Ngaba umntwana wakho unazo ezi mpawu? Masifunde ngeHydromyelia!

Ngaba umntwana wakho omncinci uhlala ekhalaza ngentloko ebuhlungu? Okanye uziva ephelelwe ngamandla okanye ebuthathaka? Ngamanye amaxesha sicinga ngezi zinto njengesifo nje esincinci esiqhelekileyo, kodwa ukuba ezi mpawu ziyaqhubeka, kulungile ukuba nexhala kancinci. Kuba ezi zinokuba ziimpawu zesifo esingaqhelekanga kodwa esinokuba yingozi esibizwa ngokuba yiHydromyelia esinokuchaphazela abantwana abancinci. Ngoko ke, masithethe ngale nto ngendlela elula namhlanje.

Yintoni iHydromyelia? Masiyiqonde ngokulula.

Ngamafutshane, i-hydromyelia kukwanda okungaqhelekanga komjelo ophakathi, indawo engaphakathi komjelo womgogodla, phezulu komjelo womgogodla kubantwana abancinci. Cinga ngale ndlela: kukho umbhobho omncinci ohamba emqolo wethu obizwa ngokuba ngumjelo ophakathi . Xa oku kubanzi, kwenza ingxowa egcwele ulwelo ebizwa ngokuba yi-syrinx .

Lo mjelo uphakathi udla ngokuzaliswa lulwelo olukhethekileyo olubizwa ngokuba yi -cerebrospinal fluid (CSF) . Olu lwelo lwe-`(CSF)` lukhusela ingqondo yethu kunye nomqolo kwiingozi ezahlukeneyo, kwaye lubanika nesondlo esifunekayo. Ngoko ke, xa olo `(syrinx)` lwenzeka, olu lwelo lwe-`(CSF)` lunokuqokelelana luze lubangele iingxaki ezingakumbi.

Ngubani ofumana i-hydromyelia? Yeyiphi inxalenye yengqondo echaphazelayo?

Le meko, ebizwa ngokuba yi-hydromyelia, yenzeka kwi -ventricle yesine yobuchopho . Le ikwisiseko sobuchopho, kufutshane ne-brainstem . Le ventricle yesine iqhagamshelwe kumjelo ophakathi oqhubeka uhla ngomthambo womqolo. Oku kufana netanki yamanzi ehambisa amanzi kumbhobho.

Lo mjelo uphakathi ugqunywe ngaphakathi luhlobo oluthile lweseli olubizwa ngokuba yi -'ependymal cells' . Ezi seli zifumaneka kuphela kwi-ventricles yengqondo nakwi-central canal yomgogodla. Kubalulekile ukukhumbula oku, kuba kunceda ukwahlula oku kwenye imeko esiza kuyixoxa kamva.

Le meko (iHydromyelia) idla ngokubonakala kubantwana abazalwa beneengxaki ezithile zobuchopho ezintsonkothileyo . Umzekelo:

• (Uhlobo lwe-Chiari malformation II) : Olu lutshintsho oluzalwa nalo (oluvela kubomi) kwisakhiwo sobuchopho, ingakumbi kwicandelo elisezantsi lobuchopho.
• (Dandy-Walker syndrome) : Le yingxaki engaqhelekanga yokuzalwa eyenzeka ekuphuhlisweni kwenxalenye engasemva yobuchopho (i-cerebellum).
• (Hydrocephalus) : Oku koko usenokuba ukuvile kubizwa ngokuba "kukuqokelelwa kwamanzi engqondweni." Abantwana abanale meko nabo banamathuba amaninzi okuphuhlisa `(Hydromyelia)`.

Kunqabile kakhulu, oko kuthetha ukuba kunqabile kakhulu, le meko inokwenzeka nakubantwana ngenxa yezinye izizathu. Ezo zizathu ziquka:

• Iithumba zobuchopho
• Usulelo lobuchopho, umzekelo, i-encephalitis
• Ukulimala kwengqondo okubuhlungu

Oku kuyichaphazela njani impilo-ntle yomntwana?

Xa eso siqhwithi sizele lulwelo esisikhankanyileyo ngaphambili, i-`(syrinx)`, iqala ukukhula, ibeka uxinzelelo kumqolo. Cinga ngayo njengokuzalisa ibhaluni ngamanzi, kwaye njengoko ikhula, ityhala izinto ezijikeleze yona, akunjalo? Yiyo loo nto kunjalo ngale. Olu xinzelelo lubangela ukuba imithambo-luvo ethambileyo kumqolo icinezelwe kwaye yonakale . Kulapho kuvela khona iimpawu ezahlukeneyo .

Ngaba iHydromyelia kunye neSyringomyelia ziyafana? Yintoni umahluko?

