N’a sɔrɔ dɔgɔtɔrɔ y’a fɔ aw ye ko bana dɔ bɛ se ka kɛ aw la min bɛ wele ko myopathie. A bɛnnen don ɲininkali caman ka na i hakili la n’i y’o mɛn. Miyopati ye mun ye tigitigi? Yala o ye fɛn ye min ka kan ka siran wa? Yala furakɛli dɔ bɛ a la wa? An ka kuma o kan cogo nɔgɔman na ani cogo jɛlen na.
N’an y’a fɔ cogo nɔgɔman na, miyopati ye mun ye?
Miyopati ye tɔgɔ ye min bɛ fɔ bana kulu dɔ ma minnu bɛ an farikolo kolotugudaw degun . Nin bana ninnu bɛ farikolo yɔrɔw tiɲɛ ani ka u fanga dɔgɔya an fasaw la. Nin bana in bɛ se ka kɛ a bange waati walima a bɛ se ka kɛ kɔfɛ ɲɛnamaya kɔnɔ.
Sisan, i bɛ se k’i yɛrɛ ɲininka kolotugudaw ye mun ye. A ka nɔgɔn kosɛbɛ. Olu ye farikolo yɔrɔw ye minnu nɔrɔlen bɛ an kolotugudaw la ani an bɛ se ka minnu mara ani ka lamaga i n’a fɔ an b’a fɛ cogo min na. Miiri k’a filɛ, n’i ye bolo kɔrɔta, ka sen kɔrɔta, ka taama, ka kuma... nin kolotugudaw bɛ dɛmɛ don nin bɛɛ la. Fasa minnu ka ca an fari la, olu ye o sugu de ta ye. O la ni mikoropati dɔ kɛra, hali ka o don o don baara ninnu kɛ, o bɛ se ka gɛlɛya.
Miyopathie suguya jɔnjɔnw ye jumɛnw ye?
Miyopathies bɛ se ka tila kuluba fila ye: ciyɛntalenw ni sɔrɔlenw. An ka o suguw lajɛ u danma.
| Miyopati suguya | Ɲɛfɔli nɔgɔman dɔ |
|---|---|
| 1. Miyopathies ciyɛntalenw Sugu minnu bɛ ciyɛn ta bangebagaw fɛ jamu jiginni fɛ. | |
| Miyɔpati bangenenw | A ka ca a la, ninnu bɛ kɛ i n’a fɔ taamasiɲɛw denyɛrɛnin walima denmisɛnni na. Farikoloɲɛnajɛ seko i n’a fɔ sɔgɔsɔgɔninjɛ ni taama bɛ se ka to kɔfɛ. A ka ca a la farikolo kolotugudaw bɛɛ bɛ tɔɔrɔ, wa a bana tɛ juguya waati tɛmɛnen kɔfɛ. |
| Mitokondriyaw ka miyɔpathies | A bɛ sɔrɔ fiɲɛw fɛ mitokondriyaw la, an ka farikolokisɛw ka "fanga-yɔrɔw" minnu bɛ fanga Bɔ. Ka fara farikolo fanga dɔgɔyali kan, a bɛ se ka nɔ bila dusukun, kunsɛmɛ ani dumunikɛminɛnw fana na. misaliw ye Kearns-Sayre ka bana ye , MELAS ani MERRF . |
| Farikolo-ɲɛnajɛw (Dystrophies Musculaire). | O cogo la, farikolo fanga dɔgɔyali bɛ bonya dɔɔni dɔɔni waati tɛmɛnen kɔfɛ. Nin bana in bɛ sɔrɔ farikolo yɔrɔw tiɲɛni fɛ ka a sababu kɛ farikolojɔli dumuniw nafamafɛnw ye minnu bɛ farikolo yɔrɔw dɛmɛ. |
