So wobrɛ bere nyinaa? Wote nka sɛ wo ho yɛ brɛoo? Ebetumi ayɛ Myalgic Encephalomyelitis/Ɔbrɛ a Enni Bere (ME/CFS)!

So wote nka nso sɛ woabrɛ kɛse na woabrɛ da no fã kɛse no ara? So ɛtɔ mmere bi a wote nka sɛ woayɛ mmerɛw dodo sɛ wubefi mpa so? Sɛ woda yie na wogye w’ahome da mũ nyinaa mpo a, ɔbrɛ yi nnbrɛ ase? Afei eyi yɛ biribi a ebia ɛho hia wo. Ɛnnɛ yɛbɛka tebea bi a wɔfrɛ no `Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a ebinom nso frɛ no `Chronic Fatigue Syndrome (CFS) kɛkɛ ho asɛm

Dɛn ne `ME/CFS` yi? Sɛ yɛbɛka no tiawa a...

Sɛ yɛbɛka no tiawa a, ME/CFS yɛ tebea a wote nka sɛ woabrɛ na woabrɛ kɛse, kosi sɛ ɛmma wuntumi nyɛ wo da biara da dwumadi ahorow, na ɛtɔ mmere bi mpo a wufi mpa so kɔyɛ nnwuma nketenkete. Nea ɛho hia ne sɛ, ɔbrɛ yi nkɔ ɛmfa ho sɛnea wubegye w’ahome anaa woada no. Afei nso, sɛ woyɛ apɔw-mu-teɛteɛ ketewaa bi mpo a, ɔbrɛ yi mu yɛ den, anaasɛ w’adwene mu yɛ wo naa (sɛ nhwɛso no, sɛ wususuw biribi ho pii a). Saa sɛnkyerɛnne ahorow yi taa di asram asia anaa nea ɛboro saa.

Ɛtɔ mmere bi a nnuruyɛfo de din afoforo to saa tebea yi so, a ɛne:

• ``Myalgic Amemene mu yare (ME)''.
• ``Systemic Exertion Intolerance Yare (SEID)'' a ɛma obi yɛ adwuma yiye.

Sɛ wote eyi a, mma ɛnhaw wo, eyi fa tebea koro no ara ho.

Saa tebea yi abu so dɛn sɛ `ME/CFS`?

Eyi yɛ tebea a abu so sen sɛnea ebia wubesusuw ankasa. Nnipa ɔpepem pii a wɔwɔ wiase nyinaa rehu amane wɔ tebea yi ho. Nanso awerɛhosɛm ne sɛ, nnipa pii wɔ saa tebea yi, nanso wonhu no yiye. Ade biako nti a ɛte saa ne ho a wonnim. Foforo nso ne ɔhaw a nnipa binom wɔ wɔ ayaresa mmeae a wobenya no mu.

Dɛn ne `ME/CFS` ho sɛnkyerɛnne? Hwɛ sɛ wowɔ eyinom nso...

ME/CFS ho sɛnkyerɛnne titiriw ne ɔbrɛ a ɛtra so a ɛkɔ so daa . Ɛne sɛ, ɔbrɛ a ɛtra hɔ bɛboro asram asia na ɛnam ahomegye anaa nna so nnyae.

Nea ɛka ho no, ebia wubehu sɛnkyerɛnne ahorow te sɛ:

• Dae ho haw: Sɛ wuntumi nna yiye, sɛ wosɔre mpo a, anaasɛ wobɛte nka sɛ woabrɛ ɛmfa ho sɛnea woada no.
• Tiyɛ: Tiyɛ a ɛtaa yɛ, ɛtɔ mmere bi a emu yɛ den.
• Nkwaa mu yaw: Ɛyaw a ɛba nipadua no nkwaa mu.
• Ntini mu yaw: Ntini mu yaw, nipadua mu yaw.
• Adwene mu nsɛnnennen: Ɛyɛ den sɛ wubesusuw nneɛma ho yiye, ɛyɛ den sɛ wode w’adwene besi biribi so, ɛyɛ den sɛ wobɛkae ade. Nnipa binom nso frɛ eyi "amemene mu sum."