Ewe, la magama mabini avakala efana kakhulu. Iimpawu nazo ziyafana kakhulu. Kuzo zombini iimeko, i-cyst egcwele ulwelo ('ukukhula okufana ne-cyst') iyakheka kwi-spinal cord kwaye ichaphazela iiseli zemithambo-luvo. Kodwa kukho umahluko omncinci, kodwa obaluleke kakhulu phakathi kwezi zimbini. Makhe sibone ukuba zeziphi?

Ngokuphathelele iHydromyelia:

• Oku kuchaphazela kakhulu iintsana nabantwana abancinci . Kunqabile kakhulu ukuba abantu abadala bakufumane.
• Loo ngxowa izaliswe lulwelo (`syrinx`) ikhula ngaphakathi komjelo ophakathi womqolo.
• Ngaphakathi kweso siqhwithi (`syrinx`) kukho iiseli ezikhethekileyo ze-ependymal esithethe ngazo ngaphambili.

Ngokuphathelele iSyringomyelia:

• Oku kubonakala kakhulu kubantu abadala .
• Ingxowa egcwele ulwelo (`syrinx`) yenzeka ngaphandle komjelo ophakathi, oko kukuthi, ecaleni kwayo (kodwa ngaphandle komjelo ophakathi) .
• Akukho ziseli ze-ependymal ngaphakathi kwesi sitshisi (`syrinx`).

Olu tshintsho lubaluleke kakhulu koogqirha ukuze bafumanise isifo ngokuchanekileyo baze bamisele unyango olufanelekileyo.

Kutheni le nto i-hydromyelia yenzeka? Yintoni unobangela?

Inyaniso kukuba, abaphandi basafumanisa ukuba yintoni kanye kanye ebangela oku. Oko kukuthi, kunzima ukutsho ngokuqinisekileyo ukuba "ngulo unobangela". Nangona kufunyaniswe ukuba kunxulunyaniswa neemeko ezifana ne-`(Chiari malformation)` kunye ne-`(Dandy-Walker syndrome)` esithethe ngazo ngaphambili, uphando olongezelelweyo lwenziwa malunga nendlela olu nxibelelwano oluvela ngayo.

Zithini iimpawu zoku? Uzibona njani?

Kwabanye abantwana, i-syrinx incinci kakhulu. Kwimeko enjalo, kusenokungabikho zimpawu , okanye nokuba zikhona, kusenokungabi yingxaki enkulu. Umntwana angadlala aze asebenze ngokuqhelekileyo.

Nangona kunjalo, ukuba i-syrinx inkulu kakhulu, ingacinezela imithambo-luvo ekwi-spinal cord, ibangele intlungu ye-neuropathic . Le ntlungu inokuvakala ngeendlela ezahlukeneyo:

• Ukuziva ngathi kukho into evuthayo emzimbeni wonke : ngokungathi kukho umlilo.
• Intlungu ebukhali ngequbuliso, njengokubetheka kombane okanye ukuhlatywa ngemela .
• Ukuba ndindisholo : Ngamanye amaxesha usenokungaziva isandla okanye unyawo lwakho luchukumisa umzimba wakho.
• Ukuziva ngathi kukho iinaliti okanye ukurhawuzelela .

Ukongeza kwezi ntlungu zemithambo-luvo, ezinye iimpawu zinokubakho:

• Intloko ebuhlungu rhoqo : Oku akufani nentloko eqhelekileyo, kunokuba nzima ngakumbi.
• Ukulahlekelwa bubuthathaka kubushushu nokubanda : Oku kuyingozi kancinci, kuba umntwana angachukumisa into eshushu engazi aze azitshise, okanye achaphazeleke kumkhuhlane aze abe neengxaki.
• Ukuqina kwemisipha: Amalungu ayaqina kwaye kunzima ukuwagoba.
• I-Scoliosis : Abanye abantwana banokuba nomqolo ogobileyo kwicala elinye.
• Ubuthathaka kwiingalo nemilenze : Umntwana usenokukufumanisa kunzima ukudlala, ukubaleka, ukutsiba, kwaye usenokude abe nobunzima bokuhamba.

Khawuthelekelele umntwana wakho edlala aze ngequbuliso akhale esithi, "Mama, isandla sam siyandibamba, kuvakala ngathi ziinkumbi ziyasitya." Okanye, bahlala besithi, "Ndidiniwe, imilenze yam ivakala ngathi ayinamandla." Musa ukuyeka nje izinto ezinje.

Oogqirha bayixilonga njani le nto?

Ukuba umntwana wakho unezi mpawu, ngokuqinisekileyo kuya kufuneka ubonane nogqirha. Ugqirha uza kwenza uvavanyo oluninzi ukuze abone ukuba le yi-hydromyelia na.

