So wunim Lupus (Systemic Lupus Erythematosus - SLE) ho asɛm? Momma yɛnka ho asɛm!

So ɛtɔ mmere bi a wote ɔbrɛ a wuntumi nsusuw ho, wo nipadua mu yaw, wo nkwaa mu yaw, anaasɛ wo honam ani yɛ wo yaw? Sɛ ɛnyɛ pɛnkoro anaa mprenu pɛ na wuhyia saa nneɛma yi, na mmom mpɛn pii prɛko pɛ a, ebia nea ɛde ba ne yare bi a wɔfrɛ no lupus. Mma ɛnhaw wo, ɛwom mpo sɛ ebia edin yi bɛyɛ te sɛ asɛm kɛse de, nanso ɛyɛ tebea a wobetumi adi so kɛse sɛ wɔbɔ wo amanneɛ yiye na wonya ayaresa a ɛfata a. Ɛnnɛ, yɛbɛka lupus ho asɛm wɔ ɔkwan tiawa bi so a wubetumi ate ase.

Dɛn ne Lupus? Momma yɛnte ase tiawa.

Sɛ yɛbɛka no tiawa a, lupus yɛ yare a yɛn nipadua mu tumi a ɛko tia nyarewa no ntumi nyɛ adwuma yiye na ɛde ba . Mpɛn pii no, yɛn nipadua mu tumi a ɛko tia nyarewa no bɔ yɛn ho ban fi nyarewa ne mmoawa ho. Nanso nea ɛkɔ so wɔ obi a ɔwɔ lupus nipadua mu ne sɛ saa nipadua mu tumi a ɛko tia nyarewa yi di mfomso tow hyɛ wɔn ankasa nipadua mu nkwammoaa ne ntini a ɛte apɔw no so. Wo de susuw ho hwɛ, nea ɛkɔ so wɔ ha no te sɛ asraafo a wɔbɔ yɛn man ho ban, na wodi mfomso tow hyɛ yɛn ankasa man mu nnipa so. Nnuruyɛfo frɛ eyi ` autoimmune disease`.

Sɛ nipadua no mu tumi a ɛko tia nyarewa no tow hyɛ yɛn so wɔ saa kwan yi so a, ɔfe , a ɛkyerɛ sɛ obi hohoro, ne ho yɛ kɔkɔɔ, na ɔte ɛyaw no betumi aba nipadua no afã horow. Eyi betumi aka nipadua no fã biara. Nhwɛsoɔ:

• Wo honam ani hwɛbea
• Mogya
• Nhyiam ahorow
• Asaabo a ɛma obi nya asaabo
• Adwene
• Akoma
• Ahrawa

Ɛho hia paa sɛ wobɛkɔ oduruyɛfo nkyɛn sɛ wuhu ɛyaw foforo biara, wo honam ani akisikuru, anaa nsakrae a ɛba wo honam ani, wo ti nhwi, anaa w’ani so a.

Dɛn ne lupus ahorow atitiriw?

Sɛ nnuruyɛfo ka lupus ho asɛm a, wɔtaa frɛ no ``Systemic Lupus Erythematosus (SLE)''. Eyi ne lupus a abu so sen biara . ``SLE'' kyerɛ sɛ tebea no ka wo nipadua nyinaa. Ahorow afoforo pii nso wɔ hɔ:

• Cutaneous lupus erythematosus: Wɔ lupus a ɛte sɛɛ mu no, tebea no ka wo honam ani nkutoo .
• Lupus a nnuru de ba: Nnuru bi betumi ama obi anya lupus ho sɛnkyerɛnne sɛ nea efi mu ba. Nanso, eyi taa yɛ bere tiaa mu de . Eyi kyerɛ sɛ ebia yare no ho sɛnkyerɛnne no befi hɔ bere a wɔagyae aduru no akyi.
• Neonatal lupus: Eyi ho yɛ na koraa. Ɛtɔ mmere bi a, nkokoaa a wɔawo wɔn foforo betumi anya lupus. Ɛnyɛ nkokoaa a ɛnanom a wɔwɔ lupus bɛwo wɔn nyinaa na wobenya lupus, nanso asiane ketewaa bi betumi aba.

