Yala aw delila ka neuromyelitis optica , walima NMO ko mɛn i n’a fɔ an b’a wele cogo min na a surunyalen na wa? N’a sɔrɔ o tɛ. Sabula a tɛ bana ye min ka ca diɲɛ kɔnɔ kosɛbɛ. Nka bana jugumanba don min bɛ se ka nɔ bila an ɲɛ na ani kɔkolo la. O la, a nafa ka bon kosɛbɛ ka nin ko in dɔn. Bi, an bɛna kuma o kan cogo nɔgɔman na, i bɛ se ka min faamu.
N’an y’a fɔ cogo nɔgɔman na, NMO ye mun ye?
NMO tɔgɔ damadɔ wɛrɛw bɛ yen. Dɔw b’a wele ko Neuromyelitis Optica Spectrum Disorder (NMOSD), dɔw b’a wele ko Devic ka bana. Nin ye ko kabakoma ye min bɛ kɛ. An farikolo tangalan, n’o ye farikolo tangalan ye, o bɛ fili k’a daminɛ ka bin an yɛrɛ ka farikolokisɛ kɛnɛmanw kan. A bɛ iko an yɛrɛ ka kɛlɛbolo bɛ bin an yɛrɛ ka jamana kan. O binkanni in bɛ an ka cɛmancɛ-farikolo yɔrɔ fla de Laɲini kosɛbɛ: ɲɛnayeli-yɔrɔ min bɛ kunnafoniw Bɔ ɲɛ na ka Taa kùnkolo la, ani kɔkolo-yɔrɔ min bɛ Bɔ kɔkolo la.
Nin bana in bɛ se ka sɔrɔ cogoba fila la:
1. NMO monophasic : O la, bana taamasiɲɛw bɛ bɔ yɔrɔnin kelen tile walima dɔgɔkun caman kɔnɔ, ka ban binkanni kelen kɔnɔ.
2. NMO min bɛ segin ka kɛ : Nin ye suguya ye min ka teli ka kɛ. Yan, bana taamasiɲɛw bɛ bɔ kɛnɛ kan ani u bɛ nɔgɔya waati dɔ kɔnɔ. Nka o kɔfɛ, kalo caman walima san caman yɛrɛ o kɔfɛ, binkanni wɛrɛ bɛ se ka kɛ. A taamasiɲɛw bɛ se ka juguya ni binkanni kelen-kelen bɛɛ ye.
Hali ni suguya fɔlɔ bɛ se ka cɛw ni musow bɛɛ minɛ, suguya filanan, walima NMO min bɛ segin ka kɛ, o ka ca musow la ka tɛmɛ cɛw kan. A bɛ se ka denmisɛnni fitiniw fana minɛ.
NMO taamasiɲɛw ye mun ye?
NMO taamasiɲɛw bɛ don kuluba fila la. Ni ninnu dɔ bɛ aw la, a nafa ka bon kosɛbɛ ka taa dɔgɔtɔrɔso la joona.
| Dɔgɔtɔrɔso cogoya | Ɲɛfɔli ni a taamasiɲɛw |
|---|---|
| Ɲɛkisɛw ka sɔgɔsɔgɔninjɛ | O ye waati ye ɲɛkisɛ min bɛ ɲɛkisɛ la, o bɛ funu. aw bɛ se ka dimi gɛlɛn dɔ sɔrɔ aw ɲɛ kɔnɔ yɔrɔnin kelen . O bɛ se ka kɛ sababu ye ka yeli kɛ ka ɲɛ, ani tuma dɔw la yɛrɛ ka yeli tunun pewu. A ka ca a la a bɛ ɲɛ kelen minɛ, nka a bɛ se ka ɲɛ fila bɛɛ minɛ tuma dɔw la. |
| Miyelitis transversale (miyɛli transversal) ye | O waati de la kɔkolo min bɛ kɔkolo la, o bɛ funu. O bɛ se ka kɛ sababu ye ka dimi bila mɔgɔ la, ka barika dɔgɔya, ka kɛ sababu ye ka bolow ni senkɔniw lajɔ . Aw bɛ se fana ka aw ka sugunɛ ni banakɔtaa kunbɛn. Ka fara o kan, taamasiɲɛw fana bɛ se ka kɛ i n’a fɔ kɔnɔboli, fɔɔnɔ, kirinni basigilen, kɔdimi, ani kungolodimi. |
Ni denmisɛnni fitiniw ye NMO sɔrɔ, u bɛ se ka taamasiɲɛ jugumanw jira i n’a fɔ u ka kɛwalew yeli, u hakili dɔgɔyali, kirinni, walima kɔma.
