Bundu diki riri mumusoro here? Ngatidzidzei nezve craniopharyngioma zviri nyore!

Wakambonzwa here nezvebundu risinganzwisisike rinokura mumusoro, kana kuti muuropi, pedyo negondo diki asi rinokosha zvikuru - gondo repituitary ? Iri rinonzi craniopharyngioma. Chaizvoizvo hariwanzoitiki, zvichireva kuti harisi chirwere chinokanganisa munhu wese. Asi gondo diki iri rinogona kukanganisa zvakanyanya kuona kwako uye system yako ye endocrine . Saka ngatitaurei nezvazvo zvakadzama nhasi, zvakanaka here?

Chii chinonzi craniopharyngioma?

Zvichitaurwa zviri nyore, craniopharyngioma ibundu risingawanzoitiki, risiri rekenza (risina njodzi). Rinokura pedyo nepituitary gland yako. Bundu iri rinokura zvishoma nezvishoma. Zvisinei, rinogona kukanganisa tsinga dzako dzemusoro , kunyanya tsinga dzinobatana nekuona kwako. Rinogonawo kukanganisa system yako ye endocrine, iyo inodzora mahormone mumuviri wako.

Mishonga mikuru yekurapa izvi kuvhiyiwa uye kurapwa nemwaranzi . Dzimwe nguva, chemotherapy inoshandiswawo kune mhando chaiyo yebundu, rudzi rwepapillary.

Mashoko akanaka ndeekuti vanhu vanopfuura 90% vane bundu iri vanorarama makore mashanu mushure mekuonekwa kuti vane chirwere ichi. Zvisinei, bundu iri rinoonekwa sechirwere chisingaperi . Nekuti kurapwa hakuwanzo rapa mamwe matambudziko anokonzerwa nebundu iri, uye rudzi urwu rwebundu runogona kudzoka zvakare.

Ndiani anowana craniopharyngioma?

Gore rega rega, vanhu vaviri pamiriyoni vanowana imwe yemhando mbiri dzecraniopharyngioma: adamantinomatous nepapillary . Dzinonyanya kuwanikwa mumapoka maviri ezera:

• Vana vari pakati pemakore mashanu negumi nemana
• Vakuru vari pakati pemakore makumi mashanu nemakumi manomwe nemana

Kunyange hazvo rudzi rwe adamantinomatous ruchigona kukura muvanhu vezera ripi zvaro, rudzi rwe papillary runowanzoonekwa muvanhu vakuru.

Craniopharyngioma iyi yakakomba zvakadini?

Kutaura zvazviri, craniopharyngioma chirwere chakakomba. Chinogona kuda kurapwa kwehupenyu hwese. Inenge hafu yemamota anobviswa zvachose nekuvhiyiwa anodzoka mushure mechinguva. Mamwe ematambudziko ehutano anokonzerwa nemamota aya anogona kuramba aripo kunyangwe bundu racho rabviswa.

Chii chakasiyana pakati peCraniopharyngioma nePituitary Adenoma?

Zvese izvi zvinogona kukanganisa mashandiro emahormone.Pituitary adenoma rudzi rwebundu rinokura mu pituitary gland yako. Zvisinei, craniopharyngioma inokura pedyo negland. Kunyange zvazvo mhando dzese dzebundu dzisina njodzi, craniopharyngioma inowanzova nehasha kupfuura pituitary adenoma.

Ndezvipi zviratidzo zveCraniopharyngioma?

Zviratidzo zvecraniopharyngioma zvine chekuita nemamiriro ezvinhu anoitika kana chimwe chinhu chikakanganisa pituitary gland yako kana yemwana wako, hypothalamus gland, optic nerves , uye uropi.

• Kuvana: Izvi zvinogona kukanganisa kukura nekukura kwevana. Izvi zvinonyanya kuonekwa muvana kupfuura vakuru vane craniopharyngioma.
• Kune vana nevakuru: Kuona kunogona kukanganiswa. Kunyanya, kuona kwekunze kunogona kuderedzwa.

Zvisinei, nekuti zviratidzo izvi zvinogona kufanana nezvezvimwe zvirwere, zvinogona kuoma kuti vanachiremba vakurumidze kugumisa kuti zviratidzo izvi zvinokonzerwa nebundu iri.

