Ngamanye amaxesha siva ngezifo ezingaqhelekanga, nto leyo ethetha ukuba uninzi lwabantu aluzifumani. Ezinye zezi zibangelwa ziziphene ezithile emizimbeni yethu, oko kukuthi, ezo zikhoyo ekuzalweni. Namhlanje sithetha ngesitofu esikhethekileyo esisetyenziselwa ukunyanga isifo esingaqhelekanga. Igama laso yi-Elapegademase.
Luhlobo luni lonyango olu? Kutheni lunikwa olu hlobo?
Ngamafutshane, i-Elapegademase sisitofu esikhupha i-enzyme ngaphandle esingenakukwazi ukuyenza ngaphandle kwemizimba yethu. Abanye abantu, ingakumbi iintsana, bazalwa bengenayo i-enzyme ebizwa ngokuba yi -Adenosine Deaminase (ADA) . Le enzyme ibalulekile ukuze inkqubo yomzimba wethu yokuzikhusela, inkqubo yokuzikhusela esikhusela kwizifo, isebenze kakuhle.
Xa le enzyme ye-ADA ingekho, inkqubo yomzimba yokuzikhusela iphantse ibe buthathaka ngokupheleleyo. Le meko siyibiza ngokuba yiSevere Combined Immunodeficiency Disease (SCID) . Le yimeko enzulu kakhulu. Ngenxa yokuba inkqubo yomzimba yokuzikhusela ingekho, nokuba umkhuhlane okanye ukukhwehlela okunokuphiliswa lula kumntu oqhelekileyo kunokuba yingozi kumntu onjalo.
Ngoko ke, into eyenziwa lolu gonyo olubizwa ngokuba yi-Elapegademase kukunika umzimba i-enzyme ye-ADA enganelanga. Kufana nokugcwalisa into elahlekileyo. Olu gonyo lunokubizwa ngokuba yi-REVCOVI kwimarike.
Kubalulekile ukukhumbula ukuba olu asilonyango lwesifo. Lunyango olukhusela ubomi bomguli kwaye lunika amandla okuzikhusela afunekayo ukuze aphile ubomi obuqhelekileyo.
Ndimele ndimxelele ntoni ugqirha ngaphambi kokuba ndithathe eli yeza?
Ngaphambi kokuba wena okanye umntwana wakho niqalise olu gonyo, kubaluleke kakhulu ukuxelela ugqirha wakho ngembali yakho epheleleyo yempilo. Qiniseka ukuba uyabaxelela ukuba unayo nayiphi na kwezi meko zidweliswe ngezantsi.
- Iingxaki zokopha: Ukuba unengxaki yokujiya kwegazi, okanye ukuba unomdla wokopha ngokungalawulekiyo nokuba unesilonda esincinci.
- Usulelo lwangoku: Ukuba okwangoku unesosulelo esifana nomkhuhlane, umkhuhlane, ukukhwehlela.
- Ukubalwa kweeplatelet ezisezantsi egazini: Ukuba ukhe wafunyaniswa ukuba uneplatelet ezisezantsi egazini lakho kwiingxelo zangaphambili.
- Ii-Allergies: Ukuba une-allergy kuyo nayiphi na imithi, ukutya, okanye idayi, ayisiyiyo le yeza ibizwa ngokuba yi-Elapegademase kuphela.
- Ukukhulelwa: Ukuba ukhulelwe okanye ulindele ukukhulelwa kungekudala.
- Ukuncancisa: Ukuba ungumama oncancisa umntwana wakho.
Ngokusekelwe kolu lwazi, ugqirha uza kucwangcisa unyango olukufaneleyo.
Ndingayisebenzisa njani le yeza?
Olu gonyo ludla ngokunikezelwa njengenaliti kwisihlunu . Oku kudla ngokwenziwa esibhedlele okanye ekliniki yingcali yezempilo eqeqeshiweyo.
Nangona kunjalo, kwezinye iimeko, ukuze kube lula kumguli, wena okanye umntu okhathalelayo unokufundiswa ukuba unike umguli umgonyo ekhaya. Kwimeko enjalo, kubaluleke kakhulu ukunika umgonyo njengoko kuyalelwe, ngexesha elifanelekileyo, nangomlinganiselo ochanekileyo . Musa ukunika umguli iidosi ezingaphezulu okanye rhoqo kunokuba ugqirha wakho ekuxelele.
Wenza ntoni ngeenaliti ezisetyenzisiweyo?
