Mwana wako ari panjodzi here? Ngatikurukurei nezve Fetal Hydantoin Syndrome.

Kana uine pamuviri kana kuti uchironga kuva amai munguva pfupi iri kutevera, zvakakosha kuziva mishonga yaunotora. Kunyanya kana uri kutora mishonga yechirwere chakadai sepfari (kubatwa nepfari), unganetseka kuti mushonga wacho uchakanganisa here mwana wako asati aberekwa. Saka, nhasi tichataura nezvezvirwere zvinogona kuitika mumwana nekuda kwemishonga inotorwa panguva yekuzvitakura.

Chii chinonzi Fetal Hydantoin Syndrome?

Zvichitaurwa zviri nyore, Fetal Hydantoin Syndrome muunganidzwa wezviratidzo zvinogona kuitika kuvana vacheche vanobatwa nemimwe mishonga yekubatwa nepfari inotorwa naamai panguva yekuzvitakura, kunyanya Phenytoin (zita rekuti Dilantin®) . Vanachiremba vanodana mishonga iyi kuti teratogens , zvinoreva kuti zvinhu zvinogona kukanganisa kukura kwemwana ari mudumbu.

Zvimwe zvezviratidzo zvechirwere ichi zvinogona kuonekwa pakuzvarwa. Semuenzaniso, mamwe matambudziko ekuzvarwa nawo anogona kuonekwa pachiso chemwana, mumusoro, neminwe.

Zvisinei, zvimwe zviratidzo zvingasaonekwa pakarepo. Kunonoka kukura uye kuremara kwepfungwa zvinogona kusaonekwa kusvika gare gare. Nokudaro, vanachiremba nevemhuri vanofanira kushanda pamwe chete kuti vawane chikonzero chechirwere ichi uye kupa mwana kurapwa kwakakodzera uye rutsigiro.

Zvakakosha kuziva, zvisinei, kuti havasi vana vese vanobatwa nemishonga iyi vanozobatwa neFetal Hydantoin Syndrome. Kazhinji, hazvizoitiki. Zvisinei, nekuda kwekuti pane dzimwe njodzi, chiremba wako achakutarisa zvakanyanya panguva yese yekuzvitakura kwako. Mishonga yako ingangoda kuchinjwa.

Zvakakosha kuti usamborega kutora mushonga wako usina kurairwa nachiremba wako. Kuita izvi kunogona kuva nengozi kwauri nemwana wako asati aberekwa. Chiremba wako achaderedza mushonga wako kana zvichidikanwa, kana kukuchinja kuti uwane mumwe mushonga. Saka, tevera mirairo yachiremba wako nemazvo. Bvunza kana paine chausinganzwisisi.

Dambudziko iri rakajairika zvakadii?

Maererano nehuwandu, pakati pe5% ne11% yevana vacheche vanobatwa nemushonga wePhenytoin vanogona kubatwa neFetal Hydantoin Syndrome.

Zvisinei, hazvina kunaka kusarudza zvichibva panhamba idzi chete. Vanachiremba vanowanzo tarisa mhedzisiro yemishonga inoderedza fit panguva yekuzvitakura. Kureva kuti, vanachiremba vanonetseka nezvemigumisiro yese inogona kuitika yemishonga yakasiyana-siyana inoderedza fit - kana ikatorwa yoga uye kana ikatorwa pamwe chete - pane kuti chirwere chimwe chete chakajairika sei.

Semuenzaniso, kutora mishonga inopfuura imwe chete yepfari panguva imwe chete kunogona kuva nengozi pane kutora imwe chete. Uyewo, mimwe mishonga (yakadai semishonga ine valproate) ine mukana mukuru wekukonzera migumisiro yakaipa kupfuura mimwe.

Chiremba wako anogona kukutsanangurira zvakananga kuti mishonga yauri kunwa ingakanganisa sei pamuviri wako. Vachaongorora njodzi yako uye vachakupa mazano akakodzera.

Ndezvipi zviratidzo zve fetal hydantoin syndrome?

Zvimwe zvezviratidzo zveFetal Hydantoin Syndrome zvinogona kuonekwa pakuzvarwa zvinosanganisira:

• Maziso acho akapararira zvakanyanya kupfuura zvakajairika (zvinonzi hypertelorism mune zvekurapa).
• Maziso akapatsanurwa (strabismus) .
• Muromo wakapwanyika uye/kana mukanwa wakapwanyika .
• Zambuko remhino rakati sandara kana kuti rakafara kupfuura zvakajairika.
• Musoro mudiki pane wakajairwa (microcephaly) .
• Nzara dzeminwe nedzetsoka hadzikure zvakanaka kana kuti dzakaremara.

Mwana wako paanokura, unogona kuona zviratidzo zvekunonoka kukura . Kunonoka kukura kwemwana kunoitika kana mwana wako anonoka kusvika padanho rekukura zvichienzaniswa nevamwe vacheche vezera rake. Semuenzaniso, kunyemwerera kekutanga, kukunguruka, kana kutora matanho ake ekutanga.

