So wo honam ani reyɛ den na ɛreyɛ den? Momma yensua Scleroderma ho ade!

So ɛtɔ mmere bi a wote nka sɛ wo honam ani ayɛ den kakra na ayɛ den sen sɛnea wotaa yɛ no? Anaasɛ wowɔ nkwaa mu yaw anaasɛ anɔpa a ɛyɛ den? Eyinom yɛ nneɛma a ebia yɛremfa yɛn adwene nsi so kɛse. Nanso, ebetumi ayɛ tebea bi a ɛntaa nsi a wɔfrɛ no Scleroderma ho sɛnkyerɛnne nso. Momma yɛnka eyi ho asɛm nkɔ akyiri kakra nnɛ, ɛnte saa?

Dɛn ne Scleroderma?

Sɛ yɛbɛka no tiawa a, Scleroderma yɛ tebea a ɛntaa nsi a ɛma ntini a ɛwɔ wo nipadua mu no yɛ kɛse na ɛyɛ den sen sɛnea ɛte daa. Mpɛn pii no, ɛka honam ani. Nanso ɛtɔ mmere bi a, tebea no betumi aka nipadua no mu ntini foforo biara.

Eyi yɛ ɔyare a nipadua no tumi ko tia nyarewa ankasa . Afei ebia woresusuw nea ‘autoimmune disorder’ yɛ ho. Yɛn nipadua no wɔ nhyehyɛe bi a ɛte sɛ asraafo a ɛbɔ yɛn ho ban fi nyarewa ho, a wɔfrɛ no nipadua mu tumi a ɛko tia nyarewa. Nanso wɔ tebea yi mu no, saa nhyehyɛe no nkɔ yiye, na sɛ́ anka ɛbɛko atia mmoawa a wofi amannɔne no, efi ase tow hyɛ yɛn ankasa nkwammoaa pa no so. Ɛte sɛ nea yentumi nhu onii a ɔyɛ yɛn ankasa de ne onii a ɔyɛ ɔtamfo. Nnuruyɛfo mpo da so ara ntumi nhu nea enti a eyi ba ankasa.

Sɛ wowɔ scleroderma a, wo nipadua mu nkwammoaa a ɛko tia nyarewa no kyerɛ wo nipadua mu nkwammoaa ma wɔyɛ protein bi a wɔfrɛ no collagen pii dodo . Yɛn nipadua hia collagen ankasa. Ɛyɛ nea ɛma ntini a ɛka bom yɛ den na ɛte apɔw a ɛboa yɛn akwaa ahorow no. Nanso sɛ ɛdɔɔso dodo a, honam ani ne ntini afoforo no yɛ den na ɛyɛ nhama sen sɛnea ɛte daa.

Scleroderma yɛ tebea a enni sabea . Eyi kyerɛ sɛ ebia ɛsɛ sɛ wo ne saa sɛnkyerɛnne ahorow yi tra ase bere tenten, ebia wo nkwa nna nyinaa. Afei nso, sɛ ɛka wo mu akwaa no ntini a, ebetumi de ɔhaw ahorow a ɛde wo nkwa to asiane mu aba. Sɛ wote nka sɛ worenya komayare, ɛyɛ den sɛ wobɛhome, anaasɛ ɛyɛ den sɛ wobɛmene a, frɛ 911 (anaa wo mpɔtam hɔ nɔma a egye ntɛmpɛ) ntɛm ara, anaa kɔ ayaresabea dan a wɔhwɛ ntɛmpɛ so.

Sɛ wo nkwaa mu yɛ wo yaw anaasɛ ɛyɛ wo den, titiriw wɔ wo nsateaa ne wo nansoaa ho a, akyinnye biara nni ho sɛ ɛsɛ sɛ wokɔ oduruyɛfo nkyɛn.

Dɛn ne Scleroderma ahorow atitiriw?

Nnuruyɛfo kyekyɛ scleroderma mu abien titiriw:

1. Localized Scleroderma: ‘Localized’ kyerɛ sɛ ɛyɛ beae biako pɛ. Saa ɔkwan yi ka nipadua no fã biako pɛ (mpɛn pii no honam ani). Ɛma honam ani a ɛyɛ den na ɛyɛ waxy no yɛ nsensanee anaa nsensanee. Ɔfã a eye sen biara ne sɛ ɛtɔ mmere bi a localized scleroderma betumi asiesie ne ho . Ɛntaa ntrɛw nkɔ nipadua no afã afoforo nso.

