Ðe ame aɖe si te ɖe ŋuwò la trɔ kpataa? Ðe wòate ŋu anye Frontotemporal Dementia (FTD)a?

Bu eŋu kpɔ, fofowò, srɔ̃wò, alo ame aɖe si te ɖe ŋuwò ŋutɔ... Kasia eƒe nuwɔna trɔ kura. Ame si nyoa dɔme ŋutɔ tsã eye wòlɔ̃a hadede la gblɔa nya veamewo na ame bubuwo fifia, eye wòwɔa nu si mesɔ o le hadome. Ðewohĩ àsusu be susu me kuxi aɖe ƒomevie nye esia, ɖewohĩ nane abe blanuiléle ene. Gake, esia ate ŋu anye nusi to vovo, nɔnɔme si do ƒome kple ahɔhɔ̃. Egbea míele nu ƒom tso nɔnɔme aɖe si hea tɔtrɔ mawo vɛ, si to vovo na Alzheimer dɔlélea, gake ame geɖe menya nu tso eŋu o. Emae nye Frontotemporal Dementia, alo FTD.

Nukae nye Frontotemporal Dementia (FTD) ƒe dɔléle?

Kpuie ko la, FTD nye nɔnɔme si dzɔna ne nu gblẽ le míaƒe ahɔhɔ̃ ƒe ŋgɔgbe kple megbeƒu ŋu. Akpa siawoe kpɔa ŋusẽ ɖe míaƒe amenyenye, nuwɔna, kple gbegbɔgblɔ dzi. Eyata ne akpa siawo gblẽ la, dzesiawo yia ŋgɔ wu ŋkuɖoɖonudzi ko. Ame ƒe nuwɔna, ale si wòƒoa nui, ale si wòsea nyawo gɔmee, kple ale si eƒe ŋutilã ƒe ʋuʋu gɔ̃ hã ate ŋu atrɔ.

Togbɔ be womenya FTD nyuie abe Alzheimer ƒe dɔléle ene o hã la, FTD ƒomevi aɖe le amesiwo ŋu tagbɔdɔléle le dometɔ 10% va ɖo 20% ŋu. Ate ŋu akpɔ ŋusẽ gã aɖe ɖe amewo ƒe agbenɔnɔ dzi elabena ate ŋu adze egɔme kaba wu tagbɔdɔléle ƒomevi bubuwo, zi geɖe la, woxɔa tso ƒe 45 va ɖo ƒe 60 .

Le dzesi siwo dzena le gɔmedzedzea me, abe dzimesesẽ, dɔmenyonyo, alo fefewɔwɔ ene ta la, zi geɖe la, wobua eŋu vodadatɔe be enye tagbɔdɔ. Esia nye susu vevi aɖe si ta zi geɖe la, wohea FTD ɖe megbe le gɔmedzedzea me ɖo. Wò ɖɔkta ate ŋu ayɔe hã be Pick ƒe dɔléle.

Nukawoe nye FTD ƒomevi veviwo?

Woate ŋu ama FTD ɖe hatsotso vevi geɖe me le dzesi siwo dzena zi gbãtɔ nu. Be míase esia gɔme nyuie la, mina míalé ŋku ɖe kplɔ̃ sia ŋu.

Nukawoe nye FTD ƒe dzesi siwo ate ŋu anɔ ame ŋu?

FTD ƒe dzesiwo toa vovo tso ame ɖeka gbɔ yi bubu gbɔ. Wonɔa gbegblẽm ɖe edzi le ɣeyiɣi aɖe megbe. Mina míalé ŋku ɖe dzesi siawo ŋu le hatsotso vovovowo me.

Nuwɔna ƒe tɔtrɔ

• Hadomegbenɔnɔ ƒe masɔmasɔ: Gblɔ nusi le susu me na wò ŋukpe aɖeke manɔmee. Egblɔa nya veamewo na ame bubuwo, dina be yeate ɖe ame bubuwo ŋu akpa.
• Veveseseɖeamenu ƒe bu: Ŋutete mase ame bubuwo ƒe seselelãmewo gɔme. Ate ŋu awɔ nu abe ɖe ame aɖe ƒe dzi fa miamiamia ŋutɔ ene.
• Ðekematsɔleme: Nu siwo doa dzidzɔ na wò tsã la ƒe ɖekematsɔleme alo dzimaɖitsitsi.
• Nu ɖeka mawo ke gbugbɔgagblɔ zi gbɔ zi geɖe: Nuwo wɔwɔ abe asiƒoƒo, nuyi ɖuɖu, kple bubuawo ene Nya kple gbeɖiɖi ɖeka ma ke gbugbɔgagblɔ.
• Aɖabaŋeŋe ƒu ame ŋutɔ ƒe dzadzɛnyenye dzi: aɖututu alo tsilele o.
• Tɔtrɔ le nuɖuɖu ƒe nɔnɔmewo me: Nu vivi geɖe ɖuɖu zi ɖeka, eye ɣeaɖewoɣi la, nàdze agbagba aɖu nu siwo menyo na wò o.

