Ðe viwòa ƒe ahɔhɔ̃ ƒe akpa aɖewo bua? Ðe míaƒo nu tso hydranencephaly ŋua?

Oo, ɣeaɖewoɣi la, esesẽna ŋutɔ ne míebu dɔléle siwo mía vidzĩwo ate ŋu anɔ ŋu, alo? Vevietɔ, nɔnɔme aɖewo siwo ŋu míesrɔ̃a nu tsoe esime vidzĩa gakpɔtɔ le vidzidɔa me la sesẽ ŋutɔ eye wo gɔmesese sesẽna. Egbea míele nu ƒom tso ahɔhɔ̃medɔ sesẽ aɖe si mebɔ kura o, gake wòle vevie be woanya nu tso eŋu. Woyɔa esia be hydranencephaly.

Nuka tututue nye Hydranencephaly?

Kpuie ko la, hydranencephaly nye ahɔhɔ̃mekawo ƒe dɔléle si mebɔ o si dzɔna le vidzidzi me. Le nɔnɔme sia me la, vidzĩa ƒe ahɔhɔ̃ ƒe akpa vevi eve siwo woyɔna be cerebral hemispheres , medzɔna o. Bu eŋu kpɔ, míaƒe ahɔhɔ̃ ƒe akpa gãtɔe nye ahɔhɔ̃meka. Afi mae anyigba ƒe akpa eve siawo le. Ahɔhɔ̃meka siawoe kpɔa ŋusẽ ɖe tamebubu, ŋkuɖoɖonudzi, kple seselelãme dzi.

Eyata le vidzĩ si ŋu hydranencephaly le ƒe ta me, afisi wòle be ahɔhɔ̃mekawo nanɔ la, kotoku siwo me ahɔhɔ̃mekawo ƒe tsi (CSF) yɔ fũu la le . Le nyateƒe me la, ahɔhɔ̃meka sia (CSF) ye nye tsi si ƒo xlã míaƒe ahɔhɔ̃ kple aklã hekpɔa eta. Gake le go sia me la, nu bubu aɖe dzɔna.

Le ɣeyiɣi aɖe megbe la, vidzĩ siawo ƒe ta tea lolo ɖe edzi. Azɔ hã, dzesi sesẽ bubuwo ate ŋu adze. Nublanuitɔe la, zi geɖe la, nɔnɔme sia nana vidzĩa kuna le edzidzi megbe kpuie, ne menye vidadaa ƒe dɔ me o gɔ̃ hã.

Vovototo kae le Hydranencephaly kple Hydrocephalus dome?

Ðewohĩ èse dɔléle aɖe si woyɔna be hydrocephalus ŋu nya kpɔ. Nɔnɔme siawo evea siaa lɔ ta si lolo kple ahɔhɔ̃mekawo me tsi (CSF) ƒe ƒuƒoƒo ɖe eme. Gake nɔnɔme eve siawo to vovo kura.

Hydrocephalus nye nɔnɔme si me tsi si le ahɔhɔ̃a me, si woyɔna be cerebrospinal fluid (CSF) la ƒoa ƒu, si wɔnɛ be taɖua ƒe nyaƒoɖeamenu dzina ɖe edzi. Esia ate ŋu agblẽ nu le ahɔhɔ̃a ŋu. Ate ŋu anɔ anyi le vidzidzi me, alo ate ŋu adzɔ le afɔku alo dɔléle aɖe megbe. Ɣeaɖewoɣi la, taɖuame ate ŋu adzɔ hã abe nɔnɔme aɖe si woyɔna be hydranencephaly ƒe dzesi ene.

Gake le hydranencephaly me la, ahɔhɔ̃a metsina nyuie esime vidzĩa gakpɔtɔ le vidzidɔa me o. Ema fia be ahɔhɔ̃a ƒe akpa ʋɛ aɖewo koe tsina.