Dɛn ne lupus ho sɛnkyerɛnne ahorow?

Lupus yɛ yare a ɛda ne ho adi wɔ akwan horow so. Eyi kyerɛ sɛ yare no ho sɛnkyerɛnne betumi ayɛ soronko wɔ onipa biara ho , na sɛnea yare no mu yɛ den nso gu ahorow. Nnipa binom nya yare no ho sɛnkyerɛnne a emu yɛ den yiye, bere a afoforo nso nya yare no ho sɛnkyerɛnne a emu nyɛ den.

Mpɛn pii no, lupus ho sɛnkyerɛnne no nkɔ so.. Wɔba na wɔkɔ. Yɛfrɛ mmere a yare no ho sɛnkyerɛnne kɔ soro no "flare-up." Wɔ saa mmere yi mu no, yare no ho sɛnkyerɛnne betumi ayɛ kɛse araa ma wuntumi nyɛ wo da biara da dwumadi ahorow mpo. Mmere bi nso wɔ hɔ a yare no ho sɛnkyerɛnne so tew anaasɛ enni hɔ. Wɔfrɛ eyinom "fafiri."

Mpɛn pii no, sɛnkyerɛnne ahorow no ba nkakrankakra . Mfiase no, sɛnkyerɛnne biako anaa abien pɛ na ebetumi ada adi, nanso akyiri yi yare no ho sɛnkyerɛnne pii betumi ada adi anaasɛ nea ɛwɔ hɔ dedaw no betumi asesa.

Nsɛnkyerɛnne a ɛtaa ba no bi ni:

• Nkwaa mu yaw, ntini mu yaw, koko mu yaw (titiriw bere a worehome denneennen) .
• Tipaeɛ
• Wora mu akisikuru (mpɛn pii no ɛyɛ akisikuru a ɛte sɛ ntontom a ɛtu mmirika fa afono ne hwene mu wɔ anim afã abien no nyinaa - ``Nwansena akisikuru`` - wobetumi ahu) .
• Huraeɛ
• Nwi a ɛtɔ
• Ano mu akuru
• Ɔbrɛ a enni sabea (ɔbrɛ a wɔte nka bere nyinaa) .
• Ɔhome a ɛyɛ den (`(Dyspnea)`) .
• Ntini a ɛho ahonhon
• Nsa, anan, anaa anim a ɛho ahonhon
• Kesereneeyɛ
• Mogya a ɛtwetwe

Ɛtɔ mmere bi a, lupus tumi de akwahosan ho haw afoforo te sɛ:

• Photosensitivity ( sɛnea ɛte wɔ owia hann ho) .
• Aniwa a ɛyɛ dry
• Adwenemhaw anaa adwenemyare afoforo
• Akisikuru tebea horow (`Akisikuru`) .
• Hemoglobin a ɛso tew wɔ mogya mu (nemia) .
• Raynaud yare (nsateaa ne nansoaa a ɛyɛ bruu, ɛyɛ bruu wɔ awɔw bere mu) .
• Osteoporosis (nnompe a ɛyɛ teateaa) .
• Koma mu yare
• Asaabo mu yare

Dɛn na ɛde lupus ba?

Abenfo da so ara nnim nea ɛde lupus ba ankasa , nanso nhwehwɛmu ada no adi sɛ nneɛma bi betumi aboa ma obi anya lupus.

• Awosu mu nneɛma: Sɛ wowɔ nsakrae bi (awosu mu nsakrae) wɔ w’awosu mu a, ɛda adi sɛ wubenya lupus. Eyi kyerɛ sɛ, sɛ obi wɔ w’abusua mu a, wo nso wowɔ hokwan ketewaa bi sɛ wubenya bi.
• Nkwammoaa: Wosusuw sɛ sɛnea nipadua no yɛ n’ade wɔ hormone ahorow bi ho, titiriw estrogen no di dwuma wɔ lupus a ɛba no mu. Eyi nti na lupus abu so wɔ mmea mu no.
• Nneɛma a atwa yɛn ho ahyia: Nneɛma a ɛwɔ baabi a wote mu, sɛ nhwɛso no, mframa a wɔsɛe no ne owia a wɔde di dwuma no betumi aka asiane a ɛwɔ hɔ sɛ wubenya lupus no.
• W’akwahosan ho abakɔsɛm: Sɛ wonom sigaret, wowɔ adwennwen pii, anaasɛ wowɔ nyarewa afoforo a nipadua no tumi ko tia nyarewa a, asiane a ɛwɔ hɔ sɛ wubenya lupus no betumi ayɛ kɛse.