Matambudziko anokonzerwa nekumanikidzwa kwepituitary gland

Gland repituitary rako kana remwana wako ndiro rinodzora mashandiro akawanda emahormone mumuviri. Kana craniopharyngioma yakadzvanya gland iri, zvinotevera zvinogona kuitika:

• Kushaikwa kweHormone Yekukura (GH): Izvi zvinogona kukonzera kukura kwakanonoka muvana. Muvanhu vakuru, kushomeka kweGH kunogona kukonzera kusasimba, osteoporosis ( kutetepa kwemapfupa), kusimba kwetsandanyama, kuwedzera cholesterol yeLDL, uye chirwere chemwoyo.
• Kushaikwa kweGonadotropin: Vanhu vane chirwere ichi vanogona kunonoka kuyaruka. Vakadzi vanogona kurega kuenda kumwedzi, chirwere chinonzi amenorrhea .
• Kushaikwa kweAdrenocorticotropic hormone (ACTH): Izvi zvinogona kukonzera kushaya simba uye kuneta. Zvinogonawo kukonzera kudzikira kwehuremu, kurasikirwa nechido chekudya, kushaya simba kwetsandanyama, kuda kurutsa nekurutsa, uye BP yakaderera ( hypotension ).
• Kushaikwa kweTSH: Vanhu vane TSH shoma vanogona kuona zviratidzo zvakaita sekuneta, kuenda kumwedzi zvisina kurongeka, uye kukanganwa.
• Central Diabetes Insipidus (CDI): Chirwere ichi chinoratidzwa nenyota yakawandisa ( polydipsia ) uye weti kakawanda ( polyuria).() zvinoitika. Vanhu vane CDI vanogona kusangana nematambudziko akadai sekushaya mvura mumuviri , kurova kwemoyo kusina kurongeka, fivha, ganda rakaoma uye mucous membranes, kuvhiringidzika, uye pfari.

Matambudziko anokonzerwa nekumanikidzwa kwe hypothalamus

Hypothalamus yako kana yemwana wako inodzora mashandiro emuviri akadai semanzwiro, nzara nenyota, maitiro ekurara, uye pabonde. Kana bundu recraniopharyngioma rakadzvanya hypothalamus, zvinotevera zvinogona kuitika:

• Kufuta kwakanyanya mumuviri: Izvi zvinoreva kufuta kunoitika pasinei nekudziviswa kwemacalorie, kurovedza muviri, uye kudzora kudya.
• Froehlich's syndrome: Vanhu vane chirwere ichi vanonzwa nzara zvisinei nekuti vanodya zvakadii, zvichikonzera kufuta. Vana vane Froehlich's syndrome vanogona kukura zvishoma nezvishoma kupfuura vamwe vana. Vamwe vana vanogonawo kuva nedambudziko rekuona zvakanaka uye pfungwa dzisina kunaka.
• Chirwere cheNon-24-hour sleep-wake syndrome: Ichi chirwere chekurara chinoita kuti vanhu vasakwanise kutevedzera purogiramu yenguva dzose yekurara. Vamwe vanhu vanogona kushaya hope zvakanyanya.

Bundu iri rinokanganisa sei kuona kwako kana kwemwana wako?

Matumbu eCraniopharyngioma anowanzo buda pedyo netsinga dzemaziso dzemwana wako kana dzemaziso. Kana tsinga idzi dzikamanikidzwa, dzinogona kukonzera kusaona zvakanaka kana matambudziko ekuona zviri panze.

Chii chinokonzera craniopharyngioma?

Vaongorori havasati vaziva chikonzero chaicho, asi vanotenda kuti bundu iri rinokura kubva mumasero anobatsira kuumba gland repituitary rako kana remwana wako. Neimwe nzira, masero aya anova asina kujairika, anowanda, uye anokura.

Vanachiremba vanoongorora sei Craniopharyngioma?

Kana uri kuongororwa rudzi urwu rwegomarara, chiremba wako anogona kukubvunza nezvenhoroondo yako yehutano uye kukura kwemuviri. Kana mwana wako ari kuongororwa, anogona kukubvunza nezvekukura kwake kwemuviri, kukura kwepfungwa, kuona kwake, uye kana achinzwa nyota isina kujairika kana kuti achida kuita weti nguva nenguva.

Ndedzipi mhando dzebvunzo dzinoitwa?

