Sonke sike saba nobuhlungu emhlane ngesinye isikhathi empilweni yethu, akunjalo? Uma ugoba kancane noma uphakamisa into esindayo, ubuhlungu buzophela ezinsukwini ezimbalwa. Kodwa... ngezinye izikhathi lobu buhlungu emhlane abulula kangako. Kungaba ukuqala kwenkinga enkulu ebilokhu ikukhathaza iminyaka futhi engenakutholakala kahle. Namuhla sikhuluma ngesinye isimo esinjalo. Leso yi-Ankylosing Spondylitis, noma ngamafuphi i-AS.
Kuyini i-Ankylosing Spondylitis (AS)?
Kalula nje, i-Ankylosing Spondylitis (AS) uhlobo lwesifo samathambo esihlala isikhathi eside, esivuvukalayo esithinta kakhulu umgogodla wakho. Okwenzekayo ukuthi amasosha omzimba ahlasela ngephutha amalunga omgogodla wakho. Ngokuhamba kwesikhathi, lokhu kuvuvukala kungabangela ukuthi amathambo omgogodla wakho ahlangane, kunciphise ukuguquguquka futhi kuholele ekumeni okugobile.
Abanye odokotela bathi ukuxilonga lesi sifo kufana nokufuna inalithi esiqwini sotshani. Kunezizathu eziningana zalokho.
Kungani kunzima kangaka ukuxilonga i-AS?
Ucwaningo luye lwabonisa ukuthi ngokuvamile kuthatha iminyaka engu-7-10 kusukela ngesikhathi izimpawu ze-AS ziqala khona kuze kube yilapho kutholakala ukuthi zinesifo esifanelekile. Cabanga ukuthi lokho kuthatha isikhathi esingakanani! Izizathu eziyinhloko zalokhu yilezi:
- Ubuhlungu bomhlane buvamile: Njengoba sishilo ngaphambili, ubuhlungu bomhlane buvamile kakhulu. Ngakho-ke, abantu abaningi bacabanga ukuthi kuyinto evamile futhi bangakunaki.
- Ukubambezeleka kwemibiko ye-X-ray: Ku-AS, umonakalo emalungeni e-sacroiliac omgogodla kanye ne-pelvis ubonakala kuphela ku-X-ray ngemva kokuba isifo sesiqhubeke kancane.
- Izimpawu ziyahlukahluka: I-AS ithinta umuntu ngamunye ngendlela ehlukile. Abanye abantu bazwa ubuhlungu bomhlane kuphela, kanti abanye bangase babe nezinkinga zamehlo abo, izithende, kanye namanye amalunga.
- Ukuntuleka kokuhlolwa okukodwa: Akukabikho ukuhlolwa kwegazi okukodwa noma ukuskena okungaqinisekisa ngokuphelele ukuthi lokhu kuyi-AS.
Leli thebula lizokusiza uqonde umehluko phakathi kobuhlungu obujwayelekile bomhlane nobuhlungu obubangelwa yi-AS.
| Isici | Ubuhlungu Bomhlane Obusemshinini | Ubuhlungu bomhlane ku-AS (Ubuhlungu Bomhlane Okuvuvukala) |
|---|---|---|
| Ubuhlungu bukhulu kakhulu. | Ngemva komsebenzi, ekupheleni kosuku | Ekuseni nasebusuku, ikakhulukazi ngemva kokuphumula |
| Uma uphumula | Ubuhlungu buyancipha. | Ubuhlungu nokuqina kuyanda. |
| Ukuzivocavoca/Ukunyakaza | Ubuhlungu bungase bukhule. | Ubuhlungu nokuqina kwehla |
| Ukuqina Kwasekuseni | Kuhlala ngaphansi kwemizuzu engama-30 | Kuthatha imizuzu engaphezu kwengu-30 (ngokuvamile okungaphezu kwehora) |
Izimpilo ezichithwe phakathi kokuxilongwa okungalungile...
Uma sizwa okuhlangenwe nakho kwabantu abaphila nalesi sifo, siqonda kangcono ukubaluleka kwale nkinga.
Indaba kaDon: "Kufana nokuthi amehlo awaboni, kodwa amehlo ayabonakala"
Kwamthatha iminyaka engu-7 uDon ukuthola lesi sifo. Kodwa uma ebheka emuva, uzizwa sengathi kwamthatha iminyaka engu-30. Lapho eqala ukuba nobuhlungu edolweni eneminyaka eyi-10, wonke umuntu wakubiza ngokuthi “ubuhlungu bokukhula.”
Kodwa cishe eneminyaka engu-40 ubudala, impilo yakhe yashintsha ngendlela eyesabekayo. Kulapho-ke aqala khona ukuba ne -uveitis , isimo samehlo esivuvukalayo esingaba yinkinga enkulu ye-AS. "Ngalahlekelwa ukubona. Ngangibona izimo kuphela, futhi ngangizwela kakhulu ekukhanyeni. Kwakungathi ngiyimpumputhe, kodwa hhayi ngempela ngiyimpumputhe," kusho uDon.
