofira mudumbu. Kunyangwe akazvarwa, anofa mukati memaawa mashoma kana mazuva. Uku kurwadziwa kusingatsungiririki kuvabereki. Panguva yakaita seiyi, vanachiremba vako, vanamukoti, nevamwe vashandi vekurapa vachakupa iwe nemhuri yako rutsigiro rwepfungwa rwakakosha uye vachakubatsira kutsungirira kushungurudzika uku.
Chii chatingaita kudzivirira mamiriro ezvinhu akadai?
Kunyange hazvo chirwere chakadai seanencephaly chisingagoni kudzivirirwa zvizere, pane zvinhu zvakawanda zvatinogona kuita kuti tideredze njodzi yacho zvakanyanya .
- Kuwana folic acid yakakwana: Ichi ndicho chinhu chakakosha. Mukadzi wese ari kuronga kuva nemwana anofanira kutanga kutora 400 mcg (micrograms) yefolic acid zuva nezuva kwemwedzi mumwe chete asati abata pamuviri. Kukanganisika kwetsinga dzemutsinga kunoitika mukati memwedzi wekutanga wepamuviri, usati watomboziva kuti une pamuviri. Ndosaka zvichikosha kutanga kutora folic acid nekukurumidza. Kana wakambova nemwana ane neural tube defect kare, chiremba wako anogona kukurudzira kuti uwedzere mushonga uyu.
- Kutaura nachiremba wako nezvemishonga yauri kutora: Kana uchironga kuva nemwana, udza chiremba wako nezvemishonga yese yauri kutora parizvino. Mimwe mishonga inogona kukuvadza mwana ari mudumbu, saka chiremba wako anogona kukurudzira dzimwe nzira dzakakodzera.
- Kutarisira hutano hwako: Kana uine chimwe chirwere, chakadai sechirwere cheshuga, iva nechokwadi chekuti chagadziriswa zvakanaka usati wabata pamuviri. Taura nachiremba wako kuti akupe mazano.
Unoita sei nekurwadziwa kwekufirwa nemwana?
Kuziva kuti mwana wako ane Anencephaly kunogona kuva chimwe chezvinhu zvinorwadza zvikuru zvinogona kusangana nemubereki wese. Idambudziko risingatsananguriki. Zvakajairika kunzwa manzwiro akasiyana-siyana panguva ino, kusanganisira kusuruvara, hasha, kushaya tariro, uye kuzvipa mhosva.
Chinhu chinonyanya kukosha kunzwisisa kuti iyi haisi mhosva yako. Usazvidemba nekuda kwechimwe chinhu chawakaita kana chausina kuita.
Usaedza kutsungirira kusuruvara uku uri wega.
- Taura nezvemanzwiro ako nemurume/mukadzi wako, mhuri yako, neshamwari dzaunovimba nadzo.
- Vashandi vezvehutano vachakupa rutsigiro rwaunoda. Vanogona kukutumira kune nyanzvi yehutano hwepfungwa kana boka rekutsigirana rine vamwe vabereki vakambosangana nedambudziko rakafanana.
- Zvinotora nguva kuti upore kubva mukusuwa uku. Rega uzvigadzirise nepaanogona napo.
Kunyangwe ukaita zvese zvaunoudzwa nachiremba wako kuti uite kuti uve nepamuviri pakanaka, dzimwe nguva matambudziko aya ekuzvarwa nawo anogona kuitika. Ndiyo chokwadi chakaoma. Anencephaly chirwere chinoshungurudza zvechokwadi. Asi hausi wega uri parwendo urwu. Usazengurira kuwana rutsigiro rwaunoda.
Mharidzo Yekuenda Nayo Kumba
- Anencephaly chirwere chakakomba uye chinouraya chinoitika kana uropi hwemwana nedehenya rake zvikasakura zvakanaka.
- Izvi zvinowira muchikamu cheNeural Tube Defect (NTD).
- Kutora folic acid usati wabata pamuviri uye panguva yekutanga kwekuzvitakura ndiyo nzira yakanakisisa yekuderedza njodzi iyi.
- Kana uine chirwere chakadai sechirwere cheshuga kana pfari, kana kuti uri kutora mishonga yacho, iva nechokwadi chekukurukura nezvazvo nachiremba wako usati wabata pamuviri.
- Kana iwe kana mwana wako mukawana chirwere ichi, nzwisisai kuti haisi mhosva yenyu. Musazeza kutsvaga rubatsiro kubva kuchikwata chenyu chekurapa, mhuri, uye nyanzvi dzehutano hwepfungwa kuti vakubatsirei kutsungirira kushungurudzika uku.
💬 Comments (0)
No comments yet. Be the first to share your thoughts here.
Add Your Comment