Une shamwari yakareba, ine maoko nemakumbo marefu, uye yakaonda here? Patinoona munhu akadaro, tinofunga kuti angave akanaka pamutambo wakaita sebasketball. Asi nhasi tichataura nezvechirwere chehutano chinouya nehunhu uhwu hwemuviri, hwatisingataure zvakawanda nezvahwo, asi hunogona kukosha zvikuru. Ndiyo Marfan Syndrome. Inogona kukanganisa mwoyo zvakanyanya, saka zvakakosha kuziva izvi.
Zvichitaurwa zviri nyore, chii chinonzi Marfan Syndrome?
Marfan syndrome chirwere chemajini chinoitika mumajini edu. Izvi zvinokonzerwa nekuti 'connective tissue' iri mumuviri wedu haisi kukura zvakanaka. Funga nezvemuviri wedu sechivako. Zvese zviri muchivako ichi, sezvidhinha, madziro, nedenga, zvinobatanidzwa pamwe chete uye zvinochengetwa zvakasimba nesimende. Saizvozvowo, connective tissue i'glue' inobatsira kubatanidza zvese zviri mumuviri wedu, senhengo, mapfupa, netsinga dzeropa, pamwe chete uye zvinoramba zvakasimba.
Mumunhu ane Marfan syndrome, 'chigunwe', kana kuti connective tissue, mumuviri hazvina simba. Zvakafanana nekuvaka imba nesimende yakachipa. Izvi zvinogona kukanganisa nzvimbo dzakawanda, kusanganisira maziso, mapapu, uye skeletal system. Asi migumisiro yakakomba inogona kuva pamwoyo yedu netsinga huru dzeropa.
Sei izvi zvichikanganisa mwoyo zvakanyanya? Matambudziko maviri makuru!
Nyama dzakasimba dzinogona kukuvadza zvikamu zviviri zvikuru zvemoyo.
1. Aorta: Iyi ndiyo tsinga huru, yakakura kwazvo inotakura ropa kubva pamwoyo wedu kuenda kumuviri wese. Kungofanana nehurongwa hukuru hwemapaipi hunotakura mvura kubva mutangi remvura mumba medu kuenda kwese kwese.
2. Mavharuvhu eMoyo: Aya akafanana nemagonhi madiki ari mukati memoyo. Mavharuvhu aya anovimbisa kuti ropa rinoyerera nenzira imwe chete.
Zvino ngationei kuti migumisiro yacho iri pazvikamu zviviri izvi.
1. Chii chinoitika ku aorta?
Munhu ane Marfan syndrome ane nhengo dzisina kusimba mumadziro e aorta yake. Izvi zvinogona kukonzera matambudziko maviri makuru:
- Kukura kweAortic: Kazhinji, tsinga yeropa inochinjika. Zvisinei, nekuda kwekusasimba uku, aorta inotanga kukura zvishoma nezvishoma, isingakwanise kumira kumanikidzwa kunokonzerwa nekurova kwemoyo kwega kwega.
- Aortic Aneurysm: Dzimwe nguva kukura uku hakugumiri ipapo. Chikamu chisina simba chetsinga chinotanga kuputira sebharumu. Izvi ndizvo zvatinodaidza kuti ``Aortic Aneurysm''. Uku ndiko kunetseka kwakanyanya kweMarfan syndrome. Nekuti bundu iri rakaita sebharumu rinogona kuputika (kuputika) kana kubvaruka (kupatsanurwa) chero nguva. Idambudziko rinotyisidzira hupenyu.
2. Chii chinoitika kumavharuvhu emwoyo?
Kusashanda zvakanaka kwematishu emukati memoyo kunogona kukonzerawo kuti mavharuvhu emwoyo asashande zvakanaka. Anogona kushaya simba uye kusavhara zvakanaka. Ichi ndicho chikonzero nei:
- Kudzoreredza Vharuvhu: Kana vharuvhu ikasavhara zvakanaka, ropa rinogona kudonhedza mvura richidzokera mumoyo. Izvi zvinoita kuti mwoyo ushande nesimba kupomba ropa mumuviri. Nekufamba kwenguva, izvi zvinogona kukonzera kutadza kushanda kwemoyo. Mavharuvhu anowanzo kanganiswa iAortic Valve neMitral Valve.
- Kupera kweMitral Valve: Mumamiriro ezvinhu aya, vharuvhu yemitral iri kuruboshwe rwemoyo inoshaya simba uye haivhari zvakanaka, asi inopetwa kumashure.
