Sɛ wo anaa wo dɔfo bi wɔ Cystic Fibrosis (CF) a, ebia wunim nsɛnnennen a ɛwɔ sɛ wode bɛtra ase no yiye. Nanso asɛmpa no ne sɛ esiane sɛ aduruyɛ ho nyansahu renya nkɔso nti, nnuru foforo bi wɔ hɔ a ebetumi aboa wo ma woagyina tebea yi ano mprempren. Ɛnnɛ, yɛrebɛka nnuru a ɛte saa biako ho asɛm. Wɔfrɛ no Ivacaftor. Ebia wunim no denam edin a wɔde frɛ no Kalydeco no so. Momma yɛnhwɛ saa aduru yi ntɛm ara.
Dɛn na ɛba wɔ aduru yi ho ankasa?
Sɛ yɛbɛka no tiawa a, Ivacaftor yɛ aduru a wɔde sa Cystic Fibrosis (CF) . Nanso, ɛnyɛ nea ɛfata mma CF ayarefo nyinaa. Saa aduru yi yɛ adwuma wɔ nnipa a wɔwɔ nkwaadɔm mu nsakrae pɔtee bi wɔ awosu mu nkwaadɔm a ɛde CF ba no nkutoo mu. Wo duruyɛfo bɛyɛ nhwehwɛmu a ɛho hia de ahu sɛ saa aduru yi fata wo anaa.
Cystic Fibrosis yɛ awosu mu yare a ɛsɛe protein bi a ɛwɔ yɛn nipadua mu no dwumadi. Eyi ma nsu a ɛyɛ den na ɛyɛ nnam boaboa ano wɔ akwaa te sɛ ahurututu ne dwensɔtwaa mu, na ɛde nsɛnnennen ahorow ba. Aduru Ivacaftor yɛ adwuma denam protein a asɛe no a ɛsan yɛ adwuma kodu baabi, na ɛma nsu a ɛwɔ nipadua no mu no yɛ teateaa na ɛma ɛyɛ mmerɛw sɛ wobeyi afi nipadua no mu no so.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woafi ase anom nnuru
Ansa na wode saa aduru yi bedi dwuma no, ɛho hia yiye sɛ wobɛma wo duruyɛfo no ahu w’akwahosan nyinaa ho mfonini a emu da hɔ. Hwɛ hu sɛ wobɛka saa nneɛma yi ho asɛm titiriw akyerɛ wɔn:
- Berɛbo mu yare: Sɛ wowɔ mmerɛbo mu yare bi a, ɛho hia sɛ woka kyerɛ wo duruyɛfo. Nea enti a ɛte saa ne sɛ mmerɛbo no titiriw na ɛma saa aduru yi yɛ adwuma. Sɛ wowɔ mmerɛbo mu haw a, ebia ɛho behia sɛ wo duruyɛfo yɛ nsakrae wɔ dodow a wode ma no mu.
- Asaabo mu yare: Saa ara na sɛ wowɔ asaabo mu haw a, ka ɛno nso ho asɛm kyerɛ yɛn.
- Allergies: Sɛ wowɔ allergy bi wɔ Ivacaftor anaa aduru foforo biara, aduan, anaa aduru a wɔde yɛ ade ho a, ka kyerɛ wo duruyɛfo.
- Nyinsɛn anaa nhyehyɛe a woreyɛ sɛ wobɛwo akokoaa: Sɛ woanyinsɛn anaa worebɔ mmɔden sɛ wubenyinsɛn a, ka kyerɛ wo duruyɛfo.
- Sɛ woyɛ ɛna a ɔma nufu a: Hwɛ sɛ wobɛka eyi ho asɛm sɛ worema nufu a.
Ɛyɛ w’ankasa ahobammɔ nti wobɛka akyerɛ oduruyɛfo no a womfa saa nsɛm yi nsie. Enti mma wo werɛ mmfi sɛ wobɛka akyerɛ no sɛ ɛyɛ ade ketewaa mpo a.
Ɔkwan bɛn so ankasa na mede saa aduru yi di dwuma?
Sɛnea ɛbɛyɛ na woanya aduru bi so mfaso kɛse no, ɛho hia paa sɛ wode di dwuma yiye.
Sɛnea wɔnom aduru no
Saa aduru yiAkyinnye biara nni ho sɛ ɛsɛ sɛ wɔde ka aduan a srade wom ho. Sɛ nhwɛso no, sɛ wofa saa aduru yi ne biribi te sɛ ɛmo, kyiisi toast, paanoo a wɔde atoko bɔta ayɛ, anaa omelet a wɔde bɔta ayɛ a, nipadua no bɛtwe aduru no yiye. Mfa no bere a wo yafunu da mpan.
Nea ɛho hia sen biara: Mfa aduru yi nka bobe nsu ho esiane biribiara nti. Seville akutu nso nyɛ papa. Eyinom betumi aka sɛnea aduru no yɛ adwuma yiye.
Fa dodow a wɔakyerɛw ama wo no nkutoo, bere a wo duruyɛfo akyerɛw ama wo no. Kwati sɛ wobɛnom pii. Nnyae aduru no nom mpofirim a wunnya wo duruyɛfo afotu.
Sɛ wode ma mmofra a
Ɛtɔ da bi a wɔkyerɛw saa aduru yi ma mmofra a wɔadi boro mfe 6. Nanso, wo ne wo mmofra oduruyɛfo nka ho asɛm yiye na di n’akwankyerɛ akyi.
Sɛ wɔma aduru no dodow kɔ soro a (Overdose) .
Sɛ wususuw sɛ woanom nnuru pii a, kɔ Emergency Treatment Unit (ETU) a ɛbɛn wo ntɛm ara . Anaasɛ frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea hɔ no na woanya afotu.
