Mina míasrɔ̃ nu tso Geographic Atrophy, si kpɔa ŋusẽ ɖe wò nukpɔkpɔ dzi le ɖoɖoezizi me ŋu.

Ðe nèsena le ɖokuiwò me ɣeaɖewoɣi be yeƒe nukpɔkpɔ dzi le ɖeɖem kpɔtɔ vivivi, vevietɔ ne èkpɔ ŋgɔ tẽ, eye wò ŋku ƒe titina mekɔ o, abe teƒe doviviti aɖe enea? Ðe wòsesẽna na wò be nàxlẽ agbalẽ alo nyadzɔdzɔgbalẽ, alo be nàkpɔ nuwo le viviti mea? Eyata, egbea míele nu ƒom tso Geographic Atrophy, si nye ŋku ƒe dɔléle si ate ŋu adzɔ ɖe ame aɖewo dzi le tsitsi me. Mègatsi dzi o, ele vevie ŋutɔ be nànya esia.

Nukae Nye Anyigba ƒe Nɔnɔme ƒe Agbɔsɔsɔ?

Kpuie ko la, Geographic Atrophy ye nye atikewɔwɔ me ŋkɔ si wotsɔ na ŋku ƒe dɔmawɔmawɔ nyuie (AMD), si nye dɔléle si gblẽa nu le ŋkuwo ŋu ne míele tsitsim, ƒe akpa mamlɛtɔ si nu sẽ wu, si nye tsitsi. Ðewohĩ èse ŋku ƒe dɔmawɔmawɔ nyuie ŋu nya. Esiae nye esime macula , si nye ŋkume ƒe akpa vevi aɖe ŋutɔ le míaƒe ŋkuwo me, gblẽ.

Bu eŋu kpɔ, nusiwo nèkpɔna nyuie ne èkpɔ ŋgɔ tẽ, abe ŋɔŋlɔdzesiwo ne èle agbalẽ xlẽm, alo mo ne èlé ŋku ɖe ame aɖe ŋu ene, katã nye nusiwo macula kpena ɖe mía ŋu míekpɔnɛ nyuie. Eyata ne Geographic Atrophy dzɔ la, titina ƒe nukpɔkpɔe ŋue wògblẽa nu le wu. Gake woate ŋu akpɔ nukpɔkpɔ le gota, alo nusiwo wokpɔna tso axawo dzi, kokoko.

Zi geɖe la, nɔnɔme sia gblẽa nu le ŋku eveawo siaa ŋu (le akpa eve dzi). Ame si ƒe anyigba ƒe nɔnɔme gblẽ ate ŋu akpɔ teƒe doviviti aɖe (scotoma) le ŋku titina ne ele ŋgɔ kpɔm tẽ, eye nukpɔkpɔ ƒe ŋutete dzi aɖe akpɔtɔ.

Aleke gbegbee Geographic Atrophy bɔe?

Edzea ame miliɔn 8 kple edzivɔ dzi le xexeame godoo. Geographic Atrophy nye dɔléle si dzea amesiwo ƒe ŋku ƒe dɔmawɔmawɔ nyuie (AMD) ƒe tsitsi ta la dometɔ siwo ade 20% dzi. Eyata, menye nusi mebɔ nenema gbegbe o.

Nukawoe nye Geographic Atrophy ƒe dzesiwo?

Le nɔnɔme sia me la, àte ŋu akpɔ dzesiwo abe:

• Nukpɔkpɔ ƒe ŋutete ƒe bu : Ne míagblɔe tututu la, nuwo me mekɔna nyuie o eye womedzena nyuie o.
• Nuxexlẽ, ʋukuku, kple asidɔwɔwɔ sesẽ : Ate ŋu asesẽ be woawɔ dɔ ɖesiaɖe si abia be woakpɔ nu tẽ. Nuwo abe ŋɔŋlɔdzesi suewo xexlẽ le nyadzɔdzɔgbalẽ me, television kpɔkpɔ, alo aŋeka ƒoƒo ene ate ŋu asesẽ.
• Teƒe doviviti, alo ŋkuagbãtɔ, le wò titina ŋkume: Teƒe si nèle ŋku lém ɖe eŋu koe dzena yibɔ, abe teƒe ƒuƒlu ene.
• Nukpɔkpɔ sesẽ le kekeli sue me : Le fiẽ me la, nuwo megadzena le teƒe siwo kekeli mele o.
• Amadede siwo me kɔ o alo esiwo dzena abe ɖe womeklẽna boo o ene : Nusiwo ƒe amadede dzena nyuie tsã la ate ŋu adze abe ɖe wo mekɔ vie o eye woƒe amadede trɔ ene azɔ.