Ele vevie be woade vovototo nɔnɔme eve siawo dome, elabena atikewɔwɔ kple ŋgɔdonya to vovo kura. Vidzĩ geɖe siwo ŋu hydrocephalus le ate ŋu ahaya ne wokpɔ dɔlélea le wo ŋu nyuie eye woda dɔ na wo. Gake zi geɖe la, vidzĩ siwo ŋu hydranencephaly le ya mewɔa esia o.

Eyata vovototo kae le esia kple holoprosencephaly dome?

Esia nye nusi to vovo bubu si mesɔ o si do ƒome kple ahɔhɔ̃ ƒe tsitsi.Le holoprosencephaly me la, vidzĩa ƒe ahɔhɔ̃ ƒe ŋgɔgbekpa (ahɔhɔ̃ si le ŋgɔgbe), si nye ahɔhɔ̃meka siwo míeyɔ va yi, mema o. Eyae nye be le esi teƒe be wòanye akpa eve la, enɔa anyi abe ɖeka ene. Gake le hydranencephaly me la, afã mawo menɔa anyi kura o.

Le alesi dɔlélea nu sẽe nu la, vidzĩ aɖewo siwo ŋu holoprosencephaly le ate ŋu anɔ agbe le wo dzidzi megbe.

Aleke gbegbee dɔléle sia, si nye Hydranencephaly, bɔe?

Esia nye nɔnɔme si mebɔ kura o. Dzɔdzɔmeŋutinunyalawo bu akɔnta be nɔnɔme sia gblẽa nu le fu siwo ade ɖeka le 10,000 ɖesiaɖe me, alo ɖeka le 5,000 ɖesiaɖe me. Ema bɔbɔ ŋutɔ.

Nukatae hydranencephaly dzɔna? Nukawoe gbɔ wòtsona?

Le nyateƒe me la, dzɔdzɔmeŋutinunyalawo menya nusi tututu hea hydranencephaly vɛ haɖe o . Ate ŋu adzɔ be domenyiŋusẽfianue wònye, gake womese alesi wòdzɔnae gɔme nyuie o.

Gake le go aɖewo me la, wokpɔe be nɔnɔme sia do ƒome kple vidada ƒe aɖinuwo xɔxɔ le fufɔɣi . Eyata ele be woaɖɔ ŋu ɖo vevie le fufɔɣi.

Nukae nye nɔnɔme sia ƒe dzesiwo?

Ne wodzi vidzĩ si ŋu hydranencephaly le la, ate ŋu adze abe vidzĩ si sɔ ene le ŋkeke ʋɛ gbãtɔawo me. Eyata ate ŋu asesẽ be woakpɔe adze sii enumake. Dzesiawo dzea egɔme dzena le eƒe agbenɔƒe ƒe kwasiɖa alo ɣleti ʋɛ gbãtɔwo me. Dzesi siwo ate ŋu adze la dometɔ aɖewoe nye esi:

• Ne vidzĩa mete ŋu tsi nyuie o fia be megale lolom alo le tsitsim nyuie o .
• Lãmetsiwo ƒe sesẽ ate ŋu adzi ɖe edzi alo aɖiɖi, eye lãmekawo ƒe ʋuʋu hã ate ŋu aʋuʋu .
• Ta la lolo wu alesi wòle dzɔdzɔmee.
• Nukpɔkpɔ kple nusese sesẽ .
• Afɔ kple afɔwo ƒe sesẽ .
• Yagbɔgbɔ sesẽ .

Ne dzesi siawo dometɔ ɖeka alo esi wu nenema le ŋuwò la, ele vevie ŋutɔ be nàdi atikewɔlawo ƒe aɖaŋuɖoɖo enumake.

Aleke wowɔna dea dzesi Hydranencephaly?

Woate ŋu ade dzesi nɔnɔme sia ɣeaɖewoɣi hafi woadzi vidzĩa, si fia be le ultrasound scan wɔwɔ me . Abe alesi nènyae ene la, ultrasound scan wɔa vidzĩ si le vidadaa ƒe dɔme ƒe nɔnɔmetata. Emegbe, woate ŋu akpɔe be vidzĩa ƒe ahɔhɔ̃mekawo bu.