Sɛ wopa nnuru dodow bi a
Sɛ wopa dose bi a, fa no bere a woakae ara pɛ. Nanso, sɛ ennu nnɔnhwerew 6 kosi wo dodow a edi hɔ a wobɛma no so a, twa dodow a woayera no so na fa wo dodow a edi hɔ no wɔ bere a woahyɛ da ayɛ no mu. Mfa nnuru mmɔho abien da.
Nnuru afoforo a ebetumi ne Ivacaftor adi nkitaho
Ɛho hia paa sɛ woka nnuru a worenom nyinaa ho asɛm kyerɛ wo duruyɛfo, a vitamin ne nhabannuru ka ho. Ebia nnuru bi ne Ivacaftor bedi nkitaho. Hwɛ pon yi.
| Aduru/aduru ko a wɔde yɛ | Level a ɛhaw adwene |
|---|---|
| Nnuru bi a wɔde di dwuma ma akisikuru (e.g. carbamazepine, phenobarbital, phenytoin) . | Ɛtew Ivacaftor a ɛyɛ adwuma yiye no so. |
| Grapefruit nsu ne Seville akutu | Ɛma aduru no dodow kɔ soro a ɛho nhia. |
| Rifampin, Rifabutin (nnuru a wɔde sa nsamanwaw) . | Ɛtew Ivacaftor adwumayɛ so kɛse. |
| John’s Wort (aduru a wɔde nhabannuru yɛ) . | Ɛtew Ivacaftor a ɛyɛ adwuma yiye no so. |
| Nnuru a ɛko tia fungal (sɛ nhwɛso no, ketoconazole, itraconazole, fluconazole) . | Ebia ivacaftor dodow bɛkɔ soro. |
| Nnuru bi a ekum ɔyare mmoawa (sɛ nhwɛso no, clarithromycin, erythromycin) . | Ebia ivacaftor dodow bɛkɔ soro. |
| Cyclosporine, Tacrolimus, Digoxin a wɔde di dwuma | Ivacaftor betumi aka sɛnea nnuru yi yɛ adwuma yiye. |
Saa nsɛm a wɔahyehyɛ yi nwie pɛyɛ, enti ɛbɛyɛ papa sɛ wobɛka biribiara a wobɛnom ho asɛm akyerɛ wo duruyɛfo.
Nsunsuanso bɔne a ebetumi afi aduru no a wɔnom mu aba
Te sɛ aduru biara no, Ivacaftor betumi de ɔhaw ahorow aba nnipa binom so. Eyinom bi yɛ aniberesɛm, na afoforo nso yɛ brɛoo.
| Sɛ wuhu saa sɛnkyerɛnne ahorow yi a, ka kyerɛ wo duruyɛfo ntɛm ara. | |
|---|---|
| Nsɛnkyerɛnne a ɛkyerɛ sɛ obi ho yɛ no yaw | Wora mu akisikuru, ɛyaw, anim, ano anaa tɛkrɛma a ɛho ahonhon. |
| Nkɛntɛnso a enya wɔ mmerɛbo no so | Nsu a ɛyɛ tuntum, nsu a ɛyɛ kɔla a ɛyɛ hann, aniwa anaa honam ani yɛ kɔkɔɔ, ɛyaw wɔ yafunu no atifi nifa so, aduan ho akɔnnɔ a ɛyera. |
| Anisoadehu sesa | Anisoadehu a ɛyɛ kusuu anaa nsakrae foforo biara. |
| Foforɔ | Sɛ wote nka sɛ woabrɛ paa, wote nka sɛ wo ho ayɛ wo hyew. |
| Mpɛn pii no, eyinom nyɛ aniberesɛm, nanso sɛ ɛkɔ so a, ka kyerɛ wo duruyɛfo. | |
| Nnuan a wɔyam | Nnuan a wɔmfa nni dwuma yiye, akisikuru, akisikuru. |
| Foforɔ | Tiyɛ , adwenemhaw , nkwaa mu yaw. |
Bere a worenom aduru yi no, ebia ebehia sɛ wo duruyɛfo hwɛ w’aniwa ne mmerɛbo mu enzyme dodow a ɛwɔ wo mogya mu daa. Eyi yɛ ade a ɛfata.
Ɔkwan bɛn so na wobetumi ama nnuru ayɛ nea asiane biara nni ho?
- Twe wo ho fi mmofra ho.
- Fa sie wɔ dan mu hyew (a ɛwɔ digrii Celsius 15-30 ntam).
- Tow nnuru a ne bere atwam a womfa nni dwuma.
Wɔakyerɛw saa aduru yi ama wo nkutoo. Mma nnkyɛ obi foforo biara esiane biribiara nti.
Nkrasɛm a Wɔde Kɔ Fie
- Ivacaftor yɛ aduru titiriw bi a wɔde sa cystic fibrosis ahorow bi.
- Ɛsɛ sɛ wɔde saa aduru yi ka aduan a srade wom ho bere nyinaa.Fa no. Mfa no nka bobe nsu ho da.
- Ka nnuru afoforo a wonom nyinaa ne wo nyarewa afoforo nyinaa ho asɛm kyerɛ wo duruyɛfo.
- Sɛ wunya ɔhaw biara a anibere wom, te sɛ w’ani a ɛyɛ kɔkɔɔ, nsu a ɛyɛ tuntum, anaa honam ani akisikuru a, ka kyerɛ wo duruyɛfo ntɛm ara.
- Saa aduru yi yɛ wo nkutoo dea. Mfa mma obi foforo. Sɛ wowɔ nsɛmmisa bi a, wo ne wo duruyɛfo nkasa bere nyinaa.
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