1. Uvavanyo lwe-neurological : Okokuqala, ugqirha uza kumhlola kakuhle umntwana. Uza kukubuza ngeempawu zomntwana kunye nokuba zinzima kangakanani. Uza kujonga indlela umntwana ahamba ngayo, abaleka ngayo, atsiba ngayo, aphakamisa aze ehlise ngayo amalungu akhe, amandla emisipha kunye neemvakalelo zakhe.

2. I-MRI scan : Le yeyona ndlela ibalulekileyo nechanekileyo yokufumanisa esi sifo. I-MRI scan ingathatha imifanekiso eneenkcukacha zomqolo kunye nengqondo. Oku kungabona ngokucacileyo ukuba kukho i-fluid cyst (syrinx) ekhoyo, ukuba inkulu kangakanani, kwaye ukuba kukho ezinye iingxaki emgogodleni.

3. I-Electromyography (EMG) : Olu vavanyo lunokwenziwa ngamanye amaxesha. Lunokunika umbono wokusebenza kwemithambo-luvo kunye nemisipha. Ngokukodwa, lunokunceda ukwahlula oku kwezinye iimeko ezifana neSyringomyelia.

Ngaba i-cyst encinci ingaba yi-hydromyelia?

Ewe, lo ngumbuzo obalulekileyo. Nokuba i-MRI ibonisa i-cyst encinci kakhulu, mhlawumbi efana ne-slit, kwi-ventricle yesine, loo nto isenokuba yi-Hydromyelia. Nokuba i-cyst incinci kakhulu, isenokubangela iimpawu .Ngoko ke, ukuze kufunyanwe ngokuchanekileyo kwaye kuchongwe neethumba ezincinci ezifana nale, kufuneka ugqirha onamava ochwephesha kwi-neurology.

Zithini iindlela zokunyanga oku? (Unyango)

Unyango lwe-hydromyelia luxhomekeke kwiimpawu zomntwana kunye nobunzima bazo. Akubona bonke abantwana abanikwa unyango olufanayo.

• Iimpawu ezibuthathaka okanye ezingenazo : Ukuba umntwana wakho uneempawu ezimbalwa kakhulu, okanye akanazo kwaphela iimpawu, akukho nyango lunokufuneka . Nangona kunjalo, ugqirha uya kuqhubeka ejonga umntwana wakho ukuze abone ukuba kukho naluphi na utshintsho.
• Iimpawu eziphazamisayo : Ukuba iimpawu ezinje ngokuqina kwemisipha kunye nobuthathaka ziphazamisana nemisebenzi yemihla ngemihla yomntwana wakho, unyango lomzimba lunokubonelela ngoncedo olukhulu. Ingcali yonyango lomzimba iya kufundisa umntwana wakho imithambo kunye neendlela zokuqinisa imisipha ezifanelekileyo kumntwana wakho.
• Iimpawu eziphakathi nezinzima : Ukuba iimpawu zinzima, oko kuthetha ukuba umntwana ufumana iintlungu ezinkulu kunye nokungonwabi, utyando ludla ngokuba yimfuneko .

Ngaba kufuneka ndityandwe? Luhlobo luni lotyando?

Ukuba iimpawu zinzima, utyando ludla ngokuba lolona sisombululo silungileyo. Oku kuquka ukufaka i-shunt ukunceda ingqondo yomntwana ikhuphe i-CSF (ulwelo lwe-cerebrospinal) ngokwendalo.

Le 'shunt' yinto ethambileyo kakhulu, efana nombhobho omncinci. Idala indlela yokuba ulwelo olugqithisileyo lwe-'CSF' oluqokelele kwi-'ventricle yesine' luhambe luye kwenye inxalenye yomzimba (ngokuqhelekileyo umngxuma wesisu). Oku kunciphisa uxinzelelo ngaphakathi kwe-'syrinx' kwaye kunciphisa iimpawu.

Olu tyando lwe-shunt lwenziwa ngugqirha wemithambo-luvo. Lunokunciphisa okwethutyana okanye ngokusisigxina iimpawu . Nangona kunjalo, abanye abantwana banokufuna ii-shunt ezingaphezulu kwesinye ebomini babo, okanye banokufuna utyando lokulungisa i-shunt ekhoyo.

Ngaba akukho ndlela yokuthintela oku ukuba kungenzeki?

Ngelishwa, unobangela ochanekileyo we-hydromyelia ayaziwa, ngoko okwangoku akukho ndlela ithile yokuyithintela . Njengoko besitshilo ngaphambili, idla ngokunxulunyaniswa nezinye iimeko zokuzalwa (ezikhoyo ekuzalweni), ngoko ke ukuba ezo meko zingaphantsi azinakuthintelwa, kunzima ukuyithintela nale.

Liyintoni ikamva lomntwana one-Hydromyelia? (Ingxelo yokuxela kwangaphambili)

Lo ngumbuzo omkhulu kunayo yonke imzali ezibuza wona. Kunzima ukutsho nantoni na ecacileyo ngekamva lomntwana one-`(Hydromyelia)`, kuba iyahluka kumntwana ngamnye.