2. 2. .Systemic Sclerosis: Saa ɔkwan yi betumi aka akwaa afoforo de aka honam ani. Ebetumi aka wo home nhyehyɛe (akwaa a ɛboa wo ma wohome na wote hua) ne wo digestive system (akwaa a ɛdan aduan a yedi no ma ɛbɛyɛ ahoɔden). Sɛ scleroderma ka sɛnea wutumi home anaa wotwe aduannuru a, ɛda adi sɛ wubenya nsɛnnennen a emu yɛ den. Ebetumi akum obi mpo. Systemic Sclerosis nso wɔ subtypes abiɛsa – diffuse, limited, ne sine sclerosis.

Sclerosis a Ɛtrɛw

'Diffuse' kyerɛ sɛ 'ɛtrɛw'. Wɔ tebea yi mu no, diffuse sclerosis ba mpofirim wɔ nipadua no mmeae akɛse. Nhwɛsoɔ:

• Kokoɔ
• Yafunu mu
• Asen mu
• Akode a wɔde yɛ adwuma
• Nan
• Anim

Afei nso, ebetumi aka akwaa ahorow pii prɛko pɛ. Ɛno kyerɛ sɛ:

• Nnuan a wɔyam (Digestive system - GI tract) .
• Asaabo a ɛma obi nya asaabo
• Akoma
• Ahrawa

Akisikuru a Ɛyɛ Den (CREST yare) .

Nnuruyɛfo taa frɛ Limited Scleroderma sɛ CREST syndrome . Nkyerɛwde biara a ɛwɔ CREST mu no gyina hɔ ma sɛnkyerɛnne bi a ɛde ba:

• C - Calcinosis: Calcium a ɛboro so a ɛwɔ honam ani. Ebetumi ada adi sɛ akuru fitaa nketenkete a ɛwɔ honam ani.
• R - Raynaud's syndrome: Nsateaa ano ne nansoaa a ɛyɛ kɔla na ɛyɛ mmerɛw. Ebia wɔbɛdan ayɛ fitaa, bruu, anaa kɔkɔɔ bere a wɔde wɔn ho ahyɛ awɔw mu no.
• E - Esophageal dysfunction: Ɛyɛ den sɛ wobɛmene na acid reflux.
• S - Sclerodactyly: Wora a ewo nsateaa no so, a ema eye den se wobekotow na woatene nsateaa no.
• T - Telangiectasias: Nsεmfua nketenkete, kɔkɔɔ anaa kɔla a εsakra wɔ honam ani. Ebia eyinom bɛyɛ te sɛ akɔre ntaban.

Ntini a Ɛma Ntini Mu Ntini Mu Ntini

Wɔ Sine Sclerosis fam no, Limited Sclerosis ho sɛnkyerɛnne a yɛadi kan aka ho asɛm no ba, nanso ɛnka honam ani . Ɛne sɛ, ebia wubenya sɛnkyerɛnne ahorow a wɔaka ho asɛm wɔ CREST syndrome mu no bi, nanso honam ani hwɛbea a ɛyɛ den biara nni hɔ a wotumi hu.

Scleroderma abu so dɛn?

Scleroderma yɛ yare a ɛntaa nsi ankasa.Abenfo bu akontaa sɛ nnipa ɔpepem biara mu bɛyɛ 250 wɔ United States wɔ scleroderma ahorow abiɛsa no nyinaa. Eyinom mu bɛyɛ 100,000 na wɔwɔ systemic sclerosis.

Dɛn ne Scleroderma ho sɛnkyerɛnne ahorow?

Ebia nnipa binom a wɔwɔ scleroderma no rennya yare no ho sɛnkyerɛnne biara wɔ mfiase. Nanso, wɔ nnipa pii fam no, sɛnkyerɛnne titiriw ne sɛ ɛbɛda adi sɛ nsensanee anaa nsensanee a ɛyɛ den, ɛte sɛ wax anaa nsensanee wɔ honam ani. Nea ɛka ho no, sɛnkyerɛnne afoforo pii wɔ hɔ a ɛtaa ba:

• Nkwaa mu yaw
• Stiffness , titiriw bere a wɔsɔre anɔpa no
• Ɔbrɛ (wɔte nka sɛ wabrɛ kɛse bere nyinaa) .
• Mu duru a ɛso tew a wontumi nkyerɛkyerɛ mu

Nsɛnkyerɛnne afoforo a wunya (ne baabi a ɛka wo) gyina scleroderma ko a wowɔ so.

