Kunzima ukuchaza iimvakalelo zokufunyanwa unesifo esibuhlungu nesisongela ubomi njenge-Ankylosing Spondylitis (AS) ngexesha elifanelekileyo ebomini, xa usemncinci kwaye uzele ngamaphupha, amathemba, kunye nezicwangciso. Kwelinye icala, uzama ukuqala ubomi bakho ngokutsha, kwaye kwelinye icala, kufuneka ujongane nomngeni onjalo. Lo ngumthwalo onzima ngokwenene. Nangona kunjalo, kukho abo phakathi kwethu abaye bafumana iindlela zokuphila ngempumelelo nale meko baze bamkele ubomi babo obutsha. Namhlanje, sithetha ngabantu ababini abanjalo.
'Ndandisoyika kakhulu' – ibali lika-Ivan
UIvan ebenengxaki yokuhamba ukususela ebuntwaneni. Ngamanye amaxesha kwakufuneka asebenzise iintonga aze asele amayeza okudambisa iintlungu ukuze aphile imini yonke. Waqala nokucamngca esemncinci ukuze akwazi ukumelana nale ntlungu.
Xa wayeneminyaka engama-21 ubudala, ngelixa wayefundela uvavanyo lobunesi, uIvan waqonda ukuba iimpawu awayenazo ixesha elide zifana kakhulu nesimo esichazwe kwincwadi yesifundo sovavanyo. Enolu loyiko, waya kubona ugqirha wezifo zamathambo, ugqirha ogxile kwiingxaki zamalungu kunye nomqolo. Emva kovavanyo, wafunyaniswa ukuba une-Ankylosing Spondylitis (AS).
Uloyiko olukhulu olwafika engqondweni yakhe ngale ndaba yayilulomsebenzi awukhethileyo.
“Xa ndafumana umsebenzi njengomongikazi osebenza kwiYunithi yoNyango oluNgxamisekileyo (i-ETU), ndoyika kakhulu,” utshilo uIvan. “Ndandisoyika ukuba ukuba ndinokudumba, andizukukwazi ukusebenza. Ndaqonda ukuba ukuba ndifuna ukuyeka iphupha elibi lokukhubazeka ndineminyaka engama-20 ubudala, kufuneka ndinyamekele impilo yam ngazo zonke iindlela.”
Ngoko ke, waqala ukubona ingcali yezengqondo yeentlungu eyamfundisa iindlela zokulawula iintlungu ngaphandle kwamayeza. Wazama nonyango olubizwa ngokuba yi -Acceptance and Commitment Therapy (ACT) . Ngamafutshane, olu nyango lusinceda siyeke ukulwa neengcinga neemvakalelo zethu size sizamkele endaweni yoko.
"Ndiye ndaya kwezi seshoni zonyango ezimbalwa kuphela. Kodwa zindincede ndoyisa intlungu yengqondo kunye nokudakumba kweminyaka engaphezu kweshumi," utshilo uIvan. "Ndikhethe ukuyamkela le meko. Ndiyabulela ngethuba lokoyisa lo mceli mngeni kwaye ndiphile ubomi obonwabisayo."
Incwadi kaViktor Frankl ethi 'Man's Search for Meaning' nayo ibe yinkuthazo enkulu kuye ukuba aphuhlise le ndlela yokucinga. Le ncwadi ithetha ngexesha lakhe njengebanjwa kwinkampu yoxinaniso yamaNazi. Ichaza indlela awaphila ngayo ngesidima ngelo xesha linzima waza wafumana injongo ebomini.
“Ukuba ucinga ngale ndlela, ngaba bakho abantu abanamandla nabahloniphekileyo kunathi abaphila nentlungu engapheliyo?” ubuza uIvan.
Imeko ka-Ivan ibisesimeni esihle kangangeenyanga ezili-14 ngoku.Ukutya okufanelekileyo, amayeza amiselweyo, kunye nokuzilolonga (wenza i-yoga, uphakamisa iintsimbi, kwaye wenza ubuncinane imizuzu engama-75 ye-cardio ngeveki) zonke ezi zinto zibe luncedo olukhulu ekuchacheni kwakhe.