Vanachiremba vanogona kuita bvunzo dzakadai sedzinotevera:

• Kuongororwa kweropa: Izvi zvinoyera huwandu hwemahormone.
• Kuongororwa kweweti: Kuongorora matambudziko eitsvo.
• Kuongororwa kweCT (Computed Tomography - CT scan): Kuongororwa kweX-ray nekombiyuta zvinoshandiswa kugadzira mifananidzo yezvikamu zvitatu (3D) yenyama dzakapfava nemapfupa.
• Kuskena kweMRI (Kufungidzira Magadzirirwo Emagineti - MRI):Iyi bvunzo isingarwadzi inoshandisa magineti makuru, mafungu eredhiyo, uye komputa kuti ibudise mifananidzo yakajeka yenhengo dzemuviri nemaumbirwo awo.
• Kuongororwa kwemuviri: Vanachiremba vanoita biopsy (kutora sampuro yenyama) uye vanoongorora masero, mvura, nyama, kana kukura kwemasero vachishandisa maikorosikopu.

Craniopharyngioma inogona kurapwa here?

Craniopharyngioma inowanzo shandiswa kuvhiyiwa kweuropi . Izvi zvinogona kuitwa uchishandisa kamera diki (scope) inopinzwa nemumhino, kana nekuita buri diki mumusoro ( craniotomy ). Chinangwa chekuvhiyiwa ndechekubvisa bundu rakawanda sezvinobvira uku uchideredza kukuvara kwepituitary gland, hypothalamus, kana optic nerves. Zvisinei, vamwe vanhu vangangoda kutora mishonga yemahormone mushure mekuvhiyiwa. Pamusoro pezvo, kurapwa nemwaranzi kunogona kukurudzirwa mushure mekuvhiyiwa kana bundu risingakwanise kubviswa zvachose zvakachengeteka.

Ndezvipi migumisiro inowanzoonekwa kana munhu avhiyiwa?

Kuvhiyiwa kweCraniopharyngioma kwakaoma zvikuru. Chekutanga, nekuti mabundu aya anokura pedyo netsinga dzakapfava uye pituitary gland, pane njodzi huru yekuakuvadza. Chechipiri, kubvisa craniopharyngioma kwakafanana nekubvisa sticker kubva muhamvuropu pasina kukuvadza hamvuropu. Izvi zvinodaro nekuti mabundu aya akabatana zvakanyanya nepituitary gland uye tsinga dzinobatana nekuona. Vamwe vanachiremba vanotenda kuti kuvhiyiwa kubvisa mabundu aya kunogona kukonzera kukuvara kwakafanana nebundu pacharo. Saka, zvakakosha kunzwisisa pachine nguva kuti chinangwa chekuvhiyiwa chii uye kuti ndeapi mimwe migumisiro yaungatarisira.

Craniopharyngioma inogona kudzivirirwa here?

Zvinosuwisa kuti mapundu aya haagone kudzivirirwa. Anoumbwa nekuda kwekuchinja kwemasero kunoitika panguva yekukura kwemuviri wako kana wemwana wako.

Unogona kurarama kwenguva yakareba sei neCraniopharyngioma?

Vanhu vazhinji vanorarama kwemakore mushure mekurapwa. Asi mabundu aya anogona kudzoka zvakare. Kazhinji, anenge 17% emabundu anobviswa zvachose nekuvhiyiwa anodzoka. Nhamba iyi inowedzera kusvika 25% kusvika 63% yemabundu anongobviswa zvishoma. Mazhinji emacraniopharyngiomas anodzoka anodzoka mukati memakore matatu ekuvhiyiwa.

Vamwe vanachiremba vanofunga kuti craniopharyngioma chirwere chisingaperi chinoda kutarisirwa kwenguva refu. Pane zvikonzero zvakawanda zveizvi:

• Iwe kana mwana wako mungada kuvhiyiwa zvakare kuti mubvise bundu rinodzoka.
• Kana iwe kana pituitary gland yemwana wako kana hypothalamus ikakanganiswa nebundu kana kuvhiyiwa, kurapwa kwekutsiva mahormone kunogona kudiwa.
• Vana vazhinji vane hypothalamic obesity inokonzerwa nebundu iri vari panjodzi yakakura yekuwedzera mamwe matambudziko ehutano. Kana mwana wako aine hypothalamic obesity, uchada rutsigiro nenhungamiro kuti ubatsire mwana wako kusarudza chikafu chakanaka uye kurovedza muviri nguva dzose.

