Une bundu risingawanzoitiki mutsinga dzako here? (Malignant Peripheral Nerve Sheath Tumor - MPNST) Ngatidzidzei nezvazvo.

Wakambonzwa bundu pane imwe nzvimbo pamuviri wako, pamwe paruoko kana gumbo, rinokura zvishoma nezvishoma here? Mabundu aya, ayo dzimwe nguva anogona kutanga ari madiki sepizi uye achikura seorenji, ndiwo atichataura nezvawo nhasi. Ichi chirwere chakakomba, asi chisingawanzoitiki. Chinonzi tumor yakaipa yeropa, kana kuti MPNST muchidimbu.

Chii chinonzi malignant peripheral nerve sheath bundu (MPNST)?

Zvichitaurwa zviri nyore, MPNST (Malignant Peripheral Nerve Sheath Tumor) igomarara risingawanzoitiki rinokura muzvivharo zvekudzivirira (nerve sheaths) zvakakomberedza tsinga mumuviri wako. Izvi ndezverudzi rwesarcoma yakapfava . Zvinomuka mutsinga dzako dzeropa . Funga nezvazvo, unogona kuwana magomarara aya pamaoko nemakumbo ako. Kwete izvozvo chete, dzimwe nguva anogonawo kukura muchiuno, mudumbu, mumusoro, nemutsipa. Magomarara aya anogona kurapwa nekuabvisa nekuvhiyiwa. Zvisinei, tinofanirawo kurangarira kuti dzimwe nguva magomarara aya anogona kudzoka .

MPNST haiwanzoitiki kangani?

Ichi chirwere chisingawanzoitiki. Munhu mumwe chete pavanhu 100,000 ndiye anoonekwa aine chirwere ichi chinonzi malignant peripheral nerve sheath bundu (MPNST) gore rega rega. Chinowanzo bata vanhu vane makore ari pakati pe30 ne50 .

Pamusoro pezvo, vanhu vane chirwere chemajini chinonzi Neurofibromatosis type 1 (NF1) vane mukana mukuru wekuwana MPNST. Zvakaonekwa kuti pakati pe25% ne50% yevanhu vane MPNST vanewo NF1 .

Kazhinji, MPNST inogona kukura nekukurumidza muvanhu vane NF1 pane muvanhu vasina NF1. Uyewo, varume vane NF1 vane mukana wekukura neMPNST zvishoma kupfuura avo vasina NF1.

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Ndezvipi zviratidzo zveMPNST?

Mishonga yeMPNST inogona kukura chero kupi zvako mutsinga dzemudumbu, asi inonyanya kubata nzvimbo dzakadai semaoko nemakumbo. Dzimwe nguva inogona kukurawo munzvimbo dzakadai sechiuno, chipfuva, dumbu, kana musoro nemutsipa. Zviratidzo zveMPNST zvinosanganisira:

• Bundu rinokura zvishoma nezvishoma pasi peganda. Mapundu aya anogona kuva madiki sepizi (anenge masendimita maviri) kana kukura seorenji (anenge masendimita gumi).
• Kunzwa kurwadziwa (kunyanya kana uine NF1).
• Kusanzwa kunzwa kugomera (Paresthesia).
• Kunzwa kushaya simba mumaoko nemakumbo.

Ndezvipi zvinokonzera MPNST?

Ongororo dzakaratidza kuti 50% yemapundu emutsinga anokonzera chirwere che neurofibromatosis type 1 (NF1).Mamiriro acho anonzi. Zvimwe zvikonzero zvinogona kuva:

• Kurapa nemwaranzi: Vanhu vanosvika 10% vane MPNST vakagamuchira kurapwa nemwaranzi kune zvimwe zvirwere.
• Kuchinja kwemajini: Vaongorori vakaona kuti kune shanduko dzakasiyana-siyana dzemajini dzinokonzera kuti masero etsinga dzeropa ave masero asina kujairika, owanda, uye oumba bundu.
• Mamwe marudzi e neurofibromas: Vanhu vane plexiform neurofibroma vari panjodzi yakakura yekubatwa neMPNST.