Hena na asiane kɛse wom sɛ obenya lupus?

Obiara betumi anya lupus, nanso akuw bi wɔ asiane kɛse mu:

• Mmea: Titiriw mmea a wɔadi fi mfe 15 kosi 44.
• Abibifo a wɔyɛ abibifo.
• Hispanicfo a wɔyɛ Hispanicfo.
• Asiafo (yɛyɛ kuw yi mufo nso).
• Amerikafo Ankasa, Alaska Abibifo, ne Amanaman a Edi Kan no mufo.
• Pacific Nsupɔw sofo.
• Nnipa a wɔwɔ ɔwofo biako a ɔwɔ lupus.

Ɔkwan bɛn so na wohu sɛ obi anya lupus?

Ɛtɔ mmere bi a, lupus a wobehu no betumi ayɛ den kakra. Esiane sɛ ɛka nipadua no afã horow pii nti, yare no ho sɛnkyerɛnne ahorow betumi ayɛ soronko koraa. Oduruyɛfo bi behu lupus denam nipadua mu nhwehwɛmu a ɔbɛyɛ ne nhwehwɛmu ahorow bi a ɔbɛyɛ so .

Oduruyɛfo anaa ɔyarehwɛfo no betie wo yare no ho sɛnkyerɛnne no yiye. Ka biribiara a wunim fa bere a wufii ase nyaa sɛnkyerɛnne ahorow, nsakrae a woahyɛ no nsow, ne nyarewa biara a woadi kan anya ne nnuru biara a worenom mprempren ho asɛm kyerɛ wɔn.

Nsuro sɛ wobɛka biribiara a ɛte sɛ nea ɛyɛ nwonwa ama wo akyerɛ wo duruyɛfo , sɛ ɛyɛ biribi ketewaa mpo a. Obiara nnim wo nipadua no yiye nsen wo.

Nhwehwɛmu bɛn na wɔyɛ de hu sɛ obi anya lupus?

Nhwehwɛmu biako biara nni hɔ a ebetumi akyerɛ sɛ wowɔ lupus. Nnuruyɛfo taa de ``nsonsonoe a wɔde hu`` di dwuma de yi nyarewa afoforo fi hɔ . Eyi kyerɛ sɛ wɔyɛ nhwehwɛmu ahorow pii de hu nea ɛde wo sɛnkyerɛnne ahorow no ba na wɔhwɛ hu sɛ ɛnyɛ nyarewa afoforo na ɛde asodi no to wo so ansa na wɔaka sɛ wowɔ lupus. Sɔhwɛ ahorow a wobetumi de ayɛ eyi no bi ne:

• Mogya mu nhwehwɛmu: Eyinom hwɛ sɛnea wo nipadua mu tumi a ɛko tia nyarewa no reyɛ adwuma, sɛ ebia wowɔ nyarewa, tebea horow te sɛ mogya a ɛtɔ kɔ nipadua mu, anaa mogya mu nkwammoaa a ɛba fam.
• Nsu mu nhwehwɛmu: Eyi boa ma wohwɛ wo nsu mu hwɛ sɛ ebia ɔyare mmoawa anaa akwahosan tebea afoforo bi wɔ hɔ anaa.
• Antinuclear antibody (ANA) sɔhwɛ: Eyi hwehwɛ sɛ ebia ɛwɔ nipadua mu nkwammoaa a ɛko tia nyarewa. Nkwammoaa a ɛko tia nyarewa yɛ protein agyiraehyɛde ahorow a ɛkyerɛ sɛnea yɛn nipadua no ako atia nyarewa. Nnipa pii a wɔwɔ lupus wɔ ANA nnuru a ɛko tia nyarewa yi dɔɔso. Eyi kyerɛ sɛ nipadua no mu tumi a ɛko tia nyarewa no yɛ adwuma boro so.
• Wora anaa asaabo mu nhwehwɛmu: Ɛtɔ mmere bi a, woyi ntini ketewaa bi fi honam ani anaa asaabo no mu na wɔde afiri a wɔde hwɛ nneɛma nketenkete hwehwɛ mu hwɛ sɛ ebia nipadua no mu tumi a ɛko tia nyarewa no asɛe no anaa.