Eyinom akyi no, ebia sɛnkyerɛnne afoforo wɔ hɔ:

• Anisoadehu mu haw ahorow.
• Awɔw a ɔte nka, ebia ne ho fifiri anadwo.
• Ntini a ɛma mogya tu a ahonhon.
• Yafunu mu yare: Nsɛnkyerɛnne a ɛte sɛ Irritable Bowel Syndrome (IBS), te sɛ yafunu a ɛyɛ mmerɛw, yafunu a wɔte nka, yafunu mu akisikuru, akisikuru anaa akisikuru.
• Adwenemhaw, abufuw, ehu, ne dadwen.
• Nkwammoaa a ɛyɛ mmerɛw, ano a ɛyɛ mmerɛw.
• Adwene a ɛyɛ no yaw, ne ti yɛ hare, na ɛtɔ mmere bi a ɔtotɔ piti.

Fa no sɛ, sɛ wunya ɛyaw ne ɛyaw a wote bere a woanya atiridiinini na afei wote ɔbrɛ ase asram pii, ebia mfe pii mpo nso ɛ? Saa na obi a ɔwɔ ME/CFS te nka.

Nea ɛho hia ne sɛ saa sɛnkyerɛnne ahorow yi betumi ayɛ soronko wɔ onipa biara ho. Ebia nnipa binom wɔ kakraa bi, ebia nnipa binom wɔ pii. Afei nso, saa sɛnkyerɛnne ahorow yi betumi ayɛ kakraa bi wɔ nna bi mu na ayɛ kɛse wɔ nna foforo mu.

Nea ɛsɛ sɛ yɛhyɛ no nsow titiriw ne tebea bi a wɔfrɛ no `Post-Exertional Malaise (PEM).` Eyi kyerɛ sɛ sɛ woyɛ apɔw-mu-teɛteɛ kakra mpo (e.g., wo nantew kwan tiaa bi, woyɛ ofie adwuma kakra) anaa w’adwene mu mmɔdenbɔ (e.g., wosua ade ma sɔhwɛ, wusi gyinae a ɛho hia) a, wo sɛnkyerɛnne ahorow (titiriw ɔbrɛ) no mu yɛ den yiye nnɔnhwerew pii, anaa nna mpo, wɔ ɛno akyi. Eyi yɛ ade titiriw a ɛwɔ `ME/CFS` mu.

Adɛn nti na saa `ME/CFS` yi nya nkɔso? Dɛn na ɛde ba?

Nnuruyɛfo da so ara nnim nea ɛde ME/CFS ba ankasa. Nanso, nhwehwɛmu ahu nneɛma pii a ebetumi de aba:

• Mogya mmoroso a ɛba fam .
• Ɔbrɛ .
• Bere a woanya ɔyare mmoawa bi akyi (e.g. ɔyare mmoawa a efi ɔyare mmoawa mu).
• Nsakrae a ɛba nipadua no mu tumi a ɛko tia nyarewa : Eyinom yɛ nsakrae a ɛba nipadua no mu a ɛbɔ yɛn nipadua ho ban fi nyarewa ne adwennwen ho.
• Nsakrae a ɛba ɔkwan a yɛn nipadua fa so yɛ ahoɔden na ɛde di dwuma mu .

Eyinom ne nsɛntitiriw a mprempren wosusuw ho, nanso wɔreyɛ nhwehwɛmu foforo.

Hena na ɔwɔ asiane kɛse mu sɛ obenya ME/CFS?

Ɛwom sɛ tebea yi betumi aba obiara so de, nanso nnipa binom wɔ asiane kɛse mu:

• Mmea taa hu saa tebea yi sen mmarima.
• Ɛwom sɛ ebetumi aba mmofra ne mpanyimfo nkumaa mu de, nanso ɛtaa ba mpanyimfo a wɔadi fi mfe 40 kosi 60 mu .
• Wɔahu sɛ ebia awosu mu abusuabɔ bi wɔ hɔ . Eyi kyerɛ sɛ, sɛ obi a ɔwɔ w’abusua mu wɔ yare no a, ebia wo nso wubetumi anya bi kɛse. Nanso, wonnya nhuu awosu mu nkwaadɔm pɔtee a ɛka no.

