Mwana wako ane lupus here? Zvaunofanira kuziva semubereki

Mwana wako anogara achinzwa kusanzwa zvakanaka here? Majoini ake anorwadza here? Dzimwe nguva kumeso kwake kunova nemapundu matsvuku akaita seshavishavi here? Kana usina chimwe chete kana zviviri zvezviratidzo izvi, asi zvakawanda zvakatevedzana, unganetseka. Nhasi tiri kutaura nezvechirwere chinogona kukonzera kuti zviratidzo izvi zvionekwe pamwe chete, uye chakaoma zvishoma, asi chinogona kurapwa nemazvo . Irworwo chirwere che lupus muvana.

Zvichitaurwa zviri nyore, chii chinonzi lupus muvana ava?

Lupus chirwere chinokonzerwa ne autoimmune chinogona kubata vanhu vemazera ese. Muchidimbu, basa guru re immune system yedu nderekutidzivirira kubva kune vanopinda kubva kune dzimwe nyika, senge utachiona nemavhairasi anokonzera zvirwere. Asi munhu ane lupus ane chirwere chisina kunaka. Iyi immune system inotadza kushanda zvakanaka. Inotanga kuona masero ayo ane hutano nenyama se "muvengi." Inobva yatanga kurwisa masero iwayo ane hutano. Zvakafanana neuto redu richirwisa vanhu vedu pachinzvimbo chekurwisa vanopinda kubva kune dzimwe nyika.

Kana chirwere ichi chikaonekwa vasati vasvitsa makore gumi nemasere, tinochidana kuti "juvenile lupus." Lupus muvana inogona kunge yakanyanya kuipa kupfuura lupus muvakuru. Izvi zvinoreva kuti:

• Chirwere chinoshanda zvakanyanya: Kuzvimba nezvimwe zviratidzo zvine chekuita nazvo zvinogona kuoneka zvakanyanya.
• Kuwanda kwenjodzi yekukuvadzwa kwenhengo dzemukati: Nhengo dzinokosha, kunyanya itsvo, moyo, mapapu, neuropi, dzinogona kukanganiswa.
• Kudiwa kwekurapwa kwakasimba: Mushonga ungada kuwedzerwa.
• Migumisiro yekushandiswa kwemishonga kwenguva refu: Unofanira kuziva migumisiro inogona kuitika kana ukatora mishonga, kunyanya masteroid (corticosteroids), kwenguva yakareba.

Rudzi rwe lupus runonyanya kuwanikwa muvana ndiSystemic Lupus Erythematosus (SLE) . Kana munhu akati "lupus," anowanzo kureva rudzi urwu rweSLE. Inonziwo `Childhood-onset SLE` kana `Juvenile-onset SLE`. Zviratidzo zvinowanzotanga kuoneka pazera remakore gumi nemaviri. Zvisinei, zvinogona kutanga kare kana kuti gare gare. Hazviwanzoitiki kuti mwana ari pasi pemakore mashanu awane lupus.

Ndezvipi zviratidzo zvinoratidza kuti mwana ane lupus?

Chimwe chezvinhu zvinoshamisa nezve lupus ndechekuti havasi vana vese vane zviratidzo zvakafanana. Vamwe vanhu vane zviratidzo zvakafanana, vamwe vane zvakasiyana zvachose. Ndosaka vanachiremba vachidana izvi kuti "lupus fingerprint" - zvichireva kuti munhu wese ane zviratidzo zvakasiyana.

Ngatikamurai zviratidzo izvi muzvikamu zviviri.

Zviratidzo zvinonzwa nemwana wako uye zvaunoona

Izvi ndizvo zvinhu zvamunoona uye zvamunosangana nazvo muhupenyu hwemwana wenyu hwezuva nezuva.

Zviratidzo izvi zvinogona kuoneka zvishoma nezvishoma nekufamba kwenguva, kana kuti zvinogona kuoneka zvese panguva imwe chete. Yeuka, usafungidzira kuti mwana wako ane lupus nekuda kwekuti ane chimwe chezviratidzo izvi. Semuenzaniso, panogona kunge paine zvimwe zvikonzero zvakawanda zvefivha. Chiremba achafungidzira lupus kana zviratidzo izvi zvikaonekwa pamwe chete .

Zviratidzo zvinoratidzwa nekuongororwa kwechiremba

Izvi ndizvo zvinhu zvinowanikwa kuburikidza nekuongororwa kwakaitwa nachiremba, kunyanya kuongororwa ropa neweti.

