Yenim sɛ Ankylosing Spondylitis, anaa AS sɛnea yɛn nyinaa nim no a yɛbɛtra ase no nyɛ mmerɛw. Ɛnyɛ akyi haw ara kwa. Ɛyɛ tebea a ɛtra hɔ kyɛ a ebetumi aka w’asetra nyinaa, w’adwuma, wo fie nnwuma, bere a wo ne wo nnamfonom, saa nneɛma yi nyinaa. Nanso ɛnsɛ sɛ wo nkutoo wuhyia asɛnnennen yi. Ɛbɛyɛ ahoɔden kɛse sɛ wobɛka eyi ho asɛm akyerɛ wɔn a wɔdɔ wo na wɔbɛn wo na woanya wɔn mmoa.
Hena na wopɛ sɛ woka eyi ho asɛm kyerɛ?
Sɛ wo ne obi bɛkasa afa nkwa nna nyinaa tebea te sɛ AS ho a, ɛyɛ ankorankoro asɛm ankasa. Enti, onii ko a wobɛka akyerɛ ne nsɛm a ɛkɔ akyiri dodow a wobɛka no gyina wo so koraa. Ɛyɛ wo gyinaesi.
Susuw ho hwɛ, ɛtɔ da bi a ɛsɛ sɛ wosakra akwantu bi a woayɛ ho nhyehyɛe, anaasɛ wosrɛ mmoa na ama woatumi ayɛ biribi. Nnipa a wo ne wɔn di bere pii da biara, te sɛ w’abusua, wo hokafo, anaa w’adamfo paa no, tebea yi ka wɔn kɛse.
Ɛtɔ da bi a, ebia wobɛte awerɛhow anaa w’abam abu wɔ wo tebea no ho. Anaasɛ ebia wobɛte nka sɛ worema wo nnamfo abam abu bere a wuntumi nkɔka wɔn ho nkɔyɛ dwumadi ahorow no. Nanso dodow a wo ne w’adɔfo ka ho asɛm pefee na wodi nokware no, dodow no ara na ɛbɛyɛ mmerɛw ama wɔn sɛ wɔbɛba hɔ ama wo wɔ w’asetra mu mmere pa ne mmere bɔne mu .
Dɛn na wopɛ sɛ woka? Wopɛ sɛ woka no dɛn?
Ebia woredwene sɛ, "Okay, mɛka akyerɛ wo. Nanso dɛn na ɛsɛ sɛ meka? Mɛyɛ dɛn afi ase?" Ɛtɔ mmere bi a eyi ho asɛm a wobɛka no betumi ayɛ den, wɔ obi a wobɛn wo paa mpo ho. Ade a eye sen biara a ɛsɛ sɛ woyɛ ne sɛ wobɛyɛ nea ɛnyɛ den na woayɛ tẽẽ sɛnea wubetumi.
Sɛ ɛho hia sɛ wokyerɛkyerɛ AS mu kyerɛ wɔn a, bata mfitiasede no ho gye sɛ wobisa sɛ wɔmma wɔn nsɛm pii. Sɛ woreka sɛnea wote nka ho asɛm a, bɔ mmɔden sɛ wobɛka no pɔtee. Sɛ nhwɛso no, sɛ́ anka wobɛka kɛkɛ sɛ, "Merepere" no, wubetumi aka sɛnkyerɛnne ahorow a ɛhaw wo kɛse no ho asɛm.
Fa no sɛ wuntumi nyɛ adwuma pɔtee bi anaa wuntumi nkɔ akwantu bi. Kyerɛkyerɛ nea enti a ɛte saa mu kyerɛ wo dɔfo no. Wubetumi aka biribi te sɛ, "Esiane sɛ m'akyi ayɛ den nti, sɛ mɛtra hɔ bere tenten a, ɛyɛ yaw kɛse. Ɛno nti na mintumi ntu kwan yi." Saa kwan no so no, wɔbɛte wo tebea no ase ntɛm.
Momma yɛnkyerɛkyerɛ w’ayaresa tebea mu nkyerɛ wɔn.
Ebia w’abusua ne wo nnamfo nnim AS ho nsɛm pii. Ebia wobesusuw sɛ ɛyɛ "ɔhaw a ɛfa ɔhome ho" ara kwa. Enti boa wɔn ma wɔnte nea AS yɛ ne sɛnea ɛka wo da biara da asetra no ase.
Sɛ yɛbɛka no tiawa a, AS yɛ tebea a yɛn nipadua mu tumi a ɛko tia nyarewa no tow hyɛ yɛn akyi berɛmo mu nkwaa so esiane biribi a entumi nyɛ adwuma yiye nti. Eyi ma ɔte yaw, ne ho yɛ den, na ɛyɛ den sɛ obetu.
Sɛ wopɛ a, ɛbɛyɛ papa sɛ wode wo hokafo, w’adamfo, anaa w’abusua muni bɛka wo ho aba wo nhyehyɛe no ase . Eyi bɛma wɔanya hokwan asua ayaresa no ho ade pii afi oduruyɛfo no hɔ tẽẽ na wɔabisa nsɛm biara a ebia wɔwɔ.
