Sɛ wowɔ wo dɔfo bi a ɔwɔ Down Syndrome wɔ w’abusua mu a, ɛyɛ ade a ɛfata sɛ wubenya nsɛmmisa ahorow, na ebia wusuro kakra mpo, wɔ n’akwahosan ho bere a wɔrenyin no. Titiriw no, ebia woate edin "Alzheimer Yare" no pii. Ebia woasusuw ho pii sɛ ebia abusuabɔ bi da nyarewa abien yi ntam ankasa anaa. Nokwarem no, ɛwɔ hɔ. Nanso ansa na wobɛbɔ hu no, momma yɛnka ho asɛm pefee, ɛnyɛ den, na yɛnka ho asɛm tiawa.
Dɛn nti na wɔka sɛ nnipa a wɔwɔ Down syndrome no wɔ asiane kɛse mu sɛ wobenya Alzheimer yare?
Sɛ yɛbɛte eyi ase a, ɛsɛ sɛ yɛsan kɔ yɛn nipadua no fã titiriw no so. Ɛnonom ne yɛn chromosomes . Sɛ yɛbɛka no tiawa a, saa chromosomes yi te sɛ ‘akwankyerɛ’ a ɛwɔ yɛn nipadua mu nkwammoaa biara mu. Biribiara fi yɛn ti nhwi kɔla so kosi yɛn tenten so no, awosu mu nkwaadɔm a ɛwɔ saa chromosomes yi mu na ɛkyerɛ. Mpɛn pii no, obi wɔ chromosome ahorow biara abien.
Nanso, obi a ɔwɔ Down syndrome no wɔ chromosome 21 no bi foforo, kyerɛ sɛ, abiɛsa . Eyi ne sɛnea ɛne Alzheimer yare no wɔ abusuabɔ: Awosu mu abɔde a ɛkyerɛ sɛ wɔnyɛ protein a epira (beta-amyloid) a ɛkɔ amemene no mu bere a Alzheimer yare no aba no wɔ saa chromosome 21 koro yi ara so.
Enti, esiane sɛ chromosome 21 no bi ka ho nti, obi a ɔwɔ Down syndrome no yɛ protein a epira yi pii wɔ n’amemene mu. Bere kɔ so no, protein ahorow yi boaboa ano na ɛtwa amemene mu nkwammoaa ho hyia, na ɛsɛe saa nkwammoaa no na efi ase sɛe wɔn. Eyi ne nea ɛkɔ so wɔ Alzheimer yare no mu.
Nea ɛka ho no, nnipa a wɔwɔ Down syndrome nipadua ne wɔn amemene nyin ntɛmntɛm sen sɛ wɔkyekyem pɛpɛɛpɛ a (onyin ntɛm) . Ɛne sɛ, ebia obi a wadi mfe 45 a ɔwɔ Down syndrome nipadua bɛyɛ te sɛ obi a wadi mfe 65 anaa 70 nipadua wɔ nnipa dodow no ara mu. Saa onyin ntɛmntɛm yi nso yɛ ade titiriw a ɛma Alzheimer yare no fi ase ntɛm.
Ɔkwan bɛn so na sɛnkyerɛnne ahorow no da adi? So ɛsono wɔn wɔ Alzheimer yare ho sɛnkyerɛnne a ɛtaa ba no ho?
Yiw, eyi yɛ asɛm a ɛho hia paa. Ebia Alzheimer yare no ho sɛnkyerɛnne a ɛwɔ obi a ɔwɔ Down syndrome mu no bɛyɛ soronko kakra wɔ onipa a ɔte ase ho sɛnkyerɛnne ho. Ɛno nti na ɛtɔ mmere bi a ebetumi ayɛ den sɛ wubehu tebea yi.
Sɛ yɛdwen Alzheimer yare ho a, yɛtaa dwene sɛ yɛbɛkae ade. Nanso wɔ obi a ɔwɔ Down syndrome fam no, ebia ɛnyɛ nea ɛbɛkae ade a ɛyɛ mmerɛw no ne sɛnkyerɛnne a edi kan . Ebia wobedi kan ahu nsakrae afoforo.
Ma yɛnhwɛ nea saa nsakrae ahorow no yɛ wɔ pon a ɛwɔ ase ha no so.
| Nsɛnkyerɛnne a ɛkyerɛ | Sɛnea ɛte wɔ obi a ɔwɔ Down syndrome mu |
|---|---|
| Da biara da adwuma | Nneɛma a kan no na w’ankasa wotumi yɛ, te sɛ ntadehyɛ, adidi, aguare, ne tii a wobɛyɛ no hwehwɛ mmoa. Anigye ne tumi a obi wɔ sɛ ɔyɛ saa nneɛma no so tew nkakrankakra. |
| Suban mu nsakrae | Mpofirim ara, wɔn tirim yɛ den, wɔyɛ wɔn ade wɔ ɔkwan a ntease nnim so, wɔyɛ basaa, anaasɛ wofi ase gyina nkyɛn komm, a wɔn ani nnye ɔfã foforo no ho, a wɔnkasa. |
| Akisikuru a Efi Ase Foforo | Eyi yɛ sɛnkyerɛnne a ɛho hia yiye. Sɛ obi a onnyaa akisikuru da wɔ n’asetra mu fi ase nya akisikuru foforo bere a wadi mfe 40 akyi a, ebetumi ayɛ Alzheimer yare no ho sɛnkyerɛnne. |
| Nkae ne nsusuwii ho tumi | Ɛwom sɛ ebia mfiase no wɔrenhu sɛ obi nkae ade de, nanso bere kɔ so no, ebetumi aba. Ɛbɛyɛ den sɛ yɛbɛkae nneɛma foforo. Tumi a obi tumi paw papa fi bɔne mu na osi gyinae no so tew. |
| Ɔkasa a ɛyɛ den | Ebia wubefi ase akasa kakraa bi, ayɛ den ama wo sɛ wubenya nsɛm, anaasɛ wobɛka wo nsɛm a ɛyɛ hu. |
Ade a ɛho hia sen biara ne sɛ wubehu nsakrae bi afi wo ba anaa w’abusua muni suban a ɔtaa yɛ no mu (mfiase) . Esiane sɛ wɔwɔ adesua mu dɛmdi bi fi awo mu nti, ebetumi ayɛ den sɛ wobehu nsakrae a aba wɔ nkae mu. Nanso sɛ wote nka sɛ, "Ná saa onipa yi nte saa kan no, na seesei wɔyɛ soronko a," ɛno ne ade a ɛho hia sen biara.