Nu vevitɔe nye be Geographic Atrophy nye nɔnɔme si dzɔna le ŋku ƒe dɔmawɔmawɔ nyuie si tso tsitsi gbɔ ƒe nuwuwu. Eyata ɖewohĩ màde dzesi dzesi aɖeke le eƒe gɔmedzedze o , alo màde dzesi vovototo boo aɖeke ne ŋku ɖeka koe wògblẽ o.

Nukawoe hea Anyigba ƒe Nɔnɔme ƒe Gbegblẽ vɛ?

Abe alesi míegblɔe va yi ene la, esiae nye AMD ƒuƒu ƒe akpa mamlɛtɔ. Numekulawo menya nusi tututu nana tɔtrɔ siawo siwo le ŋkua me va zua anyigba ƒe nɔnɔme ƒe gbegblẽ haɖe o . Gake wosusu be nuwɔna aɖe si woyɔna be complement cascade , si nye míaƒe ŋutilã ƒe dɔlélenutsiŋutete ƒe akpa aɖe, le eme. Esia fia be míaƒe ŋutilã ƒe ametakpɔnu aɖewo ate ŋu anɔ dɔ wɔm nyuie o eye wòle nu gblẽm le nu sia ŋu. Gakpe ɖe eŋu la, domenyiŋusẽfianu (i.e., nusiwo wotsɔna tso dzidzime yi dzidzime) kple nutomenuwo hã ateŋu awɔ akpa aɖe.

Nu vevitɔ kekeake si dzi wòle be míaɖo ŋkui enye be anyigba ƒe nɔnɔme ƒe tsɔtsrɔ̃ menye dɔléle si xɔa ame me o . Màte ŋu akakae na ame bubu o.

Amekawoe le afɔku gã aɖe me be anyigba ƒe nɔnɔme ƒe gbegblẽ nadze?

Togbɔ be nɔnɔme sia ate ŋu adze ame sia ame dzi hã la, ame aɖewo le afɔku me wu. Esiawo dometɔ aɖewoe nye:

• Ame siwo xɔ ƒe 60 alo esi wu nenema.
• Yevuwo (togbɔ be esia meku ɖe Sri Lanka ŋu boo o hã la, enyo be nànya).
• Ame siwo ƒe ŋkuwo le keklẽm.
• Ne ŋku ƒe dɔmawɔmawɔ nyuie alo domenyiŋusẽfianu bubu siwo gblẽa nu le ŋkuwo ŋu le wò ƒomea me.
• Ame siwo noa atama alo no atama va yi.
• Ame siwo ɖua nuɖuɖu si me atikutsetse kple amagbewo mesɔ gbɔ ɖo o, vevietɔ amagbe siwo ƒe aŋgbawo le amadede dzẽ me la le vevie ŋutɔ na ŋku ƒe lãmesẽ.
• Ame siwo ɣe ƒe keklẽ nu sẽ akpa.
• Ame siwo ƒe nukpɔkpɔ nye 20/200 alo esi vɔ̃ɖi wu (wobua nukpɔkpɔ si sɔ be enye 20/20).

Tsɔ kpe ɖe eŋu la, amesiwo ŋu atikewɔwɔ me dɔléle bubuwo le abe:

• Nunyuimakpɔɖui
• Amidada
• Ʋusɔgbɔdɔ
• Lãmetsiŋusẽ si sɔ gbɔ ɖe lãme na ame
• Suklidɔ `(Suklidɔ)`
• Dzitodzito me dɔléle

Nukawoe nye kuxi siwo dona tso Geographic Atrophy me?