Nsɛnnennen afoforo bɛn na ebetumi aba esiane ME/CFS nti?

Ɔbrɛ a ɛtra so a tebea yi de ba no betumi ama ayɛ den yiye, sɛ ɛnyɛ nea entumi nyɛ yiye mpo a, sɛ nnipa binom bɛyɛ da biara da nnwuma. Nhwehwɛmu ada no adi sɛ nnipa a wɔwɔ ME/CFS no mu bɛyɛ fã ntumi nkura bere nyinaa anaa bere fã adwuma mu.

Wo de susuw ho hwɛ, sɛ woantumi ansɔre anɔpa mpo ankɔyɛ tii, sɛ woantumi anhwɛ wo mma, sɛ woantumi ankɔ adwuma a, sɛnea asetra bɛyɛ den?

Afei nso, adwenemhaw a efi ME/CFS mu baAdwenemhaw betumi aba. Ɛyɛ ade a ɛfata sɛ wobɛte nka sɛ woayɛ basaa bere a woabrɛ bere nyinaa, wote ɛyaw, na wuntumi nyɛ nneɛma a wopɛ no. Sɛ wo ho atɔ wo a, wo ne wo duruyɛfo nka ho asɛm. Ayaresa pa wɔ hɔ a wɔde sa no.

Ɔkwan bɛn so na nnuruyɛfo hu saa tebea yi a wɔfrɛ no `ME/CFS`?

Nhwehwɛmu pɔtee biara nni hɔ a wɔde hu ME/CFS. Oduruyɛfo bi behu tebea no denam wo mu nhwehwɛmu, atie a obetie wo sɛnkyerɛnne ahorow no yiye, na wahwɛ w’adwene mu akwahosan so.

Oduruyɛfo no betumi ayɛ mogya mu nhwehwɛmu ne nsu mu nhwehwɛmu nso de ahwɛ ahu sɛ tebea foforo biara nni hɔ a ɛde sɛnkyerɛnne a ɛte saa ara ba.

Nneɛma atitiriw pii wɔ hɔ a nnuruyɛfo hwehwɛ bere a wosusuw sɛ wowɔ ME/CFS (diagnostic criteria) no. Wɔne:

• Ɛsɛ sɛ ɔbrɛ a emu yɛ den a anyɛ yiye koraa no akɔ so asram 6 wɔ hɔ .
• Saa ɔbrɛ yi so ntew bere a woagye w'ahome anaa wɔada mpo akyi .
• Ɛyɛ den sɛ wobɛda ahomegye ne ahomegye .
• Ɔbrɛ kɔ soro wɔ nipadua anaa adwene mu mmɔdenbɔ mu (eyi ne `Post-Exertional Malaise - PEM` a yɛadi kan aka ho asɛm no).
• Ɛtɔ da bi a, ebia ɔhaw bɛba bere a wogyina hɔ anaa wote ase (`orthostatic intolerance`) ne/anaasɛ ɔhaw ahorow a ɛfa nsusuwii ne nkae ho (`cognitive function`).

Ɛyɛ bere a oduruyɛfo bi asusuw nneɛma yi nyinaa ho akyi na osi gyinae sɛ ebia wowɔ ME/CFS anaasɛ wunni bi.

Dɛn ne ayaresa ahorow a wɔde sa ME/CFS?

Botae titiriw a ɛwɔ ME/CFS ayaresa mu ne sɛ ɛbɛtew wo sɛnkyerɛnne ahorow so na aboa wo ma woatra ase sɛnea ɛsɛ sɛnea wubetumi. Ebia nnipa binom rentumi nsan nkɔ wɔn akwahosan nyinaa mu ansa na wɔanya yare no. Nanso, ayaresa betumi ama obi anya ahotɔ kɛse.

