Tsananguro iri nyore yemapundu asinganzwisisike pamakumbo nemaoko: Ngatidzidzei nezveClear Cell Sarcoma.

Wakambova nebundu risingawanzoitika kana bundu riri pasi peganda regumbo kana ruoko rwako risingazomboperi here? Ringasatomborwadzi kana ukaridzvanya. Asi kana rikanzwa sekunge riri kukura, ringave chinhu chekunetseka nacho. Nhasi tichataura nezvegomarara risingawanzoitiki rinogona kukonzera zviratidzo zvakafanana, asi zvakakosha kuziva nezvaro. Rinonzi Clear Cell Sarcoma .

Chii chinonzi Clear Cell Sarcoma?

Zvichitaurwa zviri nyore, clear cell sarcoma rudzi rwegomarara risingawanzoitiki rinoitika munyama dzakapfava . Rinowanikwa muchikamu chinonzi sarcoma . Kazhinji, magomarara aya anotangira mumitsipa , munyama dzinobatanidza tsandanyama nemapfupa, uye munyama dzakapfava dzakakomberedza tsandanyama, mumakumbo ako, kunyanya tsoka dzako.

Kufanana nedzimwe mhando dzegomarara, clear cell sarcoma iri nyore kurapa kana ikawanikwa isati yapararira kune dzimwe nhengo dzemuviri. Vanachiremba vanorapa chirwere ichi kunyanya nekuvhiyiwa , uye kana zvichidikanwa , kurapwa nemwaranzi uye dzimwe nguva chemotherapy . Zvinosuwisa kuti kunyangwe mushure mekurapwa, chirwere ichi chine mukana mukuru wekudzokazve. Ndosaka vaongorori vezvekurapa vachigara vachitsvaga nzira itsva dzekurapa clear cell sarcoma.

Sarcoma yemasero akajeka inokanganisa sei muviri wangu?

Sarcoma yemasero akajeka inowanzotanga munyama yakadzika yakapfava yakakomberedza tendon netsandanyama dzako, kana muchikamu chenyama chinonzi fascia . Fascia yakafanana nebhandi rinoputira chimiro chega chega mumuviri wedu.

Pakutanga, ungasaona chero chinhu. Asi uchazviona kana kenza yakura yova bundu rinogona kunzwikwa pasi peganda regumbo kana tsoka yako. Bundu iri rinogona kutaridzika sebundu rinoonekwa paunorova gumbo kana tsoka yako zvakasimba, asi musiyano wakakosha ndewekuti bundu iri hariderere nekufamba kwenguva . Clear cell sarcoma inokura zvishoma nezvishoma. Zvisinei, panguva yainopararira kubva munyama dzako dzakadzika pasi peganda, inogona kunge yatotanga kupararira kune dzimwe nhengo dzemuviri wako.

Fungidzira, unowana bundu diki pagumbo rako wobva warega kuriona, uchifunga kuti, "Aa, izvi zvinofanira kunge zvangoitika." Mavhiki kana mwedzi gare gare, richiripo, pamwe rakatokura zvishoma. Kana zvakadaro, zvakanaka kutsvaga mazano echiremba.

Sarcoma yemasero akajeka inopararira kupi?

Sarcoma yemasero akajeka inogona kupararira kune dzimwe nhengo dzemuviri, kunyanya:

• Sisitimu yako yekugaya chikafu (nzira yekugaya chikafu)
• YenyuKumapapu
• Sisitimu yako yelymphatic , inova ma lymph nodes nemidziyo ye lymph mumuviri wako.

Izvi zvinowanzoitika here?

Kwete, kwete zvachose. Iyi mhando yegomarara isingawanzoonekwi. Kutaura zvazviri, sarcoma igomarara risingawanzoonekwiwo. Semuenzaniso, muUnited States, vanhu vanosvika chiuru nemazana matanhatu vanoonekwa vaine sarcoma gore rega rega. Inhamba diki, inenge 1% yegomarara rese muvanhu vakuru. Clear cell sarcoma, iyo ingori 1% yegomarara rese. Saka unogona kufungidzira kuti izvi hazviwanzoonekwi sei.

Ndiani ane mukana mukuru wekuwana clear cell sarcoma?

Kunyangwe clear cell sarcoma inogona kukura chero pazera ripi zvaro, inowanzoonekwa muvechidiki vari pakati pemakore gumi nemashanu nemakumi mana , kunyanya avo vari mumakore avo ekuma20 ne30.

Ndezvipi zviratidzo zve clear cell sarcoma?

