Ðe nèsena le ɖokuiwò me be yeƒe lãkusiwo le nyaƒoɖeamenu geɖe mea? Mina míaƒo nu tso Chronic Thromboembolic Pulmonary Hypertension (CTEPH) ŋu!

Ðe gbɔgbɔtsixe tsia ƒowò vie ɣeaɖewoɣi, alo seselelãme wɔnuku aɖe le wò akɔtaa? Ate ŋu anye be ʋuka siwo le wò lãkusi me ƒe nyaƒoɖeamenu sɔ gbɔ vie. Esia nye nɔnɔme tɔxɛ aɖe si woyɔna be `(Chronic Thromboembolic Pulmonary Hypertension)` alo `(CTEPH)`. Mègatsi dzi o, míaƒo nu tso esia ŋu bɔbɔe, le mɔ si gɔme nàte ŋu ase nu.

Nukae nye `(CTEPH)` sia? Mina míase egɔme pɛpɛpɛ!

Kpuie ko la, CTEPH nye ʋu ƒe sisi ƒe dzidziɖedzi si mesɔ o le ʋuka sue siwo le lãkusi me me. Ele abe nyaƒoɖeamenu si le tsi ƒe pɔmpi me ene. Gake nusi koŋ gbɔ esia tsoe nye be ʋu si le wò lãkusi me do ŋgɔ (míeyɔa esia be Aklã me Ʋuʋudedi) eye ʋu si me ʋu sina tona la melɔ̃na nyuie o . Ɣemaɣie nyaƒoɖeamenu sia dzina ɖe edzi.

Amekae ate ŋu axɔ CTEPH wu?

Esia le vevie ŋutɔ. Ame siwo ŋu aklã me ʋu ƒe sisi le ŋutinya me koe CTEPH dzɔna le . Ne ʋusɔgbɔdɔ le wò lãkusi me gake ʋu megale ƒoƒom o la, ɖewohĩ menye CTEPH ye o, ke boŋ nɔnɔme bubue. Eyata ele vevie be míase vovototo sia gɔme.

Aleke gbegbee nɔnɔme sia bɔe?

Le nyateƒe me la , CTEPH nye dɔléle si mebɔ kura o . Le kpɔɖeŋu me, le dukɔ abe United States ene me la, ame yeye siwo ade 5,000 koe wokpɔna ƒe sia ƒe. Gake esi wònye be womedea dzesii nyuie ɣeaɖewoɣi o ta la, xexlẽmea ate ŋu asɔ gbɔ wu ema kura. Eyata ele vevie ŋutɔ be nànya dzesiawo.

Ŋusẽ ka ƒomevie CTEPH ate ŋu akpɔ ɖe wò lãmesẽ dzi?

Ne nyaƒoɖeamenu si le wò lãkusi me dzi ɖe edzi, vevietɔ le CTEPH gome la, wò dzi ƒe ɖusime sea nyaƒoɖeamenu geɖe . Bu eŋu kpɔ, ele be wò dzi nawɔ dɔ sesĩe wu be wòatsɔ ʋu ayi wò lãkusi me. Nusi dzɔnae nye be ʋu si me oxygen mele o la dometɔ aɖewo tsia wò dzi me eye wòxɔa ɣeyiɣi didi hafi ɖoa wò lãkusi me. Esia ate ŋu ana oxygen ƒe agbɔsɔsɔ si le wò ŋutilã me naɖiɖi. Esia nye nɔnɔme sesẽ aɖe ŋutɔ, alo?

Nukatae `(CTEPH)` sia va dona? Nukawoe gbɔ wòtsona?

Susu vevitɔ si tae nye be ʋuka siwo ƒona ɖe ʋuka sue siwo le lãkusi me me melɔ̃na nyuie o. Ne esia dzɔ la , lãkusi siwo le abe abi ene la dzɔna le afisi ʋumenugbagbeviɣiawo nɔ. Abi sia nana ʋukawo xana, abe alesi tsi ƒe pɔmpi xena ene. Ne kpuiƒe sia le dzidzim ɖe edzi la, nyaƒoɖeamenua hã dzina ɖe edzi.

Nukawoe nye afɔku siwo ate ŋu ana woaxɔ CTEPH?

Afɔku aɖewo li siwo ate ŋu awɔ akpa aɖe le `(CTEPH) ƒe dzɔdzɔ me. Mina míalé ŋku ɖe nusiwo wonye ŋu:

• Ʋu ƒe hatsotso bubu si menye Ƒomevi O ƒe amesinɔnɔ.
• Dɔlékui aɖe ƒe amesinɔnɔ le ƒuwo me (Osteomyelitis).
• Kansa ƒomevi aɖewo.
• Le kpɔɖeŋu me, dɔgbo me dɔléle siwo nɔa anyi didi, nɔnɔmewo abe `(Inflammatory Bowel Disease)`.
• Nyɔnu nyenye. (Nyɔnuwo ate ŋu axɔ dɔléle sia vie wu ŋutsuwo.)
• Dɔlékuiwo xɔxɔ le dzitodzito me le dzitodzito me ʋu ƒe dɔwɔwɔ ƒe mɔ̃ aɖe ta.
• Ʋu ƒe sisi ƒe kuxiwo abe Antiphospholipid Syndrome ene le ŋuwò alo wò ƒomea me tɔ aɖe ŋu.
• Esi woɖe aɖuɖɔa ɖa va yi (Splenectomy).
• Atike si wozãna tsɔ ɖɔlia ʋumenugbagbeviɣidɔ.