Akwan atitiriw pii wɔ hɔ a wɔfa so sa yare:

1. Nna ho su a wɔsakra (`Nna ho nhyehyɛe sesa`) .

2. Nnuru a wɔde di dwuma

3. Dwumadie sohwɛ (a wɔsan frɛ no ‘pacing’) .

Momma yɛnka eyinom mu biara ho asɛm nkɔ akyiri kakra .

1. Nna ho suban a wɔsakra (nna pa a wobɛma ayɛ wo su - `Sleep Hygiene`) .

Ansa na wo duruyɛfo bɛkyerɛw wo nnuru no, ebia obetu wo fo sɛ yɛ nneɛma nketenkete bi a ɛbɛboa wo ma woada yiye, te sɛ:

• Kɔda bere a wɔahyɛ mu, sɔre wɔ bere a wɔahyɛ mu. Sɛ woyɛ eyi bere koro mu da biara a, ɛbɛboa ma wo nipadua dɔn no afi ase ayɛ adwuma yiye.
• Sɛ woda awia a, mma ntra simma 30. Sɛ woda bere tenten awia a, ebetumi ama ayɛ den sɛ wobɛda anadwo.
• Fa wo mpa ne wo mpa no di dwuma ma nna ne nna mu dwumadi nkutoo. Kwati sɛ wobɛhwɛ TV, wode wo fon bedi dwuma, anaa adwuma bere a wote mpa so. Ɛyɛ adwene pa sɛ wubeyi ɛlɛtrɔnik mfiri afi mpa no mu.
• Kwati sɛ wubedi aduan pii ansa na woada.Afei nso, kwati nsa ne caffeine (a ɛwɔ tii ne kɔfe mu) ansa na woada.

Eyi ne nea yɛfrɛ no `dae mu ahotew` anaa `da pa`.

2. Nnuru a wɔde di dwuma

Ɛdenam wo yare no ho sɛnkyerɛnne so no, wo duruyɛfo betumi akamfo nnuru a edidi so yi akyerɛ wo:

• Ɛyaw ho: Nnuru a wɔde kum ɛyaw te sɛ `Nnuru a ɛnyɛ steroid a ɛko tia ɔyare mmoawa (NSAIDs)`.
• Wɔ nna, ɛyaw, ne ɔbrɛ ho: Nnuru bi a ekum adwenemhaw, te sɛ nnuru a ekum adwenemhaw (tricyclics).
• Sɛnea ɛbɛyɛ a wobenya adwenemhaw ne ɛyaw ano aduru: Nnuru te sɛ `Selective serotonin reuptake inhibitors (SSRI)` ne `Serotonin-norepinephrine reuptake inhibitors (SNRI)`.
• Sɛ ɔyare mmoawa bi wɔ hɔ a: Nnuru a ekum ɔyare mmoawa.
• Ma nipadua no mu tumi a ɛko tia nyarewa no dwumadi tu mpɔn: Intravenous immunoglobulin (IVIG).
• Sɛ obi brɛ a: `Corticosteroids` (ɛsɛ sɛ wɔde ahwɛyiye kɛse di dwuma na wɔde nnuruyɛfo afotu nkutoo na edi dwuma).

Ɛnyɛ nnuru yi nyinaa na ɛyɛ adwuma ma obiara. Wo duruyɛfo na obesi aduru a eye ma wo ho gyinae. Wɔreyɛ nnuru foforo nso ho nhwehwɛmu.

3. Dwumadie sohwɛ (`Dwumadie sohwɛ` - 'pacing') .

Sɛnea yɛadi kan aka no, ME/CFS sɛnkyerɛnne no mu yɛ den denam nipadua anaa adwene mu mmɔdenbɔ so (Post-Exertional Malaise - PEM). Sɛ́ eyi ho ayaresa no, nnuruyɛfo kyerɛkyerɛ ɔkwan bi a wɔfrɛ no "pacing." "Pacing" kyerɛ ara ne sɛ wobɛkari pɛ wɔ w'ahomegye ne wo dwumadi mu.

