Ngaba ngequbuliso uneentloko ebuhlungu, ukulahlekelwa yinkumbulo, kunye notshintsho oluncinci ekuboneni nasekuveni kwakho? Mhlawumbi ezi zinto zinokwenzeka ngaxeshanye. Kuqhelekile ukuba soyike xa iimpawu ezinjalo zibonakala ngequbuliso. Namhlanje siza kuthetha ngesimo esingaqhelekanga esinokubangela iimpawu ezinjalo, kodwa esingaziwa kakuhle kwilizwe lethu. YiSusac Syndrome leyo.
Yintoni iSusac Syndrome ngokulula?
Ngamafutshane, iSusac Syndrome yimeko yokuzikhusela komzimba. Cinga ngenkqubo yomzimba wethu yokuzikhusela njengomkhosi welizwe lethu. Umsebenzi wayo ophambili kukusikhusela kwiintsholongwane ezibangela izifo. Kodwa ngamanye amaxesha le nkqubo yenza impazamo encinci. Emva koko, endaweni yokuhlasela iintshaba ezivela ngaphandle, iqala ukuhlasela iiseli ezilungileyo zomzimba wethu. Oku sikubiza ngokuba zizifo zokuzikhusela komzimba.
KwiSusac Syndrome, inkqubo yethu yomzimba yokuzikhusela ihlasela imithambo yegazi emincinci ebuchotsheni, kwi-retina nakwi-cochlea . Olu hlaselo lubangela ukuba loo mithambo yegazi idumbe, inciphise okanye ivale ngokupheleleyo ukuhamba kwegazi kuyo. Yiyo loo nto ibangela iimpawu zesi sifo.
Esi sifo sichaphazeleka phi kakhulu?
Le meko ichaphazela kakhulu iindawo ezintathu zomzimba: ingqondo, amehlo kunye neendlebe.
| Inxalenye echaphazelekayo | Imeko evelayo |
|---|---|
| Ingqondo | I-Encephalopathy (ukungasebenzi kakuhle kobuchopho) inokubangela iintloko ezibuhlungu kunye nokudideka. |
| Amehlo | Ukulahlekelwa zezinye iindawo zokubona kwakho. Oku kuthetha ukuba ungaziva ngathi unamabala amnyama okanye iindawo zokubona kwakho ziphelile. |
| Iindlebe | Ukulahlekelwa kukuva. Oku kunokwenzeka kancinci kancinci kwabanye abantu, kwaye ngequbuliso kwabanye. |
Le yimeko engaqhelekanga kakhulu. Ngenxa yoko, kunzima ukutsho ukuba bangaphi abantu abayiqalayo. Ngamanye amaxesha, iimpawu zifana nesinye isifo esibizwa ngokuba yiMultiple Sclerosis (MS), ngoko ke noogqirha ngamanye amaxesha banokubhidanisa ezi zifo zimbini. Ngenxa yoko, ngamanye amaxesha kungathatha ixesha ukufumana uxilongo oluchanekileyo.
Zithini iimpawu zeSusac Syndrome?
Iimpawu zinokwahluka kumntu nomntu, kodwa zinxulumene nezinto ezintathu eziphambili ezikhankanyiweyo ngaphambili. Masibone ukuba ziyintoni na.
| Inkqubo echaphazelekayo | Iimpawu ezibonakalayo |
|---|---|
| Iimpawu ezinxulumene nengqondo | |
| Ingqondo | Intloko ebuhlungu kakhulu. |
| Ubunzima bokucinga (umz., ukulahlekelwa yinkumbulo yexesha elifutshane, isantya sokucinga esicothayo, kunye nokukwazi ukusombulula iingxaki). | |
| Intetho engacacanga. | |
| Ubunzima bokuhamba. | |
| Utshintsho kubuntu. | |
| Iingxaki zengqondo (umz. ukudakumba, isifo sengqondo , ubundlobongela, ixhala). | |
| Iimpawu ezinxulumene namehlo | |
| Amehlo | Ubukho bendawo emnyama okanye inxalenye yentsimi yokubona. |
| Imvakalelo yokugqunywa "ngumkhusane omnyama" wombono. | |
| Ukulahlekelwa ngumbono ongaphandle. | |
| Iimpawu ezinxulumene nendlebe yangaphakathi | |
| Indlebe Yangaphakathi | Ukulahlekelwa kukuva. |
| Ingxolo engapheliyo. | |
| Ukuva isandi ezindlebeni (Tinnitus). | |
Ezi mpawu zikuchaphazela njani?