Menye nu siawo katãe gblẽa nu le ame sia ame ŋu o, gake wokpɔe be wonye afɔku.

Nukae nye `(CTEPH)` ƒe dzesiwo?

Ame si ŋu CTEPH le ate ŋu akpɔ dzesiwo abe:

• Akɔtave alo akɔta ƒe ʋuʋu ƒe seselelãme .
• Ʋu ƒe kɔdzidede (esia nye nusi mebɔ o).
• Asibidɛwo kple afɔbidɛwo ƒe amadede ƒe tɔtrɔ blɔ (Cyanosis).
• Sese le eɖokui me be taɖuame .
• Syncope ƒe dɔléle.
• Sese le eɖokui me be ɖeɖi te ye ŋu ŋutɔ (`Ðɖiteameŋu`) .
• Ne èse le ɖokuiwò me abe wò akɔta le ƒoƒom ene la, míeyɔa esia be ``Dzi ƒe Ʋuʋu''.
• Gbɔgbɔ sesẽ , vevietɔ ne èle nane wɔm alo le zɔzɔm.
• Afɔwo ƒe vuvu, si tso tsi ƒe ƒoƒo ɖe ŋutilã me (edema) gbɔ.

Mègasusu be CTEPH le ye ŋu le esi dzesi siawo dometɔ ɖeka alo eve le ye ŋu ta ko o. Gake ne dzesi siawo gakpɔtɔ li la, anyo wu be nàyi ɖɔkta gbɔ.

Aleke wokpɔa dɔléle sia `(CTEPH)`?

Ne èyi ɖɔkta gbɔ la, ate ŋu awɔ dodokpɔ aɖewo gbã atsɔ akpɔe ɖa be CTEPH hã le eme, abe:

• Dodokpɔ si léa ŋku ɖe yaƒoƒo kple ʋu si yia lãkusiwo me ŋu (`(Lung ventilation-perfusion scan - V/Q scan)`).
• ``Pulmonary Angiogram'' nye dodokpɔ si léa ŋku ɖe ʋu ƒe sisi alo ʋuka siwo le lãkusi me ƒe ʋuʋu ŋu.
• Aklã ƒe Dɔwɔwɔ Dodokpɔwo.
• Transthoracic Echocardiogram (TTE) le abe dzia ƒe ultrasound scan ene.

Le dodokpɔ gbãtɔ siawo megbe la, ate ŋu ahiã be woawɔ dodokpɔ bubuwo atsɔ aɖo kpe CTEPH ƒe dɔlélea dzi eye woanya eƒe sesẽme. Esiawo ate ŋu anye:

• Dzi ɖusime Catheterization nye dodokpɔ si wotsɔ dzidzea nyaƒoɖeamenu to mɔ̃ sue aɖe dede dzia ƒe ɖusime me.
• Zã nɔnɔmetatawo ɖeɖe ƒe mɔnu deŋgɔwo abe CT Pulmonary Angiography (CTPA) alo Digital Subtraction Angiography ene nàtsɔ ado ʋuka siwo le lãkusiwo me kpɔ.
• MRI-dɔdamɔnu aɖe.
• ``Kamedede ƒe Nuteɖeamedzi Dodokpɔ'' si léa ŋku ɖe dzi ƒe dɔwɔwɔ ŋu le kamedede me.

Dodokpɔ siawoe nana ɖɔktawo te ŋu nyaa nenye be CTEPH le ŋuwò kple afɔɖeɖe si me wòle.

Nukae nye atikewɔwɔ na `(CTEPH)`?

Zi geɖe la, CTEPH dada lɔ amekoko alo dɔ ma tɔgbe wɔwɔ ɖe eme. Tiatia vevi eve li:

1. Aklã me Endarterectomy : Esia nye amekoko si wowɔna le gaglãgbe. Le dɔ sia wɔwɔ me la, woɖea ʋu xoxo siwo le ƒoƒom kple abi siwo tsi lãkusiwo ƒe ʋukawo me la ɖa. Wowɔa esia be woatsɔ adze agbagba be ʋu nagaɖo sisi ɖe lãkusiwo me ake.