"Ndonwabile kakhulu ukuba nethuba lokusebenza ngempumelelo kwaye ndizive ndiphumelele njengomongikazi. Kwakhona, ndiyabulela nge-AS, ngandlela ithile. Kuba indinyanzele ukuba ndibeke phambili impilo yam yengqondo neyomzimba ndisemncinci kangaka."
“Ndisenentlungu nokuqina, kodwa ndonwabile kakhulu ukuba ndiphila ubomi bam namhlanje, ndingenazo izifo ezinzima ebezindikhathaza kangangeminyaka eli-10,” utshilo. Ukwalungiselela ukuzalisekisa elinye lamaphupha akhe amakhulu: ukuthatha ikhefu lonyaka okanye emibini kumsebenzi wokonga kunye nokukhwela ibhayisekile kumazwekazi onke.
'Ndicinga ukuba yimpazamo yam yonke le' – ibali likaTristan
Ngowama-2013, uTristan wayengumfundi okrelekrele ofundela isidanga kwikhemistri. Kodwa entwasahlobo yaloo nyaka, waqala ukuziva ediniwe ngendlela engachazekiyo. Wayengakwazi ukuvuka kusasa, waza waqalisa ukuphoswa ngumsebenzi wesikolo.
"Ndandicinga ukuba andiqeqeshekanga. Ndacinga ukuba yimpazamo yam yonke le," utshilo.
Kusemva koko apho uTristan wafumanisa ukuba unesifo esibizwa ngokuba yi-non-radiographic axial spondyloarthritis (nr-AxSpA), uhlobo lwe-AS. Ngamafutshane, zombini i-AS kunye ne-nr-AxSpA kukuvuvukala komqolo. Kwi-nr-AxSpA, umonakalo womqolo awubonakali kwi-X-ray ngenxa yezigaba zokuqala zesifo. Njengoko isifo siqhubeka, amathambo omqolo anokudibana. Ngamanye amaxesha, oku kunokuchaphazela amanye amalungu omzimba, njengamehlo.
"Ingxaki kukuba, xa ukudumba ngaphakathi emzimbeni wam kusanda, kuvakala ngathi ukusebenza kwengqondo yam kuyehla. Kufana 'nenkungu yobuchopho,'" uyacacisa.
"Xa ndandifunda ikhemistri, ndandingakwazi ukwenza umsebenzi webhu. Kwakudinga ukuma ixesha elide nokuphatha izinto zeglasi ngononophelo, kodwa ndakufumanisa kunzima."
Ekugqibeleni, kwafuneka enze isigqibo esinzima kakhulu - ukuyeka isikolo.
"Ndandingumntu owayenomdla kakhulu kwaye ephupha ngokusebenza kwicandelo lekhemistri. Ukulahlekelwa yiyo yonke loo nto kwakunzima kakhulu ukuyinyamezela," utshilo.
Kodwa uTristan akazange aphelele apho. Wagqiba ekubeni avule omnye umnyango. Nangona wayengazange abe ngumdlali wezemidlalo, umthambo waba yinxalenye ebalulekileyo yobomi bakhe. Waqala ukolula isinqe nomqolo nokuphakamisa iintsimbi ezilinganiselweyo. Kodwa eyona nto ibalulekileyo kwindlela yakhe yokuzilolonga yayisisixhobo esibizwa ngokuba yi-vibration plate . Esi sixhobo sibangela ukuba izihlunu zifinyeze kwaye ziphumle amaxesha amaninzi ngomzuzwana. Kuthiwa sonyusa amandla, ukuguquguquka, kwaye sinciphise iintlungu. UTristan usisebenzisa imizuzu eli-10 rhoqo kusasa.
"Ezo ngxolo ziyawukhulula umzimba wam. Ngamanye amaxesha ndiba nengxaki enkulu ngamalunga am, kodwa emva kokwenza oku, ndiziva ndikhululekile ngoko nangoko."
Emva kokuba ephilile kancinci, kwafika ixesha lokufumana umsebenzi ohambelana nobomi bakhe obutsha. UTristan wazifundisa ukuprograma iikhompyutha. Namhlanje, usebenza njengomprogramu wekhompyutha.
