Dɛn ne Sneddon Syndrome? So wowɔ nsensanee te sɛ eyi wɔ wo honam ani? Momma yɛnkasa!

So woahyɛ no nsow pɛn sɛ nnipa binom wɔ wɔn honam ani, ne titiriw no, wɔn akwaa, a ɛyɛ kɔkɔɔ wɔ ɔkwan a ɛte sɛ asau so? Ɛtɔ mmere bi nso a, wonwiinwii sɛ wɔn adwene mu yɛ wɔn naa na wɔn ti yɛ wɔn yaw. Ɛnnɛ yɛrebɛka tebea bi a ɛntaa nsi a ɛwɔ sɛnkyerɛnne a ɛte saa ara ho asɛm, nanso obiara nka ho asɛm pii. Wɔfrɛ eyi Sneddon Syndrome.

Dɛn ne Sneddon Syndrome? Sɛ yɛbɛka no tiawa a...

Sɛ yɛbɛka no tiawa a, Sneddon Syndrome yɛ yare a ɛka mogya ntini nketewa ne akɛse a ɛwɔ wo nipadua mu no. Fa no sɛ mogya ntini yi sɛ nsu afiri a ɛde nsu fa mu. Wɔ saa yare yi mu no, nkwammoaa a ɛyɛ torotoro a ɛwɔ wo mogya ntini mu a wɔfrɛ no aduruyɛ mu sɛ endothelium no nyin ntɛmntɛm na ɛdɔɔso sen sɛnea ɛsɛ sɛ ɛyɛ. Dɛn na ɛba saa bere no? Saa nkwammoaa a ɛboro so yi brɛ baabi a ɛwɔ mogya ntini no mu ase, te sɛ nea sɛ efĩ kɔhyɛ paipu mu a, ɛyɛ den sɛ nsu bɛsen. Eyi ma mogya no siw kwan.

Eyi yɛ tebea a ɛsɛ sɛ wɔhwɛ so kakra, efisɛ bere kɔ so no, ebetumi asɛe nkakrankakra. Nnipa a wɔwɔ saa tebea yi wɔ asiane kɛse mu sɛ mogya bɛtɔ wɔn. Wobetumi nso anya honam ani haw ne ntini mu nsɛm. Ɛtɔ mmere bi a wɔfrɛ no Sneddon-Champion syndrome. Edin foforo nso ne livedo reticularis racemosa. Saa tebea yi betumi ama nnipa binom anya akisikuru ne bere tiaa mu ischemic attacks (TIAs).

Saa tebea yi abu so dɛn? Henanom na abu so kɛse wɔ wɔn mu?

Nokwarem no, Sneddon Syndrome yɛ yare a ɛntaa nsi koraa. Akontaabu kyerɛ sɛ nnipa ɔpepem biako mu baanan pɛ na wonya bi afe biara. Ɛno yɛ bɛyɛ mpem ahanu ne fã biara mu biako.

Bio nso, tebea no abu so wɔ mmea so sen mmarima. Nnipa a wɔwɔ Sneddon syndrome no mu bɛyɛ 80% yɛ mmea. Mpɛn pii no, wohu sɛ wɔwɔ tebea no bere a wɔadi bɛyɛ mfe 40 no.

Dɛn ne eyi ho sɛnkyerɛnne? Woyɛ dɛn hu no?