2. ``(Aklã ƒe Balloon Angioplasty)''.: Le esia me la, wotsɔa ʋuƒo sue aɖe dea mɔ̃ didi aɖe (catheter) ƒe nuwuwu, eye wotsɔa ʋuka si me ʋu sina tona le lãkusia me la me. Wodoa ya ɖe ʋuƒoa me be wòatutu abi ƒe lãkusia ɖe vovo, si nana ʋukaa gakekena ake.

Mɔnu eve siawo dometɔ ɖeka tiatia nɔ te ɖe nu geɖe dzi, abe dɔnɔa ƒe nɔnɔme kple afisi ʋua le ene.

Ðe atikewɔwɔ bubu aɖewo li siwo woate ŋu azãa?

Ẽ, ɖewohĩ ame aɖewo mate ŋu awɔ dɔ sia o. Le ame mawo, alo amesiwo yia edzi le nyaƒoɖeamenu me le woƒe lãkusi me le amekoko vɔ megbe la, woate ŋu ana atikekui si woyɔna be `(Riociguat)` . Esia nye atike si wonana na aklã me ʋusɔgbɔdɔ. Esia kpena ɖe ame ŋu be dzesiawo dzi ɖena kpɔtɔna.

Ðe woate ŋu axe mɔ ɖe CTEPH nua?

CTEPH nye lãmesẽkuxi bubu geɖe ƒe kuxi. Nu aɖewo siwo dzi míate ŋu aɖu o. Gake nu vevitɔ kekeake si nàte ŋu awɔe nye be nàlé be na wò lãkusiwo nyuie . Ema fia be asiɖeɖe le atamanono ŋu ne ènoa atama kple atamanono ɖeɖeɖa le vevie ŋutɔ.

Nukae nye mɔkpɔkpɔ na dɔnɔ siwo ŋu CTEPH le?

Esiae nye nya nyuitɔ kekeake! Aklã me Endarterectomy kple Pulmonary Balloon Angioplasty ate ŋu ada CTEPH keŋkeŋ . Ame geɖe siwo wɔa atike siawo la kpɔa nu nyuiwo ŋutɔ.

Gake togbɔ be nu nyui siawo do tso eme hã la, dɔnɔ aɖewo ate ŋu akpɔ susu me nuteɖeamedzi, dzimaɖitsitsi, kple blanuiléle vaseɖe afi aɖe. Esia ate ŋu anye nyateƒe vevietɔ na amesiwo medze na dɔdamɔnu siwo míeyɔ va yi o. Ne susumedɔléle siawo dometɔ aɖe le fu ɖem na wò la, ƒo nu kple wò ɖɔkta. Woate ŋu aɖo to wò dzimaɖitsitsiwo eye woakafu atikewɔmɔnu siwo akpe ɖe ŋuwò nàse le ɖokuiwò me be yeƒe lãme sẽ.

Nukae nye nu vevi siwo wòle be nànya ne èle agbe kple `(CTEPH)`?

• Anɔ eme be ahiã be nàno ʋumenugbagbeviɣitikewo le wò agbemeŋkekewo katã me .
• Ne èle atike abe Warfarin ene zãm la, ɖewohĩ ahiã be nàɖe nuɖuɖu aɖewo (abe soya kple broccoli, siwo me vitamin K sɔ gbɔ ɖo ene) dzi akpɔtɔ. Bia wò ɖɔkta tso esia ŋu.
• Kamedede si mesẽ o , abe azɔlizɔzɔ ene, ate ŋu akpe ɖe ame geɖe ŋu be ŋusẽ nagaɖo wo ŋu eye woanɔ lãmesẽ me. Wò ɖɔkta ate ŋu aɖo aɖaŋu na wò hã be nàwɔ kamedede ƒe ɖoɖo si dzi woakpɔ (aklã ƒe ɖɔɖɔɖo).

Mlɔeba la, ɖo ŋku esia dzi.

Chronic Thromboembolic Pulmonary Hypertension (CTEPH) nye dɔléle si mebɔ o si me ʋu ƒe sisi le ʋuka siwo le lãkusi me dzina ɖe edzi, gake enye dɔléle si woate ŋu ada ne wokpɔe kaba eye wodae nyuie . Ne dzesi siawo dometɔ aɖe le ŋuwò la, mègahe ɖe megbe le atikewɔlawo ƒe aɖaŋuɖoɖo didi me o. Ðo ŋku edzi be ne wowɔ atike na ame akpa gãtɔ nyuie la, woate ŋu ahaya nyuie. Eyata mègatsi dzodzodzoe o. Wɔ ɖe wò ɖɔkta ƒe mɔfiamewo dzi nyuie, eye àte ŋu ahaya kaba!

`CTEPH, Aklã me Ʋusɔgbɔdɔ, Ʋu ƒe Ʋuʋu, Yagbɔgbɔ ƒe Sesẽ, Dzidɔ, Aklã me Ʋusɔgbɔdɔ, Aklã me Ʋusɔgbɔdɔ