So oxalate pii wɔ wo nsu mu? Momma yɛnka Hyperoxaluria ho asɛm!

So wotaa nya asaabo mu abo? Anaasɛ wo ba kumaa no nya wɔn? Ebia nea enti a ɛte saa ne sɛ wowɔ nnuru bi a wɔfrɛ no oxalate pii wɔ wo nsu mu. Saa tebea yi ne nea yɛfrɛ no hyperoxaluria wɔ aduruyɛ ho nyansahu mu. Mma nnsuro sɛ wote saa din yi a, ɛyɛ mmerɛw yiye. Momma yɛnka eyi ho asɛm pefee na yɛmfa ɔkwan a wubetumi ate ase so.

Sɛ yɛbɛka no tiawa a, dɛn ne Hyperoxaluria?

Oxalate yɛ nnuru a yɛn nipadua fi awosu mu yɛ na ɛwɔ nnuan a yedi no bi nso mu. Mpɛn pii no, yɛn asaabo yi oxalates yi fi nipadua no mu wɔ nsu mu.

Nanso, wɔ obi a ɔwɔ hyperoxaluria mu no, oxalate dodow a ɛwɔ wɔn nsu mu no kɔ soro dodo. Eyi betumi ayɛ nea asiane wom. Saa oxalate a ɛboro so yi ne calcium a ɛwɔ nsu mu no bom yɛ asaabo mu abo ne calcium oxalate ahwehwɛ .

Saa abo ne ahwehwɛ yi betumi asɛe w’asaabo na atew ne dwumadi so. Bere kɔ so no, eyi betumi ama asaabo mpo ayɛ adwuma yiye . Ɛnyɛ ɛno nko, na mmom oxalate a ɛboro so yi nso betumi afi ase akɔhyɛ nipadua no mu ntini ne akwaa afoforo mu.

Hyperoxaluria ahorow atitiriw bɛn na ɛwɔ hɔ?

Ahorow atitiriw abiɛsa na egyina nea ɛde tebea yi ba so. Sɛ wote saa nsonsonoe ahorow yi ase wie a, ɛnyɛ den koraa sɛ wobɛte ase.

Hena na onya eyi? Mfe bɛn na wadi?

Hyperoxaluria ho sɛnkyerɛnne betumi ada adi wɔ mfe biara mu, efi nkokoaa so kosi mpanyimfo so, nanso mpɛn pii no, sɛnkyerɛnne ahorow no da adi bɛyɛ mfe 5.

• Nnipa a wɔwɔ Primary Hyperoxaluria (PH) taa nya asaabo mu abo mpɛn pii wɔ mmofraase anaa mmerantebere ne mmabaabere mu (mpɛn pii no ansa na wɔadi mfe 20). Sɛ tebea yi ba abofra kumaa bi mu a, ebetumi ayɛ aniberesɛm koraa.
• Wɔ asaabo ne aduan ahorow nyinaa mu no, asaabo mu abo ne sɛnkyerɛnne afoforo taa da adi wɔ mpanyin afe so.

Dɛn ne tebea yi ho sɛnkyerɛnne?

Mpɛn pii no, sɛnkyerɛnne a edi kan ne asaabo mu abo. Nanso ɛnyɛ obiara na onya asaabo mu abo. Momma yɛnhwɛ sɛnkyerɛnne atitiriw no.

Dɛn nti na eyi ba? Henanom na wɔwɔ asiane kɛse mu?

Sɛnea yɛadi kan aka ho asɛm no, nneɛma abiɛsa nti:

• Awosu mu sintɔ (Primary hyperoxaluria): Biribi a wonya fi awofo hɔ ma mmofra.
• Nyarewa a ɛba dwensɔtwaa mu: Oxalate a ɛtwetwe dodo esiane nyarewa a ɛwɔ aduan mu nneɛma mu nti.
• Aduandi: Nnuan a oxalate pii wom a wodi dodo.

Tebea horow pii wɔ hɔ a ebetumi ama asiane a ɛwɔ tebea yi mu no ayɛ kɛse:

• Sɛ obi wɔ w’abusua mu wɔ Primary Hyperoxaluria a.
• Sɛ wotaa nya asaabo mu abo a.
• Sɛ woanya asaabo mu abo wɔ wo mmofraase (pɛnkoro mpo).
• Sɛ oduruyɛfo no aka akyerɛ wo sɛ calcium akɔhyɛ w’asaabo mu a.

Nsɛnnennen bɛn na eyi betumi de aba?

Ɔhaw titiriw a ɛyɛ hu sen biara a ɛde hyperoxaluria ba ne asaabo a ɛsɛe ne asaabo a entumi nyɛ adwuma yiye.

Sɛ asaabo no di nkogu a, entumi nyi oxalate a ɛboro so a ɛboaboa ano wɔ nipadua no mu no mfi mu. Afei, saa oxalate ahwehwɛ yi fi ase kɔ nipadua no afã afoforo te sɛ nnompe, mogya, ntini, koma, ne aniwa mu. Yɛfrɛ tebea yi Oxalosis .

Oxalosis betumi de akwahosan ho haw afoforo aba:

• Nnompe mu yare
• Mogya a ɛtɔ kɔ nipadua mu
• Koma ne aniwa mu haw ahorow
• Ɔhaw ahorow a ɛfa mmofra nyin ne wɔn nkɔso ho

Mɛyɛ dɛn ahu sɛ eyi wɔ hɔ anaa?