Ne ultrasound si wowɔ do ŋgɔ na vidzidzi ɖee fia be hydranencephaly le ame ŋu la, ɖɔkta ate ŋu aɖe gbe be woawɔ MRI be woakpɔ nɔnɔmetata siwo me kɔ wu.

Gake ɣeaɖewoɣi la, womedea dzesii le fufɔɣi o eye nɔnɔmea ate ŋu anɔ anyi le vidzĩa dzidzi vɔ megbe. Ne edzɔ alea la, ate ŋu axɔ kwasiɖa geɖe alo ɣleti geɖe gɔ̃ hã hafi woate ŋu anya dɔlélea. Elabena abe alesi míegblɔe va yi ene la, vidzĩa ate ŋu adze abe ɖe wòle nɔnɔme nyui me ene le gɔmedzedzea me.

Ðɔkta ate ŋu anɔ te ɖe vidzĩa ƒe dzesiwo kple ahɔhɔ̃a ƒe MRI dzi aɖo kpe nɔnɔmea dzi. MRI ate ŋu akpe ɖe ame ŋu woade vovototo hydranencephaly kple nɔnɔme bubuwo abe hydrocephalus kple holoprosencephaly, siwo ŋu míeƒo nu tsoe va yi ene, dome.

Tsɔ kpe ɖe eŋu la, woate ŋu awɔ dodokpɔ bubuwo, abe:

• Angiography: Esia bia be woatsɔ amadede tɔxɛ aɖe aɖe ʋukawo ƒe foto to X-ray dzi.
• CT scan: Esia nye mɔ bubu si dzi woato aɖe ahɔhɔ̃a ƒe foto.
• Hydranencephaly ultrasound: Ultrasound dodokpɔ si wowɔna koŋ be woatsɔ adi nɔnɔme sia.
• Transillumination: Esia bia be woaklẽ kekeli aɖe to ahɔhɔ̃mekawo me tso taɖu te be woakpɔe ɖa be nanewo mesɔ o hã.
• Domenyiŋusẽfianu dodokpɔ: Kpɔe ɖa be domenyiŋusẽfianue wònye hã.

Nukawoe nye atike siwo wowɔna na vidzĩ siwo ŋu hydranencephaly le?

Esia nye nya si ŋu woate ŋu awɔ nuvevii ŋutɔ. Ne woɖo kpe hydranencephaly dzi le dodokpɔ si wowɔ do ŋgɔ na vidzidzi me la, ƒome aɖewo tsoa nya me be yewoaɖe fu le atikewɔwɔ me , si nye be woadzudzɔ fufɔfɔa le atikewɔwɔ ta. Esia nye nyametsotso sesẽ ŋutɔ, gake ɖɔktawo kple aɖaŋuɖolawo naa kpekpeɖeŋu si hiã le ɣeyiɣi mawo me.

Ne wodzi vidzĩ kple hydranencephaly la, womate ŋu adae o. Dɔdamɔnua ƒe taɖodzinu koŋ nye be woaɖe dzesiawo dzi akpɔtɔ eye woana vidzĩa navo alesi wòanya wɔe.

• Wowɔa amekoko tsɔ ɖea tsi si sɔ gbɔ ɖe ahɔhɔ̃a me eye wotsɔa shunt (mɔ̃ sue aɖe) dea eme be woaɖe nyaƒoɖeamenu si le ahɔhɔ̃a me dzi akpɔtɔ. Togbɔ be esia nye atike nyui aɖe na tagbɔdɔléle hã la, viɖe boo aɖeke mele eŋu na tagbɔdɔléle si me tsi mele o.
• Woate ŋu azã atike aɖe si woyɔna be Endoscopic Choroid Plexus Coagulation (ECPC) ɣeaɖewoɣi abe ahɔhɔ̃ si le tsitsim kabakaba ƒe atike ene.