Ndirini pandinofanira/mwana wangu kuona chiremba?

Iwe kana mwana wako mungangofanira kurarama necraniopharyngioma kwemakore akawanda. Mabundu aya anogona kukura zvakare, uye kurapwa kungasabvisa zviratidzo zvese zvachose. Funga nezvezvinhu izvi paunenge uchironga kutarisirwa kwemwana wako/wako:

• Unofanira kuona chiremba wako gore rega rega kuti uongorore hutano hwako kana hwemwana wako.
• Chiremba wako kana wemwana wako angangoda kuti vaongorore gore rega rega, kazhinji MRI scans , kuti vaone kana bundu racho richidzoka zvakare.
• Iwe kana mwana wako mungada rubatsiro rwekugadzirisa matambudziko akadai sekushaya mahormone kana matambudziko ekuona asina kugadziriswa nekuvhiyiwa.

Mibvunzo ipi yandinofanira kubvunza chiremba wangu/wemwana wangu?

Kunyangwe craniopharyngioma iri bundu risingawanzoitiki, risiri kenza, rinogona kukonzera matambudziko akawanda ehutano anoda kutarisirwa kwenguva refu. Kana iwe kana mwana wako muine bundu iri, mungave muchinetseka nezvekugadzirisa dambudziko iri rehupenyu hwese. Heano mimwe mibvunzo inogona kukubatsirai kutaura nachiremba wenyu kana wemwana wenyu:

• Handisati ndambonzwa nezvemuchero uyu. Ungatsanangura kuti chii?
• Bundu iri rinogona kukonzera ini/mwana wangu kuti ndive nemamwe matambudziko akakomba ehutano here?
• Sei ini/mwana wangu ndakaita bundu iri?
• Ndezvipi zvingasarudzwa zvekurapa zviripo?
• Mikana yekubudirira kwekurapwa ndeyei?
• Kurapwa uku kuchaita kuti zviratidzo zvemwana wangu/wangu zvipere here?
• Ndezvipi migumisiro yenguva pfupi uye refu yekurapwa?
• Chii chinoitika kana bundu rikakura zvakare?

Kunyangwe kana ukavhiyiwa kubvisa craniopharyngioma, mabundu aya asingawanzoitiki, asiri ekenza anogona kuva nemigumisiro yenguva refu pauri kana pamwana wako. Pamusoro pezvo, iwe kana mwana wako mungada kurapwa nguva dzose nekuda kwezvirwere zvinokonzerwa nebundu iri. Neimwe nzira, craniopharyngioma chirwere chisingaperi icho iwe kana mwana wako muchafanira kurarama nacho kweupenyu hwenyu hwese. Kunyange hazvo vanachiremba vasingakwanise kuchirapa zvachose, vanogona kuita nepese pavanogona napo kuti vakubatsire iwe nemwana wako kugadzirisa matambudziko ekurarama nebundu iri risingawanzoitiki.

Pakupedzisira, meseji yekuenda nayo kumba:

Craniopharyngioma chirwere chakakomba uye chisingawanzoitiki, asi chinogona kurapwa nekurapwa kwakakodzera uye kuronga kwenguva refu.

• Tsvaga mazano ekurapwa nguva dzose: Zvakakosha kuti ugare uchitaurirana nechikwata chako chekurapa uye upinde bvunzo dzakarongwa uye nguva dzekuonana.
• Ramba uine tariro: Kunyange zvazvo rwendo urwu rwakaoma, hausi wega. Nerutsigiro rwevanachiremba, mhuri, neshamwari, uchawana simba rekukunda izvi.
• Ziva: Kuziva nezvechirwere ichi, marapirwo acho, uye matambudziko angangoitika kuchakubatsira kuita sarudzo dzakachenjera.

Yeuka, kuonekwa nekukurumidza uye kurapwa zvakanaka ndiyo nzira dzakanakisisa dzekurarama zvinobudirira nechirwere ichi. Kana iwe kana mwana wako muine chimwe chezviratidzo izvi, musazeza kuona chiremba.

Craniopharyngioma , bundu remuuropi, pituitary gland, mahormone, kuona, hutano hwemwana, bundu risiri rekenza