Sɛ wowɔ nipadua mu sintɔ ahorow esiane AS nti a, ebia wubehia mmoa foforo wɔ ofie nnwuma anaa adwuma mu. Bere a ebia ɛbɛyɛ den sɛ wobɛsrɛ mmoa no, ɛyɛ ɔkwan pa a wobɛfa so aka wo suahu akyerɛ obi foforo na woama no hokwan ne wo adi nkitaho.
| Asɛmti a ɛsɛ sɛ yɛka ho asɛm | Sɛnea wɔkyerɛkyerɛ mu ne nhwɛso ahorow |
|---|---|
| Mpopoeɛ | "Ɛwom sɛ minhu nsonsonoe kɛse wɔ akyi de, nanso ɛyaw ne akisikuru a mete nka wɔ me mu no mu yɛ den yiye. Ɛyɛ den sen biara bere a mesɔre anɔpa no." |
| Nsɛnkyerɛnne a aniwa nhu | "Ade kɛse a ɛde yare yi ba ne ɔbrɛ . Sɛ meka sɛ ɔbrɛ kakra a, ɛnyɛ ɔbrɛ a ɛyɛ daa kɛkɛ, ɛyɛ atenka a ɛte sɛ nea wo nipadua nyinaa rehwere n'ahoɔden." |
| Nipadua mu anohyeto ahorow | "Ɛyɛ den ma me sɛ mɛma nneɛma a emu yɛ duru so, mɛkotow pii, anaasɛ mɛtra ase bere tenten. Ɛno nti na mekwati nnwuma bi." |
| Nneɛma a ɛyɛ hyew | "Nna bi wɔ hɔ a, ɛyaw yi ne sɛnkyerɛnne afoforo no mu yɛ den kɛse mpofirim. Yɛfrɛ no 'flare-up.' Saa nna no, mihia mmoa kakra bio firi wo hɔ." |
Ka wo nkate nso ho asɛm.
Esiane sɛ AS sɛnkyerɛnne betumi aka wo da biara da asetra nti, ɛho hia sɛ woma afoforo hu sɛ nneɛma te sɛ ɛyaw, akisikuru, ne ɔbrɛ betumi asesa wo da biara da dwumadi. Eyi betumi akyerɛ sɛ wuntumi nyɛ dwumadi ahorow bi, anaasɛ ɔkwan a wofa so yɛ no betumi asesa.
Sɛ nkurɔfo te saa ase a, wobetumi ate sɛnea adwennwen a wote nka esiane AS nti no betumi aka wo nkate nso ase. Sɛ wo ne obi a ɔbɛn wo bɛka wo nsusuwii ne wo nkate ho asɛm a, ebetumi nso ayɛ ahotɔ kɛse ama wo.
Kae sɛ AS sɛnkyerɛnne yɛ nneɛma a wote nka nanso afoforo nhu. Sɛ nhwɛso no, ɔbrɛ yɛ sɛnkyerɛnne a abu so yiye a ebia worenhu nkyerɛ afoforo, ɛmfa ho sɛnea wuhu amane wɔ ho no.
Ka sɛnea woredi tebea yi ho dwuma kyerɛ yɛn.
Ebia nnipa a wɔwɔ w’asetra mu no nnim sɛnea wudi AS ho dwuma da biara da. Ɛyɛ adwene pa sɛ wobɛka w’ayaresa nhyehyɛe no ho asɛm akyerɛ wɔn sɛnea ɛbɛyɛ a wobetumi anya nea wɔbɛhwɛ kwan ho adwene.
Ebia eyi bɛka nneɛma te sɛ apɔw-mu-teɛteɛ a ɛsɛ sɛ woyɛ, apɔw-mu-teɛteɛ ayaresa, aduannuru a ɛboa ma wodi wo AS tebea no ho dwuma, ne nnuru a wonom. Sɛ wonim eyinom a, ɛyɛ mmerɛw ma wɔn sɛ wɔbɛte nea enti a ɛsɛ sɛ woteɛteɛ w’apɔw mu da biara da ne nea enti a ɛnsɛ sɛ wudi nnuan bi ase.
Sɛ wo ne w’abusua pɛ sɛ musua eyi ho ade pii a, nsɛm a wotumi de ho to so yiye wɔ amanaman ntam ahyehyɛde ahorow te sɛ Spondylitis Association of America (SAA) wɛbsaet ahorow so. Wubetumi akenkan saa nsɛm no na wo ne wo duruyɛfo akasa afa ho akɔ akyiri.
Nkrasɛm a Wɔde Kɔ Fie
- Ankylosing Spondylitis (AS) nyɛ akyi haw kɛkɛ, ɛka w’asetra nyinaa. Mma wo nkutoo nkɔ akwantu yi mu.
- Ɛyɛ wo na wubesi onii a wobɛka eyi ho asɛm akyerɛ wɔn ne dodow a wobɛka ho asɛm. Nanso wɔn a wɔbɛn wo paa a wo ne wɔn bɛkasa no betumi ayɛ den kɛse.
- Sɛ worekasa a, ka sɛnea wote nka no ho asɛm tiawa na di nokware, titiriw kyerɛkyerɛ sɛnkyerɛnne biara a ebia wontumi nhu te sɛ ɔbrɛ mu.
- Mmoa a wobɛsrɛ no nyɛ mmerɛwyɛ ho sɛnkyerɛnne. Ɛma w’adɔfo nya hokwan boa wo.
- Ka w’ayaresa nhyehyɛe (apɔw-mu-teɛteɛ, nnuru) ho asɛm kyerɛ wɔn sɛnea ɛbɛyɛ a wobetumi ate wo da biara da ahiade ase.
- Sɛ w’adwene mu yɛ wo naa wɔ biribiara ho a, wo ne wo duruyɛfo nkasa na woanya afotu a eye sen biara na wotumi de ho to so sen biara.
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