Nublanuitɔe la, ŋku ƒe bublu le anyigba ƒe nɔnɔme ƒe gbegblẽ ta nɔa anyi ɖaa . Ne ènya bu wò ŋkume tẽ ko la, ate ŋu asesẽ be nàwɔ gbesiagbedɔwo abe:

• Agbalẽwo xexlẽ.
• Ʋukuku.
• Amewo ƒe mo nyanya.
• Wò modzakaɖeɖe, aƒemedɔwo, alo asinudɔwɔwɔ siwo nèwɔna ɖaa wɔwɔ.

Esia ate ŋu ana agbea nasesẽ vie, gake mɔ aɖewo li siwo dzi nàto akpe ɖe ŋuwò nànɔ te ɖe enu.

Aleke wowɔna dea dzesi Anyigba ƒe Dɔléle si nye Geographic Atrophy?

Wò ŋkuŋutinunyala akpɔ nɔnɔme sia to ŋkudodokpɔ kple dodokpɔ bubuwo me. Ðɔktaa abia nya wò hã tso wò dzesiwo, atikewɔwɔ ƒe nɔnɔme bubu ɖe sia ɖe si le ŋuwò, kple nenye be wò ƒomea me tɔ aɖe hã to nɔnɔme mawo tɔgbe me kpɔ.

Dodokpɔ kawoe wowɔna na esia?

Be nànya anyigba ƒe nɔnɔme ƒe tsɔtsrɔ̃ la, wò ŋkudɔdala ate ŋu aɖe gbe be woawɔ dodokpɔwo abe:

• Fundus autofluorescence : Esia nye mɔnu si dzi woato aɖe ŋku ƒe ŋkume ƒe foto le ŋkua me. Le esia me la, nu aɖewo siwo le ŋku ƒe ŋkume, abe lipofuscin , ene, klẽna le kekeli tɔxɛ aɖe te evɔ mehiã be woatsɔ ŋkumeɖonu aɖeke aƒu gbe o. Esia ate ŋu akpe ɖe ame ŋu wòade dzesi teƒe siwo nu gblẽ le.
• Optical coherence tomography (OCT): Esia hã nye mɔnu si me womewɔa nuvevi ame o si wotsɔ ɖea ŋku ƒe ŋkume ƒe foto. Ezãa kekeli si woɖena fiana. Exɔa ŋkume ƒe akpa si wotso eye wòte ŋu kpɔa alesi gbegbe wògblẽe.
• Microperimetry : Esia nye mɔ si dzi nàto ado wò nukpɔkpɔ ƒe ŋutete kpɔ. Esia fia be àte ŋu akpɔ afisi nàte ŋu akpɔ nu le kple nenye be teƒe doviviti aɖewo le wò ŋkume.
• Multifocal electroretinography : Le dodokpɔ sia me la, kekeli klẽna ɖe wò ŋku ƒe ŋkume eye wodzidzea elektrikŋusẽ ƒe dɔwɔwɔ le eŋu.

Ne dodokpɔ siawo ɖi nya sesẽ vie la, mègatsi dzi o. Wò ɖɔkta aɖe nusianu me na wò.

Nukae nye atikewɔwɔ na Anyigba ƒe Dɔléle?

Nya nyuiae nye be nyitsɔ laa la, U.S. Nuɖuɖu Kple Atike Ŋuti Dɔwɔƒe (FDA) da asi ɖe atike eve dzi zi gbãtɔ be woatsɔ ada anyigba ƒe nɔnɔme ƒe gbegblẽ. Woawoe nye pegcetacoplan (SYOFOVRETM) kple avacincaptad pegol (IZERVAYTM). Esiawo nye atike siwo wodona ɖe ŋku me . Atike siawo ate ŋu ana anyigba ƒe nɔnɔme ƒe tsɔtsrɔ̃ ƒe ŋgɔyiyi nagbɔdzɔ. Wò ŋkudɔdala ado atike siawo ɖe wò ŋku me zi ɖeka le ɣletia me alo ɣleti eve ɖesiaɖe.

