Kana chiremba wako akakuudza kuti une chirwere chinonzi PBC (Primary Biliary Cholangitis), ungangove uine mibvunzo yakawanda mupfungwa dzako. Zvakajairika kuzvibvunza kuti, "Chirwere cherudzii ichi? Chii chichaitika muhupenyu hwangu? Ndoita sei izvozvi?" Zviri muropa kunzwa kutya uye kunetseka paunoziva kuti ichi chirwere chisingarapiki, chinogara kwenguva refu. Asi usazvidya mwoyo, haufanirwe kupfuura nerwendo urwu wega. Kana ukanyatsonzwisisa chirwere ichi uye ukavaka rutsigiro runogona kukubatsira, unogona kurarama hupenyu hwakasimba uye hunofadza nechirwere ichi. Ngatione kuti ungawana sei simba neruzivo rwaunoda parwendo urwu.
Mutungamiriri wako wekutanga uye akanakisa: Chiremba wako
Kana ukadzidza nezvechirwere ichi, munhu anogona kupindura mibvunzo yako zvakanaka ndichiremba wako. Saka, zvakakosha zvikuru kuvaka hukama hwakanaka uye hwakasimba nechikwata chako chekurapa.
Funga nezvazvo, une mibvunzo mingani nezvechirwere ichi, hunhu hwacho, kuti chinokanganisa sei hupenyu hwako, mishonga yaunofanira kunwa, kudya, kurovedza muviri? Taura nachiremba wako nezvezvinhu izvi zvese usingatyi uye pachena. Usazvitore sematambudziko madiki. Teerera zvese zviri mupfungwa dzako.
Zvichava nyore kwauri kana ukaita zvinhu izvi:
- Nyora mibvunzo yako pasi: Usati waenda kunoona chiremba, nyora mibvunzo yese yaunoda kubvunza mubhuku. Dzimwe nguva patinoona chiremba, tinokanganwa zvataida kubvunza. Kana ukanyora seizvi, hauzopotsa chero yemibvunzo iyoyo.
- Nyora pasi zvese zvinotaurwa nachiremba, zvakaita semirairo yaanokupa, ruzivo rwemushonga, uye bvunzo dzaunofanira kuita. Zvichakubatsira kuzviongorora paunosvika kumba.
- Taura pachena: Kana usina kunzwisisa chimwe chinhu, usatya kubvunza zvakare. "Dr., handina kunzwisisa zvawataura. Ungatsanangurazve here nenzira iri nyore?"
Nekutora chikamu mukurapwa kwako nenzira iyi, uchakwanisa kubata chirwere ichi nekudzora kwakawanda , pasina kutya kusingakoshi.
Chenjerera zvikuru paunenge uchitsvaga ruzivo paInternet!
Mazuva ano, nzvimbo yekutanga yatinoshandisa pakutsvaga ruzivo nezve chero chinhu iInternet. Indaneti inogona kuva nzvimbo yakanaka yekuwana ruzivo nezvePBC. Zvisinei, yakaita sebakatwa rine mativi maviri. Haasi ese mashoko ari paInternet akarurama. Dzimwe nguva, ruzivo rusina kururama uye runotsausa runogona kukukanganisa uye kukuvadza hutano hwako.
Usasiye zvese kuna "Dr. Google." Usati waita sarudzo yekupedzisira nezve chero ruzivo rwaunowana online, iva nechokwadi chekutaura nachiremba wako nezvazvo.
Mamwe mawebhusaiti anogona kuburitsa zviziviso zvenhema zvakaita sekuti "Mushonga uyu ucharapa chirwere chako mumazuva manomwe." Kana kuti, anogona kukunyengera nekurapa kwakasiyana-siyana kusina kusimbiswa nesainzi. Usanyengerwa neizvi.
Saka, tingawana sei webhusaiti yakavimbika?
Kuti uwane ruzivo rwakanaka uye rwakavimbika, unofanira kutarisa mawebhusaiti anotungamirwa nemasangano ehutano ehurumende, zvipatara zvine mukurumbira, uye zvikoro zvekurapa zveyunivhesiti. Kunewo ruzivo rwakawanda rwakakosha pamawebhusaiti emapoka epasi rose anotsigira varwere. Semuenzaniso, masangano akaita seAmerican Liver Foundation nePBCers Organisation anogona kutaurwa.