Oku kubaluleke kakhulu. Ungaze ulahle iinaliti neesirinji ezisetyenzisiweyo enkunkuma . Zinokuba yingozi kakhulu kwabanye. Kukho isitya esikhethekileyo see-sharp. Ukuba awunayo, ungayifumana kugqirha wakho.
Ubanika nini abantwana eli yeza?
Ekubeni le meko ixhaphake kakhulu kubantwana abancinci nakwiintsana ezisandul’ ukuzalwa, le gonyo iyacetyiswa nakwabo bantu baneminyaka yobudala. Nangona kunjalo, kufuneka kuthathwe amanyathelo akhethekileyo okhuseleko xa uyinika abantwana. Ngoko ke, landela imiyalelo kagqirha womntwana wakho ngokuchanekileyo.
Kuthekani ukuba idosi iyanda (i-overdose)?
Ukuba ucinga ukuba uthathe i-overdose, yiya kwiSebe lezeMpilo eziNgxamisekileyo (ETU) elikufutshane nawe ngoko nangoko . Okanye, fowunela iZiko loLwazi lweePoisons kwiSibhedlele sikaZwelonke saseColombo .
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengayo nayiphi na iyeza, olu gonyo lunokubangela ezinye iziphumo ebezingalindelekanga. Nangona kunjalo, ayinguye wonke umntu ozifumanayo. Ezinye zezi ziyingozi, ngelixa ezinye zixhaphakile. Kubalulekile ukuzazi ezi.
| Uhlobo lwesiphumo esibi | Iimpawu |
|---|---|
| Ukuba unale mpawu, xelela ugqirha wakho ngoko nangoko. | |
| Iimpendulo Ezinzima Zokwaliwa Yi-Allergic | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe okanye ulwimi, ubunzima bokuphefumla. |
| Iimpawu zosulelo | Umkhuhlane, ukubanda, umphimbo obuhlungu, iintlungu xa uchama. |
| I-anemia | Ukuziva udiniwe ngendlela engaqhelekanga, ubuthathaka, uphelelwe ngamandla, isiyezi, kwaye kunzima ukuphefumla. |
| Ukuba ezi zinto ziyaqhubeka okanye ziyakukhathaza, xelela ugqirha wakho. | |
| Ukukhwehlela | Ukuba nokukhohlela okungapheliyo. |
| Ukuhlanza | Ukuhlanza. |
| Intlungu kwindawo yokutofa | Intlungu, ukubomvu, okanye ukudumba kwindawo efakwe kuyo inaliti. |
Olu luhlu alubandakanyi zonke iziphumo ebezingalindelekanga. Ukuba ufumana into eyahlukileyo, thetha nogqirha wakho ngayo.
Ungayigcina njani iyeza?
Ukuba usebenzisa le gonyo ekhaya, kubaluleke kakhulu ukuyigcina ngokuchanekileyo.
- Yigcine kwindawo ekhuselekileyo kude nabantwana .
- Gcina efrijini kubushushu obuphakathi kwe-2°C kunye ne-8°C .
- Musa ukuliqandisa iyeza nangasiphi na isizathu. Ukwenza njalo kuya kutshabalalisa ukusebenza kakuhle kweyeza.
- Lahla naliphi na iyeza eliphelelwe lixesha ngaphandle kokulisebenzisa.
Umyalezo Wokuya Ekhaya
- I-Elapegademase sisitofu sokugonyela isifo esinzima esidibeneyo sokungasebenzi kakuhle kwamasosha omzimba (SCID), isifo esibangelwa kukunqongophala kwe-enzyme i-ADA. Olu lunyango olusindisa ubomi olulawula esi sifo endaweni yokusinyanga.
- Ngaphambi kokuba uqale unyango, xelela ugqirha wakho ngazo zonke iimeko zakho zempilo, ii-allergies, kunye namanye amayeza owasebenzisayo.
- Sela amayeza ngexesha elifanelekileyo, ngedosi efanelekileyo. Ukuba uphoswe yidosi, fowunela ugqirha wakho ngoko nangoko.
- Ukuba ufumana naziphi na iimpawu ezifana nokunganyamezelani kakuhle komzimba, usulelo, okanye ukudinwa kakhulu, funa ingcebiso kagqirha ngoko nangoko.
- Ukuba usebenzisa amayeza ekhaya, gcina kakuhle efrijini. Ungaze uwaxube ubungakanani bawo.
- Ukuba unemibuzo malunga nale yeza, ungoyiki ukubuza ugqirha wakho.
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