Cabanga nje, ingane yakho, ikakhulukazi umfana omncane, ngokuzumayo iqala ukulala izinsuku eziningi. Ngisho noma uzama ukuyivusa, ivele ilale. Ilala njalo ngaphandle kokudla nokuya endlini yangasese. Noma yimuphi umama noma ubaba angasaba uma bebona into efana nale? Kunzima ukubona ukuthi lokhu kuyinkinga yengqondo noma esinye isifo. Namuhla sikhuluma ngesimo esingavamile esibangela ukulala ngokweqile okuhlala izinsuku eziningi ngendlela engavamile. Leyo yi-Kleine-Levin Syndrome, noma i-KLS ngamafuphi.
Iyini ngempela i-Kleine-Levin Syndrome (KLS)?
Kalula nje, i-Kleine-Levin Syndrome (KLS) iyisifo sokulala esingavamile kakhulu. Sivame ukubonakala kubafana abancane . Ama-70% alabo abathintekile yilesi simo awela kulesi sigaba.
Uphawu oluyinhloko lwalesi sifo yizigameko zokulala ngokweqile ngezikhathi ezithile. Phakathi nalezi zikhathi, isiguli singabonakala siphilile ngokuphelele futhi sijwayelekile. Okusho ukuthi, ngaphandle kwezimpawu.
Lezi zimpawu zihlobene nengxenye ebaluleke kakhulu yobuchopho bethu. Leyo yi -hypothalamus . Le ngxenye encane ilawula izinto eziningi njengokulala kwethu, indlala, ukoma, isifiso sokudla, kanye nesifiso socansi. Kukholelwa ukuthi endabeni ye-KLS, umsebenzi wale hypothalamus uyaphazamiseka okwesikhashana.
Ngokwezokwelapha, i-KLS ihlukaniswa njengesimo esibizwa ngokuthi i-hypersomnia, okusho ukulala ngokweqile. Kodwa-ke, ngenxa yokuthi ezinye zezimpawu zayo zifana nezifo zengqondo, ngezinye izikhathi ihlolwa kabi njengesimo esifana nokucindezeleka.
Izindaba ezinhle ukuthi lezi zimpawu ziyancipha kancane kancane njengoba umuntu ekhula. Akuvamile ukubona izimpawu ze-KLS kumuntu oneminyaka engaphezu kwengu-50.
Ingabe ikhona imbangela ethile ye-KLS?
Abacwaningi abakakwazi ukusho ngokuqinisekile ukuthi iyini imbangela, kodwa basola izinto ezithile.
Ngokuvamile, isiqephu salesi simo sandulelwa yisimo sezokwelapha esiyisisekelo, njengomkhuhlane , umkhuhlane, noma olunye ukutheleleka ngegciwane .
Ngaphezu kwalokho, abanye abacwaningi bakholelwa ukuthi ukulimala ekhanda, ukutheleleka, noma isifo sokuzivikela komzimba kungaba yimbangela. Kodwa-ke, akusona isifo esizuzwa njengefa. Akuvamile kakhulu ukuthi amalungu amaningana omndeni ofanayo athole lesi sifo.
Ziyini izimpawu zesifo se-KLS?
Njengoba sishilo ngaphambili, kulesi sifo, izimpawu zivela ngesimo seziqephu 'ezingazelelwe'. Isiqephu singahlala kusukela esontweni kuya ezinyangeni ezimbili . Ngokwesilinganiso, kungaba neziqephu ezinjalo eziphakathi kwezi-2 nezi-12 ngonyaka.
Phakathi nalesi sikhathi, ungabona izinguquko eziningi ezinkulu ekuziphatheni kwesiguli kanye nasemzimbeni waso. Ngaphezu kokulala ngokweqile, kuvela ezinye izimpawu eziningi.
