Ngamanye amaxesha xa ugqirha ekunika amayeza anzima esingazange sive ngawo, siyaxhalaba kwaye soyike, akunjalo? Imibuzo emininzi efana nokuthi "Le yeyiphi le yeza? Kuza kwenzeka ntoni ngale nto? Ngaba kuza kubakho iziphumo ebezingalindelekanga?" ifika engqondweni. Namhlanje, siza kuthetha ngesitofu se-Elapegademase, abantu abaninzi abangazange beve ngaso, kodwa sisixhobo esibaluleke kakhulu, ngendlela elula onokuyiqonda.
Yintoni i-Elapegademase?
Ngamafutshane, i-Elapegademase sisitofu sokugonya esinyanga imeko engaqhelekanga kakhulu yemfuza. Le meko ibizwa ngokuba yi -Adenosine Deaminase (ADA Deficiency) . Eli gama liyinkimbinkimbi kancinci, ngoko masilijonge ngendlela elula.
Khawucinge ukuba imizimba yethu yifektri enkulu. Ukuze yonke into isebenze kakuhle kule fektri, kufuneka kubekho iintlobo ezahlukeneyo zabasebenzi. Iienzymes ngabasebenzi abancinci abasebenza emizimbeni yethu. I-enzyme nganye inomsebenzi othile.
I-Adenosine Deaminase yenye yee-enzyme ezikhethekileyo. Umsebenzi wayo kukuqhekeza ikhemikhali engafunekiyo (i-deoxyadenosine) eveliswa kwiiseli zethu kwaye iyisuse emzimbeni.
Ngoku, abanye abantu bazalwa benesiphene sale enzyme ebizwa ngokuba yi-adenosine deaminase, okanye bavelisa kancinci kakhulu kuyo. Yiloo nto siyibiza ngokuba yi-ADA deficiency. Xa le enzyme ingekho, loo khemikhali ingafunekiyo iqala ukuqokelelana emzimbeni. Le nto iyingozi kakhulu kwiiseli ezilwayo (ii-lymphocytes) kwinkqubo yethu yokuzikhusela komzimba . Ngenxa yoko, ezo seli ziyatshatyalaliswa, kwaye inkqubo yokuzikhusela komzimba iba buthathaka kakhulu.
Le nkqubo yomzimba yokuzikhusela ebuthathaka kakhulu ibizwa ngokuba yiSevere Combined Immunodeficiency (SCID) . Umntu onesi sifo usengozini enkulu yosulelo lweentsholongwane.
Ngoko ke, into eyenziwa yi-Elapegademase vaccine kukunika i-enzyme engekhoyo ebizwa ngokuba yi-adenosine deaminase evela ngaphandle komzimba. Oku kubizwa ngokuba yi-Enzyme Replacement Therapy . Xa olu vaccine lunikwa, izinto ezinobuthi eziqokelelana emzimbeni ziyaqhekeka, umonakalo kwiiseli zomzimba uyaphela, kwaye inkqubo yomzimba yokuzikhusela iqala ukomelela kwakhona. Oku kwenza umzimba ukwazi ukulwa nosulelo.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba usebenzise eli yeza
Ngaphambi kokuba uqalise eli yeza, kubaluleke kakhulu ukunika ugqirha wakho inkcazo epheleleyo yempilo yakho. Ingakumbi oku kulandelayo kufuneka kukhankanywe.
| Imeko ekufuneka uyixele | Kutheni oko kubalulekile? |
|---|---|
| Imeko yokosuleleka ngoku (efana nomkhuhlane, ukukhwehlela, umkhuhlane) | Kungabalulekanga ukulawula usulelo olukhoyo ngaphambi kokuba uqalise amayeza. |
| Amanqanaba eeplatelet anciphileyo | Eli yeza lisenokuchaphazela uvavanyo lwegazi, ngoko ke ugqirha kufuneka azi naziphi na iimeko ezikhoyo. |
| Ukunganyamezelani ne-elapegamide okanye amanye amayeza, ukutya, okanye idayi | Oku kubalulekile ukuze kuhlolwe umngcipheko wokuba umntu angabi namdla kakhulu xa efumana amayeza. |
| Ukuba ukhulelwe okanye uzama ukukhulelwa | Ufanele uxoxe nogqirha wakho ngemiphumo enokubakho kumntwana osesiswini. |
| Ukuba umntwana uncanciswa | Ugqirha wakho uza kukunika ingcebiso malunga nokuba iyeza lidluliselwa ebantwaneni ngobisi lwebele na kwaye nokuba liza kuba naliphi na ifuthe. |
Uyisebenzisa njani le mithi ngokuchanekileyo?