Ezi mpawu azibonakali ngendlela efanayo kuye wonke umntu. Abanye abantu bakhula kube kanye kuphela ebomini babo. Kwabanye, iimpawu ziyafika zihambe, zize zibuye... njalo njalo. Rhoqo, iimpawu zinokuphela emva kweminyaka eliqela. Linani elincinci kakhulu labantu abaneempawu zazo zontathu ngexesha elinye xa isifo sifunyenwe.
Eyona nto ibalulekileyo kukuthatha amayeza njengoko ugqirha ewayalele. Kukho amathuba aphezulu okuba isifo siphinde sivele (siphinde sivele) kwangoko emva kokuba amayeza eyeke ukusetyenziswa.
Kutheni iSusac Syndrome isenzeka?
Isizathu esichanekileyo soku asikaziwa okwangoku. Kodwa siyazi ukuba yimeko yokuzikhusela komzimba. Njengoko bekutshiwo ngaphambili, inkqubo yethu yokuzikhusela komzimba ihlasela iiseli ezingaphakathi kwimithambo yegazi emincinci engqondweni yethu, kwi-retina, nakwindlebe yangaphakathi. Olu hlaselo lubangela ukuba ezo seli zidumbe. Emva koko ezo mithambo yegazi zinokuvaleka okanye zivaleleke ngokupheleleyo. Xa oko kusenzeka, ezo ndawo zomzimba azifumani ioksijini kunye nezondlo ezizidingayo. Yiyo loo nto ibangela zonke iimpawu ezikhankanyiweyo ngaphambili.
Ingaba esi sisifo esizuzwa njengelifa? Ngubani osengozini enkulu?
Hayi, akukho bungqina bokuba esi sisifo esidluliselwa kwilifa. Nangona kunjalo , abafazi banamathuba aphindwe kathathu okufumana esi sifo kunamadoda. Iimpawu zihlala ziqala phakathi kweminyaka engama-20 ukuya kwengama-40 ubudala.
Ziziphi iingxaki ezinokubakho zesi sifo?
Ukonakala kwamehlo neendlebe okubangelwa kukuvaleka kwemithambo yegazi ngamanye amaxesha kunokuba yinto engapheliyo.Oku kuthetha ukuba kukho ithuba lokulahlekelwa ngumbono nokuva ngokusisigxina. Nangona kungaqhelekanga, imeko ebizwa ngokuba yi-dementia, apho inkumbulo ilahleka ngokupheleleyo, nayo inokwenzeka.
Ugqirha uxilonga njani esi sifo? (Uxilongo)
Ugqirha wakho uza kwenza iimvavanyo ezininzi ukuze afumanise esi sifo.
- Uvavanyo lomzimba
- Uvavanyo lwe-neurological
- Uvavanyo lwamehlo
Ukongeza, ungenza uvavanyo olufana nolu ukuze ufumane okungakumbi malunga neempawu zakho:
- I-Magnetic Resonance Imaging (MRI) yobuchopho: Oku kuvumela ugqirha ukuba akhangele amabala amhlophe abizwa ngokuba yi-'snowball lesions' kwindawo apho ii-hemispheres ezimbini zobuchopho zidibana khona (i-corpus callosum). Ezi zizibonakaliso ezithile zeSusac Syndrome.
- I-Fluorescein Angiography: Olu luvavanyo olukhethekileyo oluhlola imithambo yegazi kwi-retina yeliso. Oku kunokufumanisa naziphi na izithintelo kwimithambo yegazi.
- I-Audiogram: Olu luvavanyo lokuva. Lujonga ukuba uyakwazi na ukuva izandi ezivakala kancinci kwaye nokuba unengxaki yokuqonda intetho.
Zithini iindlela zonyango zoku?
Eyona njongo yonyango kukulawula inkqubo yethu yomzimba yokuzikhusela, nto leyo engasebenzi kakuhle. Kusetyenziswa amayeza okunciphisa umzimba. Eminye imizekelo yile:
- Ii-corticosteroids (umz. i-prednisone)
- I-immunoglobulin efakwa kwimithambo yegazi (IVIG)
- I-Mycophenolate
- I-Azathioprine
- I-Cyclophosphamide
- I-Rituximab
La mayeza anokunikwa umzimba ngeendlela ezahlukeneyo. Amanye athathwa njengeepilisi okanye iikhaphu. Amanye anikwa njengeenaliti. Amanye anikwa ngemithambo yegazi (IV) ngetyuwa. La mayeza asebenza ngokunciphisa ukusebenza kakhulu kwenkqubo yomzimba yokuzikhusela.
Funda ngonyango, ukuchacha, kunye nendlela yokubona izinto
Ngaba kukho naziphi na iziphumo ebezingalindelekanga zonyango?