| Farikoloɲɛnajɛw (Myopathies) minnu bɛ sɔrɔ farikolo la | Nin ye bana ye min na farikolo fanga barika bɛ barika sɔrɔ farikoloɲɛnajɛ walima farikolo degun waati. O bana in bɛ sɔrɔ farikolojɔlifɛnw na minnu bɛ anzimu dɔw dilan. |
| 2. Miyopathies (miopathies acquises) (miopathies acquises). Sugu minnu bɛ sɔrɔ kɔfɛ ɲɛnamaya kɔnɔ ka da kɛnɛyako sababuw kan. | |
| Miyopati autoimmune/Inflammatoire | A bɛ sɔrɔ gɛlɛya dɔ fɛ an yɛrɛ ka farikolo tangacogo la min bɛ bin farikolo yɔrɔw kan. |
| Miyopati toxic (Myopathie toxic) (miopathie toxic). | A bɛ se ka sɔrɔ baga dɔw fɛ (misali la, dɔlɔmin kojugu) walima fura dɔw. |
| Miyopati endocrine (Miyopati endocrinie) ye | U bɛ sɔrɔ gɛlɛyaw fɛ endocrine system (banakisɛfagalanw) la, o min bɛ hormones (hormones) kɔlɔsi an farikolo la. Olu bɛ se ka sɔrɔ sɔgɔsɔgɔninjɛ walima sugunɛbaralabanaw fɛ. |
| Miyopati banakisɛ bɛ sɔrɔ | Farikolo fanga dɔgɔyali ka a sababu kɛ banakisɛ, banakisɛ, paraziti walima ɲɛgɛnɛsiraw ka bana ye. |
| Bana jugumanba miyɔpati min bɛ furakɛli gɛlɛnw yɔrɔ la | A bɛ se ka kɛ furakɛli waati la dɔgɔtɔrɔso la min bɛ mɔgɔ tɔɔrɔ kosɛbɛ (ICU). A bɛ miiri ko a sababu bɛ bɔ a jɔyɔrɔ kelen na waati jan kɔnɔ. A bɛ nɔ bila farikolo yɔrɔw de la kosɛbɛ minnu bɛ ninakili dɛmɛ. |
Miyopati taamasiɲɛ minnu ka teli ka ye, olu ye jumɛnw ye?
taamasiɲɛba min bɛ sɔrɔ mikoropati suguya bɛɛ la , o ye farikolo fanga dɔgɔyali ye . O bɛ ye ka caya bolokɔniw, kamankunw ani senkɔniw na. Ka fara o kan, bana taamasiɲɛw i n’a fɔ:
- Farikolodimi ni a gɛlɛyali
- Farikolo yɔrɔw sɔgɔsɔgɔninjɛ
- Fanga dɔgɔyali
- Ka sɛgɛn joona hali ni i ye baara misɛnninw kɛ
O farikolo fanga dɔgɔyali kosɔn, hali don o don baara nɔgɔmanw i n’a fɔ ka fini don, ka ko, ka aw kunsigi sɔgɔ, ka jiginni kɛ ɛrɛzɛnsunw kan, ani ka wuli ka bɔ dilan kan, o bɛ se ka kɛ gɛlɛya ye.
Miyopati suguya dɔw fana taamasiɲɛ kɛrɛnkɛrɛnnenw bɛ u la. Misali la, farikolojidɛsɛw la, farikolo fanga dɔgɔyali bɛ bonya dɔɔni dɔɔni. O barikantanya bɛ daminɛ tuma caman na ɲɛda, kɔkili ani kamankunw na.
Miyopati bɛ sɔrɔ cogo di?
Ikomi bana caman bɛ yen minnu bɛ an farikolo nɛrɛmuguma ni farikolo yɔrɔw degun, sɛgɛsɛgɛli caman ka kan ka kɛ walasa ka mikoropati dɔn ka ɲɛ. Aw ka dɔgɔtɔrɔ bɛ se ka nin sɛgɛsɛgɛli ninnu dɔ la kelen walima caman fɔ aw ye.