Yala NMO ni MS (Sclerose multiple) ye kelen ye wa?
Ayi, nin ye yɔrɔ ye mɔgɔ caman hakili bɛ ɲagami yɔrɔ min na. MS, n’o kɔrɔ ye ko Sclerose Multiple, o ye bana wɛrɛ ye min bɛ farikolo yɔrɔw degun, wa a bɛ sɔrɔ farikolo tangalanw ka baara fɛ. Fɔlɔ, dɔgɔtɔrɔw tun b’a miiri ko NMO ye MS suguya dɔ ye. Nka sisan, ɲininiw y’a jira ko nin bana fila ninnu tɛ kelen ye fewu.
O fɛn caman Changements dɔw filɛ nin ye :
| Fɛn | NMO (Neuromyélite Optique) (banakisɛfagalanw) . | MS (Sclérose multiple) . |
|---|---|---|
| Bana in daminɛ teliya | A ka ca a la, bana taamasiɲɛw bɛ teliya kosɛbɛ ani u ka jugu. | A ka ca a la, bana taamasiɲɛw bɛ bɔ dɔɔni dɔɔni, waati jan kɔnɔ. |
| Joli sɛgɛsɛgɛliw | Joli sɛgɛsɛgɛli kɛrɛnkɛrɛnnen dɔ bɛ yen (anticorps test) walasa ka NMO sɛgɛsɛgɛ. | Joli sɛgɛsɛgɛli kɛrɛnkɛrɛnnen si tɛ yen i n’a fɔ nin walasa ka MS sɛgɛsɛgɛ. |
| MRI scan (sɛgɛsɛgɛli) min bɛ kɛ ka ɲɛsin kunsɛmɛ ma | Bana daminɛ na, a bɛ se ka kɛ ko a bɛ kɛ i n’a fɔ a bɛ kɛ i n’a fɔ a bɛ kɛ cogo min na, a bɛ se ka kɛ ko a bɛ kɛ cogo min na. | MS la, a ka c’a la, fɛn dɔw bɛ yeli kɛ ni MRI sɛgɛsɛgɛliw ye kunsɛmɛ na. |
| Fɛn wɛrɛw | A taamasiɲɛw i n’a fɔ kɔnɔboli, fɔɔnɔ, ani sɔgɔsɔgɔninjɛ ka teli. | A ka ca a la, nin taamasiɲɛ ninnu tɛ ye MS la. |
Mun de bɛ NMO sababuya?
Tiɲɛ na, dɔgɔtɔrɔw t’a dɔn hali bi NMO sababu tigitigi. Dalilu si t’a la k’a bɛ bɔ mɔgɔw la ka taa mɔgɔw la. Nka fɛn kelen de jɛlen don. NMO bɛ mɔgɔ caman na, bana wɛrɛw bɛ u la minnu bɛ sɔrɔ farikolo tangalanw fɛ , walima u ka denbaya kɔnɔmɔgɔw bɛ o banaw sɔrɔ. N’an y’a fɔ cogo nɔgɔman na, o ye bana ye min na an farikolo tangalan, n’o ye farikolo tangalan ye, o bɛ fili ka bin an yɛrɛ ka farikolokisɛ kɛnɛmanw kan. Sukarodunbana (Jabɛti suguya fɔlɔ), sɔgɔsɔgɔninjɛ, sɔgɔsɔgɔninjɛ, ani vitiligo ye o bana suguw misali damadɔw ye.
Bana in bɛ dɔn cogo di?
Aw kɛlen kɔ ka aw ka bana taamasiɲɛw ɲininka, aw ka dɔgɔtɔrɔ bɛna aw sɛgɛsɛgɛ. O bɛna kɛ i ka miiri seko, i ka yeli, i ka kuma, i farikolo fanga ani i ka hakilijagabɔ kɛcogo kɔrɔbɔli ye.