Obi a ɔwɔ Sneddon Syndrome betumi anya yare no ho sɛnkyerɛnne ahorow. Nanso, ɛnyɛ saa sɛnkyerɛnne ahorow yi nyinaa na epue prɛko pɛ. Nsɛnkyerɛnne ahorow bi betumi ada adi wɔ mfe pii akyi bere a ntini mu haw ahorow afi ase no. Anaasɛ nnipa binom betumi adi kan anya aniwa mu haw anaa wɔn ti a ɛyɛ wɔn yaw. Nsɛnkyerɛnne no bi ni:

• Nhwɛso bi te sɛ ahama a ɛwɔ honam ani:Eyi ne sɛnkyerɛnne a edi kan a nnipa pii hu. Wora no nya nsensanee a ɛyɛ kɔkɔɔ a ɛyɛ kɔkɔɔ a ɛtoatoa so, te sɛ mpataa asau anaa nsusuwso a ɛwɔ awɔ binom so no. Eyi nyɛ yaw. Sɛ saa nsensanee yi pue wɔ wo nsa ne wo nan so, pue wɔ awɔw mu, na ɛyera bere a wo ho ayɛ wo hyew a, wɔfrɛ no livedo reticularis. Nanso, sɛ saa nhyehyɛe yi pue wɔ wo moma so, wo yafunu, anaa w’asen so, na ɛnyera bere a wo ho ayɛ wo hyew mpo a, wɔfrɛ no livedo racemosa.
• Tiyɛ: Tiyɛ a ɛtaa yɛ yaw, ɛtɔ mmere bi a emu yɛ den betumi aba.
• Adwene a ɛyɛ basaa: Nkate a ɛma obi twitwiw ne ho.
• Akisikuru ne TIA: Sɛnea yɛadi kan aka no, eyinom yɛ nea anibere wom sen biara no bi.
• Nsakrae a ɛba wo suban ne wo nsusuwii mu: Ebia nsakrae bɛba wo nipasu, sɛnea wususuw nneɛma ho, ne sɛnea wokae nneɛma no mu.
• Asaabo mu haw: Eyi ntaa mma kakra, nanso nnipa binom nso betumi anya asaabo mu haw.

Nea ɛho hia sen biara ne sɛ, sɛ wowɔ saa sɛnkyerɛnne ahorow yi mu biako anaa abien, titiriw sɛ wo ti yɛ wo yaw na wo ti yɛ wo yaw ka honam ani hwɛbea a ɛte sɛ ahama no ho a, akyinnye biara nni ho sɛ ɛsɛ sɛ wokɔ oduruyɛfo nkyɛn kɔhwehwɛ afotu.

Dɛn nti na Sneddon Syndrome ba? Dɛn na ɛde ba?

Eyi yɛ biribi a nnuruyɛfo da so ara ntumi nhu ankasa. Wonnya nhuu nea ɛde Sneddon Syndrome ba ankasa. Ɛno nti na wɔfrɛ no idiopathic, a ɛkyerɛ sɛ wonnim nea ɛde ba no. Nanso esiane sɛ wɔahu sɛ yare yi kɔ so wɔ mmusua bi mu nti, wosusuw sɛ ebia awosu mu ade bi wɔ hɔ .

Afei nso, wɔ tebea horow bi mu no, Sneddon yare no betumi ne tebea afoforo a nipadua no tumi ko tia nyarewa no ka ho . Yare a nipadua no tumi ko tia nyarewa yɛ tebea bi a yɛn nipadua mu tumi a ɛko tia nyarewa no tow hyɛ yɛn ankasa nipadua mu nkwammoaa so ara kwa. Sɛ wowɔ Sneddon syndrome a, ebia ɛne tebea horow a edidi so yi mu biako wɔ abusuabɔ:

• Lupus a ɛyɛ hu
• Antiphospholipid yare a ɛma obi nya ɔyare no
• Behçet yare no
• Ntini a ɛka bom yɛ adwuma a wɔadi afra

Ɔkwan bɛn so na wohu eyi? Sɔhwɛ ahorow bɛn na wɔyɛ?