Nsɛnkyerɛnne a Ɛfa Localized Scleroderma Ho

Nnipa a wɔwɔ localized scleroderma taa nya honam ani hwɛbea a ɛyɛ den nkutoo . Ebia saa a ɛyɛ den yi wɔ beae biako anaasɛ ebetumi aba wɔ mmeae ahorow. Ebetumi aka honam ani mmeae a edidi so yi:

• Kokoɔ
• Yafunu (beae a atwa yafunu no ho ahyia) .
• Abasa ne wo nan (Wo nsa ne wo nan) .
• Nsa ne nsateaa
• Anan ne nansoaa

Nanso, localized scleroderma a ɛka akwaa a ɛwɔ nipadua no mu no ho yɛ na koraa .

Systemic Sclerosis ho sɛnkyerɛnne ahorow

Systemic sclerosis betumi de sɛnkyerɛnne ahorow aba. Eyi nso ma honam ani yɛ den, nanso mpɛn pii no ɛwɔ mmeae akɛse ne mmeae a ɛyɛ mmerɛw. Titiriw wɔ anim ne nsa so. Ebia honam ani a ayɛ den no befi ase wɔ nsateaa ne nansoaa mu na afei atrɛw akɔ nipadua no nyinaa mu. Sɛ wowɔ Raynaud’s syndrome , nsateaa ne nansoaa a ɛwɔ ɔhonam akwaa a ɛka wo no mu no kɔla betumi asesa bere a awɔw wom (mpɛn pii no ɛyɛ fitaa, kɔkɔɔ, anaa kɔla a ɛyɛ kɔkɔɔ-blue).

Systemic sclerosis nso betumi ama woanya sɛnkyerɛnne ahorow wɔ w’akwaa ne wo ntini afoforo mu. Nhwɛsoɔ:

• Ntini: Ɛyɛ mmerɛw na ɛho wosow, titiriw wɔ nsa ne anan (wo nsa ne anan ano).
• Nkwaa: Ɛyɛ den, ɛho ahon, na ontumi nkɔ baabiara.
• Ahurututu: Ɔfe ne ɔhome a ɛyɛ den (dyspnea).
• Nkwammoaa a ɛma aduan mu yɛ den: Ɔyare a ɛnyɛ den, komayare, ɔfe, akisikuru, ne akisikuru.
• Akoma:Koma a ɛbɔ a ɛnteɛ (arrhythmia), nsu a ɛboaboa ano twa koma no ho hyia (pericardial effusion), ne koma no ntini a ɛyɛ den (fibrosis).
• Asaabo: Asaabo a entumi nyɛ adwuma yiye (eyi betumi de nkwa ato asiane mu).
• Ɔbarima ne ɔbea nna: Erectile Dysfunction (ED) wɔ mmarima mu ne ɔbea awotwaa a ɛyɛ kusuu wɔ mmea mu.

Dɛn na ɛde Scleroderma ba?

Nokwarem no, nnuruyɛfo da so ara nnim nea ɛde scleroderma ba ankasa .

Nhwehwɛmu ahorow bi ada no adi sɛ ebetumi atu mmirika wɔ mmusua mu akodu baabi (a ɛkyerɛ sɛ wobetumi de afi awofo hɔ akɔ mmofra mu), nanso ɛntaa nsi araa ma adanse a ɛdɔɔso nni hɔ a ɛkyerɛ koraa sɛ ɛyɛ awosu mu yare .

Nneɛma a Ɛma Asiane a Ɛwɔ Scleroderma

Obiara betumi anya scleroderma, nanso akuw bi wɔ asiane kɛse mu:

• Mmea betumi anya saa yare yi bɛyɛ mpɛn anan sen mmarima.
• Ɛtaa ba nnipa a wɔadi fi mfe 30 kosi 50. Scleroderma ho yɛ na koraa wɔ nnipa a wonnii mfe 30 mu.
• Abibifo taa nya scleroderma. Wɔn nso taa nya yare no ntɛm, ɛda adi sɛ wobenya yare no ho sɛnkyerɛnne a ɛka ahurututu no, na wɔwɔ honam ani yare no ho sɛnkyerɛnne a emu yɛ den kɛse.

Dɛn ne nsɛnnennen a ebetumi afi Scleroderma mu aba?