Ewe, njengawo onke amayeza, le inokuba nemiphumo emibi eyahlukeneyo. Ngoko ke, thetha nogqirha wakho ngale nto ngaphambi kokuba uqale unyango. Ukuba ufumana nayiphi na imiphumela emibi, yazisa ugqirha wakho ngayo.
Kuza kuthatha ixesha elingakanani ukuchacha emva konyango?
Ukuba oku kuqatshelwe kwangethuba kwaye unyango luqalwe kwangethuba, iimpawu zinokuphucuka ngokukhawuleza. Abanye abantu bagula kube kanye kuphela. Abanye banokuba neziqendu eziphindaphindayo ngokuhamba kweminyaka. Nangona kunjalo , ngonyango olufanelekileyo lokunciphisa amajoni omzimba, umngcipheko wokuphinda ubuye uyancipha kakhulu.
Buza kuba njani ubomi ngesi sifo? (Imbono)
Ithemba labo bafumana unyango ngokukhawuleza nje xa iimpawu zibonakala lihle kakhulu. Oku kunokuthintela umonakalo osisigxina engqondweni, emehlweni nasezindlebeni. Iingxaki ezingapheliyo ezifana nokulahlekelwa kukubona kunye nokulahlekelwa kukuva azixhaphakanga. Esi asisosifo esisongela ubomi, ngaphandle kwakwiimeko ezingaqhelekanga. Nangona sinokuchaphazela umgangatho wobomi bakho, asiyichaphazeli ngokuthe ngqo indlela ophila ngayo.
Ungasithintela njani esi sifo kwaye nini ukuya kugqirha?
Akukho ndlela ithile yokuthintela iSusac Syndrome. Nangona kunjalo, ngokulandela isicwangciso sonyango esinikwe ngugqirha wakho ngokuchanekileyo, unokunciphisa ukuphinda kweempawu (ukuqhambuka).
Ukuba ufumana naluphi na utshintsho kwezi, bona ugqirha wakho ngoko nangoko:
- Utshintsho kwindlela yokubona
- Ukulahlekelwa kukuva
- Utshintsho kwindlela yokucinga okanye yokukhumbula
- Utshintsho kwindlela yokuziphatha okanye ubuntu
Okukhona isifo siqatshelwa ngokukhawuleza, kokukhona unokuhlala usempilweni kwaye uthintele umonakalo ongunaphakade.
Imibuzo omele uyibuze ugqirha wakho
- "Ndingabuya na emva kokuba iimpawu zam ziphucukile?"
- "Undicebisa ukuba ndinyangwe ngoluphi uhlobo lonyango?"
- "Ndingayisebenzisa ixesha elingakanani le yeza kwaye njani?"
- "Zithini iziphumo ebezingalindelekanga zale mithi?"
- "Ngaba ndiza kufuna izixhobo zokuva okanye i-cochlear implant?"
I-Susac Syndrome inokuchaphazela ubomi bakho bemihla ngemihla. Kuqhelekile ukuba uzive usoyika kwaye uxhalabile xa izinto obusoloko uzikholelwa, ezinje ngokubona okanye ukuva kwakho, zitshintsha ngequbuliso. Ngamanye amaxesha ukuthetha nomcebisi wezempilo yengqondo kunokuba luncedo kakhulu. Khumbula, kungcono ukuxelela ugqirha kwangoko nje ukuba uqaphela iimpawu, njengoko iingxaki zinokubakho. Unyango olukhawulezileyo lunokuthintela umonakalo ongunaphakade.
Umyalezo Wokuya Ekhaya
- I-Susac Syndrome sisifo esingaqhelekanga sokuzikhusela komzimba esichaphazela ingqondo, amehlo kunye neendlebe.
- Iimpawu ezifana nentloko ebuhlungu, isiyezi, ukuncipha kokubona, kunye nokulahlekelwa kukuva zinokubakho, kodwa ziyahluka kakhulu kumntu nomntu.
- Ukuxilongwa kwangoko kunye nonyango kubalulekile ukuthintela umonakalo osisigxina, njengokungaboni okanye ukungeva.
- Unyango lubandakanya ukusetyenziswa kwamayeza acinezela inkqubo yomzimba yokuzikhusela, kwaye kubaluleke kakhulu ukuwasebenzisa njengoko kuchaziwe ukuze kuthintelwe ukuphinda isifo.
- Esi asisosifo esizuzwa njengelifa kwaye asidli ngokuchaphazela ubomi bomntu, kodwa sinokuchaphazela umgangatho wobomi.
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