MPNST inoonekwa sei?

Kana ukaona chiremba, anotanga aita bvunzo yemuviri wako uye obvunza nezvehutano hwako. Izvi zvinosanganisira kubvunza nezvenhoroondo yako yezvekurapa, nhoroondo yemhuri yako yezvekurapa, uye chero zviratidzo zvaungave uchiona. Pamusoro pezvo, vanogona kuita zvinotevera:

• Kuongororwa kwemifananidzo: Vanachiremba vanogona kuita bvunzo dzakadai seMRI (Magnetic Resonance Imaging) uye PET (Positron Emission Tomography) scans .
• Kuongororwa kwemuviri: Chiremba anogona kuita biopsy, achitora sampuli yenyama uye oiongorora nemaikorosikopu nachiremba wezvirwere .
• Kuongororwa kwemajini: Kana uine bundu remutsinga rinouraya, chiremba wako anogona kukurudzira kuongororwa kwemajini kuti uone kana iwe kana nhengo yepedyo yemhuri yako ine neurofibromatosis type 1 (NF1) kana imwe mhando yebundu remutsinga , neurofibromatosis type 2 (Schwannomatosis) .

Ndeapi marapirwo eMPNST?

Vanachiremba vanowanzoita oparesheni yekubvisa bundu remutsinga rinouraya. Zvisinei, kune dzimwe nguva apo kuvhiyiwa hakugoneki. Semuenzaniso:

• Nzungu hombe (nzungu dzine urefu hwe 5 cm kana kupfuura).
• Matumbu akapararira.
• Mamota ari pedyo netsinga dzakaoma anogona kukuvara panguva yekuvhiyiwa.

Muzviitiko izvi, vanachiremba vanogona kurapa MPNST nekuvhiyiwa, chemotherapy , kana radiation therapy . Kurapa neradiation kunogona kuitwa vasati vavhiyiwa kana kuti mushure mavo.

Vatsvagurudzi vava kutsvaga kana immunotherapy kana therapy yakanangana inogona kushandiswa senzira itsva dzekurapa. Kana uine bundu remutsinga rinouraya masero etsinga, unogona kukodzera kuongororwa kwekiriniki kunoedza nzira itsva dzekurapa.Zvingava zvakanaka kutaura nachiremba wako nezvekutora chikamu.

Ndezvipi zvinetso zvinogona kuitika kana migumisiro yekurapwa?

Matambudziko anogona kuitika panguva yekuvhiyiwa anosanganisira:

• Mhinduro kune anesthesia yakajairika.
• Kubuda ropa rakawanda (kubuda ropa rakawanda).
• Marwadzo.
• Mavanga ekuvhiyiwa.
• Utachiona hwemaronda ekuvhiyiwa.

Kurapa kwakadai se chemotherapy kana radiation therapy kunogona kukonzera migumisiro yakaipa yakaita seyiyi:

• Manyoka.
• Kuneta.
• Kusvotwa nekurutsa.

Chii chingave chiri fungidziro yemunhu ane MPNST?

Kufungidzira zvichaitika ndizvo zvinofungwa nechikwata chevanachiremba vako mushure mekunge wapedza kurapwa. Panyaya yeMPNST, kufungidzira uku kunoenderana nezvinhu zvakati wandei:

• Dambudziko reNF1: Kana bundu iri rikakura muvanhu vane NF1, fungidziro yekuti vachapora inogona kunge yakaderera zvishoma pane yevanhu vasina NF1.
• Kukura kwegomarara: Vanachiremba vezvirwere vanoongorora masero vachishandisa maikorosikopu voisa magomarara muzvikamu seepamusoro kana kuti epasi . Magomarara epamusoro ane mukana wakakura wekuva nemasero egomarara anopatsanuka nekukurumidza uye anopararira.
• Saizi yebundu: Mabundu eMPNST anogona kukura kusvika masendimita gumi. Mabundu makuru anowanzo kuve akaoma kubvisa nekuvhiyiwa.
• Kupararira kwemasero eropa: Kana bundu racho rapararira kune dzimwe nzvimbo kubva parakatangira, rinogona kuoma kurapa.

