Mwana wako ane dambudziko repfungwa here? Ngatidzidzei nezveSchizencephaly!

Une kutya kana kusava nechokwadi nezvekukura kwemwana wako here? Dzimwe nguva tinonyanya kunetseka patinonzwa mazita matsva kubva kuna vanachiremba, handiti? Nhasi tichataura nezvechirwere chepfungwa chisingawanzoitiki chaungave usina kunzwa nezvacho, asi chakakosha kuziva nezvacho. Ichi chinonzi Schizencephaly.

Chii chinonzi Schizencephaly?

Zvichitaurwa zviri nyore, schizencephaly idambudziko reuropi rinowanzoitika pakuzvarwa, ndiko kuti, kana mwana asvika panyika ino. Uropi hwedu hune zvikamu zviviri zvinonzi cerebral hemispheres , kutaura chokwadi, divi rekurudyi nedivi rekuruboshwe. Idzi ndidzo zvikamu zvinodzora hunyanzvi hwedu hwekufamba kwemuviri sekutaura nekufamba, mafungiro edu, ndiko kuti, kushanda kwepfungwa , manzwiro edu, kunzwa , nekuona , nezvimwe zvinhu zvakawanda zvakakosha. Mu schizencephaly, gomba rinoumbwa muzvikamu izvi zveuropi, ndiko kuti, mumativi aya europi. Bhegi iri rinogona kuva kudivi rimwe chete reuropi (`unilateral`), kana kuti rinogona kuva kumativi ese (`bilateral`).

Fungidzira, kune mvura inonzi cerebrospinal fluid inodzivirira uye inodyisa uropi hwedu. Zvakare, kune rudzi rwenyama inonzi grey matter . Izvi zvinobatsira kudzora kufamba kwedu, ndangariro, uye manzwiro. Zvino, mukati memukana iwoyo, iyi cerebrospinal fluid uye grey matter zvinozadzwa. Zvisinei, kana izvi zvikaungana zvakanyanya, matambudziko anomuka, kureva kuti, zviratidzo zvinotanga kuoneka. Semuenzaniso, kukura kwemwana kunogona kunonoka , kuoma mitezo kunogona kuitika, kana saizi yemusoro inogona kunge iri diki .

Ndeapi marudzi makuru e schizencephaly?

Kune mhando mbiri huru dzechirwere ichi, Schizencephaly.

• Kuvhurika kwemiromo: Muchiitiko ichi, mukaha unobva kunze kweuropi uchienda mumaventricles , makamuri ari mukati meuropi akazadzwa nemvura yemusana. Izvi zvinoreva kuti mukaha wacho wakakura uye wakadzika.
• Kutsemuka kwemiromo: Murudzi urwu, kutsemuka kwemuromo kupfupi zvishoma. Hakusviki kumaventricles. Dzimwe nguva, rudzi urwu runogona kunge rusina zviratidzo.

Dambudziko iri rakajairika zvakadii?

Schizencephaly chirwere chisingawanzoitiki . Hachisi chinhu chinoitika kuvanhu vazhinji. Maererano nehuwandu, chinokanganisa vana vanosvika 1.5 pavana 100,000 vanozvarwa muUnited States. MuUnited Kingdom, chinokanganisa vana vanosvika 1.48 pavana 100,000. Saka unogona kuona kuti izvi hazviwanzoitiki.

Ndezvipi zviratidzo zveSchizencephaly?

Zviratidzo zvechirwere ichi zvinogona kusiyana kubva pamunhu kuenda kune mumwe, zvichienderana nehukuru nenzvimbo yekukuvara kweuropi. Heano mamwe ezviratidzo zvakajairika:

• Saizi yemusoro mudiki pane yakajairika.
• Kushaya simba kwetsandanyama kana kurasikirwa nesimba (hemiparesis). Zvinonzwa sekunge gumbo raoma.
• Kuomarara kwetsandanyama kana kuomarara (`(spasticity)`).
• Kuoma mitezo : Izvi zvinoreva kuti chikamu kana muviri wese waoma mitezo.
• Zvirwere zvepfari , kureva pfari .
• Kuwanda kwe cerebrospinal fluid (CSF) muuropi kunonzi hydrocephalus .
• Kuchinja kwenzvimbo yemaziso , senge strabismus .

Pamusoro pezvo, chirwere cheschizencephaly chinogona kukonzera kunonoka kwekukura kwevana . Izvi zvinoreva kuti vana ava vanotora nguva yakati rebei kuti vadzidze uye vaite zvinhu izvo mwana anowanzotanga kuita pazera rakati.

• Famba-famba wega, bata zvinhu (unyanzvi hwekufambisa muviri hwakakwana uye hwakanaka).
• Taura uye taurirana nevamwe (unyanzvi hwekutaura nemutauro).
• Dzidza uye yeuka zvinhu zvitsva (hunyanzvi hwekufunga).
• Tamba uye taurirana nevamwe (unyanzvi hwekushamwaridzana nevanhu uye hwemanzwiro).