Unogonawo kuona zviratidzo zvekuremara kwepfungwa . Kuremara kwepfungwa chinhu chinokanganisa nzira iyo mwana wako anodzidza uye anosangana nayo nenyika yakamupoteredza. Semuenzaniso, mwana wako angasakwanisa kudzidzira chimbuzi kana kuita mabasa ekuzvitarisira nekukurumidza sezvaungade. Kana kuti, angasanzwisisa pfungwa dzakadai semari nekushandisa nguva zvakanaka.

Chikonzero cheizvi chii?

Chikonzero chikuru cheFetal Hydantoin Syndrome inyaya yekushandiswa kwemishonga inopihwa mwana ari mudumbu nepa placenta panguva yekuzvitakura.

Vaongorori havasati vanyatsonzwisisa mashandiro anoita mishonga iyi kukonzera shanduko idzi nedzimwe shanduko. Vanotenda kuti zvimwe zvinhu, zvakaita semajini, zvinogona kuita basa. Semuenzaniso, mamwe machinjiki emajini anogona kukanganisa nzira iyo muviri wako unoputsa mashandisiro emishonga. Izvozvo zvinogonawo kuva chikonzero nei mishonga ichigona kukanganisa iwe panguva yekuzvitakura.

Zvinotarisirwa kuti tsvakiridzo yeramangwana icharatidza rumwe ruzivo nezvekuti chirwere ichi chinokura sei uye kuti ndiani ari panjodzi huru.

Vanachiremba vanoziva sei chirwere ichi?

Vanachiremba vanoongorora Fetal Hydantoin Syndrome pakuzvarwa kana muhudiki kana mwana achiratidza zviratidzo zvechirwere ichi. Nhoroondo yezvekurapa yaamai (kusanganisira mishonga) inobatsirawo pakuongorora chirwere ichi. Hapana bvunzo chaiyo yekuongorora Fetal Hydantoin Syndrome.

Saizvozvowo, hapana bvunzo chaiyo yekusimbisa kuvapo kweFetal Hydantoin Syndrome panguva yekuzvitakura. Zvisinei, vanachiremba vanogona kufungidzira chirwere ichi zvichibva pane zvimwe zvikanganiso zvekuzvarwa nazvo zvakaonekwa panguva yekuongororwa kwakadai sekuskena.

Ndezvipi zviri kurapwa?

Vanachiremba vacharapa mwana wako zvichienderana nezviratidzo zvake nezvaanoda. Kurapa uku kunogona kuchinja sezvo mwana wako achikura. Mamwe emishonga inogona kushandiswa anosanganisira:

• Kuvhiyiwa: Semuenzaniso, kuvhiyiwa kwekugadzirisa miromo yakatsemuka nemukanwa.
• Mishonga.
• Kurapa muviri.
• Kurapa kwepabasa.

Mwana wenyu angangoda rubatsiro rwakawedzerwa pakudzidza. Chikwata chevanachiremba chemwana wenyu chichashanda nemi kugadzira Hurongwa Hwebasa Remhuri Hwemunhu Mumwe Chete (IFSP) . Iri gwaro rakagadzirirwa zvinodiwa nemwana wenyu. Rinoronga mabasa angave achida mwana wenyu, akadai sehunyanzvi hwekubatsira uye kurapwa kwekutaura .

Vanachiremba nevarapi vanoshanda pamwe chete kuti vatarisire mwana wenyu vanogona kusanganisira:

• Vanachiremba vevana.
• Vanachiremba vepurasitiki.
• Vanachiremba vemazamu epachiso.
• Vanachiremba vepfungwa dzevana.
• Vanachiremba vepfungwa vevana.
• Varapi vezvemabasa.
• Varapi vekutaura.

Chii chandinofanira kutarisira kana mwana wangu aine chirwere ichi?

Chikwata chevanachiremba vemwana wenyu chichakuudzai zvekutarisira zvichienderana nezviratidzo zvemwana wenyu. Mwana wenyu angada kuvhiyiwa achiri mudiki, uye mamwe mabasa, akadai sekubatsira pakudzidza, sezvaanokura.

Usazvidya mwoyo nezvezvinhu zvese panguva imwe chete. Zviite nhanho imwe neimwe. Kana uchinzwa kushushikana zvakanyanya kana kushushikana, enda kuna chiremba . Vanogona kutaura nezvemanzwiro ako uye kukubatsira kuwana nzira dzakanaka dzekugadzirisa kushushikana kwako.

Fetal Hydantoin Syndrome inogona kudzivirirwa here?