• Kuderera kwehuwandu hwemasero eropa:
• Kuderera kwemasero matsvuku eropa (anemia)
• Kuwanda kwemaplatelet kwakaderera (thrombocytopenia)
• Kuderera kwemasero machena eropa (leukopenia)
• MaAntinuclear Antibodies (ANA): Rudzi urwu rweantibody runonzi `ANA` runowanzoonekwa muropa revana vane lupus. Zvisinei, bvunzo ye ANA ine `positive` hazvirevi kuti une lupus. Vanhu vane hutano dzimwe nguva vanogonawo kuva `positive`. Saka, chiremba wako achakutsanangurira zvinorehwa nemushumo wacho.

Ndezvipi zvinetso zvinogona kukonzera lupus?

Kurapwa kwakakodzera kunogona kuderedza zvikuru njodzi yezvinetso izvi, asi vamwe vana vanogona kuramba vachiwana zvirwere izvi.

• Kukuvara kweitsvo (Lupus Nephritis): Iri ndiro dambudziko guru muvana. Masoja emuviri anorwisa itsvo, izvo zvinogona kukonzera kutadza kushanda kweitsvo. Mwana anogona kuva nezviratidzo zvakaita sekuzvimba kwemakumbo uye weti ine furo nekuda kwemapuroteni ari muweti.
• Zvinokonzerwa nemapapu nemoyo: Kuzvimba kwemukati memapapu (pleurisy) kana kuzvimba kwebhegi rakatenderedza moyo (pericarditis) kunogona kuitika. Mamiriro ese ari maviri anogona kukonzera kurwadziwa kwakanyanya pachipfuva .
• Migumisiro yetsinga dzepakati: Kana uropi nemusana zvikakanganiswa, mamiriro akadai semusoro wakanyanya, kuchinja kwemaitiro, uye pfari zvinogona kuitika.
• Kugwamba kweropa: Kugwamba kweropa kunogona kuumbwa mukati metsinga dzeropa, kunyanya mumakumbo. Zviratidzo zvinosanganisira kurwadziwa, kuzvimba, uye kutsvuka kwegumbo rakakanganiswa.

Sei vana vachibatwa ne lupus?

Hapana chikonzero chimwe chete chaicho cheizvi parizvino, asi vaongorori vanotenda kuti zvinokonzerwa nezvinhu zvakasiyana-siyana.

1. Majini: Kana mumwe munhu mumhuri aine lupus kana chimwe chirwere che autoimmune, mwana anogonawo kunge aine mukana wekuti atange chirwere ichi. Zvisinei, kuva nemajini iwayo hazvirevi kuti achatanga kuita lupus.

2. Zvinokonzera Kurwara Kwenharaunda: Mwana ane genetic predisorder anogona kurwara nechirwere ichi nekuda kwechimwe chinhu chinobva kunze. Zvinokonzera izvi zvinosanganisira:

• Utachiona hwehutachiona
• Kuratidzwa nezuva rakasimba (mwaranzi yeUVA/UVB)
• Kuchinja kwemahormone (kunyanya panguva yekuyaruka)

Zvichitaurwa zviri nyore, majini akafanana nepfuti yakazadzwa nehupfu hwepfuti. Asi pasina munhu anodhonza chikonzero (chikonzero), bara harizopfuri. Lupus yakadaro.

Chiremba anoongorora sei chirwere ichi?

Kuongororwa kwechirwere che lupus inzira yakaoma nekuti hapana bvunzo imwe chete yakanangana nacho. Chiremba achabatanidza zvinhu zvakawanda kuti awane chirwere ichi.

• Kutaura newe pachako nemwana wako: Bvunza mwana wako zvakadzama nezvezviratidzo zvake, zvakaita sekuti zvakatanga riini uye kuti zvagara kwenguva yakareba sei.
• Kuongorora muviri wose: Kuongorora maronda eganda, kuzvimba kwemajoini, uye maronda emuromo.
• Kuongororwa kweropa neweti: Sezvambotaurwa, bvunzo idzi dzinoongorora zvinhu zvakawanda, zvakaita sebvunzo ye'ANA', huwandu hwemasero eropa, uye mashandiro eitsvo.
• Nhoroondo yemhuri: Bvunza kana paine munhu mumhuri ane chirwere che lupus kana zvimwe zvakafanana.

Chiremba anozosarudza kana une lupus mushure mekufunga zvese izvi.

Ndeipi mishonga yekurapa lupus?

Parizvino hapana mushonga we lupus. Asi musazvidya mwoyo. Kune nzira dzakawanda dzinoshanda dzinogona kubatsira kudzora chirwere ichi uye kubatsira mwana wenyu kurarama hupenyu hwakanaka. Zvinangwa zvikuru zvekurapa ndeizvi:

• Kuderedza zviratidzo zvemwana.
• Kudzivirira masoja emuviri kuti asakuvadze nhengo dzemuviri.
• Kuchengetedza hutano hwemuviri nepfungwa hwemwana padanho rakanaka.

