Mwana wako mudiki anotanga kugwinha here? Ndizvo zvatinoreva here neSpasms dzeVana Vadiki? Ngationei!

Wakamboona mwana wako achingoerekana agwinha uye aoma? Izvi zvingangodaro zvinoitika kakawanda pazuva. Ungave uchishamisika kana izvi zvakajairika kana kuti chirwere chaicho chinokanganisa vacheche. Ndizvo zvatichataura nezvazvo nhasi. Chirwere ichi chinonzi `(Infantile Spasms)`. Ngationei kuti chii, nei chichiitika, zviratidzo zvacho, kuti chingaonekwa sei, uye marapirwo api.

Chii ichi (Infantile Spasms)?

Zvichitaurwa zviri nyore, `(Infantile Spasms)` rudzi rwepfari runowanikwa muvana vari pasi pegore rimwe chete, kureva kuti, vari pasi pemwedzi gumi nemiviri . Ppfari chirwere (`neurological disorders`) chinokonzerwa nedambudziko risingawanzoitika nekushanda kwemagetsi muuropi hwemwana wako. Kana izvi `(Infantile Spasms)` zvikaitika, muviri wemwana, kunyanya dumbu, musoro, mutsipa, maoko, nemakumbo, zvinongoerekana zvaoma uye zvinoita sekunge zviri kuzununguka.

Kurwadziwa uku kunogara kwenguva pfupi, sekondi imwe kana mbiri . Asi kunogona kuitika munhevedzano, zvichireva kuti kurwadziwa kumwe kunouya uye kumwe kunouya mushure memasekonzi mashanu kana gumi, kana mu "cluster". Fungidzira mwana achikakava kakawanda akatevedzana. Kazhinji, kurwadziwa uku kunouya mushure mekunge vacheche vamuka kubva kuhope .

Chinosuwisa ndechekuti, vacheche vazhinji vanotambura nechirwere ichi vanogona kunge vatova nekunonoka kukura, kana kuti vanogona kukura gare gare. Kureva kuti, mwana anononoka kuita zvinhu zvinoenderana nezera rake.

Ndeupi musiyano uripo pakati pe (Infantile Spasms) ne (West Syndrome)?

Zvino ungave uchishamisika kuti iyi "West Syndrome" chii. Dzimwe nguva vanachiremba vanoidanawo kuti iyi. "West Syndrome" muunganidzwa wezviratidzo zvakasiyana-siyana. Ndizvo:

• Tine "Infantile Spasms" yatiri kutaura nezvayo.
• Pane nzira isina kujairika muchimiro chemagetsi cheuropi chinonzi `(Hypsarrhythmia)`. (Izvi zvinoonekwa nebvunzo ye `(EEG)`, tichazotaura nezvazvo gare gare).
• Kune kunonoka kwekukura kana kurasikirwa nehunyanzvi hwaivepo kare (`developmental regression`).

Zvisinei, havasi vana vese vane `(Infantile Spasms)` vane `(West Syndrome).` Kureva kuti, zvinokwanisika kuva ne`(Infantile Spasms)` pasina kunonoka kukura.

Chii chiri musiyano pakati pekurwadziwa kwemusana nekurohwa nepfungwa?

Ehe, uyu mubvunzo unokosha. `(Kubatwa nepfungwa dzevana vadiki)` rudzi rwekubatwa nepfungwa. `Kubatwa nepfungwa` ibasa remagetsi rinowanzoitika kamwe kamwe, risingadzoreki pakati pemasero europi. Izvi zvinogona kukonzera kuomarara kwetsandanyama kwenguva pfupi, kuchinja kwekufamba, maitiro, uye shanduko dzisingawanzoitika mumanzwiro. Hadzisi dzese pfari dzakafanana.

Zvichienzaniswa ne tonic-clonic kana grand mal seizures dzatinowanzo funga nezvadzo patinofunga nezve serpenti, idzi serpentiles spasms dzevacheche dzinopfupika zvikuru. Kuserpentiles kwevacheche kunogara kwesekondi imwe kana mbiri, asi kunouya mumapoka. Mamwe marudzi e serpenties anogona kugara chero kupi zvako kubva pamasekonzi makumi matatu kusvika kumaminitsi maviri.

Ndeupi musiyano uripo pakati peInfantile Spasms neStartle Reflex?

Izvi zvinovhiringidzawo vabereki vazhinji, nekuti maitiro anoita "Infantile Spasms" anogona kuita seakafanana nemaitiro anowanzoita vana vanokwenya.