Nuƒoƒo kple gbegbɔgblɔ ƒe vovototo

• Esesẽna be nàkpɔ nya siwo sɔ ne èle nu ƒom.
• Gɔmesese le nyawo ŋu bum.
• Eƒoa nu le nyagbe kpui siwo le bɔbɔe ŋutɔ me.
• Ɣeaɖewoɣi la, susu aɖeke manɔ nya siwo wogblɔ ŋu o.

Tɔtrɔ siwo vaa ŋutilã ƒe ʋuʋu me

• Ŋkuwo ʋuʋu sesẽ.
• Ŋutilã ƒe ʋuʋu, lãmekawo ƒe ʋuʋu.
• Ŋutilã ƒe sesẽ.
• Ŋutilã dzi ɖuɖu ƒe bu.
• Nuɖuɖu mimi sesẽ.
• Ŋutinya la tɔtɔa ame.
• Madze anyi, azɔlizɔzɔ asesẽ.

Nukae nye nusiwo gbɔ FTD tsona kple afɔku siwo le eme?

Ne ahɔhɔ̃mekawo (ahɔhɔ̃mekawo) le kukum le amesiwo ŋu FTD le me la, ahɔhɔ̃a ƒe akpa aɖewo dzi ɖena kpɔtɔna. Dzɔdzɔmeŋutinunyalawo xɔe se be protein aɖewo siwo míaƒe ŋutilã wɔna ƒe dɔwɔwɔ si mesɔ o gbɔe esia tsona. Vevietɔ protein eve siwo woyɔna be tau kple TDP-43 ƒe nɔnɔme siwo mesɔ o ƒe ƒuƒoƒo ɖe ahɔhɔ̃a me gbɔe nusiwo gblẽna sia tsona.

FTD dɔnɔ siwo ade 40% ƒe ƒome ŋutinya me dɔlélea le . Esia fia be ate ŋu anye domenyiŋusẽfianu. Tsɔ kpe ɖe eŋu la, nu bubuwo ate ŋu ana afɔkua nadzi ɖe edzi:

• Ta ƒe abi gã aɖe: Esia ate ŋu ana FTD xɔxɔ ƒe afɔkua nadzi ɖe edzi abe zi gbɔ zi etɔ̃ ene.
• Thyroid dɔléle: Esia dzia afɔkua ɖe edzi wu zi gbɔ zi eve.

Aleke wowɔa dea dzesi FTD?

Ate ŋu asesẽ be woakpɔ FTD nyuie elabena eƒe dzesiwo ate ŋu asɔ kple dɔléle bubuwo abe Parkinson, Alzheimer, blanuiléle, kple tagbɔdɔléle ene .

Ðɔktaa abia wò ƒomea ƒe ŋutinya eye ate ŋu aɖe gbe be woado ʋu kpɔ be woanya nɔnɔme bubuwo hã. Zi geɖe la, woaɖo wò ɖe ahɔhɔ̃ŋutinunyala aɖe gbɔ. Ado nuwo abe wò dadasɔ, wò susu ƒe dɔwɔwɔ, ŋkuɖoɖonudzi, kple tamebubu ƒe ŋutetewo ene kpɔ. Woate ŋu aɖe gbe be woawɔ dodokpɔ siawo tɔgbe atsɔ aɖo kpe FTD dzi:

• CT scan: Ahɔhɔ̃a ƒe nɔnɔmetata si woɖe tso X-ray me tsitotsito.
• MRI scan: Ezãa magnet kple radio ƒutsotsoewo tsɔ wɔa ahɔhɔ̃a ƒe nɔnɔmetata siwo me kɔ ŋutɔ.
• FDG-PET scan: Wodoa nusi me keklẽŋusẽ le ɖe ʋuka me be woakpɔ alesi ahɔhɔ̃a ƒe akpa vovovowo wɔa dɔe.
• EEG (electroencephalogram): Elektrikŋusẽ ƒe dɔwɔwɔ dzidzedze le ahɔhɔ̃a me.
• Spinal tap: Tsi si ƒo xlã ahɔhɔ̃a kple aklã ƒe ka me dzodzro.
• Ahɔhɔ̃mekawo ƒe dɔwɔwɔ dodokpɔ: Wotoa nyabiasewo, nɔnɔmetatawo tata, kple nyabiasewo gbɔ kpɔkpɔ dzi dzidzea dodokpɔ siwo dzidzea susu ƒe ŋutetewo abe ŋkuɖoɖonudzi, gbegbɔgblɔ ƒe ŋutete, kple tamebubu ƒe ŋutete ene.

