Ngaba wakha wajonga isisu somntwana wakho osandul’ ukuzalwa waza waphawula ukuba ulusu lwakhe lushwabene kakhulu, njengesiqhamo esomileyo? Okanye luvakala lubuthathaka kakhulu kwaye lungenanyama? Kuqhelekile ukuba woyike njengomama xa ubona izinto ezinje. Kodwa oku kungaba luphawu lwesiphene esingaqhelekanga kodwa esinzulu sokuzalwa esibizwa ngokuba yiPrune Belly Syndrome. Namhlanje, siza kuthetha ngale nto ngendlela elula onokuyiqonda.
Yintoni iPrune Belly Syndrome?
Ngamafutshane, iPrune Belly Syndrome yimeko engaqhelekanga kakhulu eyenzeka xa umntwana ezalwa. Ikwabizwa ngokuba yiEagle-Barrett syndrome. I-"Prune" sisiqhamo esifana nediliya eyomisiweyo okanye iplamu. Eli gama livela kwinto yokuba aba bantwana banemibimbi esiswini sabo.
Le meko ineempawu ezintathu eziphambili, yiyo loo nto ngamanye amaxesha ibizwa ngokuba yi "triad syndrome."
1. Ukungabikho okanye izihlunu zesisu ezibuthathaka kakhulu: Olu luphawu oluphambili lwangaphandle. Izihlunu zesisu azikhuli kakuhle, nto leyo ebangela ukuba ulusu lwesisu lubonakale lugobile kwaye lushwabene.
2. Amasende angathotywanga: Le meko ichaphazela kakhulu amakhwenkwe. Amasende abo ahlala ngaphakathi esiswini, endaweni yokuba ehle aye emathunjini.
3. Iingxaki zesinyi esikhulu ngokungaqhelekanga kunye nenkqubo yomchamo: Le yeyona ngxaki inzima yesi sifo. Isinyi siba sikhulu kakhulu, nto leyo ebangela iingxaki ezinkulu kwinkqubo yomchamo.
Ezi ngxaki zenkqubo yomchamo zithintela umntwana ekukhupheni ngokupheleleyo isinyi sakhe, izintso, kunye nemibhobho ethwala umchamo ukusuka kwizintso ukuya kwisinyi (ureters).
Ukuba umntwana uzelwe enale meko, usenokuba neengxaki kwindlela yokuchama. Umzekelo, i-urethra inokuba banzi ngendlela engaqhelekanga, umchamo ungaqokelelana uze uzaliseke, kwaye umchamo ungabuyela umva uye kwizintso (ukuphuma kwegazi).
Isifo sesisu iPrune sinokubangela nezinye iziphene zokuzalwa. Ezi ziquka iziphene emiphungeni, entliziyweni, emathunjini, nakwinkqubo yamathambo. Nangona le meko ingachaphazeleki kakhulu ngamantombazana, ama-95% eemeko axelwa ngabafana.
Kutheni oku kusenzeka? Zithini izizathu?
Enyanisweni, oogqirha abakafumani unobangela oqinisekileyo wePrune Belly Syndrome, kodwa kukho iingcamango ezininzi ezibonisa ukuba isenokuba yimbangela.
- Uluvo lokuqala:Njengoko umntwana ekhula esibelekweni, kucingelwa ukuba kukho ukuvaleka kwesinyi okanye urethra. Oku kuthintela umchamo ukuba ungaphumi emzimbeni, nto leyo ebangela ukuba isinyi, ureters, kunye nezintso zikhule. Xa isinyi siba sikhulu kakhulu, uxinzelelo oludalwayo luthintela izihlunu zesisu ukuba zingakhuli kwaye amasende ehle.
- Uluvo lwesibini: Ngenxa yokuba izihlunu zesisu azikhuli kakuhle, kunzima ukuba umntwana achame. Oku kubangela ukuba inkqubo yomchamo idumbe, nto leyo ebangela usulelo neengxaki.
- Uluvo lwesithathu: Mhlawumbi obu buthathaka bemisipha kunye neengxaki zenkqubo yomchamo zinento efanayo, kwaye kusenokwenzeka ukuba kukho unobangela esingawaziyo (umzekelo, isiphene kwinkqubo yemithambo-luvo).
Ekubeni kukho iingxelo ezininzi zokuba esi sifo siyenzeka kubazalwana noodade abakusapho olunye, uphando luyaqhubeka ukuze kuchongwe ukuba ngaba kukho unxibelelwano lwemfuza na noku.
Zithini iimpawu zale meko?
Uhlobo kunye nobukhali beempawu zinokwahluka ukusuka kumntwana ukuya komnye onePrune Belly Syndrome. Nangona kunjalo, kukho iimpawu eziqhelekileyo. Jonga itheyibhile engasezantsi.
| Uphawu | Ingcaciso elula |
|---|---|
| Isisu esishwabeneyo | Ulusu lubonakala lubolile kwaye lomile ngenxa yokungabikho kwemisipha esiswini. |
| Ukudumba esiswini esisezantsi | Isisu esingezantsi sibonakala sidumbile ngenxa yokwanda kwesinyi. |
| Ukuphuma kwamathumbu | Imo erhabaxa yamathumbu ibonakala ngesikhumba ngenxa yobuthathaka bolwelo lwesisu. |
| Usulelo oluqhelekileyo lwendlela yomchamo (UTIs) | Usulelo oluqhelekileyo olubangelwa kukuchama okungafanelekanga. |
| Ubunzima bokuhlala nokuhamba | Ubunzima bokulawula umzimba ngenxa yokungabi namandla angaphakathi. |
| Ukukhupha isinqe se-scrotum | Amasende abantwana abangamakhwenkwe akakho kwi-scrotum. |
Ukongeza, abanye abantwana banokuba ne-clubfoot, imeko apho unyawo luzalwa lujikelezwe ngaphakathi, kunye ne -spina bifida , isiphene sokuzalwa apho imithambo-luvo yomqolo ingakhuli kakuhle.