Nakuba odokotela bamehlo bengazange bathole imbangela, bacabanga ukuthi kungenzeka ukuthi "uhlobo oluthile lwesifo sokuzivikela komzimba." Njengoba kungekho mpendulo ecacile, uDon wakubeka eceleni lokho. Ngemva kweminyaka eminingi yokubona odokotela abangaphezu kuka-30 nokwelashwa ngakho konke kusukela kumdlavuza kuya ezimweni zezinzwa, kwagcina kutholakale ukuthi wayene-AS ngemuva kokubona udokotela wamathambo.
Indaba kaCharis: "Akusona isifo esithinta amadoda kuphela"
UCharis wakhuliswa ngunina. Uyise wayene-AS. "Ngangingalazi negama lalesi sifo. Kodwa ngangazi ukuthi ngeke ngisithole, ngoba 'kwakuyisifo sabesilisa,'" kusho uCharis.
Lokhu kuyiphutha elivamile kubantu abaningi. Nakuba ngaphambili kwakucatshangwa ukuthi i-AS ithinta amadoda kuphela, idatha yakamuva ikhombisa ukuthi abesifazane nabo bathinteka yilesi sifo ngesivinini esikhulu.
UCharis wayehlushwa yidolo nezinye izinhlungu zamalunga kusukela esemncane, kodwa wayecabanga ukuthi kwakuyinkinga ethile lapho edlala imidlalo. Udokotela wamtshela ukuthi kwakuwukukhathazeka. Kodwa uCharis wayengamkholwa. Wayecabanga ukuthi izimpawu zifana nezikayise. Ekugcineni, ngemva kokubuza uyise, nokulandela iseluleko sakhe, waya kudokotela futhi kwatholakala ukuthi une-AS.
Cishe ama-80%-95% eziguli ze-AS ane-gene ebizwa ngokuthi i-HLA-B27 . Lokhu kungazuzwa kubazali kuya ezinganeni. Kodwa-ke, akuwona wonke umuntu onale gene ozokhula abe yi-AS, futhi kungenzeka futhi ukuthi akhule abe yi-AS ngaphandle kwale gene. Ngakho-ke, lokhu akukwazi ukunqunywa ngokuhlolwa kwezakhi zofuzo kuphela.
UCharis uchaza imizwa yakhe kanje:
"Ukucindezeleka kanye nesifo esingamahlalakhona kufana nabazala, bahlala behlala ndawonye."
Uhambo olude lokuthola isifo lungakukhathaza ngokomzwelo. Ngakho-ke uma ubhekene nento efana nale, ungangabazi ukukhuluma ngayo futhi ucele usizo kuchwepheshe wezempilo yengqondo uma kudingeka.
Kungani odokotela bephuthelwa yi-AS?
Esinye isizathu salokhu isikhathi esilinganiselwe sokubona iziguli. "Imizuzu engu-15 nje kuphela nesiguli ayanele," kusho omunye uchwepheshe. Ukuze uxilonge isifo esiyinkimbinkimbi njenge-AS, udinga ukulalela ngokucophelela lokho isiguli esikushoyo bese ubuza imibuzo efanele.
Futhi, izimpawu ze-AS ngezinye izikhathi zifana nezezinye izifo. Isibonelo:
- Ubuhlungu ezinqeni nasezithendeni
- I-Psoriasis, isifo sesikhumba
- Izifo zesistimu yokugaya ukudla ezifana nesifo sikaCrohn noma i-ulcerative colitis
Uma udokotela ojwayelekile (GP) engabonanga iziguli eziningi ze-AS emsebenzini wakhe, angase angasoli i-AS uma ebona lezi zimpawu.Yingakho kubaluleke kakhulu ukubona udokotela wamathambo uma unezinhlungu zomhlane zesikhathi eside, ikakhulukazi uma zimbi kakhulu ekuseni.
Izindaba ezinhle ukuthi odokotela manje sebeqaphela kakhulu izimpawu ze-AS kunanini ngaphambili. Futhi, kunezindlela zokwelapha ezintsha (ezifana nokwelashwa kwezinto eziphilayo) ezisebenza kahle kakhulu ekulawuleni lesi sifo. Ngakho akudingeki uhlupheke njengoba wawuvame ukwenza. Into ebaluleke kakhulu ukuxilonga lesi sifo ngesikhathi bese uqala ukwelashwa okufanele.
Umlayezo Wokuya Nawe Ekhaya
- Uma ubulokhu unesifo somhlane isikhathi esingaphezu kwezinyanga ezintathu, ungasinaki.
- Uma ubuhlungu bakho emhlane bubukhulu kakhulu ekuseni, buba bubi kakhulu uma uphumula, futhi buncipha uma uhamba noma uzivocavoca, kungaba uphawu lwe-AS.
- Qaphela ukuqina kwasekuseni emhlane wakho nasemalungeni akho okuhlala isikhathi esingaphezu kwesigamu sehora .
- Ngaphezu kobuhlungu bomhlane, uma unezimpawu ezifana nokubomvu noma ubuhlungu emehlweni (uveitis), ubuhlungu besithende, noma ukuvuvukala kwamanye amalunga, tshela udokotela wakho ngakho.
- Khuluma nodokotela wakho jikelele ngezimpawu zakho. Uma kudingeka, cela ukudluliselwa kudokotela wamathambo .
- Ungayeki ukulwa kuze kube yilapho uthola ukuxilongwa okufanele. Into ebaluleke kakhulu ukulalela umzimba wakho.
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