Vacheche vanowanzo vhunduka (inonziwo Moro reflex) pavanonzwa ruzha rukuru kana pavanongoerekana vafambiswa. Mwana anobva akanda musoro wake kumashure, otambanudza maoko ake nemakumbo, obva atarisa kumusoro. Dzimwe nguva vanogona kuchema, vozodzosera maoko avo nemakumbo kumuviri wavo.

Asi mu `(Infantile Spasms)` hapana chikonzero chakadaro chekunze . Kureva kuti, kuputika hakuitiki nekuda kweruzha kana chimwe chinhu. Chimwe ndechekuti `(Infantile Spasms)` inouya mumapoka . Kureva kuti, imwe inouya, imwezve, uye imwe. Kuputika kwakajairika hakugari kwenguva yakareba kudaro. Uyewo, kana kuputika kwacho kwaitika, maziso emwana anogona kutenderera, kana kuti angaita sekunge ari kufinyamisa chiso . Izvi hazviwanzoitika mukuputika kwakajairika.

Kurwadziwa kwevana kunotanga pazera ripi?

Sekureva kwevanachiremba, 90% ye `(Infantile Spasms)` inowanikwa muvana vari pasi pemwedzi gumi nemiviri, kureva kuti, muvana vari pasi pegore rimwe chete. Inowanzoonekwa pakati pemakore mana nemwedzi minomwe . Zvisinei, dzimwe nguva vana vane mwedzi inopfuura gumi nemiviri vanogonawo kuva nerudzi urwu rwe spasm. Kana zvakadaro, inoiswa muchikamu che `(Epileptic Spasms)`.

Dambudziko iri rakajairika zvakadii?

Ichi hachisi chirwere chinowanzoitika, asi hachisi chinhu chisipowo. Zvinofungidzirwa kuti mwana mumwe chete pavana 2,000 kusvika 4,000 anogona kubatwa nechirwere ichi (Infantile Spasms).

Ndezvipi zviratidzo zveSpasms dzeVacheche?

Kana marwadzo aya auya, muviri wemwana wako unobva waoma, kana kuzununguka. Zvinongotora masekondi mashoma chete. Mwana anogona kukotama musana wake, kukotamisa maoko ake, makumbo, uye musoro wake mberi. Sezvatakambotaura, marwadzo aya anouya akaita seboka, rimwe mushure merimwe, nekuzorora kwemasekonzi mashanu kusvika gumi.

Mushure mekukandwa kana kukwandwa kashoma, mwana anogona kushushikana ochema. Asi izvozvo hazviwanzoitika.

Dzimwe nguva `(Infantile Spasms)` idzi dzinouya zvishoma nezvishoma . Tingasatombozviziva zviri nyore. Zviratidzo zvisinganyatsooneki ndeizvi:

• Kutenderedza maziso ako.
• Kurwadziwa kwemudumbu.
• Kufamba kwechirebvu.
• Kuseka.
• Musoro uchigutsurira.

Kana kudedera kwacho kuchikonzerwa nekusarongeka kweuropi hwemwana, kunogona kungokanganisa divi rimwe chete remuviri. Kana kuti musoro kana maziso zvinogona kuita sezviri kudhonzwa kudivi rimwe chete.

Chinhu chinonyanya kukosha ndechekuti kukwenya uku kunowanzoitika mushure mekunge mwana amuka kubva kuhope . Kunoitika kashoma mwana ari kurara.

Pasina nguva yakareba mushure mekunge mazamu aya atanga, muchakwanisa kuona dzimwe shanduko mumwana wenyu:

• Zvinhu zvinokosha pakukura zvakaita sekukunguruka, kugara, kupfugama, uye kutaura zvisina kunaka zvinorasika.
• Kushamwaridzana nevamwe kunoderera, uye kuseka kunoderera .
• Nguva dzose kutya, kana kugara wakanyarara.

Kana zvichibvira, tora vhidhiyo yemwana wako kana aine marwadzo aya. Unogona kuaratidza kuna chiremba wevana vako. Zvakakosha kuziva ``Marwadzo eVana Vadiki'' aya nekukurumidza. Kana uchifunga kuti mwana wako ari kurwadziwa nemarwadzo aya, ona chiremba nekukurumidza.

Kurwadziwa kwevana kunoitika kangani?

Mwana anogona kuva nepfari dzinosvika zana pazuva. Asi mwana wega wega anobatwa zvakasiyana. Saka, kana ukaona mwana wako achibatwa nepfari, kunyangwe kamwe chete kana kaviri pazuva, zvakanaka kutaura nachiremba nekukurumidza .

Ndezvipi zvinokonzera marwadzo emucheche?