Chinhu chakakosha ndechekuti vanhu vanosvika vapfumbamwe pavanhu gumi vane Marfan syndrome vachava nematambudziko emwoyo kana aorta, saka zvakakosha kuziva izvi.
Ndezvipi zviratidzo zvechirwere chemwoyo izvi? Tinozviziva sei?
Kazhinji, panogona kunge pasina zviratidzo pakutanga. Zvisinei, zviratidzo izvi zvinogona kuonekwa sezvo aorta ichiwedzera kukura kana matambudziko evharuvhu achiwedzera. Kana uine chimwe chezvizvi kana kupfuura, zvakakosha kuona chiremba.
| Chiratidzo | Tsananguro iri nyore |
|---|---|
| Kurwadziwa muchipfuva kana kumusana wekumusoro | Zvine njodzi zvikuru kana kurwadziwa kukaitika kamwe kamwe uye kwakanyanya. |
| Kushaya mweya kana kuoma kufema | Kuneta kunouya nekufamba zvishoma kana kuita basa. |
| Kurova kwemoyo (kunzwa sekuti moyo wako uri kurova nekukurumidza) | Kunzwa sekuti kurova kwemoyo wako kuri kuchinja kana kuti chipfuva chako chiri kurova. |
| Kunzwa dzungu kana kuti musoro wakaneta | Kunzwa dzungu kana wakamira kana kumuka kamwe kamwe. |
| Kuneta uye kushaya simba kusingawanzoitiki | Kugara ndichinzwa kuneta pasina chikonzero. |
| Kuzvimba kwemakumbo netsoka | Zvingave chiratidzo chekusashanda zvakanaka kwemoyo. |
Chiremba anoongorora sei chirwere ichi chaizvo?
Kuziva Marfan syndrome kunogona kuoma nekuti havasi vese vane zviratidzo zvakafanana, saka chiremba achaongorora zvinhu zvakati wandei.
- Kuongororwa kwemuviri: Chiremba achaongorora hurefu hwako, kureba kweruoko negumbo, kureba kwemunwe, chimiro chechipfuva chako, maziso, uye musana.
- Nhoroondo yezvekurapa kwemhuri: Sezvo ichi chiri chirwere chinogarwa nhaka, muchabvunzwa kana paine munhu mumhuri yenyu akambova nezviratidzo izvi kana kuti akafa nekumira kwemwoyo kamwe kamwe.
- Miedzo yakakosha: Miedzo yakati wandei inoitwa kuti ione mamiriro chaiwo emoyo.
- Echocardiogram: Izvi zvakafanana nekuongororwa kwemoyo. Zvinogona kuona zvinhu zvakaita sehukuru hweaorta uye mashandiro emavharuvhu.
- Electrocardiogram (EKG): Izvi zvinobatsira kutarisa mashandiro emagetsi emwoyo, kureva kuti, kuona kana paine matambudziko nekufamba kwemoyo.
- Kuongororwa kweMajini: Kuongororwa kweropa kuti uone kana uine kushanduka kwemajini kunokonzera Marfan syndrome.
- Kudzivisa mitambo inoremadza mwoyo zvakanyanya. Semuenzaniso, mitambo ine simba guru yakaita sekusimudza masimbi, rugby, uye nhabvu haina kukodzera.
- Kana aorta ikanyanya kupararira, kuvhiyiwa kunoitwa kudzivirira kubvaruka (kubvaruka). Zvakanaka kuronga izvi zvisati zvaita emergency.
- Chiremba anogona kunyora mishonga yakaita se "Beta-blockers" kana "ARBs". Iyi inoshanda nekudzora BP nekuderedza pressure pa aorta. Izvi zvinoderedza kumhanya kwe artery inokura.
- Kubvisa chikamu che aorta chakakuvara uye kuchigadzirisa nechubhu yekugadzira (graft).
- Kugadzirisa kana kutsiva mavharuvhu emwoyo asina kushanda zvakanaka nevharuvhu yekugadzira.
- Zvakakosha kuti munhu apinzwe scan yakaita se echocardiogram kanenge kamwe chete pagore kuti aone kukura kwe aorta. Izvi zvinogona kubatsira kuona matambudziko aripo nekukurumidza kana akaitika.
- Kana dhayamita yeaorta ikapfuura 5 centimeters.
