So worenya nsensanee kɔkɔɔ, ɛtɔ mmere bi a ɛyɛ kurukuruwa wɔ wo kɔn, wo moma so, w’akyi, anaa wo nsa so? So wɔyɛ nwansena, nwansena, na wɔn ho yɛ nwunu? Nnipa pii haw wɔ tebea yi ho. Ɛyɛ ade a ɛfata sɛ wubesusuw sɛ ebia ɛyɛ honam ani yare a ɛtaa ba ara kwa anaasɛ biribi a anibere wom kɛse. Ɛnnɛ, yɛbɛka Subacute Cutaneous Lupus Erythematosus, anaa SCLE tiawa, lupus bi a ɛka honam ani nkutoo ho asɛm. Sɛ wuhu eyi yiye wie a, ɛbɛyɛ mmerɛw kɛse ama wo sɛ wubedi tebea yi ho dwuma.
Sɛ yɛbɛka no tiawa a, dɛn ne SCLE?
Okay, momma yɛnka eyi tiawa. SCLE yɛ tebea bi a ɛka nyarewa kuw bi a wɔfrɛ no lupus ho, na ɛka honam ani titiriw. Lupus yɛ yare a ɛba esiane ɔhaw bi a ɛwɔ yɛn nipadua mu tumi a ɛko tia nyarewa no mu nti. Mpɛn pii no, yɛn nipadua mu tumi a ɛko tia nyarewa no ko tia mmoawa a wɔde nyarewa ba. Nanso wɔ tebea te sɛ lupus mu no, nhyehyɛe yi di mfomso fi ase tow hyɛ yɛn ankasa nkwammoaa a ɛte apɔw so.
SCLE yɛ lupus bi a ɛka honam ani. Nnuruyɛfo frɛ no Cutaneous Lupus Erythematosus (CLE). Asɛmfua "Subacute" kyerɛ ɔfe ko a wohu wɔ honam ani nipadua mu nhwehwɛmu mu, a ɛyɛ honam ani fã ketewaa bi a wɔfa na wɔhwehwɛ mu.
Nea ɛho hia no, nnipa a wɔwɔ SCLE no mu bɛyɛ fã nso wɔ lupus tebea a abu so kɛse, Systemic Lupus Erythematosus, anaa SLE . SLE yɛ tebea a ɛnyɛ honam ani nko na ebetumi aka, na mmom emu akwaa te sɛ asaabo, koma, ne amemene nso. Enti ɛho hia sɛ wo ne oduruyɛfo kasa sɛ wowɔ SCLE ho sɛnkyerɛnne ahorow a.
Ɔkwan a yare yi fa so ka obiara no betumi ayɛ soronko, enti ebetumi ayɛ den kakra sɛ wobehu. Nea ɛho hia paa ne sɛ wobɛhwehwɛ oduruyɛfo a obetie wo na wanya ayaresa a ɛfata ama wo.
Dɛn ne SCLE ahorow atitiriw?
Yebetumi ahu SCLE wɔ akwan titiriw abien so. Eyinom abien nyinaa hwɛbea yɛ soronko kakra. Ma yɛnhwɛ nea wɔyɛ.
| SCLE type | Sɛnea ɛte ne ne su |
|---|---|
| Annular SCLE a ɛyɛ ahinanan | Saa honam ani tebea yi ma honam ani nsensanee kɔkɔɔ, nsensanee, kurukuruwa, anaa nkatabo (plaques) pue wɔ honam ani. Saa nsensanee yi taa pue wɔ mmeae a owia bɔ no. Sɛ saa nsensanee yi sa wie a, honam ani a ɛwɔ saa mmeae no betumi ayɛ mmerɛw kakra. Nnuruyɛfo frɛ eyi hypopigmentation . |
| Papulosquamous SCLE a ɛwɔ nipadua no mu | Saa honam ani akisikuru yi yɛ nea ɛda adi wɔ honam ani akisikuru nketenkete ne akisikuru a ɛyɛ mmerɛw a wɔaka abom. Sɛ wohwɛ a, ebetumi ayɛ te sɛ eczema anaa psoriasis. Owia hann titiriw na ɛma saa ɔkwan yi nso yɛ kɛse . |
Dɛn ne SCLE ho sɛnkyerɛnne ahorow?
SCLE ho sɛnkyerɛnne titiriw ne honam ani akisikuru. Wɔtaa hu eyinom wɔ wo nipadua no afã horow a mpɛn pii no owia bɔ te sɛ wo kɔn, wo koko, w’akyi, ne wo nsateaa so.
Saa ɔsɛe yi betumi ayɛ te sɛ eyi:
- Nsonsonoe a ɛyɛ kɔkɔɔ, ɛte sɛ mprɛte, ɛyɛ kurukuruwa. Ɛtɔ mmere bi a, saa nkaa yi tumi bata wɔn ho wɔn ho ho na ɛte sɛ nsusuwso kɛse bi.