Eli yeza linikwa njengenaliti ye-intramuscular . Eli yeza lidla ngokunikezelwa liqela lezonyango esibhedlele okanye ekliniki. Nangona kunjalo, kwezinye iimeko, ukuze kube lula kumguli, kunokwenzeka ukufumana le naliti ekhaya.
Ukuba kufuneka ugonywe ekhaya...
Ungakhathazeki. Abasebenzi abaqeqeshiweyo besibhedlele baza kukubonisa ngokucacileyo, inyathelo ngenyathelo, indlela yokwenza oku ekhaya.
- Indlela yokulungisa iyeza.
- Yindawo entle yokugonywa.
- Yindlela elungileyo kakhulu yokugonywa.
- Indlela yokulahla ngokukhuselekileyo iisirinji neenaliti ezisetyenzisiweyo.
Kubaluleke kakhulu: Ungaze ulahle iinaliti ezisetyenzisiweyo kunye neesirinji kwinkunkuma eqhelekileyo. Zifanele zibekwe kwisitya seplastiki esikhethekileyo nesityebileyo (isitya esibukhali)**. Ukuba awunaso, buza ugqirha wakho okanye isibhedlele ngaso.
Ngaba uyabanika abantwana eli yeza?
Ewe, eli yeza linikwa abantwana kuba ukungabikho kwe-ADA kudla ngokufunyaniswa besebancinci. Nangona kunjalo, kubalulekile ukulandela imiyalelo yezonyango ngononophelo, njengoko kukho izinto ezikhethekileyo ekufuneka ziqwalaselwe xa kunikwa abantwana abancinci eli yeza.
Ungenza ntoni ukuba uthatha amayeza amaninzi kakhulu?
Ukuba ucinga ukuba uthathe ngaphezu kwedosi emiselweyo, fowunela ngokukhawuleza iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo , okanye uye kwiSebe leNgxamiseko (i-ETU) lesibhedlele esikufutshane.
Yintoni omawuyenze ukuba uphoswe yidosi yeyeza?
- Ukuba ufumana amayeza akho esibhedlele okanye ekliniki: Kubaluleke kakhulu ukuba ungaphoswa yi-aphoyintimenti yakho ecwangcisiweyo. Ukuba ngesizathu esithile awukwazi ukuya ngosuku lwakho olucwangcisiweyo, fowunela isibhedlele ngoko nangoko uze ubazise.
- Ukuba usela iyeza ekhaya: Ukuba uphoswe yidosi, yithathe ngokukhawuleza xa ukhumbula. Nangona kunjalo, ukuba sele kusondele ixesha lokusebenzisa idosi yakho elandelayo, yitsibe idosi oyiphosileyo uze uthathe idosi yakho elandelayo ngexesha elicwangcisiweyo. Ungaze uthathe idosi ephindwe kabini.
Ingaba eli yeza liyasebenzisana nezinye izinto? (Iindlela elisebenzisana ngazo)
Akukafundwa ngokubanzi indlela amanye amayeza, iimveliso zezityalo, okanye izongezo ezisebenzisana ngayo neli yeza.
Kungoko ke, kubalulekile ukunika ugqirha wakho uluhlu olupheleleyo lwamayeza owasebenzisayo (kuquka amayeza ezinye izifo, iivithamini, amayeza esintu, kunye nezongezo). Kubalulekile nokuxelela ugqirha wakho ukuba uyatshaya okanye usela utywala.