| Isibonakaliso | Incazelo |
|---|---|
| Ukulala ngokweqile | Ukulala cishe amahora angama-20 ngosuku, hhayi ukuvuka ngaphandle kwezinto ezibalulekile njengokudla noma ukuya endlini yangasese. |
| Izinguquko zokuziphatha | Ukuthukuthela ngaphandle kwesizathu, ukuba nolaka, ukungabakhathaleli abanye, ukucindezeleka nokukhathazeka. |
| Isifiso sokudla ngokweqile | Ukudla okuningi kakhulu kunalokho okudlayo ngokujwayelekile. Ngezinye izikhathi ungase ulingeke ngisho nokudla izinto ezingavamile. |
| Ukucwasa ngokobulili | Ukwanda kwesifiso sobulili okungajwayelekile kanye nokukhuluma noma ukuziphatha njalo ngakho. |
| Ukudideka nokubalekela iqiniso | Ukuzizwa uvilapha, udidekile, futhi usesimweni sokuphupha ngisho noma uvukile. Ngezinye izikhathi, ungase ubone nezinto ezingekho (imibono engabonakali). |
| Inkumbulo nokunaka | Ukukhohlwa izenzakalo, ukungakwazi ukugxila kokuthile. |
Ngenxa yokuthi lezi ziqephu zingaqala ngokuzumayo, ngaphandle kwesixwayiso , abantu abaningi abane-KLS bagqoka okuthile okufana nobucwebe bezokwelapha obuchaza isimo sabo.
Ungasithola kanjani lesi sifo? (Ukuxilongwa)
Ukuxilonga lokhu kuyinselele kancane ngoba akukho ukuhlolwa kwegazi okuqondile noma ukuskenwa. Ngakho odokotela bazama ukugwema ezinye izimo ezinezimpawu ezifanayo. Lokhu sikubiza ngokuthi 'ukususwa'.
Isifo se-KLS singavame ukuhlotshaniswa nalezi zimo:
- Ukucindezeleka noma i-Bipolar Disorder
- I-Narcolepsy, esinye isifo sokulala
- Isifo Sokuxhuzula
- I-Multiple Sclerosis
- Izimila zobuchopho
- I-Migraines
- Imiphumela emibi yemithi ethile (isb., ama-Benzodiazepine) noma izidakamizwa
Ngakho-ke, udokotela wakho uzofinyelela esiphethweni esinembile ngokukhuluma hhayi nawe kuphela, kodwa futhi nabazali bakho kanye namalungu omndeni wakho aseke abhekana nalesi sifo.
Yiziphi izindlela zokwelapha i-KLS?
Akukho ukwelashwa kwe-KLS okwamanje. Kodwa-ke, kunezindlela zokwelapha ezingasiza ekulawuleni izimpawu futhi zandise isikhathi phakathi kweziqephu. Umgomo oyinhloko wokwelashwa ukunciphisa izimpawu.
Ukuze kulawulwe ukozela ngokweqile, odokotela bangase bakunike imithi yokuvuselela umzimba. Isibonelo:
- Ama-Amphetamine
- I-Methylphenidate
- I-Modafinil
Ngaphezu kwalokho, umuthi i-lithium uvame ukusetshenziswa ngempumelelo ukulawula izimpawu nokwandisa isikhathi phakathi kweziqephu. I-Lithium nayo iyimuthi osetshenziselwa ukwelapha izifo zengqondo. Kukholakala ukuthi lo muthi uyasebenza ngenxa yokufana phakathi kwe-KLS nezinye izifo zengqondo.
Kodwa lokhu kuyinto okufanele uyikhumbule . Akunconywa ukusebenzisa noma yimuphi wale mithi ngaphandle kweseluleko sikadokotela wakho. Udokotela kuphela ongahlonza lesi sifo ngokunembile futhi akunikeze imithi efanele ngesilinganiso esifanele.
Umlayezo Wokuya Nawe Ekhaya
- I-Kleine-Levin Syndrome (KLS) yisimo esingavamile esithinta kakhulu abafana abancane futhi sibangela ukozela ngokweqile okuhlala izinsuku eziningi.
- Izimpawu azihlanganisi nje ukulala ngokweqile, kodwa futhi nezinguquko zokuziphatha, isifiso sokudla ngokweqile, kanye nokudideka.
- Lokhu akusona isifo sengqondo, kodwa isimo sezinzwa esihilela i-hypothalamus yobuchopho.
- Ukuxilonga lesi sifo kuyinkimbinkimbi futhi kudinga ukuhlukanisa ezinye izifo ezinezimpawu ezifanayo.
- Uma wena noma othile omaziyo ebona lezi zimpawu, ungesabi futhi funa iseluleko sezokwelapha kudokotela ofanelekayo ngokushesha okukhulu.
- Kunemithi ephumelelayo yokulawula izimpawu, kodwa kufanele ithathwe kuphela ngokunconywa udokotela.
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