- Wora a ɛyɛ kɔkɔɔ, ɛyɛ mmerɛw, ɛyɛ dry, scaly. Eyi taa yɛ te sɛ psoriasis.
Nea eye sen biara ne sɛ, mpɛn pii no, saa nsensanee yi nnyɛ wo yaw anaasɛ ennyaw akuru . Nanso, ebia honam ani kɔla bɛkɔ so asakra bere a nsensanee no asa akyi.
Nneɛma bɛn na ɛma SCLE nya nkɔso?
Ɛyɛ den sɛ wobɛkyerɛ ade biako pɛ a ɛde SCLE ba. Ɛyɛ asɛm a emu yɛ den. Nhwehwɛmufo gye di sɛ nneɛma pii bom na ɛde ba.
- Awosu mu nneɛma: Eyi kyerɛ sɛ ebia awosu mu abusuabɔ bi wɔ hɔ. Sɛ obi a ɔwɔ w’abusua mu wɔ lupus a, ebia wo nso wobɛkɔ asiane mu.
- Nneɛma a atwa yɛn ho ahyia: Eyinom mu nea ɛho hia sen biara ne ultraviolet radiation , a ɛyɛ owia hann. Nea ɛka ho no, wogye di sɛ nneɛma te sɛ tawa a wɔnom ne nnuru a wɔde kum mmoawa nso betumi anya nkɛntɛnso.
- Nnuru bi: Nnipa a wɔwɔ SCLE no mu bɛyɛ nkyem abiɛsa mu biako nya tebea no bere a wɔanom nnuru bi akyi. Wɔfrɛ eyi "Nnuru a wɔde ma SCLE."
| Nnuru bi a ebetumi ama obi anya SCLE |
|---|
| Nnuru a wɔde ko tia fungal |
| Nnuru bi a wɔde ko tia akisikuru |
| Mogya mmoroso nnuru bi, sɛ nhwɛso no, nnuru a esiw ACE ano |
| Nnuru a wɔde sa yare |
| Nnuru bi a wɔde sa yafunu mu yare (Proton pump inhibitors - PPIs) . |
| Nnuru bi a wɔde sa nyarewa te sɛ ntini mu yare (tumor necrosis factor inhibitors) . |
Hena na ɔwɔ asiane kɛse mu sɛ obenya SCLE?
- Ɛtaa ba mmea so sen mmarima.
- Wɔtaa hu no kɛse wɔ nnipa a wɔadi fi mfe 40 kosi 60 so .
- Ɛwom sɛ ɛtaa ba aborɔfo mu de, nanso tebea yi betumi aba nnipa a wofi abusuakuw biara mu.
Yare no a wobehu na wɔasa
Sɛ wowɔ saa sɛnkyerɛnne ahorow yi a, ade a edi kan a ɛsɛ sɛ woyɛ ne sɛ wobɛkɔ oduruyɛfo nkyɛn. Ebia wɔde wo bɛkɔ honam ani yare ho oduruyɛfo anaa ntini mu yare ho oduruyɛfo nkyɛn.
Ɔkwan bɛn so na wobetumi ahu yare no?
Oduruyɛfo no bɛhwɛ wo honam ani na wabisa wo wo yare no ho sɛnkyerɛnne. Afei wobetumi ayɛ nhwehwɛmu ahorow a edidi so yi de akyerɛ sɛ wɔahu yare no:
- Wo honam ani nipadua mu nhwehwɛmu: Eyi hwehwɛ sɛ wugye honam ani hwɛbea ketewaa bi fi akisikuru bi a ɛwɔ wo honam ani mu wɔ aduru a wɔde kum nipadua no mu na wode afiri a wɔde hwɛ nneɛma nketenkete hwehwɛ mu. Eyi betumi aboa ma wɔahu sɛ ebia SCLE anaa honam ani yare foforo na ɛde akisikuru no ba.
- Mogya mu nhwehwɛmu: Wobetumi ayɛ mogya mu nhwehwɛmu pii.
- Mogya dodow a wɔde ma a edi mũ (CBC) .
- Sed rate (ESR) ne C-reactive protein (CRP) - Eyinom hwɛ sɛ ɔfe wɔ nipadua no mu anaa.
- Antinuclear antibody (ANA) sɔhwɛ: Eyi yɛ sɔhwɛ a ɛho hia yiye wɔ lupus a wobehu mu.
- Asaabo ne Mmɛn dwumadi ho nhwehwɛmu
- Nsu mu nhwehwɛmu
Ɔkwan bɛn so na wɔsa SCLE?
Ade a ɛho hia sen biara na edi kan wɔ SCLE ayaresa mu ne owia ahobammɔ , efisɛ owia hann ne ade titiriw a ɛma yare yi mu yɛ den.