Bere a woreyɛ "pacing" no, wusua nea wo "anohyeto ahorow" yɛ. Fa anohyeto ahorow yi sɛ ban. Ɛsɛ sɛ wobɔ mmɔden sɛ wobɛtra nea wo nipadua betumi adi ho dwuma no anohyeto a ahobammɔ wom mu. Sɛ wutu anammɔn fi saa ahye yi akyi, kyerɛ sɛ, sɛ wopia wo ho kɔ akyiri sen wo anohyeto a, wo nipadua no rentumi nni ho dwuma bio. Eyi betumi ama wo yare no ho sɛnkyerɛnne no asɛe kɛse.

Wo duruyɛfo betumi aboa wo ma woahu nea wo nipadua ne w’adwene mu anohyeto yɛ. Ebetumi aboa sɛ wobɛkyerɛw dwumadi ahorow a woyɛ ne sɛnea wote nka wɔ ɛno akyi no da biara da anaa kyerɛwtohɔ. Sɛ wuhu wo anohyeto wie a, wubetumi ayɛ wo dwumadi ahorow ho nhyehyɛe ma atra saa anohyeto ahorow no mu.

Sɛ nhwɛso no, sɛ wuhu sɛ wote nka sɛ woabrɛ bere a woanantew simma 15 akyi a, ɛsɛ sɛ wobɔ mmɔden sɛ wobɛnantew simma 10 pɛ da a edi hɔ no na woagye w’ahome. Ade titiriw a ɛbɛma woayɛ "pacing" ne sɛ wubetie wo nipadua nkakrankakra na woahu wo anohyeto ahorow.

Apɔw-mu-teɛteɛ a emu yɛ den yiye, te sɛ apɔw-mu-teɛteɛ a ɛma mframa bɔ no betumi ama ME/CFS ho sɛnkyerɛnne no asɛe kɛse. Enti, wo ne wo duruyɛfo nkasa mfa apɔw-mu-teɛteɛ a asiane biara nni ho na ɛfata wo ho asɛm.

So wobetumi asiw ME/CFS ano?

Nea ɛyɛ awerɛhow no, mprempren ɔkwan biara nni hɔ a wonim a wɔbɛfa so asiw ME/CFS ano.

Dɛn na ɛsɛ sɛ obi a ɔwɔ ME/CFS hwɛ ​​kwan?

Aduru biara nni hɔ a wɔde sa ME/CFS. Nanso, wobetumi de nna mu nsakrae, dwumadi a wɔhwɛ so (pacing), ne nnuru adi sɛnkyerɛnne ahorow no ho dwuma. Ayaresa botae ne sɛ ɛbɛboa ma yare no ho sɛnkyerɛnne so atew sɛnea ɛbɛyɛ yiye biara na ama asetra atu mpɔn.

Wɔada no adi sɛ Cognitive Behavioral Therapy (CBT) boa nnipa pii a wɔwɔ ME/CFS. Ɛboa wɔn ma wodi wɔn yare no ho sɛnkyerɛnne ne nsusuwii ne nneyɛe a ɛde ba no ho dwuma yiye.

Ɛsɛ sɛ wohwɛ yiye kɛse na woanyɛ adwuma a ɛboro w’ahoɔden so. Sɛ wo honam ne adwene mu brɛ a, "pacing" - kyerɛ sɛ, ahomegye a wobɛgye wɔ ntam, honam fam adwuma ne adwene mu adwuma a wobɛsesa - betumi aboa kɛse.

Ebia wo duruyɛfo nso bɛkyerɛ sɛ wo ne nnipa afoforo a wɔwɔ ME/CFS nkɔka kuw bi a wɔboa wɔn ho. Saa akuw yi betumi ama wo nkuranhyɛ, nsɛm, ne hokwan pii de akyɛ osuahu ne osuahu ahorow a ɛfa wo tebea no ho.

Dɛn ne ME/CFS ho anidaso?