Dzimwe nguva, kunyanya kana mushonga wacho uchikosha pahutano hwako, hazvigoneki nguva dzose kudzivirira mushonga wacho kuti usakuvadze mwana wako asati aberekwa. Zvisinei, chiremba wako anogona kushanda newe kuti abatsire kuderedza njodzi ye fetal hydantoin syndrome. Semuenzaniso, vanogona:

• Kuchinja mishonga yako usati wava nepamuviri uye panguva yekuzvitakura. Izvi zvinogona kusanganisira kuderedza huwandu hwemishonga yaunotora pazuva. Kana, kuchinja kushandisa mimwe mishonga isingakuvadzi mwana ari mudumbu.
• Zivisai vakadzi kuti vatore mishonga ye folic acid vasati vaita pamuviri uye panguva yekuzvitakura kuti vadzivirire kubva pakuremara kwekuzvarwa.

Chiremba wako achakutarisa zvakanyanya panguva yese yekuzvitakura kwako uye achagadzirisa chero chinodiwa pamishonga yako. Saka, iva nechokwadi chekuti wachengeta nguva yako yekuonana nachiremba wako uye taura chero mibvunzo kana zvinokunetsa zvaungave nazvo.

Unofanira kutsvaga mazano ekurapa rini?

Kana uri kutora mishonga inokubatsira kuti ugare wakagwinya uye uchikwanisa kubata pamuviri, kana kuti uri kuronga kubata pamuviri, iva nechokwadi chekutaura nachiremba wako. Vachaongorora mishonga yako uye vachasarudza kana paine shanduko dzinofanira kuitwa.

Kana watova nepamuviri uye uchitora mishonga yekudzivirira chirwere chepfungwa, tevera purogiramu yekusangana nachiremba wako nemazvo. Kusangana uku kwakakosha zvikuru nekuti ndipo panogona chiremba wako kutarisa pamuviri wako uye kugadzirisa mishonga yako sezvinodiwa. Vachaita zvese zvavanogona kuti vakubatsire kudzivirira chirwere chepfungwa ukuwo vachideredzawo kukuvara kwemwana wako.

Mibvunzo ipi yandinofanira kubvunza chiremba?

Mimwe mibvunzo yaungada kubvunza usati wabata pamuviri:

• Zvakachengeteka here kuti ndibate pamuviri?
• Ndezvipi zvandichafanira kuchinja pamishonga yangu?
• Mikana yekuti mushonga wangu uchakanganisa kukura kwemwana ari mudumbu ndeyei?
• Ndinofanira kuuya kuzokuonai zvakare riini?

Mibvunzo yekubvunza kana mwana wako akaonekwa kuti ane Fetal Hydantoin Syndrome:

• Dambudziko iri richakanganisa sei mwana wangu?
• Ndeapi marapirwo amunokurudzira, uye anotanga riini?
• Ndinofanira kutarisira sei mwana wangu kumba?
• Dambudziko iri richakanganisa sei kukura kwemwana wangu kana kugona kwake kufunga?
• Chii chandinofanira kutarisira mwana wangu paanokura?

Pamuviri inguva isingazivikanwe nevanhu vakawanda. Uyewo, kana uine chirwere chinoda kuti utore mishonga, ungangove uchishamisika kuti mushonga iwoyo uchaita sei pamwana wako. Kutora mishonga yakanyorwa kuti ukwanise kurwara panguva yekuzvitakura kunogona kukonzera fetal hydantoin syndrome kana zvimwe zvinhu zvisingadiwe. Zvisinei,Zvingangoita kuti mushonga wacho haukanganisi pamuviri wako - ndizvo zvingangoitika. Chiremba wako anogona kukuudza zvakawanda nezvezvaunotarisira uye kukutsigira nhanho imwe neimwe yenzira.

Mharidzo Yekuenda Nayo Kumba

Fetal Hydantoin Syndrome, yatataura nezvayo nhasi, chirwere chinogona kuitika kuvana vacheche nekuda kwemishonga yepfari yakaita sePhenytoin inotorwa naamai panguva yekuzvitakura. Izvi hazviitiki kune wese munhu , asi pane njodzi.

Chinhu chinonyanya kukosha ndechekutaura nachiremba wako kana uri kutora mishonga yemuviri wako uye uri kufunga nezvekuva nepamuviri, kana kuti watova nepamuviri. Usamborega kutora mushonga wako usina kurairwa nachiremba wako. Chiremba wako achakubatsira kushandisa mushonga wako nenzira yakachengeteka kwauri nemwana wako.

Kana mwana wako aine chirwere ichi, usavhunduke, tsvaga mazano echiremba uye uwane kurapwa kwakakodzera uye rutsigiro. Yeuka, hausi wega, kune vanachiremba, varapi, uye nhengo dzemhuri kuti vakubatsire.

Fetal hydantoin syndrome, mishonga panguva yekuzvitakura, phenytoin, pfari nepamuviri, zvirema zvekuzvarwa, kunonoka kukura, Dilantin