Miiri k’a filɛ, i bɛ mɔgɔ min dɔn kosɛbɛ, ani min tun kɛnɛyara fɔlɔ, o barika banna ka kɛwale kɛ cogo kabakoma na dɔɔnin. U hakili tɛ to u hakili la tuguni, taama ka gɛlɛn u ma , wa u bɛ u ka kumaw fɔ ni u bɛ kuma. Ni nin ko ninnu kɛra ni hakɛ ye min tɛ se ka miiri kalo damadɔ kɔnɔ, o bɛ se ka kɛ sababu ye ka bɔ kunsɛmɛ bana dɔ la min man ca kosɛbɛ nka a ka jugu kosɛbɛ. Bi an bɛ kuma o bana sugu dɔ kan, n’o ye Creutzfeldt-Jakob bana ye, walima CJD i n’a fɔ an bɛɛ b’a wele cogo min na. Hali ni nin ye barokun ye min bɛ mɔgɔ siran dɔɔnin, a nafa ka bon kosɛbɛ ka kunnafoni sɔrɔ o kan kosɛbɛ.
Yala CJD ni "misibana dibi" ye fɛn kelen ye wa?
Mɔgɔ caman bɛ CJD ɲagami ni "Mad Cow Disease" ye. Nka, o fila tɛ kelen ye.
N’an y’a fɔ cogo nɔgɔman na, Bovine Spongiform Encephalopathy (BSE) ye kunsɛmɛ bana ye min bɛ misiw dɔrɔn de minɛ. N’a Kɛra, misiw farikolo -ɲɛnajɛ bɛ Tiɲɛ, o b’a To u tɛ Se ka Lamaga, wa u bɛ Kɛ cogo kabakoma na.
Nka, CJD suguya dɔ bɛ yen min bɛ se ka sɔrɔ hadamadenw fɛ ni u ye misi sogo dun , misi dibi bana bɛ min na . A bɛ fɔ a ma ko Variant CJD (vCJD) . Nka nin ka dɔgɔ kosɛbɛ, kosɛbɛ . Bana bana minnu fɔra diɲɛ kɔnɔ, olu man ca kosɛbɛ. O la, an ka teli ka kuma CJD bana min kan, o tɛ kɛ cogo min na.
Mun na nin CJD bana in bɛ sɔrɔ?
CJD sababuba ye fɛn dɔ yeli ye min tɛ kɛ cogo la min bɛ kɛ an farikolo la. O farikolojɔlifɛn min tɛ cogo la, min bɛ fɛn caman sɛmɛntiya, o bɛ wele ko prion .
Miiri farikolojɔlifɛn kɛnɛman dɔ la min bɛ an kunkolo la i n’a fɔ papiye dɔ min dabɔra ka ɲɛ. Nin farikolojɔlifɛn fɛnɲɛnamafagalan in min bɛ wele ko prion, o bɛ na ka nin papiye ɲuman in da cogo jugu la. O kɔfɛ, o sɛbɛnfura min ma dafa, o bɛ taa ɲɛ ka papiye ɲuman tɔw dabɔ cogo jugu la. Wa o cogo la, kunsɛmɛnasumaya bɛ tiɲɛ dɔɔni dɔɔni. Ni aw ye a lajɛ ni mikroskɔpu ye, o kunsɛmɛ tiɲɛnen in bɛ i n’a fɔ ɛponji.
CJD suguya saba bɛ yen ka kɛɲɛ ni prion dilancogo ye.
| CJD suguya | Hakilila ni ɲɛfɔli |
|---|---|
| CJD min bɛ kɛ yɔrɔnin kelen | Nin ye suguya ye min ka teli ka kɛ. Kun ɲɛnama tɛ, farikolojɔlifɛn kɛnɛman dɔ bɛ barika sɔrɔ ka fɛn caman sɛmɛntiya ka kɛ prion ye. CJD banabagatɔ fanba bɛ nin suguya in sɔrɔ. |
| Denbaya ka CJD | O bɛ sɔrɔ jamu nafama dɔ fɛ. Ni bangebaga dɔ ka jɛnɛya caman b’a la min bɛ nin bana in bila mɔgɔ la, o bɛ se ka yɛlɛma denmisɛnw ma. Nka o fana ka dɔgɔ kosɛbɛ. CJD banabagatɔ 10%-15% ɲɔgɔn dɔrɔn de bɛ don o kulu kɔnɔ. |
| CJD sɔrɔla | Nin ye suguya ye min man ca. Mɔgɔ bɛ se ka CJD sɔrɔ furakɛli minɛn nɔgɔlenw fɛ (misali la opereli waati), farikolo yɔrɔ dɔw cili fɛ, walima bonya hormone pikiri nɔgɔlenw fɛ. O farati dɔgɔyara kosɛbɛ lakana fɛɛrɛ gɛlɛnw fɛ dɔgɔtɔrɔsow la bi. |
CJD taamasiɲɛw ye jumɛnw ye?