Dɛn ne nnuru a wɔde sa lupus?

Wo duruyɛfo bɛkamfo aduru a wɔde sa lupus akyerɛ na ama woatumi asiw wo sɛnkyerɛnne ahorow no so na wɔadi ho dwuma . Botae atitiriw a ɛwɔ ha ne:

• Nipadua akwaa ahorow a ɛsɛe no a wɔbɛtew so.
• Nkɛntɛnso a lupus nya wɔ wo da biara da asetra so a wobɛtew so.
• Ogya a ɛrehyew a wobesiw ano.
• Nsɛnkyerɛnne a emu yɛ den a wɔbɛtew so wɔ mmere a emu yɛ den kɛse mu.

Lupus ayarefo pii hia nnuru pii a wɔaka abom.Ebia wubehia nnuru a edidi so yi bi:

• Hydroxychloroquine: Eyi yɛ aduru a ɛwɔ adesuakuw bi a wɔfrɛ no aduru a ɛsesa yare (DMARD) mu. Ɛboa ma lupus ho sɛnkyerɛnne ahorow no fi hɔ na ɛhwɛ sɛnea yare no kɔ so no so.
• Nnuru a ɛnyɛ steroid a ɛko tia ɔyare mmoawa (NSAIDs): Eyinom yɛ nnuru a wɔtɔn a wɔmfa nnuru nhyɛ mu (OTC) a ɛtew ɛyaw ne ɔfe (ɔhohoro) so. Wo duruyɛfo bɛkyerɛ wo NSAID ko a ɛfata wo ne bere tenten a ɛsɛ sɛ wode di dwuma. Mfa eyinom ntra nnafua 10 bere koro mu a wunnya wo duruyɛfo afotu.
• Corticosteroids: Eyinom yɛ nnuru a ano yɛ den a oduruyɛfo akyerɛw ama obi de atew ɔfe so. Prednisone yɛ corticosteroid a wɔtaa de di dwuma ma lupus. Wobetumi de ama sɛ nnuru a wɔde twitwiw nipadua no anaasɛ wɔde ahyɛ nkwaa bi mu tẽẽ.
• Nnuru a ɛma nipadua no tumi ko tia nyarewa: Saa nnuru yi yɛ adwuma denam wo nipadua no mu tumi a ɛko tia nyarewa no dwumadi a ɛtew so na ɛhwɛ so, na ɛboa ma ntini a ɛsɛe ne ɔfe siw ano no so.

Wɔ nnuru atitiriw yi akyi no, ebia wubehia ayaresa ahorow a ɛsono emu biara ma sɛnkyerɛnne pɔtee bi a wowɔ anaa akwahosan ho haw afoforo a lupus de ba (e.g. mogya a ɛtɔ kɔ nipadua mu, mogya mmoroso, nnompe a ɛyɛ mmerɛw).

Sɛ wowɔ lupus a, dɛn na wubetumi ahwɛ kwan?

Lupus yɛ nkwa nna nyinaa (`nkyɛ`) tebea . Eyi kyerɛ sɛ ɛsɛ sɛ wudi lupus ho sɛnkyerɛnne ahorow ho dwuma na wudi ho dwuma wɔ w’asetra nyinaa mu.

Lupus yɛ nea wontumi nhu nea ɛbɛba koraa . Eyi kyerɛ sɛ ɔkwan a ɛka wo no betumi asesa bere ne bere mu. Enti, ɛsɛ sɛ wokɔ wo duruyɛfo nkyɛn daa hwɛ nsakrae a ɛba wo sɛnkyerɛnne ahorow mu.