- Kana tsinga yeropa ikakura nekukurumidza mukati megore.
- Kana mumwe munhu mumhuri yako ane nhoroondo yekutsemuka kwetsinga yeropa.
Kana mumwe munhu mumhuri mako aine chirwere ichi kana kuti aine zviratidzo zvakafanana, kuudza chiremba wako nezvazvo kunobatsira zvikuru pakuongorora chirwere chacho.
Zvakanaka, zvino ndeapi marapirwo eizvi?
Marfan syndrome haigone kurapwa zvachose. Nekuti chinhu chiri mumajini edu. Zvisinei, kune nzira dzakanaka kwazvo dzekurapa kukuvara kwainokonzera kumwoyo, kudzivirira zvirwere zvakakomba, uye kubvumira vanhu kurarama hupenyu hwakajairika. Kurapa kunogona kukamurwa kuita zvikamu zviviri zvikuru.
| Kurapa Kusiri Kwekuvhiya | Kurapa kwekuvhiyiwa |
|---|---|
Kuchinja kwemararamiro: | Sei kuvhiyiwa kuchidikanwa?: |
Mishonga: | Mhando dzekuvhiyiwa: |
Kuongororwa nachiremba nguva dzose: | Kuvhiyiwa kunokurudzirwa kune: |
Mamiriro ezvinhu enjodzi anoda kupinda muchipatara nekukasika! (Zviratidzo Zvenyevero)
Zviratidzo izvi zvinogona kunge zviri zviratidzo zvekuputika kwetsinga yeropa kana kutsemuka kwetsinga yeropa. Kana chimwe cheizvi chikaitika, enda kuDhipatimendi reEmergency (ETU) riri pedyo nekukurumidza.
| Kana uine zviratidzo izvi, enda kuETU nekukasika! | |
|---|---|
| - Marwadzo asingatarisirwi muchipfuva, kumusana, kana mudumbu . | - Kunetseka zvakanyanya kufema. |
| - Kurasikirwa nepfungwa. | - Kunzwa kusanzwa kana kukwenya kwemuviri. |
| - Kudikitira zvakanyanya, ganda rinotonhora. | - Kusvotwa nekurutsa. |
Zvinokwanisika here kurarama zvakanaka neMarfan syndrome?
Ehe zvechokwadi! Makore apfuura, nguva yekurarama kwevanhu vane chirwere ichi yaive pfupi. Asi nhasi, nekuda kwekurapwa kwepamusoro-soro, kuongororwa nguva dzose, uye kuvhiyiwa, munhu ane Marfan syndrome anogona kurarama hupenyu hwakanaka, kunyangwe kusvika pamakore ekuma70 kana 80, kungofanana nemunhuwo zvake.
Chinhu chinonyanya kukosha ndechekugara uchionana nachiremba wako nguva dzose, kutevedzera mirairo yake nemazvo, kuongororwa nenguva, uye kushandisa mishonga yako nemazvo.
Zvikuru sei, kana mukadzi ane Marfan syndrome achironga kubata pamuviri, anofanira kubvunza chiremba wemwoyo uye chiremba wevakadzi vasati vabata pamuviri. Nekuti kushushikana kwemoyo kwakanyanya panguva yekuzvitakura, kungwarira kwakakosha kunofanira kutorwa.
Nekunzwisisa chirwere ichi, kutora matanho anodiwa, uye kurarama nepfungwa dzakapinza, unogona kuchengetedza moyo wako uye kurarama hupenyu hune hutano uye hurefu.
Mharidzo Yekuenda Nayo Kumba
- Marfan syndrome chirwere chinogara nhaka chinopedza simba nhengo dzemuviri dzinobatana.
- Izvi zvinogona kukanganisa mwoyo netsinga huru yeropa, aorta.
- Kukura kwetsinga dzeropa uye aneurysm ndiwo matambudziko ane njodzi zvikuru.
- Zvakakosha kuona chiremba panguva yakatarwa uye kuskena zvakaita se echocardiogram.
- Dzivisa mabasa anoremadza mwoyo, akadai sekusimudza zvinhu zvinorema.
- Ngwarira zviratidzo zvinonyevera, zvakaita sekurwadziwa kwechipfuva kamwe kamwe, kwakakomba.
- Kana ukabatwa zvakanaka uye uchirapwa, unogona kurarama hupenyu hwakareba uye hwakajairika.
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