Wo duruyɛfo bebisa wo wo yare no ho sɛnkyerɛnne, w’abusua aduruyɛ ho abakɔsɛm, ne w’aduan ho asɛm. Afei ɔbɛhyɛ sɛ wɔnyɛ nhwehwɛmu pii mfa nkyerɛ sɛ wɔahu yare no.

• Nsu mu nhwehwɛmu: Sua oxalate ne enzyme dodow a ɛwɔ nsu mu.
• Mogya mu nhwehwɛmu: Hwɛ sɛnea asaabo no yɛ adwuma ne oxalate dodow a ɛwɔ mogya no mu.
• Mfoniniyɛ mu nhwehwɛmu: Wobetumi de X-ray, ultrasound, anaa CT scan ahwɛ sɛ asaabo mu abo anaa calcium oxalate ahwehwɛ wɔ hɔ anaa.
• Awosu mu nhwehwɛmu: Sɛ wosusuw sɛ Primary Hyperoxaluria wɔ hɔ a, wɔyɛ nhwehwɛmu yi de kyerɛ sɛ ebia awosu mu nsakrae a ɛde ba no wɔ hɔ anaa.

Ɛtɔ mmere bi a, ebia ebehia sɛ woyɛ nhwehwɛmu titiriw te sɛ echocardiogram , aniwa mu nhwehwɛmu, anaa nnompe mu ntini mu nhwehwɛmu, na ama woahu sɛ ebia oxalate akɔto wo nipadua mu baabi foforo anaa.

Ɔkwan bɛn so na wɔsa?

Botae titiriw a ɛwɔ ayaresa mu ne sɛ ɛbɛtew oxalate dodow a ɛwɔ nipadua no mu no so na asiw asaabo ne akwaa afoforo ano na wɔabɔ ho ban na ahwehwɛ anhyehyɛ. Ayaresa no gyina hyperoxaluria ko a wowɔ ne sɛnea tebea no mu yɛ den so.

Nnuru a wɔde ma

• Wɔma nnipa a wɔwɔ hyperoxaluria titiriw no vitamin B6 (pyridoxine) dodow a ɛdɔɔso na ama oxalate dodow so atew.
• Wɔde nnuru te sɛ potassium citrate ma na wɔasiw calcium oxalate ahwehwɛ a ɛbɛba no ano.
• Wɔhyɛ nnipa a wɔwɔ Enteric Hyperoxaluria fo sɛ wɔmfa calcium nka aduan ho efisɛ calcium kyekyere oxalate na ɛboa ma ɛyɛ mmerɛw sɛ wobeyi afi nipadua no mu.

Nsakrae a ɛba asetra kwan ne aduan a wodi mu

• Nom nsu pii: Ɛho hia sɛ wonom nsu bɛyɛ lita 3 da biara. Eyi bɛboa ma wɔde nsu a ɛhohoro oxalate a ɛboro so no na wɔasiw abo a ɛbɛba no ano. Eyi ho hia yiye ma ahorow nyinaa.
• Aduane: Tew nkyene ne asikre so. Tow mmoa mu protein te sɛ nam, nufusu, ne nkesua ano hye. Kwati nnuan a oxalates pii wom (spinach, rhubarb, beets, chocolate, tii, nnuaba).
• Nnuan a calcium wom: Sɛ wode nnuan a calcium wom ka w’aduan ho a, ebetumi aboa ma oxalate dodow so atew.

Asaabo mu abo a wɔde di dwuma

Asaabo mu abo bi bɛfa ne ho bere a wonom nsu pii no. Sɛ wɔanyɛ saa a, ebia ɛho behia sɛ wo duruyɛfo yi fi hɔ.

Dialysis anaa nipadua a wɔde si nipadua foforo mu

Sɛ yare no mu yɛ den na asaabo no ntumi nyɛ adwuma yiye a, ebia ɛho behia sɛ wɔyɛ asaabo mu dialysis na ama mogya no ho atew. Sɛ Primary Hyperoxaluria tebea no mu yɛ den a, ebia ɛho behia sɛ wɔde asaabo anaa mmerɛbo foforo ma.

Bere bɛn na ɛsɛ sɛ wokɔ oduruyɛfo nkyɛn?

Esiane sɛ eyi ne asaabo mu abo ho sɛnkyerɛnne a edi kan nti, sɛ wususuw sɛ wowɔ asaabo mu abo a, kɔ oduruyɛfo nkyɛn ntɛm ara, titiriw sɛ wowɔ saa sɛnkyerɛnne ahorow yi a:

• Ɛyaw a ɛba akyi, akyi, anaa yafunu ase.
• Nsu a ɛyɛ kɔkɔɔ, pink, anaa bruu.
• Nsakrae a ɛba mpɛn dodow a wɔtow nsu anaa dodow a wɔtow gu mu.
• Ɛyaw bere a woretow nsu no.

Ɛyɛ ade a ɛfata sɛ wobɛte ehu ne dadwen nka bere a wuhu sɛ wowɔ yare a ɛte sɛɛ no. Wo ne wo duruyɛfo, w’abusuafo, ne wo nnamfo nka nsɛm a ɛhaw wo ho asɛm. Kae sɛ, sɛ wonya ayaresa a ɛfata a, wubetumi adi tebea yi ho dwuma yiye na woanya apɔwmuden.