Ungayibona njani le meko?
Uninzi lwexesha, oogqirha banokuyibona le meko ngexesha lokuhlolwa kwe-ultrasound ngexesha lokukhulelwa kwakho. Ukuba akunjalo, ezi mpawu ziya kubonakala ngokucacileyo ngexesha lokuhlolwa kokuqala kwezonyango emva kokuba umntwana ezelwe.
Ugqirha wakho unokwenza iimvavanyo ezininzi ukuqinisekisa ukuxilongwa nokufumanisa ubunzulu bemeko.
- I-Ultrasound Scan: Oku kunceda ukubona imeko yezintso kunye nezinye izitho zenkqubo yomchamo.
- Uvavanyo lwe-X-reyi: Kukho iintlobo ezimbini ze-X-reyi ezisebenzisa idayi ekhethekileyo ukuze ifakwe emzimbeni. Enye yi-intravenous pyelogram (IVP) kwaye enye yi-voiding cystourethrogram (VCUG). Ezi zinokubonisa ngokucacileyo ukuvaleka kunye neengxaki kwinkqubo yomchamo.
- Uvavanyo lwegazi: Olu vavanyo lunceda ekuqinisekiseni ukuba izintso zomntwana wakho zisebenza kakuhle kangakanani.
Zithini iindlela zonyango?
Ngenxa yokuba iimpawu kunye nobunzima bePrune Belly Syndrome zahlukile, kukho iindlela ezahlukeneyo zonyango. Ugqirha uya kumisela unyango olufanelekileyo ngokusekelwe kwimeko yomntwana. Rhoqo, kufuneka utyando oluninzi.
| Igama lotyando (Igama lesiNgesi) | Kalula nje, kuthetha ukuthini oku? |
|---|---|
| I-Vesicostomy | Kwenziwa umngxuma omncinci odlula esiswini uye kwisinyi, nto leyo evumela ukuba umchamo udlule lula. |
| I-Orchiopexy | Amasende esiswini afakwa ngotyando kwi-scrotum aze alungiswe. |
| I-Cystoplasty | Olu lutyando lokwakha okanye ukwakha kwakhona isinyi. |
| Ukwandiswa kwe-detrusor | Utyando lokuqinisa izihlunu zesinyi. Ngamanye amaxesha, nenxalenye yomsipha ovela kwindawo yesinqe ingasetyenziswa. |
| Ukufakelwa kwezintso | Kwiimeko ezinzima kakhulu, ukuba izintso aziphumeleli, umntwana unokufuna ukufakelwa izintso. |
Liza kuba njani ikamva lomntwana? (Ingxelo yokuxela kwangaphambili)
Kunzima ukunika impendulo enye kulo mbuzo, kuba ikamva lomntwana lixhomekeke kubukhulu besifo, ubudala bomntwana, kunye nempilo yakhe iyonke.
Kukho iimeko apho abanye abantwana bafa besesesibelekweni (bezelwe befile). Abanye abantwana banokufa kwiinyanga ezimbalwa emva kokuzalwa. Le yingxaki ebucayi kakhulu.
Nangona kunjalo, nokuba sele benyangiwe, abanye abantwana basenokuba nokungasebenzi kakuhle kwezintso . Ukungasebenzi kakuhle kwezintso kuxa izintso zilahlekelwa malunga ne-85-90% yomsebenzi wazo, zide zingasakwazi ukusebenza kakuhle. Emva koko, izinto ezilahliweyo kunye namanzi angaphezulu ziyaqokelelana emzimbeni, nto leyo ebangela ukuba umntwana agule kakhulu. Iimpawu ziquka ukudinwa, ukungabi namdla wokutya, ukurhawuzelelwa, kunye nokudumba kwemilenze.
Ukuba izintso aziphumeleli, unyango luyi -dialysis okanye ukufakelwa izintso .
Okokugqibela, ukuba unesikrokro sokuba umntwana wakho ubonakalisa naziphi na kwezi mpawu, bonana nogqirha ngoko nangoko . Ukuxilongwa kwangoko kunye nokuqaliswa konyango olufanelekileyo kunokukhokelela kwisiphumo esingcono kumntwana wakho.
Umyalezo Wokuya Ekhaya
- Isifo sesisu iPrune sisifo esingaqhelekanga kakhulu esichaphazela kakhulu abantwana abangamakhwenkwe.
- Iimpawu ezintathu eziphambili zale meko kukushwabana kwesikhumba esiswini, ubuthathaka bemisipha, kunye neengxaki zenkqubo yomchamo.
- Nangona unobangela ochanekileyo woku ungekafunyanwa, kukholelwa ukuba kusenokwenzeka ukuba ubangelwa kukuvaleka kwenkqubo yomchamo ngexesha lokukhulelwa.
- Oku kunokubonwa ngeeskeni ngexesha lokukhulelwa okanye emva kokuba umntwana ezelwe.
- Utyando ludla ngokufuneka njengonyango. Ukuba imeko imbi kakhulu, kukho umngcipheko wokungasebenzi kakuhle kwezintso.
- Ukuba umntwana wakho unezinye zezi mpawu, musa ukulibazisa kwaye ubone ugqirha wakho ngoko nangoko . Ukungenelela kwangoko kubaluleke kakhulu.
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