Sezvatakambotaura, chiratidzo chinowanzoonekwa ibundu risingabvi pasi peganda regumbo kana tsoka . Bundu iri ringarwadza kana kusarwadza. Asi kana riripo uye richinzwa sekunge riri kukura, chiratidzo chikuru.

Uye zvakare, zviratidzo zvinotevera zvinogona kuoneka gare gare:

• Kuneta zvakanyanya pasina chikonzero
• Kuderedza uremu kusingatsananguriki
• Kudikitira husiku

Chii chinokonzera clear cell sarcoma?

Izvi zvakaoma zvishoma. Vaongorori vezvekurapa vakaona kuti clear cell sarcoma inokonzerwa nezvikamu zvemachromosome maviri ari mumasero edu zvinochinjana nzvimbo, zvichigadzira gene idzva rakasanganiswa .

Zvichitaurwa zviri nyore, izvi ndizvo zvinoitika:

Kana masero emuviri wedu akapatsanuka, dzimwe nguva machromosome maviri anotyoka uye zvidimbu zvakatyoka zvinochinjana. Muchiitiko ichi, zvikamu zvechromosome zvinotsiviwa zvine majini anonzi EWSR1 neATF1 . Puroteni inogadzirwa nejini reEWSR1 inoita seinokosha pakushanda kwemasero. Jini reATF1 rinobatsira kudzora kukura kwemasero. Kana machromosome aya adzoka pamwe chete, zvikamu zvemajini zvakatsiviwa zvinoguma panzvimbo dzisiri idzo. Vanachiremba vanoti izvi itranslocation inodzokororwa . Chikonzero chaicho nei izvi zvichiitika hachisati chazivikanwa.

Kana yangoendeswa kune imwe chromosome, majini akachinjaniswa anosangana kuti aumbe fused gene inonzi EWSR1/ATF1 . Vaongorori vanotenda kuti fused gene iyi ndiyo inonyanya kukonzera clear cell sarcoma.

Vanachiremba vanoongorora sei chirwere chinonzi clear cell sarcoma?

Paunoenda kunoona chiremba ane bundu rakadai, ndiye anotanga akuongorora uye otarisa nzvimbo yebundu, saizi yaro, nezvimwe zvinhu. Zvadaro ungangoda MRI scan (Magnetic Resonance Imaging - MRI).Zvinogoneka.

Zvisinei, kuongororwa kwe clear cell sarcoma kunosimbiswa ne biopsy, iyo inosanganisira kutora chidimbu chidiki chenyama kubva mubundu . Kana sampuro iyi yenyama ikaongororwa pasi pe microscope, vanachiremba vezvirwere, nyanzvi dzinoongorora nyama murabhoritari, vanotsvaga kuvapo kwejini rakasanganiswa reEWSR1/ATF1 ratakataura nezvaro kare.

Ko clear cell sarcoma inorapwa sei?

Chinangwa chikuru chevanachiremba ndechekumisa kupararira kwemasero ekenza kune dzimwe nhengo dzemuviri. Kazhinji, danho rekutanga nderekuvhiya kubvisa bundu zvachose . Kana kenza yapararira kuma lymph nodes, ma lymph nodes iwayo anobviswawo. Izvi zvinoteverwa ne adjuvant therapy . Izvi zvinowanzosanganisira radiation therapy kuuraya chero masero ekenza asara.

Vaongorori vezvekurapa vari kuferefeta mimwe mishonga. Semuenzaniso, vari kutarisa kuti immunotherapy inoshanda sei mukudzivirira clear cell sarcoma. Vari kuongororawo kana mishonga iri kushandiswa pari zvino kurapa mamwe marudzi ekenza inogona kubatsira kumisa kupararira kwe clear cell sarcoma.

Chinhu chakakosha ndechekuti clear cell sarcoma chirwere chinogona kudzoka kakawanda. Kana izvozvo zvikaitika, ungangoda kuvhiyiwa kwakawanda uye kurapwa nemwaranzi yakawanda. Uye nekuti inogona kupararira nekukurumidza, vanachiremba vanokutarisa nguva nenguva kuti vaone kana bundu idzva richibuda.

Ndingaderedza here njodzi yangu yekuve nechirwere che clear cell sarcoma?

Zvinosuwisa kuti hapana chaungaita kuderedza njodzi yako yekuva nechirwere ichi. Nekuti vaongorori vezvekurapa havasati vaona chero zvinhu zvakananga zvinokonzera njodzi yekuve nechirwere che clear cell sarcoma. Chinhu chinokonzera njodzi chiitiko kana mamiriro ezvinhu anowedzera mukana wekuva nechirwere.

Ko clear cell sarcoma inogona kurapwa zvachose here?