Tsɔ kpe ɖe eŋu la, wò ŋkudɔdala ate ŋu aɖo aɖaŋu bubu siwo dzi nàto akpɔ anyigba ƒe ʋuʋu gbɔ, abe:

• Nukpɔkpɔ ƒe ɖɔɖɔɖo : Àte ŋu ahiã nukpɔkpɔ ƒe kpekpeɖeŋunuwo, abe ŋkumeɖobolo tɔxɛwo alo ŋkumeɖonu gã ene, be woakpe ɖe ŋuwò nàwɔ wò gbesiagbedɔwo.
• AREDS2 ƒe KpekpeɖeŋunuAREDS2 kpeɖeŋutɔ: Wodo antioxidant kpeɖeŋutɔ siawo kpɔ le Ŋkudɔléle Siwo Do Ƒome Kplii ƒe Numekuku me. Ðɔkta aɖewo zãa wo tsɔ daa AMD ƒuƒui. Beta-carotene kpe ɖe nu siawo ŋu le AREDS1 ƒe atike gbãtɔa me. Gake esi wònye be beta-carotene do ƒome kple atamanolawo ƒe aɖuɖɔtoemekansa ƒe afɔku si dzina ɖe edzi ta la, lutein , zeaxanthin, vitamin E, zinc oxide , kple cupric oxide hã le AREDS2 me.
• Telescope sue si woate ŋu ade ame me (IMT): Esia bia be woawɔ dɔ na wò ŋku ƒe dzɔdzɔme ŋkumeɖonu eye nàtsɔ didiƒekpɔmɔ̃ sue sia aɖo eteƒe. Mɔ̃ sia dzia nuwo ɖe edzi le nukpɔkpɔ tẽ me eye wònana woƒe susu nɔa ŋku ƒe akpa bubu siwo gakpɔtɔ le dɔ wɔm nyuie la ŋu.

Ðe atikewɔwɔa ƒe nugbegblẽ aɖewo lia?

Esi wònye be atike yeye siwo nye Pegcetacoplan kple Avacincaptad pegol gakpɔtɔ nye yeye ŋutɔ ta la, eŋutinunyalawo gale nu srɔ̃m tso woƒe dɔwɔwɔ kple afɔku siwo le wo me ŋu. Fifia la, wonya be nugbegblẽ le ame ŋu siwo gbɔna la dzɔna:

• Ŋku ƒe vevesese.
• Ʋu si dona le ŋku ƒe ɣie me (Subconjunctival hemorrhage).
• Floaters ƒe dzedzeme le tsi si le ŋkua me (vitreous humor).
• Ŋku ƒe ʋuka yeyewo ƒe ʋuʋu.

Ele vevie be nàƒo nu tso esia ŋu kple wò ɖɔkta eye nàtia atike si anyo na wò.

Ðe woate ŋu axe mɔ ɖe Geographic Atrophy nua?

Ne míagblɔe tututu la, mɔ aɖeke meli si dzi woato axe mɔ ɖe anyigba ƒe nɔnɔme ƒe tsɔtsrɔ̃ nu keŋkeŋ o , elabena womate ŋu axe mɔ ɖe ŋku ƒe dɔmawɔmawɔ nyuie si tsoa tsitsi ta si henɛ vɛ o.

Gake àte ŋu adze agbagba aɖe afɔku si le esia me dzi akpɔtɔ . Ema fia be míalé ŋku ɖe afɔku siwo ŋu woate ŋu atrɔ asi le siwo míate ŋu atrɔ ŋu. Míate ŋu atrɔ nuwo abe ƒexɔxɔ kple ameƒomevinyenye ene o. Gake àte ŋu akpe ɖe ŋuwò nàɖe wò afɔkua dzi akpɔtɔ ne èwɔ nusiawo:

• Menye atamanono o. Ne ènoa atama la, dze agbagba nàdzudzɔ.
• Dɔléle siwo nɔa anyi didi abe suklidɔ, ʋusɔgbɔdɔ, lolo akpa, kple ʋumemi ƒe agbɔsɔsɔ dzi ɖuɖu nyuie.
• Do ɣe ƒe ŋkumewu siwo ŋu ŋkumeɖonu ɣiwo le be nàkpɔ wò ŋkuwo ta ne èle ŋdɔ me yim.
• Do dedienɔnɔ ƒe ŋkumewu siwo sɔ le dɔwɔƒe, ne èle kamedefefe wɔm, alo nèle modzakaɖeɖewo wɔm.
• Ele be nàwɔ ɖe nuɖuɖu nyui kple kamedede ƒe ɖoɖo dzi. Vevietɔ de amagbe damawo, gbetikewo, kple atikutsetsewo wò nuɖuɖu me.