Kune zvikonzero zvakawanda zvinogona kukonzera marwadzo evana vacheche. Masayendisiti akaona zvirwere zvinodarika mazana maviri zvinogona kukonzera marwadzo aya. Zvisinei, muchikamu chimwe muzvitatu chezviitiko, vanachiremba havakwanise kuwana chikonzero chaicho.

Kurohwa uku kunogona kukonzerwa nekusarongeka kwechikamu chidiki cheuropi hwemwana, kana kuti kunogona kukonzerwa nedambudziko muuropi hwese.

Zvimwe zvezvikonzero zvikuru ndeizvi:

• Kukuvara kwehuropi kana hutachiona: Kukuvara uku kunogona kukonzerwa nechero rudzi rwekukuvara kwehuropi. Zvikonzero zvikuru `(Hypoxic-ischemic encephalopathy)` (zvinoreva kuti uropi hauwani okisijeni yakakwana kana ropa kwenguva yakareba), `(Meningitis)` (meningitis), uye `(Perinatal stroke)` (zvinoreva sitiroko inoitika pakati pemimba yemwana uye mukati memwedzi wekutanga mushure mekuzvarwa).
• Matambudziko Ekukura Kwehuropi: Izvi zvinogona kukonzerwa nezvimwe zvinhu zvisina kumira zvakanaka muhurongwa hwetsinga dzemukati (uropi nemuzongoza) zvinoitika mwana achiri mudumbu. Semuenzaniso, mamiriro akaita se `(Focal cortical dysplasia)`, `(Lissencephaly)`, `(Holoprosencephaly)` uye `(Aicardi syndrome)`. Zvinogonawo kukonzerwa netsinga dzeropa dzisina kujairika muuropi hwemwana (`(Arteriovenous malformations)`).
• Kuchinja kwemajini: Masayendisiti ari kubatanidza kuchinja kwemajini akawanda nekurwadziwa kwevana vacheche. Mimwe mienzaniso inosanganisira Trisomy 21 (Down syndrome), Tuberous sclerosis, Miller-Dieker syndrome, uye CDKL5 deficiency disorder.
• Mamiriro emetabolism: Zvikanganiso zvekuberekwa nazvo zvemetabolism (IEM) zvinogonawo kukonzera chirwere ichi. Aya mamiriro emajini anovhara nzira dzemetabolism dzinoparadza chikafu chatinodya uye dzinogadzira simba. Kashoma, kushomeka kwevhitamini B6 kunogonawo kukonzera chirwere ichi.

Kushungurudzika kwevana mucheche kunoonekwa sei?

Chiremba wemwana wako achakubvunza nezvezviratidzo zvemwana wako uye nhoroondo yezvekurapa kwake, uye achakuongororwawo mumuviri.

Mwana wako anogona kuzotumirwa kuna chiremba wepfungwa dzevana kana chiremba wepfari. Vachamuongorora ne electroencephalogram (EEG) kuti vaone kana mwana wacho ari kurwadziwa nekurwadziwa kwemwana. Vanogonawo kuita mimwe miedzo kuti vaone chikonzero chacho.

Sezvo paine mazana ezvikonzero zvinokonzera 'Kupwanyika Kwevana Vacheche', zvinogona kuoma kuti vanachiremba vaone chikonzero chacho.

Ndezvipi zviedzo zvekuongorora chirwere?

Chiremba anonyanya kuita bvunzo ye "Electroencephalogram - EEG" kuti aone kana paine "Infantile Spasms".

EEG inoyera uye inorekodha zviratidzo zvemagetsi muuropi hwemwana wako. Kana EEG yaitwa, nyanzvi inoisa maplate madiki esimbi (electrodes) pamusoro pemusoro wemwana. Maelectrode aya akabatana nemuchina. Muchina uyu unopa chiremba ruzivo nezvekushanda kweuropi hwemwana. Zviri nani kana mwana akabatwa nepfari panguva yeEEG uye nguva iri pakati pepfari inogona kunyorwa. Vanachiremba vanotsvaga pateni yeEEG inonzi hypsarrhythmia. Patani iyi yakanyatsojeka. Ndokusaka kazhinji zviri nyore kuti vanachiremba vaongorore nemazvo marwadzo emwana mucheche.