Mfe bɛn mu na asiane no kɔ soro?
Mpɛn pii no, Alzheimer yare no ba nnipa dodow no ara mu bere a wɔadi mfe 65. Nanso, wɔ obi a ɔwɔ Down syndrome fam no, asiane yi ba ntɛm koraa.
- Mfe 35 na wadiNnansa yi, nhwehwɛmu ahorow ada no adi sɛ nnipa a wɔwɔ Down syndrome no mu bɛyɛ 25% (baanan biara mu biako) betumi ada Alzheimer yare no ho sɛnkyerɛnne adi.
- Wɔ nnipa pii fam no, sɛnkyerɛnne ahorow no fi ase da adi wɔ wɔn mfe 40 mfinimfini anaa 50 mfiase mu hɔ.
- Sɛ yɛka ne nyinaa bom a, sɛnea ebetumi aba sɛ obi a ɔwɔ Down syndrome benya Alzheimer yare no dɔɔso sen nnipa dodow no ara mmɔho abiɛsa kosi anum.
Dɛn na ɛsɛ sɛ meyɛ sɛ ɔwɛmfo?
Ebia saa nsɛm yi bɛma woabɔ hu. Nanso mma wo ho nnyɛ wo hu. Nhumu ne akode a eye sen biara. Nneɛma bi wɔ hɔ a ɛho hia paa a wubetumi ayɛ.
1. Aduruyɛ mu nhwehwɛmu daa: Ɛho hia sɛ wode wo ba anaa w’abusua muni kɔ oduruyɛfo nkyɛn daa. Titiriw bere a woadi mfe 30 akyi no, wo ne wo duruyɛfo nka asiane a ɛwɔ hɔ sɛ wubenya Alzheimer yare no ho asɛm pefee.
2. Mfitiaseɛ Nhwehwɛmu: Wɔ wo mfeɛ aduasa mu no, wo ne wo duruyɛfoɔ nyɛ adwuma mfa nhwɛ sɛdeɛ wo ba no kae, da biara da dwumadie, ne ne nneyɛeɛ. Eyi bɛboa wo ma woahu nsakrae biara a ɛbɛba daakye.
3. Hwɛ yiye wɔ nsakrae ho: Wunim no yiye. Enti, nsakrae nketenkete mpo a wubehu no, kyerɛw to hɔ wɔ nhoma bi mu a ɛkyerɛ da ne bere no. Yɛ nsɛm te sɛ, "Ɔno nkutoo antumi anhyɛ ne mpaboa nnɛ," "Ne bo afuw kɛse fi dapɛn a etwaam no." Eyi bɛboa oduruyɛfo no kɛse.
4. Hwehwɛ ayaresa ntɛm ara: Sɛ wuhu sɛnkyerɛnne ahorow a yɛabobɔ din wɔ atifi hɔ no biako anaa nea ɛboro saa a, ntwɛn nkosi sɛ akyiri yi nkɔ wo duruyɛfo nkyɛn . Bere a wontumi nsa Alzheimer yare no koraa no, ayaresa ne akwan horow wɔ hɔ a ebetumi aboa ma wɔadi yare no ho sɛnkyerɛnne ahorow ho dwuma, ama asetra atu mpɔn, na ama wo ne ɔyarefo no nyinaa anya ahotɔ.
Nkrasɛm a Wɔde Kɔ Fie
- Nnipa a wɔwɔ Down syndrome no wɔ awosu mu asiane kɛse koraa sɛ wobenya Alzheimer yare no sen nnipa dodow no ara.
- Mpɛn pii no, yare no ho sɛnkyerɛnne fi ase wɔ mfe 40 anaa 50 mfiase, ntɛm sen nnipa dodow no ara.
- Sɛ́ anka ɔbɛkae ade no, ebia sɛnkyerɛnne a edi kan no bi ne nneyɛe mu nsakrae, da biara da nnwuma a wontumi nyɛ, anaasɛ akisikuru foforo.
- Sɛ wuhu nsakrae bi a ɛda adi pefee wɔ wo dɔfo no nneyɛe, nea otumi yɛ, anaa da biara da nneyɛe mu a, hwɛ hu sɛ wo ne wo duruyɛfo bɛkasa afa ho.
- Sɛ wohu ɔyarefo no ntɛm na wodi no ho dwuma yiye a, ebetumi ama ɔyarefo no asetra atu mpɔn na ama wo ho atɔ wo sɛ obi a ɔhwɛ no.
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