Nukawoe nye atike siwo wozãna na FTD?

Nublanuitɔe la, atike alo atike aɖeke meli na FTD o. Atike siwo wozãna tsɔ daa Alzheimer ƒe dɔlélea mewɔa dɔ na FTD o. Le go aɖewo me la, atike siawo ate ŋu ana dɔlélea ƒe dzesiwo nagagblẽ ɖe edzi gɔ̃ hã.

Gake atike kple atike aɖewo li siwo ate ŋu akpe ɖe ŋuwò nàɖu dzesiawo dzi:

• Blanuilélenutsitikewo: Kpɔa seselelãme kple nuwɔna ƒe kuxiwo dzi.
• Tagbɔdɔlékuiwutikewo: Togbɔ be woate ŋu akpe ɖe ame ŋu wòaɖu nuwɔna ƒe kuxi sesẽwo dzi hã la, woate ŋu agblẽ nu le ame ŋu vevie. Ðɔkta ƒe dzikpɔkpɔ nyuie ko hafi wozãa esiawo.
• Nuƒoƒo ƒe atikewɔwɔ: Kpe asi ɖe kadodo me kuxiwo ŋu.

Agbenɔnɔ kple FTD kple edzikpɔkpɔ

Dɔléle sia nye kuxi gã aɖe na dɔnɔa kple ƒomea siaa. Eya ta ele vevie ŋutɔ be nàdi kpekpeɖeŋu tso ɖɔkta si nya nu tso dɔlélea ŋu nyuie gbɔ ne wonya kpɔe ko.

Ne ènye ame aɖe si ŋu FTD le dzikpɔla...

Mɔzɔzɔ sia ate ŋu ate ɖeɖi ame si le dɔnɔdzikpɔla dzi vevie. Nu aɖewo siwo ate ŋu akpe ɖe ŋuwòe nye esi:

• Dzra ŋkekenyuigbalẽ: De dzesi tɔtrɔ siwo va le dɔnɔa ƒe nuwɔna me kple nusiwo hea esia vɛ. Esia ate ŋu akpe ɖe ŋuwò nàƒo asa na nɔnɔme siwo me kuxiwo le.
• Ðo ɖoɖowɔɖi si mewɔa tɔtrɔ o: Nuwo abe nuɖuɖu nana kple tsilele le ɣeyiɣi ɖeka me ene ate ŋu ana gbɔdzɔe aɖe dɔnɔa.
• Ðe nɔnɔmea me na ame bubuwo: Na amedzrowo kple ƒometɔwo nanya nu tso dɔnɔa ƒe nɔnɔmea ŋu do ŋgɔ.
• Bu ɖokuiwò hã ŋu kpɔ: Esia le vevie ŋutɔ. Ne wò ŋutilã kple susu le lãmesẽ me ko hafi nàte ŋu akpɔ dɔnɔa dzi nyuie. Ðu nu nyuie, dɔ alɔ̃ nyuie, eye nàde kame. Di kpekpeɖeŋu tso ame bubu gbɔ be wòana nàgbɔ ɖe eme (respite care).
• Wɔ ɖoɖo ɖe etsɔme ŋu: Le ɣeyiɣi aɖe megbe la, ahiã be woakpɔ dɔnɔa dzi gaƒoƒo 24 sɔŋ. Esia ate ŋu abia beléle le ame tsitsiwo dzikpɔƒe. Ele vevie be nàwɔ ɖoɖo ɖe esia ŋu do ŋgɔ.

Agbenɔƒe si wokpɔ mɔ na le mama dedie nu le FTD ƒe dzesi kpɔkpɔ vɔ megbe anɔ abe ƒe 7.5 ene. Ku ate ŋu atso dɔlélea ƒe kuxiwo gbɔ wu dɔlélea ŋutɔ. Le kpɔɖeŋu me, aklãdɔ si tsoa nu mimi sesẽ tae nye nu vevitɔ si wua ame.