Faratiba min bɛ CJD la, o ye ko a taamasiɲɛw bɛ daminɛ joona kosɛbɛ , ka juguya joona kosɛbɛ. A ka ca a la, o taamasiɲɛw ni hakiliɲagami taamasiɲɛw bɛ tali kɛ ɲɔgɔn na.
Fɛn minnu bɛ ye, olu kunbabaw ye:
- Hakililabɔbaliya ani hakili ɲagami
- Taama gɛlɛya ani balansi bɔnɛ
- Farikolo yɔrɔw bɛ wuli yɔrɔnin kelen (yɛrɛyɛrɛli) .
- Mɔgɔya bɛ Changé (ka dimi yɔrɔnin kelen, ka jɔrɔ) .
- A ka gɛlɛn ka miiri ani ka desizɔnw ta
- Yeli gɛlɛyaw
- Sunɔgɔbaliya ni degun
Danfara bɛ CJD ni Alzheimer bana cɛ
Nin taamasiɲɛ ninnu bɛ se ka aw hakili jigin Alzheimer bana na. Nka danfaraba min bɛ u ni ɲɔgɔn cɛ , o ye teliya ye . Alzheimer bana na, fɛn minnu bɛ i n’a fɔ hakilijagabɔbaliya, olu bɛ kɛ dɔɔni dɔɔni san caman kɔnɔ. Nka CJD la, banabagatɔ ka bana bɛ juguya joona kosɛbɛ, dɔgɔkun walima kalo damadɔ kɔnɔ o taamasiɲɛw daminɛ kɔfɛ.
Nin bana in bɛ se ka sɛgɛsɛgɛ cogo di tigitigi?
A fɔ man di nka, sɛgɛsɛgɛli kelen tɛ yen min bɛ se ka CJD jira. Dɔgɔtɔrɔw bɛ bana sɛgɛsɛgɛli kɛ ka da banabagatɔ ka bana taamasiɲɛw kan ani u bɛ teliya cogo min na. Nka, ni siga bɛ bana in na, sɛgɛsɛgɛli caman bɛ kɛ walasa k’a dɔn.
- MRI (Magnetic Resonance Imaging) scan: O bɛ se ka ja caman ta hakili la. A bɛ se ka fɛn kɛrɛnkɛrɛnnenw ɲini hakili la minnu bɛ kɛ CJD la.
- EEG (Electroencephalogramme) sɛgɛsɛgɛli : Nin sɛgɛsɛgɛli in bɛ kunsɛmɛ kuran baara suman ni senfagabana misɛnninw ye minnu sirilen bɛ kunsigi la. Nin sɛgɛsɛgɛli in bɛ se ka misaliw jira minnu ye CJD banabagatɔw ka jogo ye.
- Kɔnɔbara basigilen : Ni aw bɛ baara kɛ ni pikirijikɛlan finmanba ye, aw bɛ kunsɛmɛnasumaya ji dɔɔni ta ka bɔ kɔkolo kɔnɔ ka a sɛgɛsɛgɛ ni farikolojɔlifɛn kɛrɛnkɛrɛnnenw ye minnu bɛ ye CJD la.
Nin bana in dafacogo kelenpe min bɛ se ka kɛ ni dannaya ye 100%, o ye ka kunsɛmɛnasumaya ta (biopsie). Nka, ka o sɛgɛsɛgɛli sugu ta ka bɔ mɔgɔ ɲɛnama ka kunsɛmɛ na, o ye faratiba ye banabagatɔ ni dɔgɔtɔrɔ fila bɛɛ ma, o la a ka ca a la o tɛ kɛ. A ka ca a la, bana in bɛ sɛgɛsɛgɛ pewu banabagatɔ salen kɔfɛ.