Nnipa a wɔwɔ scleroderma no wɔ asiane kɛse mu sɛ wobenya tebea afoforo abien: Raynaud yare ne Sjögren yare .

Raynaud yare no ka mogya ntini nketenkete a ɛwɔ wo nsateaa ne wo nansoaa mu (wo digit) no. Nnipa a wɔwɔ saa tebea yi no nya yare no ho sɛnkyerɛnne ahorow (ɛtɔ mmere bi a wɔfrɛ no ‘ntua’). Eyi ne bere a mogya ntini a ɛwɔ wo nsateaa mu no twetwe mpofirim denneennen dodo. Eyi betumi ama nsateaa a ɛka ho no honam ani ayɛ fitaa, anaasɛ ayɛ hare asen wo honam ani kɔla a efi awosu mu no. Ɛtɔ mmere bi mpo a, ebetumi ayɛ te sɛ nea ɛyɛ bruu.

Sjögren yare no ma wo nipadua mu ntini ahorow bi ntumi nnya nsu pii – mpɛn pii no ɛyɛ nnompe a ɛwɔ w’anom ne nusu ntini a ɛwɔ w’ani so. Nnipa binom a wɔwɔ Sjögren yare no nso te ntini ne nkwaa mu yaw.

Scleroderma ahorow bi betumi de nsɛnnennen a emu yɛ den aba . Ebi ne:

• Asaabo a entumi nyɛ adwuma yiye
• Pulmonary hypertension (mogya a ɛkɔ soro wɔ ntini a ɛde mogya fi koma no mu kɔ ahurututu mu no mu) .
• Ahurututu mu ntini a ɛyɛ mmerɛw (ahurututu mu ntini a ɛyɛ akuru) .
• Koma ne ntini mu yare (ɔhaw ahorow a ɛka wo koma ne wo mogya ntini) .
• Koma a ɛyɛ den, komayare bi
• Nkwammoaa a ɛko tia nyarewa a ɛnyɛ den
• Yafunu mu nyarewa (tebea horow a ɛka ɔkwan a nipadua no fa so di aduan ho dwuma na ɛtwetwe aduannuru) .
• Kokoram

Saa nsɛnnennen yi bi betumi akum obi . Sɛ wuhu sɛnkyerɛnne foforo anaa nea ɛresakra a, kɔ oduruyɛfo nkyɛn ntɛm ara sɛnea wubetumi. Sɛ wususuw sɛ wowɔ komayare ho sɛnkyerɛnne te sɛ ɛyɛ den sɛ wobɛhome anaasɛ wobɛmene a, frɛ 911 (anaa wo mpɔtam hɔ nɔma a egye ntɛmpɛ) ntɛm ara, anaa kɔ ayaresabea dan a wɔhwɛ ntɛmpɛ so.

Ɔkwan bɛn so na wohu sɛ obi anya Scleroderma?

Oduruyɛfo bi nam nipadua mu nhwehwɛmu ne nhwehwɛmu afoforo pii so hu sɛ ɔwɔ scleroderma.

Ebia ɛho behia nso sɛ wokɔ akisikuru ho oduruyɛfo , oduruyɛfo a ne ho akokwaw wɔ nipadua no mu tumi a ɛko tia nyarewa a wɔsa mu. Ɔbɛhwehwɛ wo mu na wabisa wo yareɛ no ho sɛnkyerɛnne. Ɛsɛ sɛ woka nea wo yare no ho sɛnkyerɛnne te, bere a edi kan a efii ase, ne sɛ ebia biribi a ɛte sɛ nea ɛma ɛyɛ kɛse kyerɛ wo duruyɛfo.

Ɛho behia nso sɛ wɔyɛ nhwehwɛmu pii de hwɛ hu sɛ wunni tebea afoforo a ɛde sɛnkyerɛnne a ɛte saa ara reba.

Nhwehwɛmu bɛn na nnuruyɛfo de hu Scleroderma?