Chiremba anogona kuraira mimwe miedzo kuti awane chikonzero chekudedera uku:

• Kuongororwa kweuropi nemagnetic resonance imaging (MRI): Kuongororwa kweMRI inzira isingarwadzi inogona kuburitsa mifananidzo yakajeka yenyama nemagadzirirwo europi hwemwana wako. MRI inoshandisa magineti makuru, mafungu eredhiyo, nekombiyuta kugadzira mifananidzo iyi yakadzama. Haishandisi X-rays. MRI inogona kubatsira chiremba wako kuziva chiri kukonzera pfari yemwana wako.
• Kuongororwa kwemajini uye metabolic tests: Kana MRI yemwana wako iri yakajairika, chiremba wako anowanzoita mimwe miedzo, yakadai seyemajini uye metabolic tests, kuti aedze kutsvaga chikonzero chepfari. Miedzo iyi inowanzo da ropa, weti, kana mvura yemusana.

Kurwadziwa kwevana mucheche kunorapwa sei?

Pane zvinangwa zvikuru zviviri zvekurapa: Chimwe ndechekumisa kana kudzora sitiroko . Chimwe ndechekurapa chakakonzera sitiroko , kana zvichibvira.

Mishonga mikuru inopiwa kumisa kana kudzora pfari ndeiyi:

• Homoni yeAdrenocorticotropic (ACTH):ACTH ihormone inogadzirwa negland rako repituitary. Ine simba guru pakuita kwemuviri wako kana wasangana nekushushikana. Kana ACTH yaburitswa, adrenal glands inokurudzirwa kugadzira "hormone yekushushikana" cortisol. ACTH, iyo inoshandiswa kurapa pfari, ihormone yakagadzirwa. Inopihwa sejekiseni. Madosi mashoma ekutanga anopihwa muchipatara. Chiremba achabva anyatsotarisa mwana wako kuti aone kana paine migumisiro yakaipa. Sezvo majekiseni eACTH achizoenderera mberi kwemavhiki matanhatu, chiremba wako achakuraira maitiro ekupa mwana wako jekiseni kumba.
• Prednisolone inonwiwa nemuromo: Mushonga uyu imhando yekugadzira yehormone yecorticosteroid inogadzirwa neadrenal glands. Inoshanda zvakanaka kurapa marwadzo evana vacheche. Inogona kushandiswa kana ACTH yakaoma kuwana.
• Vigabatrin (`Vigabatrin - Sabril®`): Uyu mushonga unorwisa pfari. Unopihwa nemuromo sepiritsi kana mvura.

Kana mwana wako asingapindure kurapwa kwemahormone kana Vigabatrin, kune dzimwe nzira dzekurapa nadzo:

• Kudya kwe ketogenic.
• Mimwe mishonga inorwisa pfari.
• Kana chikonzero che'Infantile Spasms' chiri dambudziko panzvimbo imwe chete muuropi ('focalized lesion'), kuvhiyiwa kwepfari kunokurudzirwa.

Kurwadziwa kwevana mucheche dzimwe nguva kunogona kuoma kurapa. Vamwe vana vangada kudzokorora kurapwa kana kurapwa kechipiri. Mukurapa kwese, mashandiro europi hwemwana angada kuongororwa nekuongororwa kweEEG kuti vaone kana kurapwa kuri kushanda.

Kana chiremba akakwanisa kuwana chikonzero chekunetseka kwemwana, vanofanira kurapa chikonzero ichocho kana zvichibvira. Izvi zvinogona kusanganisira kuvhiyiwa kana kurapwa zvakanangana nechirwere chemajini kana chemuviri.

Kunonoka kukura uye kudzokera shure kwemwana kunowanzoitika kana mwana asina kusimba. Chikwata chevanachiremba chichapa mazano ekurapa anobatsira kukura kwemwana zvakanyanya sezvinobvira.

Ndezvipi migumisiro yekurapwa kwekurwadziwa kwemusana kwevana?

Kune mimwe migumisiro inogona kuitika yekurapa adrenocorticotropic hormone (ACTH):

• Kukwira kweropa (BP).
• Kushaya simba kwesimba remuviri rekudzivirira muviri (`(Immunosuppression)`).
• Kuzvimba (kazhinji kumeso).
• Kusagadzikana uye kushatirwa.
• Maronda emudumbu kana mudumbu.
• Kuburitswa kweglucose muweti.

Migumisiro inogona kuitika yekurapwa kwe'Vigabatrin':

• Kudzikira kusingadzoreki kwenzvimbo yekuona.
• Hasha.

Nekuda kwemigumisiro iyi, chiremba wemwana wako achataura newe kuti asarudze nzira yakanakisisa yekurapa. Vachatarisawo mwana wako zvakanyanya kuti vaone kana migumisiro iyi ikaitika.

Chii chinonzi fungidziro yeSpasms yeVana Vacheche?

