Oduruyɛfo, so wo nso wowɔ ‘Exocrine Pancreatic Insufficiency’ anaa EPI sɛnea yɛfrɛ no tiawa no? Afei ebia wufi osuahu mu nim sɛnea ɛsɛ sɛ wohwɛ yiye wɔ w’aduan ne w’anom ho. Ɛsɛ sɛ wonom nnuru a wɔakyerɛw ama wo no bere biara a wubedidi no. Enti, wɔ bere a ɛte sɛɛ mu no, sɛ wo nsa ka nsato krataa sɛ wokɔ w’adamfo bi awodadi apontow ase, anaasɛ wo ne w’abusua bɛkɔ akɔdidi anwummere a, ɛyɛ ade a ɛfata sɛ wobɛte ehu ne ehu kakra nka. Nsɛmmisa te sɛ "So aduan bi bɛba a ɛfata me?", "So metumi anom m'aduru no bere ano?", "So aduan no bɛyɛ nnuhwam dodo na ahaw me yafunu?" bra w’adwene mu, ɛnte saa? Nanso nsuro koraa. Ɛnsɛ sɛ wugyae nnamfo a wo ne wo bɛbɔ na wogye w’ani esiane sɛ wowɔ EPI nti. Sɛ yesiesie yɛn ho kakra na yɛyɛ nhyehyɛe pa a, ɛnyɛ den koraa sɛ yebetumi adi eyi so nkonim. Ma yɛnhwɛ sɛnea ɛkɔ?
Anamɔn 1: Momma yɛnyɛ nhwehwɛmu kakra wɔ adidibea no ho.
Eyi te sɛ nhwehwɛmu kakra a wobɛhwehwɛ ansa na woakɔ asɛmpatrɛw adwuma. Ɛkyerɛ sɛ wobɛyɛ nhwehwɛmu wɔ beae a woapaw sɛ wubedidi ansa na woakɔ. Eyi bɛboa kɛse ma w’aduan ayɛ yiye.
Fa no sɛ woresiesie wo ho sɛ wo ne wo nnamfo bɛkɔ adidibea bi a agye din wɔ Colombo. Sɔ saa nneɛma yi hwɛ da koro anaa nnanu ansa na woakɔ.
| Nea ɛsɛ sɛ wɔyɛ | Mfaso bɛn na ɛwɔ ɛno so? |
|---|---|
| Hwɛ menu no wɔ Intanɛt so. | Mprempren adidibea pii wɔ wɔn nnuan a wɔde ma wɔ wɔn wɛbsaet anaa Facebook nkratafa so. Wubetumi ahwɛ mu na woanya nnuan a ɛfata wo ho adwene. Esiane sɛ wowɔ EPI nti, nea eye sen biara a wubetumi apaw ne nnuan a srade nnim . Ɛno kyerɛ sɛ wobɛhwehwɛ mpataa a wɔayam anaa wɔayam, akokɔ, nhabannuru a wɔayɛ no foforo, ne nnuaba. |
| Ma adidibea no frɛ. | Sɛ wuntumi nhu biribi wɔ menu no so a ɛfata wo, anaasɛ wunnim a, frɛ wɔn tẽẽ na bisa. Kyerɛkyerɛ w'akwahosan tebea mu kɛkɛ ("Mintumi nnye nneɛma te sɛ ngo, bɔta, anaa kyiisi ntom, enti so wubetumi ayɛ aduan a ɛfata me?"), na bisa sɛ wobetumi aboa wo anaa. Mpɛn pii no, sɛ wudi kan ma wohu a, wɔbɛboa wo. |
| Ɛhe na aguaree no wɔ bere a woafi hɔ awie no? | Sɛ wokɔ adidibea ara pɛ a, hwɛ hu sɛ wobɛhwɛ baabi a aguaree no wɔ. Eyi bɛboa wo ma woakwati ɔhaw a ɛne sɛ ɛsɛ sɛ wohwehwɛ aguaree sɛ aduan no yɛ nnuhwam dodo, sɛ wo yafunu ayɛ wo yaw, anaa sɛ wowɔ tebea a egye ntɛmpɛ a. |
Momma yensiesie yɛn ho saa wɔ fie ansa na yɛakɔ abɔnten.
Sɛ wusiesie wo ho kakra wɔ fie ansa na woakɔ adidibea a, ebetumi ama wo suahu no ayɛ yiye kɛse. Eyinom yɛ nneɛma a ɛnyɛ den koraa, nanso ɛho hia yiye.