Mpɛn pii no, scleroderma a wobehu no yɛ adeyɛ bi a wɔfrɛ no ‘nsonsonoe a wɔde hu’ no fã. Eyi kyerɛ sɛ ɛda adi sɛ wo duruyɛfo no bɛpow tebea afoforo na wayɛ nhwehwɛmu ahorow pii de ahu nea ɛde wo sɛnkyerɛnne ahorow no reba ansa na wahu sɛ wowɔ scleroderma. Sɔhwɛ ahorow a ebia wowɔ no bi ni:

• Mogya mu nhwehwɛmu de hwɛ sɛnea wo nipadua mu tumi a ɛko tia nyarewa no reyɛ adwuma.
• Nhwehwɛmu a wɔyɛ wɔ ahurututu mu dwumadi ho de hwɛ sɛ ebia w’ahurututu anaa wo home nhyehyɛe no aka wo anaa.
• Biopsy yɛ adeyɛ a wɔfa so yi honam ani anaa ntini foforo a ayɛ no ketewaa bi na wɔsɔ hwɛ wɔ aduruyɛdan mu.
• Sɛ wowɔ aduan mu yare (GI) ho sɛnkyerɛnne a, endoscopy yɛ sɔhwɛ a wɔde mfoninitwa afiri ketewaa bi a wɔde abata afiri tenten bi a ɛyɛ tratraa ho hwɛ wo menewa anaa wo yafunu ase.

Nea ɛka ho no, ebehia sɛ woyɛ mfoninitwa ho sɔhwɛ ahorow pii na ama woatwa wo nipadua no mu mfonini. Eyinom bi ne:

• Electrocardiogram (ECG) a wɔde kyerɛw koma no .
• Echocardiogram (Echocardiogram - Nsɛm a Wɔka Kyerɛ) .
• X-ray a wɔde yɛ koko
• CT scan (Kɔmputa so Tomography - CT mfonini) .

Ɔkwan bɛn so na wɔsa Scleroderma?

Scleroderma aduru biara nni hɔ , nanso wo duruyɛfo betumi aboa wo ma woanya ayaresa ahorow a wɔaka abom a ebetumi aboa ma woadi wo sɛnkyerɛnne ahorow so na ama nkɛntɛnso a enya wɔ wo da biara da asetra so no ayɛ ketewaa bi.

Ayaresa ko a wuhia no gyina baabi a wo yare no ho sɛnkyerɛnne no wɔ ne sɛnea emu yɛ den no so. Ayaresa a wɔtaa de sa scleroderma no bi ni:

• Wo honam ani ayaresa: Ɛho behia sɛ wode nnuru a wɔde yɛ honam ani hwɛbea ne nnuru a ɛma wo honam ani yɛ hyew di dwuma na ama wo honam ani anyɛ yiye.
• Nnuru a ɛma nipadua no tumi ko tia nyarewa: Saa nnuru yi mma wo nipadua mu tumi a ɛko tia nyarewa no nsɛe nkwammoaa ne ntini a ɛte apɔw.
• Nnuru a wɔde siw sɛnkyerɛnne pɔtee bi so: Sɛ nhwɛso no, ebia ebehia sɛ wonom nnuru a ɛbɛma wo mogya so atew, ama home ayɛ mmerɛw, adi asaabo a entumi nyɛ adwuma yiye ho dwuma, anaasɛ wobɛma aduan mu yare no ano abrɛ ase.
• Apɔw-mu-teɛteɛ: Apɔw-mu-teɛteɛ ho ɔbenfo betumi aboa wo ma wo nipadua mu kankyee atu mpɔn.
• Phototherapy: Nea ɛka eyi ho ne hann a ɛhyerɛn na ɛtwe adwene si ultraviolet (UV) a wɔde sa honam ani tebea horow. Eyi betumi aboa ma wɔasa honam ani a ɛyɛ den.
• Nkwammoaa a wɔde si ananmu: Ebia nnipa binom a wɔwɔ yare no ho sɛnkyerɛnne a emu yɛ den no behia sɛ wɔde ntini mu nkwammoaa si ananmu. Nea ɛka eyi ho ne sɛ wɔde nkwammoaa a wɔde ma a ɛte apɔw besi mogya nkwammoaa a asɛe ananmu.

Sɛ mewɔ Scleroderma a, dɛn na ɛsɛ sɛ mehwɛ kwan?

Ɛsɛ sɛ wohwɛ kwan sɛ wubedi scleroderma ne ne sɛnkyerɛnne ahorow ho dwuma wo nkwa nna nyinaa . Ɛwom sɛ wonni aduru biara a ɛbɛtra hɔ daa de, nanso nnipa pii nya ayaresa ne asetra mu nsakrae a ebetumi atew nkɛntɛnso a wɔn yare no ho sɛnkyerɛnne nya wɔ wɔn da biara da asetra so no so.