Chikwata chenyanzvi chinoungana kuti chigadzire hurongwa hwekurapa hwakagadzirirwa mwana. Chikwata ichi chinogona kusanganisira chiremba wemapfupa evana , vanamukoti, varapi vemuviri, uye nyanzvi dzehutano hwepfungwa.

Kune mhando dzinoverengeka dzemishonga dzinoshandiswa:

• Corticosteroids: Semuenzaniso, mushonga unonzi `Prednisone`. Izvi zvinodzora kuzvimba mumuviri nekukurumidza.
• Hydroxychloroquine:Kunyangwe uyu mushonga wemarariya, unobatsira zvikuru mukuderedza kupararira kwechirwere che lupus.
• Mishonga inodzvinyirira muviri: Mishonga iyi inoshanda nekudzora kushanda kwemuviri zvakanyanya. Mishonga yakaita se `Azathioprine`, `Mycophenolate mofetil`, `Methotrexate` inowira muchikamu ichi.
• Mishonga inouraya marwadzo: Mishonga yakaita se `Ibuprofen` kana `Naproxen` inogona kupihwa pakurwadziwa kwemajoini.
• Calcium nevhitamini D: Izvi zvinopihwa kudzivirira osteoporosis, sezvo paine njodzi yekutetepa kwemapfupa kana uchitora mishonga yesteroid kwenguva yakareba.

Ngatiziveiwo nezvemigumisiro yekurapwa.

Kufanana nemishonga yese, mishonga ye lupus inogona kuva nemigumisiro yakaipa. Chiremba anogara achiziva izvi uye anoita bvunzo dzinodiwa panguva yekurapwa.

• Prednisone (steroid): Kushandiswa kwenguva refu kunogona kukonzera kuwedzera uremu, mavanga ekutambanudza muviri, BP yakakwira, mapfupa akatetepa, kuora mwoyo, chirwere cheshuga, uye cataract.
• Hydroxychloroquine: Kashoma, inogona kukanganisa retina yeziso. Saka, vana vese vanotora mushonga uyu vanofanira kuongororwa maziso avo nguva nenguva nachiremba wemaziso.
• Mishonga inodzvinyirira masero emuviri: Mishonga iyi inogona kuderedza huwandu hwemasero machena eropa uye kukonzera kuzvimba kwechiropa. Inoderedzawo dziviriro yemuviri, zvichiwedzera njodzi yezvirwere. Saka, kuongororwa ropa nguva dzose kunoitirwa kuti zviongororwe.

Ndingabatsira sei mwana wangu, semubereki?

Mupiro wenyu parwendo urwu haukoshi. Pane zvakawanda zvamunogona kuita kuti mupe mwana wenyu tarisiro yakanakisisa.

1. Dzivirirai kubva kuzuva: Chiedza chezuva ndicho chinokonzera lupus. Saka, isai mafuta ekudzivirira zuva ane SPF 30 kana kupfuura paganda remwana wenyu zuva rega rega. Izvi zvinofanira kuitwa kunyangwe mazuva ane makore. Pfekai ngowani nembatya dzine maoko marefu pamunenge muchibuda panze. Deredza kuratidzwa kwezuva rakasimba pakati pa10:00 a.m. na4:00 p.m.

2. Ipai hope dzakakwana: Kuneta chiratidzo chikuru che lupus. Saka, gadzirai nzvimbo inobvumira mwana wenyu kurara zvakanaka.

3. Dzivirirai kubva kuzvirwere: Sezvo mwana ari kutora mishonga inodzvinyirira masoja emuviri, ane mukana wekubata zvirwere. Mudzidzisei kugeza maoko ake nesipo nemvura nguva nenguva. Muchengetedzei kure nevanhu vanorwara.

4. Mararamiro ane hutano:Zvakakosha kupa kudya kwakakwana uye kuita maekisesaizi anoenderana nezera. Maekisesaizi anosimbisa tsandanyama. Asi kana mwana wako aneta, murege azorore.

5. Dzidzisai mwana wenyu nezvechirwere ichi: Tsanangurai chirwere ichi nenzira iri nyore inoenderana nezera rake uye kunzwisisa kwake. Izvi zvichamubatsira kuti atore mutoro wemuviri wake.

6. Ipa rutsigiro rwepfungwa: Kurarama nechirwere chisingaperi kunogona kuomera mwana mupfungwa. Vabvumire kutaura nezvemanzwiro avo, vabvumire kutaura kusuruvara kwavo, uye vaburitse hasha dzavo. Kana zvichidikanwa, tsvaga rubatsiro kubva kumupi wezano.

7. Zivisa chikoro: Zivisa vadzidzisi nevatungamiriri vechikoro chemwana nezvenyaya iyi uye vape zvinodiwa.