Sɛ wɔsa yare a, ME/CFS ho sɛnkyerɛnne dodow no ara tu mpɔn kodu baabi. Nanso, ebia nnipa binom nsan nkɔ wɔn akwahosan a na wɔwɔ ansa na wɔanya yare no ho sɛnkyerɛnne no mu koraa da. Ɛsono ɔkwan a tebea yi fa so ka onipa biara. Ɛyɛ papa sɛ wo ne wo duruyɛfo bɛkasa afa wo tebea no ne sɛnea wobɛhwɛ kwan no ho.

Bere bɛn na ɛsɛ sɛ wokɔ oduruyɛfo nkyɛn?

Sɛ wowɔ ME/CFS ho sɛnkyerɛnne (titiriw ɔbrɛ a ɛtra hɔ bɛboro asram asia) a, hwɛ hu sɛ wobɛkɔ oduruyɛfo nkyɛn. Wo duruyɛfo bɛhwɛ wo sɛnkyerɛnne ahorow no mu na wayɛ ayaresa nhyehyɛe bi a ɛbɛboa wo ma woanya ahotɔ.

Ɛtɔ mmere bi a, sɛ wobrɛ dodo sɛ wobɛsɔre afi mpa so a, oduruyɛfo a wobɛkɔ akɔhwɛ no betumi ayɛ asɛm kɛse. Wɔ nsɛm a ɛtete saa mu no, ntwentwɛn wo nan ase sɛ wobɛkyerɛkyerɛ mu akyerɛ wo duruyɛfo wɔ telefon so sɛnea wo sɛnkyerɛnne ahorow no reka wo. Ebia wo duruyɛfoɔ mpo bɛtumi de ‘virtual appointment’ ama wo sɛdeɛ ɛbɛyɛ a wobɛtumi afiri w’ankasa wo fie ahotɔ mu adi nkitaho.

Sɛ wuhu tebea yi ntɛm na wufi ase sa yare a, wubetumi anya ahotɔ ntɛm.

Nsɛm bɛn na ɛsɛ sɛ mibisa me duruyɛfo?

Sɛ wokɔ oduruyɛfo nkyɛn a, wubetumi abisa nsɛm te sɛ eyinom:

• Ayaresa bɛn na wokamfo kyerɛ me?
• So ayaresa no mu nsunsuanso bɔne bi wɔ hɔ?
• Mɛyɛ dɛn ahu me dwumadi anohyeto ahorow?
• Sɛ mete nka sɛ me ho atɔ me a, so metumi ayɛ adwuma aboro nea metumi ayɛ so?
• Mɛyɛ dɛn atumi ama me nna atu mpɔn (`dae mu ahotew`)?

Bisa nsɛm te sɛ eyinom na nya wo tebea no ho ntease pa.

Nkrasɛm a Etwa To a Wɔde Kɔ Fie

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) yɛ tebea a ɛde nkwa to asiane mu na ɛyɛ den ankasa. Nanso ɛnyɛ wo nko ara.Sɛ wote tebea yi ase na wudi ho dwuma yiye a, wubetumi adi sɛnkyerɛnne ahorow no so na woabɔ bra pa.

• Sɛ wowɔ ɔbrɛ a ɛkɔ so daa a ɛnbrɛ ase bere a woagye w’ahome a , mmu w’ani ngu so. Hwehwɛ aduruyɛ mu afotu.
• Sua ɔkwan a wɔfrɛ no "pacing" na fa w'ahoɔden dodow di dwuma yiye.
• Bɔ mmɔden sɛ wobɛda yiye anadwo .
• Sɛ wuhia mmoa a, nfɛre sɛ wobɛsrɛ mmoa afi w’abusuafo, nnamfo, ne nnuruyɛfo hɔ .
• Mmoa akuw betumi ama woanya adwene mu ahoɔden kɛse.

Mewɔ anidaso sɛ wubehu sɛ mfaso wɔ saa nsɛm yi so. Kɔ so nya apɔwmuden!

` Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, ɔbrɛ, ɔbrɛ a enni sabea, apɔw-mu-teɛteɛ akyi yare, nna a wontumi nna, nipadua mu yaw, Sinhalafo akwahosan