| Sɛnea wosiesie wɔn ho | Nkyerɛkyerɛmu ne hia a ɛho hia |
|---|---|
| Nya kakra bi di ansa na woakɔ. | Mma nkɔ adidibea bi a ɔkɔm de wo. Di aduan ketewaa bi anaa aduan a emu nyɛ duru ansa na woakɔ. Sɛ ɛnte saa a, wo kɔm bɛhyɛ wo so na ebia w’ani begye nnuan a ahoɔden nnim te sɛ kyiisi nnua a wɔayam a ɛwɔ aduan a wɔde ma no so. Sɛ wudi biribi a protein pii wom (egg a wɔanoa, chickpeas bi) a, worente nka sɛ wubedi efisɛ wo yafunu bɛyɛ ma. |
| Hwɛ yiye wɔ nnuru a wɔde sa yare no ho. | Fa wo pancreatic enzyme replacement therapy (PERT) no sie kotoku anaa ade a ahobammɔ wom mu. Ɔhyew nyɛ papa mma nnuru yi. Sɛ worekɔ abɔnten awia a, nnyaw w’aduru no wɔ baabi a ɛhɔ yɛ hyew, te sɛ dashboard anaa wo kar no nsateaa dan mu. Ɔhyew a ɛboro digrii Celsius 25 (77 F) betumi asɛe nnuru yi na ama anyɛ adwuma yiye. Pia mu hyew na eye sen biara. |
| Siesie nneɛma foforo a ɛho hia no. | Nnipa binom wɔ ɔhaw wɔ nnuru a wɔmene mu. Sɛ wode powder a ɛwɔ w’aduru toa mu no fra biribi te sɛ apɔw-mu-teɛteɛ anaa yogurt a, fa sie ade ketewaa bi mu. Ɛyɛ papa nso sɛ wode nsu toa foforo bɛkɔ, efisɛ ebia ɛsɛ sɛ wotwɛn ma obi a ɔde nsu gu mu no san hyɛ wo nsu ahwehwɛ no mu ma. |
Susuw saa nneɛma yi ho bere a worekra aduan no.
Okay, seesei woakɔ adidibea hɔ. Wowɔ menu no wɔ wo nsam. Afei ɔfã a ɛho hia no ba. Ɛho hia yiye sɛ wobɛyɛ onyansafo bere a worekra aduan no.
Nsuro sɛ wubebisa nea ɔhwɛ hɔ no nsɛm.
Sɛ wopɛ sɛ wuhu aduan bi a, mma wofɛre sɛ wubebisa sɛnea wɔyɛ ne nea ɛkɔ mu ho asɛm.
- "So wode cream/oil pii gu curry yi mu?"
- "So mpataa yi yɛ nea wɔayam anaasɛ wɔayam?"
- "Dɛn na ɛwɔ salad dressing mu?"
Bisa nsɛm te sɛ nea ɛfata wo yiye na paw.
Bisa nsakrae wɔ aduan mu
Mpɛn pii no, aduannoafo no benya ɔpɛ sɛ ɔbɛyɛ nsakrae nketenkete wɔ aduan no mu sɛnea w’ahiade te.
- "So wubetumi de dressing/sauce no aba kuruwa ketewa bi a ɛyɛ soronko mu?" (Afei wubetumi de nea wopɛ aka ho).
- "Wobɛtumi ayɛ grill anaa steam eyi mmom sen sɛ wobɛfra mu?"
- "So wubetumi ayɛ nhabannuru a bɔta nka ho?"
Kae sɛ w’akwahosan ne ade a ɛho hia sen biara, enti nsuro sɛ wubebisa nea wopɛ pefee, na mmom fa nidi mu.
Mma wo werɛ mmfi sɛ wobɛnom w’aduru!
Eyi ne mmara a ɛho hia sen biara bere a wo ne EPI redidi wɔ abɔnten no. Ɛsɛ sɛ wonom aduru a wɔfrɛ no enzyme (PERT) a wo duruyɛfo akyerɛw wo no bere a edi kan a wobɛwe w’aduan no .
Sɛ yɛbɛka no tiawa a, enzyme ahorow a ɛboa ma woyam aduan a wudi no wɔ nnuru yi mu. Sɛ wonom nnuru yi ansa na woafi ase adidi a, enzymes no bɛfra aduan no mu yiye na aboa ma aduan no ayɛ yiye. Sɛ wonom aduru no bere a woadi wie a, ɛremmoa wo kɛse. Enti, hwɛ hu sɛ wobɛnom w’aduru no bere a aduan no wɔ pon so ara pɛ, ansa na woanom wo nea edi kan.
Mma w’ani nnwu sɛ wobɛnom w’aduru no wɔ afoforo anim wɔ pon ho. Ɛho hia ma w’akwahosan. Wubetumi ayɛ no mmerɛw koraa, a woremfa ɔhaw biara mma obiara.
Nkrasɛm a Wɔde Kɔ Fie
- EPI a wowɔ no nkyerɛ sɛ ɛsɛ sɛ wugyae w’ani gye w’ani wɔ w’asetra mu asetra ne wo nnamfo ho.
- Yɛ nhyehyɛe kakra ansa na woapue akɔdidi. Hwɛ adidibea hɔ aduan a wɔde ma na sɛ ɛho hia a, frɛ.
- Ansa na wubefi fie no, di aduan ketewaa bi, hyehyɛ wo nnuru no yiye, na fa nsu toa foforo.
- Sɛ worekra aduan a, nsuro sɛ wubebisa nsɛm na woabisa nsakrae a ɛbɛfata wo.
- Nea ɛho hia sen biara: Mma wo werɛ mmfi sɛ wobɛnom wo enzyme (PERT) aduru no bere a edi kan a wobɛwe w’aduan no.
- Sɛ woda so ara wɔ adwenem naayɛ anaa nsɛmmisa bi wɔ eyi ho a, hwɛ hu sɛ wo ne wo duruyɛfo bɛkasa na woahwehwɛ afotu.
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