Bere a wusua sɛnea wobɛtra ase wɔ lupus ho no, ebehia sɛ wo ne nnuruyɛfo kuw bi yɛ adwuma . W’abusua oduruyɛfo (ɔyarehwɛfo titiriw) bɛkamfo nnuruyɛfo atitiriw a wuhia no akyerɛ wo. Mpɛn pii no, wobɛkɔ akɔhwɛ akisikuru ho ɔyaresafo — oduruyɛfo a ne ho akokwaw wɔ nyarewa a nipadua no tumi ko tia nyarewa a wohu na ɔsa mu. Nnuruyɛfo atitiriw afoforo a wuhia no begyina wo yare no ho sɛnkyerɛnne ne sɛnea ɛrenya wo nipadua so nkɛntɛnso no so.

So wobetumi asa lupus koraa?

Nea ɛyɛ awerɛhow no, mprempren wonni aduru biara a wɔde sa lupus . Nanso, wo duruyɛfo betumi aboa wo ma woanya ayaresa ahorow a wɔaka abom a ɛbɛboa ma woadi wo sɛnkyerɛnne ahorow so na aboa wo ma woanya bere bi a ɛbɛma wo ho atɔ wo — bere a wunni sɛnkyerɛnne biara anaasɛ kakraa bi pɛ.

So wobetumi asiw lupus ano?

Esiane sɛ abenfo da so ara nnim nea ɛde lupus ba ankasa nti, ɔkwan biara nni hɔ a wɔbɛfa so asiw ano . Sɛ w’awofo mu biako wɔ lupus a, wo ne wo duruyɛfo nka asiane a ɛwɔ mu ho asɛm.

Ɔkwan bɛn so na wobetumi asiw lupus a ɛbɛsɔre no ano?

Ɛwom sɛ wontumi nsiw lupus ano de, nanso nneɛma pii wɔ hɔ a wubetumi ayɛ de atew ɔhyew a ɛba no so na asiw ano. Nea ɛka eyi ho ne nneɛma a ɛma wo yare no ho sɛnkyerɛnne no mu yɛ den a wobɛkwati.

• Kwati sɛ wobɛkɔ owia mu: Wɔ nnipa binom fam no, owia a wɔde wɔn ho hyɛ mu kyɛ no betumi ama lupus ho sɛnkyerɛnne no asɛe kɛse. Enti, to bere a wode bɛkɔ abɔnten wɔ nnɔnhwerew a owia bɔ kɛse mu (mpɛn pii no, anɔpa 10 ne awia 4 ntam) no ano hye. Sɛ wokɔ abɔnten a, hyɛ ntade a nsa tenten, kyɛw, ne ntade a ɛbɔ wo ho ban fi owia ho. Fa aduru a ɛbɔ wo ho ban fi owia ho a anyɛ yiye koraa no SPF yɛ 50 di dwuma .
• Kɔ so yɛ nnam: Ɛtɔ mmere bi a, nkwaa mu yaw betumi ama ayɛ den sɛ wobɛkeka wo ho anaasɛ wobɛteɛteɛ w’apɔw mu. Nanso, kankyee brɛoo ne apɔw-mu-teɛteɛ ne akwan a eye sen biara a wɔfa so tew sɛnkyerɛnne te sɛ ɛyaw ne akisikuru so. Nantew, sakre so a wobɛtra, asuguare, yoga, ne tai chi nyinaa yɛ akwan pa a wobɛfa so akanyan wo nipadua a woremfa nhyɛso pii mma wo nkwaa so. Bisa wo duruyɛfo no apɔw-mu-teɛteɛ a asiane biara nni ho sɛ wobɛyɛ ho asɛm.
• Da sɛnea ɛsɛ na hwɛ w’adwene mu akwahosan so: Ɛtɔ mmere bi a, lupus a wobɛtra ase no betumi ayɛ adwennwen. Da a ɛdɔɔso ( nnɔnhwerew 7-9 ma ɔpanyin) ne adwennwen a wɔtew so no betumi aboa nnipa binom ma wɔakwati sɛ wɔbɛhyew. Adwene ne nneyɛe ho ɔbenfo anaa adwenemyare ho ɔfotufo foforo betumi aboa wo ma woanya akwan horow a wobɛfa so agyina ano.