| Kɔrɔbɔli tɔgɔ | N'an y'a fɔ cogo nɔgɔman na... |
|---|---|
| Sɛgɛsɛgɛli min bɛ kɛ ni jamu ye | U bɛ joli walima sɔgɔsɔgɔninjɛ ta walasa ka a lajɛ ni fiɲɛ dɔ bɛ aw ka jeninida la. |
| Biochimique ka jenɛtiki sɛgɛsɛgɛli | Joli, sugunɛ walima kɔkoloji bɛ sɛgɛsɛgɛ walasa ka anzimu caman sɛgɛsɛgɛ. |
| CT Scan (Tomografie informatique) . | X-ray (X-ray) bɛ kɛ ka tugu ɲɔgɔn na walasa ka ja dafalen dilan 3D la, min bɛ kolo, joli siraw ani farikolo yɔrɔ nɔgɔlenw jira. |
| Kɔnɔbara basigilen | Pikirijikɛlan fitinin dɔ bɛ don kɔkolo fila cɛ kɔ duguma ani ka kunsɛmɛji (CSF) ta ka a sɛgɛsɛgɛ. |
| MRI sɛgɛsɛgɛli (Imagerie magnétique de résonance) . | Magɛnni barikama ni arajo-fiɲɛw bɛ kɛ ka farikolo yɔrɔw, farikolo yɔrɔw ani kolotugudaw ja caman sɔrɔ. |
| Nɛrɛmugu ni farikolojidɛsɛ furakɛli | Walasa ka sɛgɛsɛgɛli kɛ, opereli bɛ kɛ ka farikolo yɔrɔ fitinin dɔ bɔ farikolo walima nɛrɛmuguma na min ɲɛsinnen bɛ o ma, ka o ci laboratuwari la. |
| Nɛrɛmuguta ka sɛgɛsɛgɛliw | Elektɔriw bɛ nɔrɔ fari la, ka nɛrɛw lawuli ani ka kuran taamasiɲɛw taama teliya suman u fɛ. O bɛ dɛmɛ ka a dɔn ni gɛlɛya dɔ bɛ farikolojidɛsɛ la. |
| Elektromiografi (EMG) . | Elektɔri misɛnninw bɛ don farikolo la ani kuran baara bɛ suman ni farikolo bɛ sɔgɔsɔgɔ ani ka lamaga. O fana bɛ se ka dɛmɛ don ka a dɔn ni gɛlɛya bɛ farikolo yɔrɔw yɛrɛ de la. |
Miyopati furakɛcogo jumɛnw bɛ yen?
Miyopati furakɛli bɛ bɔ mikoropati suguya de la min bɛ i la.
fura tɛ mikoropati ciyɛntalen fanba la . Nka, bana taamasiɲɛw bɛ se ka kunbɛn ani ka ɲɛnamaya nɔgɔya furakɛli fɛɛrɛw fɛ i n’a fɔ farikoloɲɛnajɛ . A suguya dɔw fana bɛ se ka furakɛ ni fura ye, i n’a fɔ Duchenne muscular dystrophy ani Pompe bana.
a ka ca a la , ɲɛgɛnɛsiralabanaw bɛ furakɛ ni a sababu basigilen furakɛli ye . Misali la, endocrine myopathie bɛ furakɛ ni ɔrimɔni hakɛ sabatili ye. Ka kɛɲɛ ni bana juguya ye, farikoloɲɛnajɛ furakɛli fana bɛ se ka kɛ wajibi ye o ko ninnu na.
Min nafa ka bon kosɛbɛ, o ye ko dɔgɔtɔrɔ bɛna furakɛli fɛɛrɛ ɲuman latigɛ i ka bana in na, o la, i da mɔgɔw ɲɛ na ani ka tiɲɛ fɔ a ye fɛn o fɛn na.
Take-Home cikan
- Miyopati tɛ hakilibana ye, nka bana don min bɛ farikolo yɔrɔw degun .
- O suguya caman bɛ yen; dɔw bɛ yen u bange waati, dɔw bɛ yiriwa kɔfɛ u ka ɲɛnamaya kɔnɔ.
- A taamasiɲɛ fɔlɔ ye farikolo fanga dɔgɔyali ye, o bɛ se ka fɛnw gɛlɛya i n’a fɔ taama ni kɔrɔta.
- Sɛgɛsɛgɛli suguya caman bɛ se ka kɛ, i n’a fɔ joli sɛgɛsɛgɛli, sɛgɛsɛgɛli, ani biyɔpisi, walasa ka bana in dɔn ka ɲɛ.
- Furakɛli bɛ bɔ ɲɛnamini suguya la min bɛ aw la, o la aw bɛ dɔgɔtɔrɔ ɲininka tuma bɛɛ walasa ka laadilikan ɲumanw sɔrɔ.
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