Izinto ekufuneka uzilumkele xa usebenzisa iyeza
Ugqirha wakho uza kukujonga rhoqo ngelixa ufumana olu nyango.
- Yiya kwiikliniki ezicwangcisiweyo: Oku kubalulekile ukuze ubone indlela amayeza achaphazela ngayo umzimba wakho kunye nokuba iimpawu zakho ziyancipha na.
- Umsebenzi wegazi: Ugqirha wakho unokuyalela uvavanyo lwegazi rhoqo ukuze alinganise ukusebenza kwenkqubo yakho yomzimba yokuzikhusela kunye nokusebenza kakuhle kwamayeza akho. Musa ukuwatyeshela.
- Qaphela iimpawu: Ukuba kukho utshintsho kwiimpawu zakho (nokuba lungcono okanye lubi), xelela ugqirha wakho ngalo mba.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengalo naliphi na iyeza, eli yeza linokubangela iziphumo ebezingalindelekanga kwabanye abantu, kodwa ayinguye wonke umntu ozifumanayo.
| Uhlobo lwesiphumo esibi | Iimpawu |
|---|---|
| Ukuba unale mpawu, yazisa ugqirha wakho ngoko nangoko. | |
| Iimpendulo eziqatha ze-allergy |
|
| Xelela ugqirha wakho ukuba ubona naziphi na iimpawu ezilandelayo, eziqhelekile, ezingapheliyo, okanye ezikhathazayo: | |
| Ukukhwehlela | Ukukhwehlela okutsha okungapheliyo. |
| Ukuhlanza | Ukucaphuka okanye ukuhlanza emva kokuthatha iyeza. |
| Iimpendulo kwindawo yokujova | Ububomvu, iintlungu, okanye ukudumba kwindawo yokutofa. |
Olu luhlu alubandakanyi zonke iziphumo ebezingalindelekanga. Ukuba ubona nantoni na engaqhelekanga ukongeza kwezi, thetha nogqirha wakho ngayo.
Ungayigcina njani iyeza?
- Gcina efrijini: Gcina eli yeza kwindawo eqhelekileyo yefriji. Ungaze uligcine efrijini.
- Gcina kude nabantwana: Gcina kude nabantwana abancinci kunye nezilwanyana zasekhaya.
- Gcina kwiphakheji yokuqala: Kungcono ukugcina iyeza kwiphakheji yalo yokuqala ukuze ulikhusele ekukhanyeni.
- Lahla amayeza aphelelwe lixesha: Musa ukusebenzisa amayeza emva komhla wokuphelelwa kwawo. Cela icebiso kugqirha wakho malunga nendlela yokulahla ngokukhuselekileyo amayeza aphelelwe lixesha okanye angasafunekiyo.
Umyalezo Wokuya Ekhaya
- I-Elapegademase lunyango lokutshintsha ii-enzyme oluqinisa inkqubo yomzimba yokuzikhusela, ebuthathaka yimeko engaqhelekanga yemfuza ebizwa ngokuba yi-ADA deficiency.
- Ngaphambi kokuba uqale olu nyango, xelela ugqirha wakho ngokupheleleyo ngazo zonke iimeko zakho zempilo, ii-allergies, kunye namanye amayeza owasebenzisayo.
- Landela ishedyuli emiselweyo yokusela amayeza ngokuchanekileyo. Ukuba uphoswe yidosi, ungaze uthathe iidosi ezimbini ngaxeshanye.
- Ukuba ufumana iimpawu ezinobungozi zokunganyamezelani komzimba ezifana nokudumba kobuso okanye imilebe, ukurhawuzelela kolusu, okanye ubunzima bokuphefumla, funa ingcebiso kagqirha ngoko nangoko.
- Gcina amayeza ngokukhuselekileyo efrijini (hayi efrijini) kude nabantwana.
- Ukuba unemibuzo okanye iinkxalabo malunga nale mithi, ungoyiki ukuthetha nogqirha wakho ngayo.
💬 Comments (0)
Akukho zimvo zithunyelweyo okwangoku. Faka uluvo lwakho apha okokuqala.
Faka uluvo lwakho