Paunotarisa ruzivo pawebhusaiti, zvibvunze mibvunzo iyi kuti uone kana rwakavimbika.
| Nyaya yekufunga nezvayo | Mubvunzo waunofanira kuzvibvunza |
|---|---|
| Zvinangwa zvekutengeserana | Webhusaiti iyi iri kuedza kutengesa zvigadzirwa kana masevhisi here? Inotsigirwa nesangano ripi zvaro rinoita purofiti here? |
| Rusaruro | Webhusaiti iyi inongoratidza mafungiro emunhu kana boka here? |
| Kusimbiswa kwekurapa | Ruzivo rwuri pano rwakaongororwa nenyanzvi yezvekurapa here? Ruzivo urwu rwakasimbiswa nezvidzidzo zvesainzi here? |
| Mutoro uye muridzi | Unogona here kuziva zvakajeka kuti ndiani muridzi wewebsite iyi uye kuti vanachiremba vari kuongorora ruzivo urwu ndivanaani? |
| Chiono chakaenzana | Webhusaiti iyi inopa ruzivo rwakaenzana kubva pamaonero akasiyana panyaya imwe here? |
Kuzivisa mhuri yako neshamwari chinhu chakakoshawo.
Kana uchirarama nechirwere chakadai kwenguva refu, rutsigiro rwemhuri yako neshamwari dzepedyo ndiro simba guru kwauri. Asi kuti vakubatsire, vanofanirawo kuziva nezvechirwere ichi.
Taura navo pachena nezvechirwere chako uye manzwiro ako. Vatsanangurire kuti PBC haitapukiri uye kuti inogona kukanganisa sei mararamiro ako. Zvichava nyore kwavari kukubatsira kana vachinzwisisa kuti unganzwa wakaneta mamwe mazuva kana kuti ungasakwanisa kudya zvimwe zvekudya. Zvakanakawo kuuya nemurume wako, mudzimai wako, kana nhengo yemhuri yako yepedyo paunoenda kunoona chiremba.
Musakanganwa nezveutano hwepfungwa parwendo urwu.
Zvakajairika kunzwa kusuruvara, kunetseka, uye dzimwe nguva kutotsamwa kana ukanzwa kuti une chirwere chakaita sePBC. Usaedza kugadzirisa manzwiro aya uri wega. Kutaura nezvemanzwiro ako nemumwe munhu waunovimba naye kunogona kukubatsira zvikuru. Anogona kunge ari mudiwa wako, shamwari yepedyo, kana nhengo yemhuri.
Kana uchirarama nechirwere chakadai , hutano hwepfungwa hwakakosha sehutano hwemuviri . Haugone kuva neutano hwakanaka usina moyo unofara.
Kana uchinzwa kuti uri kunetseka kudzora kuzvidya mwoyo kwako nekushushikana, taura nachiremba wako nezvazvo. Kana zvichidikanwa, achakutumira kuna chiremba wepfungwa kuti akubatsire. Hapana chikonzero chekunyara kana kutya nezvazvo.
Mharidzo Yekuenda Nayo Kumba
- Kunyangwe kuonekwa uine PBC kuchigona kuva dambudziko rinochinja hupenyu, neruzivo rwakakodzera nerutsigiro, unogona kufambira mberi nesimba.
- Chiremba wako ndiye anofanira kuva sosi yako huru uye yakavimbika yeruzivo nezvechirwere chako.
- Chenjerera zvikuru paunenge uchitsvaga ruzivo paInternet. Shandisa mawebhusaiti akavimbika chete uye kurukura ruzivo rwaunowana nachiremba wako.
- Mhuri yako neshamwari ndivo vanokusimbisa zvakanyanya. Taura navo pachena nezvemamiriro ako ezvinhu uye tsvaga rutsigiro rwavo.
- Kuchengetedza hutano hwako hwemuviri kwakakosha sehutano hwepfungwa dzako. Usazeza kutsvaga rubatsiro rwenyanzvi kana zvichidikanwa.
- Yeuka, hausi wega parwendo urwu!
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