Bana bɛ juguya cogo min na waati tɛmɛnen kɔfɛ
CJD bɛ taa ɲɛ cogo caman na waati kɔnɔ, o b’a to a bɛ kɛ dimiba ye banabagatɔ n’a ka denbaya bɛɛ bolo.
| Bana in taabolo | Fɛn minnu bɛ makɔnɔn |
|---|---|
| A daminɛ na | Daɲɛw fɔli k’a sɔrɔ i bɛ kuma, ɲɛnamini, farikolo yɔrɔ dɔw bɛ sɔgɔsɔgɔ, ka fɛnw ye minnu tɛ yen (hallucinations), ka dimi kun tɛ, ka i yɛrɛ bɔ jamana kɔnɔ, ani sunɔgɔbaliya. |
| Kɔfɛ | Banakɔtaa ni sugunɛbaralabana kunbɛnbaliya, dumuni munumunu ni kuma gɛlɛya jugumanba, hakilijagabɔ jugumanba, paranoya, dilan lafiɲɛbɔ, kɔma. |
CJD bɛ mɔgɔ minnu na, olu 70% ɲɔgɔn bɛ sa bana sɔrɔlen kɔfɛ.I bɛna sa san kelen kɔnɔ. N’i y’o mɛn, i bɛ se ka siran kosɛbɛ, ka dusukasi ani ka dimi. O ye ko ye min tɛ kojugu ye kosɛbɛ. Aw kana tɔɔrɔ aw kelen na nin waati in ɲɔgɔn na. A nafa ka bon kosɛbɛ ka kuma dɔgɔtɔrɔ fɛ ani ka hakili ta fan fɛ dɛmɛ wajibiyalenw sɔrɔ.
Yala CJD furakɛcogo bɛ yen wa?
A fɔ man di nka hali bi fura walima furakɛli si tɛ CJD la. Ɲininikɛlaw ye fura caman kɛ k’a lajɛ, nka u si ma ɲɛ sɔrɔ.
fɛn kelen min bɛ se ka kɛ sisan , o ye ka bana taamasiɲɛw kunbɛn . O kɔrɔ ye ko:
- Dimimadafura dili dimi kama.
- Fura dili farikolo gɛlɛyali ni a kirinni kama.
- Ka fɛnw di a ma minnu ka kan walasa banabagatɔ ka lafiya cogo bɛɛ la.
Ni bana juguyara, banabagatɔ mago bɛna kɛ ladonni dafalen na. Sɛgɛsɛgɛli bɛ senna walasa ka bana in furakɛcogo sɔrɔ don nataw la. Ni aw b’a fɛ, aw bɛ se ka dɔgɔtɔrɔ ɲininka kɛnɛyaso sɛgɛsɛgɛliw la minnu bɛ furakɛli kuraw sɛgɛsɛgɛ.
Take-Home cikan
- Creutzfeldt-Jakob bana (CJD) ye kunsɛmɛnasumaya ye min man ca kosɛbɛ, wa a bɛ jɛnsɛn joona.
- O bɛ sɔrɔ farikolojɔlifɛn dɔ fɛ min jiginna, n’o bɛ wele ko prion, o bɛ kunsɛmɛbanakisɛw tiɲɛ.
- CJD ni "Mad Cow Disease" ye bana fila ye minnu tɛ kelen ye. Nka, CJD (vCJD) suguya dɔ bɛ yen min man ca kosɛbɛ, o bɛ se ka sɔrɔ misisogo banakisɛ dunni fɛ.
- Nin bana in fura tɛ yen fɔlɔ. Min bɛ se ka kɛ, o ye ka bana taamasiɲɛw kunbɛn ani ka banabagatɔ lafiya.
- Ni i bɛ mɔgɔ min dɔn, ni fɛn caman yera a hakili la, a kɛcogo la ani a farikolo baara la waati kunkurunnin kɔnɔ, aw bɛ taa dɔgɔtɔrɔso la joona . Sɛgɛsɛgɛli teliya nafa ka bon walasa ka labɛn kɛ ka ɲɛ ani ka a ladon.
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