Asi yeukai, vamwe vana vane chirwere che closed-lip schizencephaly chataurwa kare vanogona kusaratidza zviratidzo .

Ndezvipi zvikonzero zveSchizencephaly?

Kutaura chokwadi, chikonzero chaicho cheSchizencephaly hachisati chazivikanwa . Zvisinei, tsvakiridzo inoratidza kuti inogona kukonzerwa nekusangana nezvimwe zvinhu panguva yekukura kwemwana ari mudumbu .

• Mimwe mishonga , semuenzaniso, inobvisa ropa rakanyanya seWarfarin.
• Mimwe mishonga , semuenzaniso `(Cocaine)`.
• Zvimwe zvirwere zvemavhairasi , semuenzaniso `(Zika virus)` kana `(Cytomegalovirus)`.
• Zvingavewo zvichikonzerwa nematambudziko anoitika panguva yekuongororwa kunonzi ``Amniocentesis'' kwakaitwa panguva yekuzvitakura.

Pamusoro pezvo, shanduko dzemajini (kuchinja kwemajini) dzinogonawo kukanganisa kukura kweuropi hwemwana ari mudumbu. Shanduko dzemajini shanduko dziri muDNA yedu. Izvi zvinogona kuitika zvisina tsarukano, zvichireva kuti hapana munhu mumhuri akambova nedambudziko iri, asi zvinogona kuitika kamwe kamwe. Kashoma, dambudziko iri rinogona kupfuudzwa kubva kuchizvarwa kuenda kune chimwe chizvarwa.

Ndiani ari panjodzi huru yechirwere ichi?

Kana zvimwe zvinhu zvikaitika panguva yekuzvitakura, njodzi yekuva nemwana ane schizencephaly inogona kuwedzera zvishoma.

• Dambudziko rekushandisa zvinodhaka.
• Kukura kwehutachiona (semuenzaniso, Cytomegalovirus kana Zika virus).
• Mwero weokisijeni muropa (hypoxia).
• Kuongororwa kweAmniocentesis .
• Kusangana nekurohwa nehana kana kukuvara (Trauma) .
• Kushandisa mushonga wekuti "(Warfarin)" wakanyorwa nachiremba.

Zvinonziwo zera raamai, vari pasi pemakore makumi maviri nemashanu , rinowedzera njodzi kuchirwere ichi.

Pane zvimwe zvirwere zvinogona kuitika ne schizencephaly here?

Ehe, dzimwe nguva vanachiremba pavanoongorora chirwere cheschizencephaly, vanotsvagawo mamwe mamiriro ezvinhu. Heano mimwe mienzaniso:

• Cerebral Palsy (`(Cerebral Palsy)`)
• Kuumbwa kwecorpus callosum ( chikamu cheuropi chakaita sebhiriji chinobatanidza zvikamu zviviri zveuropi)
• Septo-optic dysplasia ( chirwere chinokonzera matambudziko ekuona uye mahormone)
• Arachnoid cysts ( ma cysts azere nemvura ari pakati pema membrane akafukidza uropi)

Nzira yekuziva sei chirwere ichi?

Kazhinji, vanachiremba vanogona kuona zviratidzo zve schizencephaly panguva yekuongorora kwe prenatal ultrasound mushure memavhiki makumi maviri epamuviri. Zvisinei, kuongororwa chaiko kunoitwa mushure mekuzvarwa kwemwana . Izvi zvinoitwa uchishandisa MRI (Magnetic Resonance Imaging) scan kana CT (Computed Tomography) . Kuongororwa uku kunogona kuratidza zvakajeka saizi yepfungwa dzisina kunaka uye kuti ndedzerudzii.

Pamusoro pezvo, chiremba wemwana wenyu anogonawo kuraira kuti aongorore majini . Izvi zvichatarisa chero shanduko dziri muDNA dzinogona kunge dziri kukonzera chirwere ichi.

Ndezvipi zvirongwa zvekurapa Schizencephaly?

Chinangwa chikuru chekurapa schizencephaly ndechekudzora nekuderedza zviratidzo , sezvo isiri chirwere chinorapika zvachose. Sarudzo dzekurapa dzinosanganisira:

• Kupa mishonga yekudzivirira pfari .
• Chirwere chinonzi hydrocephalus , chinova apo mvura inoungana muuropi, chinoda kuvhiyiwa kuti paiswe shunt kana chubhu . Izvi zvinobvisa mvura yakawandisa.
• Dzimwe nguva kuvhiyiwa kunoitwa kuderedza kumanikidzwa kunokonzerwa nemvura yakawanda muuropi.
• Kurapa kwakadai sekurovedza muviri , kurapwa nebasa, uye/kana kutaura kunogona kubatsira zvikuru mukuvandudza hunyanzvi hwemwana.
• Vanobatanidzwa muzvirongwa zvedzidzo zvinotsigirwa nechikoro.

Pane migumisiro yakaipa here yekurapwa kwacho?