Sɛ wo duruyɛfo susuw sɛ wowɔ Sneddon Syndrome a egyina wo sɛnkyerɛnne ahorow so a, wɔbɛhyɛ sɛ wɔnyɛ nhwehwɛmu ahorow pii. Saa sɔhwɛ ahorow yi bɛhwehwɛ:

• Wo mogya: Hwɛ sɛ ebia yare a nipadua no tumi ko tia nyarewa ne mogya a ɛtwetwe no ho haw ahorow bi wɔ hɔ anaa.
• Wo koma: Hwɛ sɛnea mogya nam wo koma ne wo mogya ntini mu.
• W’amemene: .Hwɛ sɛ amemene no asɛe anaa. Ebetumi afi ɔyare a ɛma obi hwe ase.
• Wo honam ani: Wɔfa honam ani fã ketewaa bi na wɔhwehwɛ mu (skin biopsy) hwɛ sɛ ebia nkwammoaa mu nsakrae bi wɔ hɔ a ɛyɛ yare yi su anaa.

Ebia nea ɛka sɔhwɛ ahorow yi ho ne mfoninitwa sɔhwɛ ahorow titiriw . Nhwɛsoɔ:

• MRI mfonini (magnetic resonance imaging - MRI mfonini) .
• CT scan `(kɔmputa so mfoninitwa - CT mfoninitwa)`
• Angiograms (X-ray titiriw bi a wɔde hwɛ sɛnea mogya ntini ahorow te) .

Nnuruyɛfo betumi asi yare yi so dua pɛpɛɛpɛ bere a wɔayɛ nhwehwɛmu yi nyinaa akyi nkutoo.

Ɔkwan bɛn so na wɔsa? (Ayaresa) Dɛn ne akwan horow a wobetumi afa so?

Wɔda so ara nte ɔkwan a eye sen biara a wɔfa so sa Sneddon Syndrome no ase yiye. Ade biako nti a ɛte saa ne sɛ nnipa kakraa bi na wɔwɔ tebea no araa ma ɛyɛ den sɛ wobenya nnipa a wɔdɔɔso a wɔbɛyɛ nnuruyɛ mu sɔhwɛ akɛse.

Nanso, ayaresa ahorow wɔ hɔ a wobetumi apaw a egyina yare no ho sɛnkyerɛnne so. Sɛ nhwɛso no, wo duruyɛfo betumi akyerɛw wo nnuru te sɛ:

• Nnuru a ɛko tia mogya a ɛtwetwe mogya anaasɛ ɛko tia mogya mu nkwammoaa a ɛma mogya tu: Eyinom mma mogya ntumi nkɔ na ɛma mogya no nkɔ ntɛmntɛm.
• Ntini a ɛtrɛw: Sɛ nhwɛso no, nifedipine. Eyinom trɛw mogya ntini mu na ɛma mogya no kɔ soro. Eyi taa ma ahotɔ fi honam ani yare no ho.
• Angiotensin-converting enzyme inhibitors (ACE inhibitors): Eyinom boa ma wogyae saa endothelial nkwammoaa a yɛadi kan aka ho asɛm no nyin a ɛnteɛ.

Nea ɛho hia: Sɛ wowɔ Sneddon syndrome a, ɛsɛ sɛ wokwati sigaretnom ne nnuru a wɔde siw awo ano a estrogen wom a wode bedi dwuma koraa. Eyinom betumi ama tebea no asɛe kɛse.

So ɔkwan bi wɔ hɔ a wɔbɛfa so asiw yare yi ano?

Nea ɛyɛ awerɛhow no, sɛ wogyina nsɛm a ɛwɔ hɔ mprempren so a, ɔkwan biara nni hɔ a wɔbɛfa so asiw Sneddon Syndrome ano. Esiane sɛ wonnim nea ɛde ba ankasa nti, ɛyɛ den sɛ yɛbɛka ɔkwan a wɔbɛfa so asiw ano.

Sɛ tebea yi kɔ so a, dɛn na ɛbɛba? (Nkɔmhyɛ) Dɛn na yebetumi ahwɛ kwan daakye?