Sɛ wo ne yare a ɛkyɛ a wobɛtra ase a, ɛtɔ mmere bi a, ebetumi ayɛ abasamtu kɛse. Bisa wo duruyɛfo no mmoa akuw anaa nhomasua hokwan ahorow a ɛbɛboa wo ma woadi w’adwennwen ne w’adwene akwahosan ho dwuma ho asɛm.

So wobetumi asiw Scleroderma ano?

Esiane sɛ wonnim nea ɛde ba ankasa nti, ɔkwan biara nni hɔ a wɔbɛfa so asiw scleroderma ano .

Mɛyɛ dɛn ahwɛ me ho? (Ne ho a wɔhwɛ) .

Wɔ ayaresa a wotaa de di dwuma akyi no, ebia wubetumi adi sɛnkyerɛnne ahorow bi ho dwuma denam nsakrae bi a wobɛyɛ wɔ wo da biara da asetra mu no so. Eyinom bi ne:

• Aduan pa ne apɔw-mu-teɛteɛ nhyehyɛe a ɛfata wo a wubedi akyi.
• Kwati apɔw-mu-teɛteɛ a emu yɛ den bere a wo ho nyɛ wo den no.
• Bɔ wo honam ani ho ban denam ntade a ɛfata a wobɛhyɛ ne nneɛma a ɛbɔ wo ho ban fi owia ho a ɛyɛ papa a wode bɛhyɛ wo ho bere a worekɔ abɔnten no so.
• Kɔ nsensan ho oduruyɛfo (ɔhwɛfo a ɔhwɛ sẽ) nkyɛn kɔhohoro wo sẽ daa na ɔnkɔhwɛ wo.

Bere bɛn na ɛsɛ sɛ mekɔ me duruyɛfo nkyɛn?

Scleroderma tumi de yare no ho sɛnkyerɛnne ahorow ba, enti ɛtɔ mmere bi a ebetumi ayɛ den sɛ wubehu mfiase no. Sɛ wote ɛyaw foforo anaa sɛnkyerɛnne afoforo, titiriw sɛ ɛyɛ kɛse a, kɔ oduruyɛfo nkyɛn. Sɛ biribi foforo na ɛde wo sɛnkyerɛnne ahorow no ba mpo a, wo duruyɛfo betumi ahu nea ɛde ba na ɔkamfo ayaresa ahorow a wɔde bedi so.

Sɛ ɛte sɛ nea wo scleroderma ayaresa no ntumi nyɛ adwuma yiye, anaasɛ wo sɛnkyerɛnne no sesa anaasɛ ɛyɛ kɛse – titiriw sɛ ɛka wo tumi a wode bɛhome anaa wobɛmene ade a – wo ne wo duruyɛfo nkasa.

Bere bɛn na ɛsɛ sɛ mekɔ Emergency Treatment Unit (ETU) ?

Sɛ wowɔ komayare ho sɛnkyerɛnne , te sɛ wo koko mu yaw, ɛyɛ den sɛ wobɛhome, anaasɛ wote nka sɛ wuntumi nmene a, frɛ 911 (anaa wo mpɔtam hɔ nɔma a egye ntɛmpɛ) ntɛm ara, anaa kɔ ayaresabea dwumadibea a wɔhwɛ ntɛmpɛ so.

Nsɛm bɛn na ɛsɛ sɛ mibisa me duruyɛfo?

Mma wo werɛ mmfi sɛ wubebisa nsɛm yi bere a worekɔ oduruyɛfo nkyɛn no:

• So mewɔ Scleroderma anaa yare foforo?
• Scleroderma bɛn na mewɔ?
• Ayaresa bɛn na mihia?
• Nsɛnnennen bɛn na ɛsɛ sɛ mehwɛ so titiriw?

Dɛn ne obi a ɔwɔ Scleroderma nkwa nna?

Nnipa dodow no ara a wɔwɔ scleroderma no nnya nsɛnnennen a ɛde wɔn nkwa to asiane mu .

Nanso, sɛ wowɔ systemic sclerosis a ɛka akwaa a ɛwɔ wo mu no a, asiane kɛse wom sɛ wubenya nsɛnnennen a emu yɛ den. Wo duruyɛfo bɛkyerɛ wo nea ɛsɛ sɛ wohwɛ kwan ne sɛ ebia wowɔ asiane kɛse mu sɛ wubenya ɔhaw ahorow a edi awu anaa.