Zvakanakisisa kutaura nachiremba wako nezvemigumisiro yekurapwa ne schizencephaly. Kune mhando dzakasiyana dzemigumisiro dzinogona kuitika nekuvhiyiwa uye nemishonga. Izvi zvinosiyana zvichienderana nerudzi rwekurapwa kwaunowana iwe kana mwana wako.

Ndeipi tarisiro yemunhu ane schizencephaly?

Maonero emunhu ane schizencephaly anosiyana zvikuru zvichienderana nehukuru nenzvimbo yemaronda europi . Vamwe vanhu vanogona kunge vaine ronda diki chete, iro risingakonzeri zviratidzo uye vachirarama hupenyu hwakajairika. Zvisinei, vamwe vanogona kunge vaine ronda rakakura, iro rinogona kukonzera zviratidzo zvakawanda uye rinogona kuda rutsigiro rwehupenyu hwese .

Zvakadini nehupenyu hurefu?

Kurwara nepfungwa (schizencephaly) hakukanganisi hupenyu hwako zvakananga . Kureva kuti, hakupfupisi makore ekurarama kwako. Zvisinei, mamwe matambudziko echirwere ichi, akadai sepfari dzisingadzoreki kana hydrocephalus, anogona kutyisidzira hupenyu hwako .

Mamiriro ezvinhu aya anogona kudzivirirwa here?

Kutaura zvazviri, hapana nzira yekudzivirira schizencephaly nguva dzose. Nekuti zvimwe zvikonzero hazvigoneki kwatiri. Zvisinei, nekuzvitarisira zvakanaka panguva yekuzvitakura , unogona kuderedza njodzi yekuti mwana wako awane chirwere ichi kusvika pamwero wakati.

• Endai kuna chiremba nguva dzose uye muende kunoongororwa.
• Tora matanho anodiwa kuti uzvidzivirire kubva kuzvirwere .
• Taura nachiremba wako nezvemishonga yauri kutora parizvino. Mimwe mishonga haikodzeri panguva yekuzvitakura.
• Dzivisa zvachose zvinhu zvinokuvadza mwana ari mudumbu, zvakaita semishonga.
• Zvingave zvakanakawo kana ukakwanisa kusangana nenyanzvi yezvemajini kuti uzive nezvenjodzi yekuti mwana awane chirwere chemajini.

Unofanira kuona chiremba rini?

Kana iwe kana mwana wako muine chimwe chezviratidzo izvi, kurumidzai kuonana nachiremba:

• Kuchinja kwechimiro chetsandanyama (kusimba kana kushaya simba).
• Kana usingakwanise kufambisa chikamu chemuviri wako (sekuoma nhengo dzemuviri).
• Kana mwana anonoka kusvika padanho rekukura rinoenderana nezera rake.

Chinonyanya kukosha: Kana iwe kana mwana wako muine pfari, fonerai 1990 Suwaseriya Ambulance Service nekukasika kana kuti muende kuchipatara chiri pedyo.

Mibvunzo ipi yandinofanira kubvunza chiremba wangu?

Kana ukaona kuti mwana wako ane chirwere cheSchizencephaly, ungave nemibvunzo yakawanda. Zvakanaka kubvunza chiremba wako zvinhu zvakaita seizvi:

• Mwana wangu ane rudzii rweschizencephaly?
• Ndinofanira kutsigira sei mwana wangu?
• Ndezvipi zvinetso zvatinofanira kunyanya kuziva?
• Mwana wangu anofanira kuvhiyiwa here?
• Ndedzipi nzira dzekurapa dzamunokurudzira?
• Pane migumisiro yakaipa here yekurapwa kwacho?
• Kune mapoka ekutsigira vabereki vanochengeta vana vakadai here?

Zvinhu zvekurangarira muchidimbu

Zvakajairika kunzwa wakaremerwa paunodzidza nezvechirwere ichi chisingawanzoitiki chetsinga, schizencephaly, uye kana iwe, mwana wako, kana mumwe munhu waunoda anacho. Schizencephaly uye kuti inokubata sei zvinosiyana zvichienderana nehukuru hwehuropi hwehuropi. Ungasave nezviratidzo zvachose, kana kuti ungangoda rutsigiro muhupenyu hwako hwese. Chirwere ichi hachikanganisi zvakananga hupenyu hwako, uye hachikanganisi kugona kwako kuzadzisa zvinangwa zvako zvezuva nezuva. Zvisinei, zvimwe zvinhu zvinogona kuoma kupfuura zvimwe. Chikwata chako chekurapa chinogona kukubatsira kudzidza zvakawanda nezvechirwere ichi uye kukurukura nzira dzekurapa dzinogona kukubatsira kuti unzwe zviri nani. Usanzwa uri wega, uye tsvaga rubatsiro rwaunoda.

` Schizencephaly, kutsemuka kweuropi, kusarongeka kweuropi, zvirwere zvekuzvarwa nazvo, zvirwere zvehudiki, kunonoka kukura, pfari, hydrocephalus, zvirwere zvemajini