Sezvamunoona, kune zvinhu zvakawanda zvinogona kukanganisa mukana wenyu wekupora, uye hazvisi zvese izvi zvingashanda kwamuri. Saka, zvakanaka kubvunza chiremba wenyu kuti akupei ruzivo rwakanyatsojeka nezvemamiriro enyu ezvinhu. Sezvo iye achinyatsoziva mamiriro enyu ezvinhu, anogona kukupai ruzivo rwamunoda.

Muwandu wekurarama kweMPNST uri papi?

Mwero wekurarama kwevanhu unofungidzirwa zvichibva pane zvakaitika kune vamwe vakambova nemamota emudumbu. Nekuti mamota aya haawanzoitiki, zvakaoma kuti nyanzvi dzitaure huwandu hwacho chaihwo. Sekureva kweNational Cancer Institute (US), pakati pe23% ne69% yevanhu vane MPNST vanorarama makore mashanu mushure mekuonekwa vaine chirwere ichi. Ndiwo marudzi akasiyana-siyana, handiti? Saka zvakanaka kubvunza chiremba wako nezvemamiriro ako ezvinhu.

Ndinozvitarisira sei?

Kana uine bundu remudumbu retsinga, uri kutarisana negomarara risingawanzoitiki rinogona kudzoka mushure mekurapwa. Kune mapurogiramu akati wandei anogona kukubatsira mumamiriro ezvinhu aya:

• Kutarisirwa kwevarwere vane marwadzo emusana:Mukurapa kwevarwere vane marwadzo emusana, muchashanda nechikwata chevanachiremba vakadzidziswa zvakakwana vanogona kukubatsirai kubata zviratidzo zveMPNST pamwe nemigumisiro yekurapwa. Uyezve, vachakupaiwo rutsigiro rwepfungwa.
• Zvirongwa zvekurarama negomarara: Gomarara rakafanana nerwendo. Zvirongwa zvekurarama negomarara zvinokutungamira kubva pazuva raunoonekwa kuti une chirwere, kuburikidza nekurapwa kwako, uye zvekuita kana gomarara rikadzoka.

Pakutanga kuona, bundu remutsinga weropa (MPNST) riri muruoko rwako kana pagumbo ringaita sebundu raunogona kukuvara kana kukuvadzwa zviri nyore. Kuziva kuti bundu iri igomarara risingawanzoitiki uye kuti rinoda kuvhiyiwa kunogona kukushamisa. Zvinogona kuoma kunzwisisa. Kana uine mibvunzo nezvechirwere chako kana kuti zvaunotarisira, timu yako yezvekurapa inonzwisisa. Vachafara kutora nguva yekupindura mibvunzo yako uye kugadzirisa chero zvinokunetsa.

Mharidzo yekudzokera nayo kumba kubva muchinyorwa chino

Zvakanaka, saka ndinovimba une kunzwisisa nezvechirwere ichi chegomarara chisingawanzoitiki chinonzi MPNST chatataura nezvacho nhasi. Yeuka, ichi chirwere chisingawanzoitiki. Kana uine mapundu asingawanzoitiki, kurwadziwa, kusanzwa, nezvimwewo mumuviri wako zvinoramba zviripo, edza kuona chiremba wowana mazano. Kana chikaonekwa nekukurumidza, ndipo pachiri nyore kurapa.

Chinhu chinonyanya kukosha ndechekuti hausi wega. Chikwata chako chekurapa, mhuri, neshamwari dziripo kuti dzikubatsire. Chinhu chinonyanya kukosha ndechekugara wakasimba uye kutevedzera zano rachiremba wako.

Bundu remutsinga rinokuvadza , MPNST, kenza yetsinga, bundu, kenza, neurofibromatosis, NF1, kuvhiyiwa, kurapwa nemwaranzi, chemotherapy