So Scleroderma yɛ yare a emu yɛ den?

Te sɛ yare biara a enni sabea no, scleroderma yɛ tebea a ɛho hia na emu yɛ den.. Nea enti a ɛte saa ne sɛ ɛda adi sɛ ɛsɛ sɛ wudi sɛnkyerɛnne ahorow no ho dwuma wo nkwa nna nyinaa. Nanso, ɛno nkyerɛ sɛ Scleroderma bedi w’asetra so. Ɛsono obiara suahu. Wo ne wo duruyɛfo nkasa fa wo suro, w’adwenem naayɛ, ne nneɛma a ɛhaw wo ho.

Scleroderma betumi ayɛ tebea a ɛyɛ abasamtu kɛse sɛ wobɛtra ase. Esiane sɛ nnuruyɛfo nnim nea ɛde ba ankasa na ayaresa biara nni hɔ a ɛfata obiara nti, ebetumi agye bere kakra ansa na woanya ayaresa a ebetumi adi wo sɛnkyerɛnne ahorow so yiye. Wo duruyɛfo bɛboa wo wɔ anammɔn biara a wobɛtu.

Fa wo ho to wo gut feeling so, na fa wo ho to nea wote nka sɛ ‘ɛnyɛ papa’ so. Nsakrae ketewaa bi a ɛba sɛnkyerɛnne ahorow mu mpo betumi ayɛ ɔhaw bi a ɛsɛ sɛ wo duruyɛfo hwɛ mu ho sɛnkyerɛnne. Nsuro sɛ wubebisa nsɛm na woaka w’adwene wɔ wo sɛnkyerɛnne anaa ayaresa ho.

Sɛ́ wo ne yare a enni sabea bɛtra ase no betumi ayɛ ɔbrɛ kɛse. Gye bere fa obu ne agyede bi ma wo ho wɔ adwumaden a wode di wo sɛnkyerɛnne ahorow ho dwuma no ho.

Nneɛma bi a ɛho hia a ɛsɛ sɛ wokae (Take-Home Message) .

Okay, yɛaka Scleroderma ho asɛm pii seesei. Sɛ yɛde rewie a, nneɛma a ɛho hia paa a ɛsɛ sɛ wokae no bi ni:

• Scleroderma yɛ yare a ɛntaa nsi a nipadua no tumi ko tia nyarewa a nipadua no yɛ collagen pii dodo, na ɛma honam ani ne ɛtɔ mmere bi a emu akwaa yɛ den.
• Eyi ahorow atitiriw abien na ɛwɔ hɔ: nea ɛwɔ mpɔtam hɔ ne nea ɛwɔ nhyehyɛe mu. Systemic type no yɛ nea asiane wom kakra efisɛ ebetumi aka akwaa a ɛwɔ nipadua no mu nso.
• Ɛsono sɛnea yare no ho sɛnkyerɛnne. Nea ɛka ho ne honam ani a ɛyɛ den, nkwaa mu yaw, ɔbrɛ, ne Raynaud yare.
• Ɛwom sɛ wonni aduru biara a ɛbɛtra hɔ daa de, nanso ayaresa a etu mpɔn wɔ hɔ a wɔde siw yare no ho sɛnkyerɛnne ahorow ano. Wo ne wo duruyɛfo nkasa na yɛ ayaresa nhyehyɛe a ɛbɛyɛ adwuma ama wo.
• Ɛho hia paa sɛ wubehu yare no ntɛm na woasa wo yare, enti sɛ wowɔ saa sɛnkyerɛnne ahorow yi bi a, hwɛ hu sɛ wobɛhwehwɛ aduruyɛfo afotu.
• Esiane sɛ eyi yɛ tebea a ɛtra hɔ kyɛ nti, ɛho hia sɛ yɛkɔ so yɛ den wɔ adwene mu. Sɛ ɛho hia a, hwehwɛ mmoa fi akuw a wɔboa no hɔ.

Mma ɛnhaw wo, ɛnyɛ wo nko ara. Sɛ wunya nimdeɛ a ɛfata ne aduruyɛ mu afotu a, wubetumi ne tebea yi atra ase yiye.

` Scleroderma, Scleroderma, Wora a ɛyɛ den, Nyarewa a ɛma nipadua no tumi ko tia nyarewa, Collagen, Raynaud yare, Systemic sclerosis, Honam ani nyarewa