Remangwana rechirwere ichi, kana kuti 'kufanotaura', zvinoenderana nezvinhu zvakati wandei:

• Chikonzero che `(Kurwadziwa Kwevana Vacheche)`.
• Chikonzero chacho chinogona kurapwa here?
• Kukurumidza kwakaitwa kuti mwana aonekwe aine chirwere ichi uye kurapwa kwakatanga.
• Kana mwana asvika padanho rekukura asati atanga kuzvara.

Vana vanosvika 50% vane marwadzo emusana vanogona kunge vaine matambudziko ekukura uye etsinga kwenguva refu. Kunyangwe marwadzo acho akamira, vana vazhinji vanogona kuva nemamwe marudzi epfari uye pfari.

Zvisinei, kana zvikaonekwa uye zvikarapwa nekukurumidza uye zvinobudirira, tarisiro yacho inogona kuva yakanaka . Vana vakasvika padanho rekukura vasati vatanga kubatwa nepfari vanogona kukura zvakanaka.

Ndingatarisira sei mwana wangu ane marwadzo emusana?

Kana mwana wako aine "Infantile Spasms", unofanira kutevedzera mirairo yachiremba kuti umubatsire:

• Ipai mishonga yese sezvakarairwa.
• Tarisa kuongororwa kwekukura uye marapirwo.
• Endai kune dzimwe nzvimbo dzekuenda kunorapwa mushure mekuongororwa.

Kupwanya kwevana mucheche kunogona kukonzera matambudziko ekufunga, etsinga, uye/kana emanzwiro. Vana vazhinji vane Kupwanya kwevana mucheche vane matambudziko ekukura uye vangangoda rubatsiro mumabasa ezuva nezuva muhupenyu hwavo hwese.

Chikwata chevanachiremba chemwana wako chinogona kupindura mibvunzo yako uye kukupa rutsigiro. Vanogonawo kukutungamira kumapoka ekutsigira munharaunda yako kana online.

Ndinofanira kuona chiremba wemwana wangu rini nezvekurwadziwa kwemwana mucheche?

Kana mwana wako akaonekwa aine chirwere cheInfantile Spasms, anofanira kuonana nechikwata chake chekurapa nguva nenguva kuti ave nechokwadi chekuti kurapwa kuri kushanda. Anofanirawo kuongororwa neelectroencephalogram (EEG) kuti aongorore mashandiro europi panguva yese yekurapwa.

Kana uchifunga kuti mwana wako ane Infantile Spasms, asi asati aonekwa kuti ane chirwere ichi, zvakakosha kuti uone chiremba nekukurumidza .

Zvakajairika kunetseka kana mwana wako asiri kuita zvinhu zvakanaka kana kuti asiri kusangana nematanho ekukura. Unonyatsoziva mwana wako . Kana uchifunga kuti mwana wako ari kunzwa kugwinha-gwinha kamwe kamwe, kuomarara, uye kugwinha-gwinha, kazhinji mumaboka - taura nachiremba nekukurumidza. Kana zvichibvira, tora vhidhiyo yekuputika. Unogona kuiratidza kuna chiremba. Kuziva nekukurumidza "Kugwinha Kwemwana Mucheche" kunogona kutungamira kumhedzisiro iri nani .

Zvinhu zvatinofanira kurangarira kubva munyaya iyi (Mharidzo Yekuenda Kumba)

Zvakanaka, saka hezvino zvinhu zvishoma zvekufunga nezvazvo kubva pane zvatataura nezvazvo:

• Kupwanya kwevana mucheche rudzi rwepfari yakakomba inowanikwa muvana vari pasi pemwedzi gumi nemiviri yekuberekwa.
• Kana mwana wako akangoerekana agwinha-gwinha uye aoma, kunyanya kana amuka , usazvitore sezvisina basa .
• Izvi zvakasiyana nepfungwa yemwana yekuvhunduka.
• Kana zvichibvira, tora vhidhiyo yekurwadziwa kwedumbu woratidza chiremba .
• Kuongororwa kwemwana nekukurumidza uye kurapwa kunogona kukanganisa zvikuru kukura kwake mune ramangwana.
• Kana mukaona shanduko mumaitiro emwana wenyu, kunyemwerera kwake, kana kukura kwake, taurai nachiremba wenyu nezvazvo zvakare.
• Izvi zvinogona kushungurudza vabereki vese. Saka, uchitevedzera mirairo yachiremba chaizvo, tsvaga rubatsiro. Usazvidya mwoyo, vanachiremba vachakubatsira.

Kurwadziwa kwevana vacheche , pfari, kugwinha kwemwana, kugwinha, West Syndrome, pfari yevana, EEG, MRI