Nukae dzɔna ne Anyigbaŋutinunya ƒe Atrophy le ŋunye?

Le goawo katã me la, nukpɔsusu si le amesiwo ƒe anyigba ƒe nɔnɔme gblẽ ŋu la menyo tututu le nukpɔkpɔ gome o. Ke hã, dɔlélea gblẽa nu le ame ɖesiaɖe ŋu le mɔ vovovowo nu. Dɔdamɔnu yeyewo he mɔkpɔkpɔ aɖewo vɛ.

Nu vevitɔe nye be Geographic Atrophy menye dɔléle si wua ame o eye makpɔ ŋusẽ ɖe wò agbenɔƒe dzi o.

Ɣekaɣie wòle be makpɔ ɖɔkta?

Wò ŋkudɔdala agblɔ zi nenie wòle be nàdo wò ŋkuwo kpɔ na wò. Gblɔe na wò ɖɔkta enumake ne ède dzesi tɔtrɔ aɖewo le wò ŋkuwo alo nukpɔkpɔ me.

Ne wò ŋku bu zi ɖeka alo ŋku le veve sem vevie la, ele vevie be nàdi atikewɔlawo ƒe aɖaŋuɖoɖo enumake.

Nya kawoe wòle be mabia ɖɔktaa?

Ne èyi ɖɔkta gbɔ la, àte ŋu abia nyawo abe:

• Ðe anyigba ƒe ʋuʋu alo ŋkudɔ bubu aɖe le ŋunyea?
• Dodokpɔ kawoe wòle be mawɔ?
• Ðe medze na atike yeye siwo woatsɔ ada anyigba ƒe nɔnɔme ƒe tsɔtsrɔ̃a?
• Zi nenie wòle be woado nye ŋkuwo kpɔ?
• Ðe mate ŋu akpɔ gome le dɔdamɔnu dodokpɔ aɖe mea?
• Tɔtrɔ kawoe wòle be makpɔ nyuie le nye ŋkuwo ŋu?
• Àte ŋu akpe ɖe ŋunye makpɔ kpekpeɖeŋunadɔ siwo ate ŋu akpe ɖe ŋunyea?

Mlɔeba la, nu siwo dzi wòle be woaɖo ŋkui

Enyo ŋutɔ be atike yeyewo li na anyigba ƒe nɔnɔme ƒe tsɔtsrɔ̃ eye be numekukuwo le edzi yim. Gake esɔ be vɔvɔ̃ naɖo ŋuwò ne èse be dɔléle aɖe le ye ŋu si ate ŋu agblẽ nu le wò ŋkume tegbee.

Mega tsi dzi o. Wò ŋkudɔdala agblɔ nu geɖe tso nɔnɔme sia ŋu na wò, nu siwo nàte ŋu akpɔ mɔ na, ​​kple atike nyuitɔ kekeake siwo akpe ɖe ŋuwò nàkpɔ egbɔ. Ele vevie be nàwɔ ɖe wò ɖɔkta ƒe mɔfiamewo dzi eye nàdo ŋku kpɔ edziedzi . Azɔ hã, kpekpeɖeŋu si wò ƒomea ana la akpe ɖe ŋuwò ŋutɔ le ɣeyiɣi sia me.

Anyigba ƒe Ʋuʋu, Ŋku ƒe Dɔléle si Do Ƒome Kple Ƒexɔxɔ, AMD, Ŋku ƒe Lãmesẽ, Ŋku ƒe Lãmesẽ, Nukpɔkpɔ ƒe Bubu, Ŋkudɔléle