Bere bɛn na ɛsɛ sɛ mekɔ oduruyɛfo nkyɛn?

Sɛ wunya sɛnkyerɛnne foforo biara, anaasɛ wote nka sɛ wo sɛnkyerɛnne no resakra a, kɔ oduruyɛfo nkyɛn ntɛm ara. Nsakrae nketenkete mpo a ɛba wo sɛnkyerɛnne ahorow mu no betumi ayɛ nea ɛho hia.

Sɛ wote nka sɛ ayaresa a woreyɛ mprempren no ntumi nni wo lupus sɛnkyerɛnne ahorow no so a, ka kyerɛ wo duruyɛfo . Sɛ worenya flare-ups pii anaasɛ wo sɛnkyerɛnne no reyɛ kɛse a, ka kyerɛ wo duruyɛfo. Wo duruyɛfo betumi aboa wo ma woayɛ nsakrae wɔ w’ayaresa mu sɛnea ɛho hia.

Wɔ tebea a egye ntɛmpɛ mu, kyerɛ sɛ, sɛ wuhu sɛnkyerɛnne te sɛ eyinom a, kɔ ayaresabea ntɛm ara anaa frɛ 1990:

• Sɛ wuntumi nhome a.
• Sɛ ɛyaw a emu yɛ den wɔ hɔ a.
• Sɛ wususuw sɛ worenya komayare ho sɛnkyerɛnne ahorow a.

Nsɛm bɛn na ɛsɛ sɛ mibisa me duruyɛfo?

Sɛ wokɔ oduruyɛfo nkyɛn a, ɛbɛyɛ papa sɛ wubebisa nsɛm te sɛ eyinom:

• So mewɔ lupus anaa yare foforo a nipadua no tumi ko tia nyarewa?
• Nnuru bɛn na mihia?
• Mpɛn ahe na ɛsɛ sɛ mihu wo (`follow-up appointments`)?
• So ɛho behia sɛ mekɔhwɛ nnuruyɛfo afoforo a wɔyɛ adwuma wɔ hɔ?
• So wubetumi aka mmoa akuw anaa adwenemyare ho nnwuma afoforo a ebetumi aboa me ho asɛm akyerɛ me?

Awiei koraa no, nea ɛsɛ sɛ wokae (Take-Home Message) .

Lupus betumi ayɛ tebea a ɛyɛ abasamtu na ɛma obi yɛ mmerɛw wɔ mmere bi mu. Ɛyaw, ɔfe, ne ahotɔ a wobɛtra ase wɔ wo nipadua nyinaa mu no nyɛ mmerɛw. Nanso, mma wo werɛ mmfi sɛ wobɛkyerɛ wo ho anisɔ . Yare a enni sabea a wobɛtra ase no yɛ adwumaden, enti ɛfata sɛ wogye wo tom wɔ mmɔden a wobɔ de di wo sɛnkyerɛnne ahorow ho dwuma da biara da no ho.

Sɛ wususuw sɛ ɛbɛyɛ papa sɛ wo ne obi bɛkasa afa wo nsusuwii ne wo nkate ho a, bisa wo duruyɛfo no adwenemyare ho nnwuma ne mmoa akuw ho asɛm.

Nsuro sɛ wo ne wo duruyɛfo bɛkasa na woabisa nsɛm. Nsakrae nketenkete mpo a ɛba wo sɛnkyerɛnne ahorow mu no betumi ayɛ sɛnkyerɛnne a ɛkyerɛ sɛ ɛsono sɛnea lupus renya wo. Kae sɛ, sɛ wote nka sɛ biribi nnyɛ wo nipadua no yiye a, woyɛ ɔtemmufo a oye sen biara.

` Lupus, SLE, nyarewa a nipadua no tumi ko tia nyarewa, nkwaa mu yaw, honam ani akisikuru, lupus ayaresa, lupus ho sɛnkyerɛnne