Mpɛn pii no, Sneddon Syndrome ma nsakrae ba ntini ahorow mu. Sɛ nhwɛso no , bere a bere kɔ so no, obi betumi akae ade na ayɛ den sɛ ɔbɛkasa. Wɔ tebea horow bi mu no, wobetumi ahu nso sɛ nnipa a wɔwɔ Sneddon Syndrome no anya adwenemhaw a efi ase ntɛm. Ɛno nti na ɛho hia sɛ wohu saa sɛnkyerɛnne ahorow yi.

So aduru a edi mũ wɔ hɔ?

Sɛnea aduruyɛ ho nsɛm a ɛwɔ hɔ mprempren kyerɛ no, Sneddon SyndromeWɔnnya nhuu ``aduru'' a edi mũ. Ayaresa ahorow no botae ne sɛ wobedi yare no ho sɛnkyerɛnne ahorow so na wɔabɔ mmɔden sɛ wobesiw yare no ano na ansɛe.

Bere bɛn na ɛsɛ sɛ wohwehwɛ aduruyɛ mu afotu?

Sɛ wowɔ Sneddon Syndrome ho sɛnkyerɛnne te sɛ honam ani hwɛbea a ɛte sɛ ahama, tiyɛ, ne adwenemhaw a, kɔ oduruyɛfo nkyɛn ntɛm ara. Mma nkyɛ, titiriw sɛ wowɔ sɛnkyerɛnne afoforo ka honam ani nsensanee no ho a.

Sɛ wɔahu sɛ wowɔ Sneddon yare no dedaw, sɛ wunya sɛnkyerɛnne foforo, anaasɛ wote nka sɛ wo sɛnkyerɛnne no reyɛ kɛse a, ka kyerɛ wo duruyɛfo ntɛm ara.

Afei nso, sɛ wunya akisikuru ho sɛnkyerɛnne biara a, ntwentwɛn wo nan ase. Frɛ 911 ntɛm ara (wɔ Sri Lanka, 1990 Suwaseriya Ambulance Service) anaa kɔ ayaresabea dwumadibea a ɛbɛn hɔ a wɔhwɛ ntɛmpɛ so. Nsɛnkyerɛnne a ɛkyerɛ sɛ obi anya ɔyare a ɛma obi hwe ase no betumi ayɛ:

• Tiyɛ a emu yɛ den mpofirim.
• Aniwa mu haw ahorow (te sɛ aniwa biako a ɛyera, abien no nyinaa a ɛyɛ kusuu).
• Nipadua no fã biako anaa abien no nyinaa a ɛyɛ mmerɛw anaasɛ ɛyɛ mmerɛw.
• Ɛyɛ den sɛ wobɛnantew.
• Ɛyɛ den sɛ wobɛkasa anaa wobɛte nea afoforo reka ase.

Nea etwa to no, nneɛma a ɛsɛ sɛ wokae (Take-Home Message) .

Sneddon Syndrome yɛ tebea a ɛntaa nsi na ebetumi ayɛ nea emu yɛ den. However, if you are diagnosed with this condition, follow your doctor's instructions carefully. Nom w’aduru no bere ano, di wo bere a wode bedi akyi no so, na mma sɔhwɛ nhyehyɛe biara nmpa wo ti so.

Wubetumi aboa wo ho denam asetra kwan a ɛma koma pa a wobɛfa so. Ɛno kyerɛ sɛ wubedi aduan a ɛkari pɛ, ateɛteɛ w’apɔw mu, na woakwati sigaretnom ne awo ano aduru a estrogen wom. Saa nneɛma yi betumi aboa kɛse ma woadi wo tebea no so. Mma ɛnhaw wo, wubetumi ne tebea yi atra ase denam ayaresa a ɛfata ne asetra mu nsakrae so.

` Sneddon syndrome, mogya ntini mu yare, honam ani nsensanee, ɔyare a ɛma obi hwe ase, ntini mu yare, livedo reticularis, mogya a ɛtɔ