Ka fara o kan, nin sɛgɛsɛgɛliw bɛ se ka kɛ fana:
- Joli sɛgɛsɛgɛli : NMO bɛ mɔgɔ minnu na, olu ka ca ni 70% ye, farikolojɔlifɛn kɛrɛnkɛrɛnnen dɔ bɛ u joli la , min bɛ wele ko anticorps . O bɛ se ka dɔn ni joli sɛgɛsɛgɛli ye.
- Kɔkololaji sɛgɛsɛgɛli : Tuma dɔw la, a bɛ se ka kɛ a ka kan ka ji ta kɔkolo la ka a sɛgɛsɛgɛ.
- MRI sɛgɛsɛgɛli: MRI ( resonance magnétique ) .) ye fɛɛrɛ ye min bɛ kɛ ni magɛnni belebeleba ni ɔridinatɛri ye walasa ka ja jɛlenw ta i farikolo kɔnɔna na. O bɛ se ka aw dɛmɛ ka a dɔn ni aw kɔkolo fununen don.
- Ɲɛ sɛgɛsɛgɛli : Aw bɛ se ka taa ɲɛdɔgɔtɔrɔ dɔ fɛ, o min bɛna sɛgɛsɛgɛli kɛrɛnkɛrɛnnenw kɛ i n’a fɔ OCT (Optical Coherence Tomography) walasa ka a lajɛ ni ɲɛnamini tiɲɛna.
NMO furakɛcogo jumɛnw bɛ yen?
O de ye yɔrɔ ye min nafa ka bon kosɛbɛ. Fura si ma sɔrɔ NMO la fɔlɔ. Nka furakɛli nafamaba dɔw bɛ yen minnu bɛ se ka dɛmɛ don ka bana taamasiɲɛw kunbɛn ani ka binkanni nataw bali.
- Kɔnɔboli furaw : Fura kura damadɔ bɛ yen minnu dabɔra kɔsa in na NMO kama. Eculizumab (Soliris), inebilizumab-cdon (Uplizna), ani satralizumab-mwge (Enspryng) ye fura ninnu dɔw ye. O fura ninnu bɛ baara kɛ ni farikolo tangalanw ye minnu bɛ bin an ka farikolokisɛ kɛnɛmanw kan, k’u bali ka baara kɛ. Ka fara o kan, dɔgɔtɔrɔ bɛ se ka fura wɛrɛw di aw ma minnu bɛ farikolo tangalanw bali.
- Stɛroyi : Stɛroyi furaw bɛ di walasa ka funu dɔgɔya farikolo la. A ka ca a la, olu bɛ di jolisira fɛ (IV).
- Plasma exchange: A bɛ fɔ fana ko plasmapheresis, o bɛ i n’a fɔ joli saniyalan. Masina kɛrɛnkɛrɛnnen dɔ bɛ joli-sira-funu ni aw joli fara ɲɔgɔn kan, farikolo tangalan jugumanw bɛ min na, ka o bɔ. O kɔ, a nɔnabila dɔ bɛ fara a kan ka joli saniyalen don kokura i fari la.
Take-Home cikan
- NMO ye bana ye min man teli ka sɔrɔ farikolo tangalanw fɛ, nka a ka jugu, a bɛ an ɲɛw ni kɔkolo minɛ.
- Ni aw ye taamasiɲɛ dɔw ye i n’a fɔ ɲɛdimi barikama, yelibaliya, fanga dɔgɔyali walima aw senw na, aw bɛ dɔgɔtɔrɔ ka ladilikan ɲini ka sɔrɔ aw ma mɛn.
- NMO ye bana ye min ni MS (Sclerose multiple) tɛ kelen ye. Joli sɛgɛsɛgɛli kɛrɛnkɛrɛnnen bɛ se ka o fila faranfasi.
- Hali ni a tɛ se ka kɛnɛya pewu, furakɛli nafamaba bɛ yen bi walasa ka bana taamasiɲɛw kunbɛn ani ka binkanni nataw bali.
- Ni aw walima aw dɔnbaga dɔ bɛ sigasiga walima ni ɲininkali dɔ bɛ aw la o ko la, aw bɛ kuma aw ka dɔgɔtɔrɔ fɛ kɛnɛ kan.
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