Vanachiremba vanogona kurapa clear cell sarcoma, zvinoreva kuti vanogona kubvisa bundu uye kuedza kudzora kupararira kwaro. Zvisinei, harisi dambudziko rinorapika zvachose . Kazhinji, clear cell sarcoma inogona kupararira kune dzimwe nhengo dzemuviri panguva yainoonekwa. Izvi zvinoita kuti zviome kurapa. Zvinowanzoitawo kuti idzoke mushure mekurapwa.

Munhu ane clear cell sarcoma anotarisirwa kurarama hupenyu hwakadii?

Nguva yekurarama ifungidziro yekuti uchararama kwenguva yakareba sei, zvichibva pahutano hwako hwese uye zvinhu zvako pachako. Ongororo yakaitwa muna 2018 yeUS National Cancer Database yakaratidza kuti pakati pevanhu vane clear cell sarcoma,Yakatiwo 50% vachiri vapenyu makore mashanu mushure mekuonekwa kuti vane chirwere ichi, uye 38% vachiri vapenyu makore gumi mushure mekuonekwa vaine chirwere ichi .

Kunyangwe tichitaura nezvenguva yekurarama kana kuti yekurarama, zvakakosha kuyeuka kuti idzi ingori fungidziro chete, kwete fungidziro. Nguva yekurarama ifungidziro inobva pahuwandu hwevanhu vese. Mwero wekurarama nekenza ifungidziro inobva pakuti vanhu vanorarama kwenguva yakareba sei mushure mekurapwa kwerudzi rwakati rwekenza. Pane zvinhu zvakawanda zvinogona kukanganisa nguva yekurarama kwemunhu kana mikana yavo yekupona kenza. Kana uine clear cell sarcoma, chiremba wako anogona kukupa ruzivo rwakanakisisa nezvezvaunotarisira.

Ko clear cell sarcoma inogona kuuraya here?

Ehe, zvinogona kuuraya. Kazhinji, vanhu vane clear cell sarcoma yakapararira kune dzimwe nhengo dzemuviri vane mukana wekufa nekukurumidza kupfuura avo vanorapwa kenza isati yapararira.

Ndinofanira kuona chiremba wangu rini?

Nekuti clear cell sarcoma inogona kudzoka mushure mekurapwa, chiremba wako angangoda kukuona mwedzi mitatu yega yega kwemakore maviri ekutanga mushure mekupedza kurapwa, zvichienderana nemamiriro ako ezvinhu. Zvakakosha kuti ugare uchiongororwa nguva nenguva mushure mekurapwa.

Mibvunzo ipi yandinofanira kubvunza chiremba wangu?

Clear cell sarcoma chirwere chisingawanzoitiki. Chinogona kuisa hupenyu panjodzi. Kana ukaonekwa uine chirwere ichi, ungangoda kubvunza chiremba wako mibvunzo iyi:

• Bundu riri kupi? Rakakura sei?
• Bundu iri rapararira here mumuviri wangu?
• Ndeapi marapirwo amunokurudzira?
• Ndezvipi migumisiro yekurapwa?
• Kana ndikavhiyiwa, mikana yekuti bundu iri ridzoke ndeyei?
• Pane mimwe miedzo yekiriniki yandingafunga nezvayo here?

Pfupiso uye Mharidzo Yekuenda Nayo Kumba

Clear Cell Sarcoma chirwere chinonetsa zvikuru. Hachiwanzoitiki. Chinongobata vanhu vashoma pagore. Uye chinokura zvishoma nezvishoma. Sarcoma inogona kupararira uye kuuraya vanhu vazhinji pavanoona shanduko mumiviri yavo.

Asi yeuka, vanachiremba vanogona kurapa clear cell sarcoma. Vanogona kubvisa bundu nekuvhiyiwa, uye vanogonawo kukupa mushonga wekuuraya chero masero ekenza asara. Zvinosuwisa kuti clear cell sarcoma inogona kudzoka kakawanda. Saka zvakakosha kuti ugare uchiongororwa uye uchiziva chero shanduko dziri kuitika mumuviri wako.

Vaongorori vezvekurapa vari kutsvaga nzira itsva dzekurapa clear cell sarcoma. Kana uine clear cell sarcoma, kune mimwe miedzo mitsva yekiriniki.Kana uchida kuziva zvakawanda nezvazvo, bvunza chiremba wako nezvazvo wowana mazano. Usambofa wakarasa tariro. Nemazano ekurapa akakodzera uye rutsigiro, unogona kutarisana nedambudziko iri.

` clear cell sarcoma, kenza yenyama yakapfava, bundu remakumbo, bundu remakumbo, sarcoma, zviratidzo zvekenza, kurapwa kwekenza