Bio nso, wo duruyɛfo betumi akamfo aduru a wɔde gu nipadua no so anaa nnuru a wɔnom akyerɛ wo a egyina sɛnea wo sɛnkyerɛnne ahorow no mu yɛ den so.
| Ayaresa no su | Nhwɛso ahorow (wɔ aduruyɛ mu aduruyɛ nkutoo so) . |
|---|---|
| Steroid a wɔde gu nipadua no so | Nsu mu aduru, Triamcinolone, Clobetasol |
| Nnuru afoforo a wɔde hyɛ honam ani (Topical calcineurin inhibitors) . | Tacrolimus, Pimecrolimus a ɛyɛ aduru a wɔfrɛ no Pimecrolimus |
| Nnuru a wɔnom de ko tia asramma | Hydroxychloroquine, Kloroquine a wɔde yɛ aduru |
| Nnuru a wɔnom a ɛma nipadua no tumi ko tia nyarewa | Methotrexate, Azathioprine a wɔde di dwuma |
| Nnuru ahorow afoforo | Dapsone, Retinoids, Nnuru a ɛko tia nyarewa a wɔfrɛ no monoclonal (IVIG, Rituximab) . |
Kɔkɔbɔ: Mfa nnuru yi mu biara nni dwuma a wunni aduruyɛfo afotu. Wo duruyɛfo nkutoo na obetumi akyerɛ ayaresa a eye sen biara ama wo.
Ɔkwan bɛn so na wobɛtra ase ne SCLE?
SCLE yɛ yare a ɛba obi nkwa nna nyinaa (enni sabea). Eyi kyerɛ sɛ ɛtɔ mmere bi a, yare no ho sɛnkyerɛnne betumi akɔ soro na ɛtɔ mmere bi a ɛso atew. Nanso, wotumi di so yiye na wubetumi abɔ bra sɛnea ɛsɛ.
Owia ahobammɔ yɛ nea edi kan!
Eyi ne ade a ɛho hia sen biara a wubetumi ayɛ.
- Fa aduru a ɛbɔ wo ho ban fi owia ho a ɛtrɛw a SPF 50 anaa nea ɛboro saa di dwuma da biara bere a worekɔ owia mu no . Eyi yɛ ade a ɛsɛ sɛ wɔyɛ, wɔ nna a mununkum wɔ hɔ mpo mu.
- Kwati owia a ano yɛ den wɔ anɔpa 10 ne awia 4 ntam.
- Sɛ worepue akɔ owia mu a, hyɛ ntade a ɛbɔ wo ho ban fi owia ho, te sɛ kyɛw a ɛtrɛw ne ntade a nsa tenten.
- Gyae mpa a wɔde hyɛ wo honam ani hwɛbea a wode bedi dwuma koraa.
Wo ho a wobɛhwɛ yiye nso yɛ aduru!
- Te yare no ase: Kenkan yare yi ho asɛm fi mmeae a wotumi de ho to so na kyerɛkyerɛ wo ho. Eyi bɛma woate nea ɛrekɔ so wɔ wo nipadua mu no ase yiye.
- Hwehwɛ oduruyɛfo a wowɔ ne mu ahotoso: Ebia ebehia sɛ wokɔ oduruyɛfo nkyɛn daa, enti kɔ so hwehwɛ ayaresa fi oduruyɛfo a otie wo na ɔte wo ase hɔ.
- Yɛ mmoa nhyehyɛe: Sɛ wo ne nnipa a wɔwɔ tebea a ɛte saa ara mu kasa na woka wo suahu ahorow a, ɛbɛma woanya adwene mu ahoɔden kɛse.
- Hwɛ wo ho so: Didi yiye, teɛteɛ w’apɔw mu, da yiye, na di adwennwen ho dwuma. Saa nneɛma yi bɛboa wo kɛse ma woadi yare no ho dwuma.
Esiane sɛ wowɔ SCLE na ɛsɛ sɛ wobɔ wo ho ban fi owia ho kɛse nti, ebia wubenya vitamin D a enni wo mu . Ɛyɛ papa sɛ wo ne wo duruyɛfo bɛkasa afa eyi ho na sɛ ɛho hia a, woanom vitamin D a wɔde ma.
Nkrasɛm a Wɔde Kɔ Fie
- SCLE yɛ nkwa nna nyinaa tebea a ɛka honam ani wɔ lupus mu.
- Nsɛnkyerɛnne titiriw ne sɛ ɛyɛ kɔkɔɔ, ɛte sɛ nkaa, anaa nsensanee wɔ honam ani a owia bɔ no so.
- Owia ho banbɔ ne ade a ɛho hia sen biara na edi kan a wɔde siw yare yi ano.
- Mpɛn pii no, saa nsensanee yi nnyɛ wo yaw anaasɛ ɛmma akuru mma, nanso ebetumi ama honam ani kɔla asakra.
- Sɛ wowɔ saa sɛnkyerɛnne ahorow yi a, mma wo ho nnpopo na kɔ oduruyɛfo nkyɛn ntɛm ara sɛnea wubetumi. Sɛ wosa wo yare na wodi ho dwuma yiye a, wubetumi atra ase sɛnea ɛsɛ.
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