UTristan ngoku usebenza phantsi komphathi oqonda imeko yakhe kunye nemingeni eyizisayo.
"Ndisenengxaki yokusebenza ukususela ngentsimbi yesi-9 kusasa ukuya kweyesi-5 emva kwemini njengaye wonke umntu. Ukungxama kusasa yeyona nto inzima. Kodwa ndinethamsanqa, kuba umphathi wam uyandiqonda kwaye uyandinceda."
“Kunzima ukujongana nokungabi nobomi obufunayo,” utshilo. “Ndandingumntu okwaziyo ukufezekisa izinto ezininzi, umntu ‘othanda izinto ezininzi’. Kwakufuneka ndiyamkele into yokuba andikhawulezi njengoko ndandinjalo ngaphambili, kwaye akufuneki ndenze izinto ezigqithisileyo ukuze ndonwabe.”
"Ngoku ndingaya ekhaya ndiyonwabele ubusuku obuzolileyo, ndize ndonwabele ukuhambahamba kancinci epakini. Bekunzima kakhulu ukufikelela kweli nqanaba, kodwa indlela endijonga ngayo ubomi itshintshe ngokupheleleyo."
| Umntu | Imingeni ephambili ejongene nayo | Izisombululo kunye nezifundo ezifundiweyo |
|---|---|---|
| UIvan | Uloyiko lokulahlekelwa ngumsebenzi wakho, iminyaka yokubandezeleka kwengqondo kunye nokudakumba. | Ukufuna uncedo lwengqondo nolwezonyango (unyango lwe-ACT), ukuzilolonga, ukulawula ukutya, ukwamkela isifo nokusisebenzisa njengamandla. |
| uTristan | Ukudinwa kakhulu, ukuyeka imfundo nomsebenzi wamaphupha, ukuzibeka ityala. | Ukwenza umthambo ube yinxalenye yobomi (ipleyiti yokungcangcazela), ukufunda umsebenzi omtsha, ukutshintsha indlela ojonga ngayo ubomi, ukufumana uvuyo kwizinto ezincinci. |
Zombini ezi ndaba zisibonisa indlela ekunzima ngayo ukuphila nesifo esingapheliyo esifana ne-AS. Nangona kunjalo, ngeengcebiso zonyango ezifanelekileyo, inkxaso yengqondo, utshintsho kwindlela yokuphila, kunye nesimo sengqondo esiqinileyo,Bayasiqinisekisa ukuba singayoyisa le ngxaki kunye. Ukuba unengxaki efanayo, musa ukucinga ukuba uwedwa. Thetha nogqirha wakho uze ufumane uncedo olufunayo.
Umyalezo Wokuya Ekhaya
- Musa ukuzibeka ityala: Ukuba nesifo esingapheliyo esifana ne-AS asikuko ukuba nephutha. Ukusamkela sisinyathelo sokuqala sokuphila.
- Cela uncedo: Thetha ngokukhululekileyo nogqirha wakho (ingakumbi ingcali yamathambo) ngemeko yakho. Kwakhona, ukuba unengxaki yokujongana noxinzelelo, ungoyiki ukufuna uncedo kumcebisi.
- Ukuzilolonga kubalulekile: Yongeza inkqubo yokuzilolonga evunyiweyo ngugqirha efanelekileyo kuhlobo lomzimba wakho kwimisebenzi yakho yemihla ngemihla. Kubaluleke kakhulu ukunciphisa iintlungu nokuqina komzimba.
- Lungisa ubomi bakho: Ukuba amaphupha akho amadala okanye umsebenzi wakho kunzima ukuwulandela ngale meko, fumana iindlela ezintsha. NjengoTristan, ungafumana intsimi entsha ehambelana nezakhono zakho.
- Tshintsha indlela ochaza ngayo ulonwabo: Endaweni yokukhangela impumelelo enkulu ebomini, funda ukonwaba ngezinto ezincinci. Kuya kuba luncedo olukhulu kwimpilo-ntle yakho yengqondo.
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