• Kwinani elincinci kakhulu labantwana, iimpawu ziyaphela ngokwazo, ngaphandle konyango, okanye zizinze kwinqanaba elifanayo . Kodwa oku kungathatha iminyaka.
• Abantwana abaninzi bafumana isiqabu esikhulu kwiimpawu zabo emva kokuba benesifo sokuxhuzula. Nangona kunjalo , ngamanye amaxesha iimpawu zinokuphinda zibuye . Oko kukuthi, isifo esidala sinokubuya emva kwexesha elithile.
• Kungoko ke, kubaluleke kakhulu ukuqhubeka ubona ugqirha kwaye umntwana wakho ahlolwe (uvavanyo lwe-neurological) kwaye, ukuba kuyimfuneko, i-MRI scan. Oku kuya kunceda ukuchonga kwangethuba ukuba iimpawu zibuya okanye ukuba kukho ingxaki kwi-shunt.

Bunjani ubomi bemihla ngemihla bomntwana one-Hydromyelia?

Indlela le meko echaphazela ngayo ubomi bomntwana bemihla ngemihla ixhomekeke ngokupheleleyo ekubeni iimpawu zinzima kangakanani na.

• Ukuba iimpawu azikho nzulu kakhulu , umntwana angenza imisebenzi yakhe yemihla ngemihla njengesiqhelo. Kusenokubakho ukungakhululeki okuncinci, kodwa kusenokungabi yingxaki ngalo lonke ixesha.
• Kodwa ukuba kukho iimpawu eziphakathi ukuya kwezinzima, ubomi bunokuba nzima kancinci kumntwana nakusapho :
• Intlungu : Oku kungafika kudlule ngequbuliso. Ekubeni ungazi ukuba kuza kufika nini okanye njani, umntwana unokuhlala esoyika kwaye engonwabanga.
• Ukuqina kwemisipha okanye ubuthathaka : Oku kunokwenza kube nzima kumntwana ukushukuma, ukudlala, ukukhasa, ukuhamba, nokwenza umsebenzi wesikolo. Basenokuphepha imisebenzi abayithandayo nabanye abantwana.
• Intloko ebuhlungu : Intloko ebuhlungu rhoqo inokubangela umntwana ukuba angabi nomsindo, angahlaliseki, aze angayifumani imisebenzi yesikolo.

Abazali badinga umonde, ukuqonda, kunye namandla amaninzi ukuze banyamekele umntwana onje. Kubaluleke kakhulu ukulandela imiyalelo kagqirha, benze izinto ezifana nonyango lomzimba ngokufanelekileyo, kwaye banike umntwana inkxaso yengqondo.

Izinto ezibalulekileyo ekufuneka sizikhumbule (Umyalezo Wokuya Ekhaya)

Kulungile, ngoko ke, ngokwezinto esithethe ngazo, ezi zezona zinto zibalulekileyo ekufuneka uzikhumbule:

• I-Hydromyelia yimeko engaqhelekanga kodwa exhalabisayo apho ingxowa egcwele ulwelo (i-syrinx) yakheka kumjelo ophakathi womthambo womqolo kubantwana abancinci.
• Ekubeni unobangela ochanekileyo woku ungaziwa, akukho ndlela yokukuthintela.
• Iimpawu ziyahluka kumntwana ngamnye. Ezona ziphambili kukudumba, ukungaziva mnandi, ubuthathaka kwimilenze, intloko ebuhlungu, kunye nokungakwazi ukuziva ushushu/ubanda.
• Esi sifo sinokuchongwa ngokuchanekileyo kuphela nge-MRI scan.
• Unyango luxhomekeke kwiimpawu. Abanye abantu basenokungaludingi unyango, abanye banokufuna unyango lomzimba, kwaye abanye banokufuna utyando lwe-shunt.
• Eyona nto ibalulekileyo kukuba ukuba ukrokrela ukuba umntwana wakho unenye okanye ngaphezulu kwezi mpawu, ungoyiki kwaye ngoko nangoko ubonane nogqirha ofanelekileyo, ingakumbi ingcali yezifo zengqondo. Ukufunyaniswa kwangoko kunokunceda kakhulu ekunikeni umntwana unyango olufunekayo kunye nokuphucula umgangatho wobomi bakhe.

Ukuba unemibuzo engaphezulu malunga noku, qiniseka ukuba uthethe nogqirha wakho. Ndiyathemba ukuba olu lwazi luza kukunceda!

"I-Hydromyelia, intambo yomgogodla, ubuchopho, i-fluid cyst, i-syrinx, i-CSF, izifo zabantwana, izifo ze-neurological, utyando lwe-shunt