Tsɔ kpe ɖe eŋu la, ɖɔkta ate ŋu aɖo aɖaŋu na wò hã be:

• Atike siwo wozãna tsɔ tsia alɔ̃madɔmadɔ nu .
• Nunyiame ƒe kpekpeɖeŋu.
• Lãmesẽfefewɔwɔ be woatsɔ aɖe lãmekawo ƒe dzesiwo dzi akpɔtɔ.
• Ne gbɔgbɔtsixe tsia ame ƒo la, ate ŋu ahiã be woaɖe ya si woyɔna be tracheostomy (amekoko sue aɖe si wowɔna le ŋɔti me) alo mɔ̃ si woatsɔ agbɔ yae.

Ðe woate ŋu axe mɔ ɖe hydranencephaly ƒe nɔnɔme sia nua?

Dzɔdzɔmeŋutinunyalawo mese nusitae wòdzɔna alea gɔme bliboe haɖe o, eyata womate ŋu agblɔ alesi woawɔ axe mɔ ɖe enu kple kakaɖedzi o. Gake abe alesi míegblɔe va yi ene la, wogblɔ be dɔléle aɖewo do ƒome kple aɖinuwo xɔxɔ le fufɔɣi. Le kpɔɖeŋu me, atikewo abe cocaine, atamanono, kple atike aɖewo siwo wozãna tsɔ léa alɔ̃dɔdɔ abe sodium valproate ene.

Eyata ele vevie ŋutɔ be vidada funɔwo naƒo asa na aɖinuwo xɔxɔ. Ele vevie hã be woaƒo nu kple woƒe ɖɔkta tso atike ɖesiaɖe si wole nonom ŋu.

Nukae nye vidzĩ si ŋu hydranencephaly le ƒe agbenɔƒe?

Esia sese wɔ nublanui ŋutɔ. Mɔkpɔkpɔ na ɖevi siwo ŋu hydranencephaly le la menyo tututu o. Vidzĩ geɖe kuna hafi wodzia wo alo hafi xɔa ƒe ɖeka. Ƒã ŋutɔ hafi ɖevi si ŋu hydranencephaly le ate ŋu anɔ agbe ƒe geɖe, ne wokpɔ beléle na ɖevi si ŋu hydranencephaly le vevie.

Aleke nàwɔ akpɔ nɔnɔme sia tɔgbe gbɔe?

Be nànya be dɔléle aɖe abe hydranencephaly ene le viwòa ŋu nye nusi gbɔ kpɔkpɔ sesẽ ŋutɔ. Gɔmesese le nya ma ŋu.

• Ele vevie ŋutɔ be woana hehe si hiã ƒomewo be woase dɔléle sia ƒe sesẽme gɔme.
• Azɔ hã, aɖaŋuɖoɖo didi kple kpekpeɖeŋunaha siwo me nàte ŋu aɖo kadodo me kple ƒome bubu siwo dze ŋgɔ nɔnɔme mawo tɔgbe le ate ŋu anye ŋusẽtsoƒe gã aɖe.

Hydranencephaly nye vidzidzi ƒe gbɔdzɔgbɔdzɔ si mebɔ o si gblẽa nu le ahɔhɔ̃a ƒe tsitsi ŋu. Zi geɖe la, wokpɔnɛ do ŋgɔ na vidzidzi alo le edziɣi megbe kpuie. Ne nɔnɔme sia le viwòa ŋu la, wò atikewɔlawo ƒe ƒuƒoƒoa ana kpekpeɖeŋu, hehe, kple aɖaŋuɖoɖo siwo katã miehiã la mia kple wò ƒomea. Ðo ŋku edzi be menye wò ɖeka koe o.

Gbedasi Mamlɛtɔ si Wotsɔ Yi Aƒeme

Dada kple Papa lɔlɔ̃awo, Hydranencephaly nye dɔléle si gbãa dzi na ame ŋutɔŋutɔ eye wòsesẽna. Ke hã, ele vevie be nànyae.

• Esia nye nɔnɔme si mebɔ kura o si dzɔna ne ahɔhɔ̃a ƒe akpa aɖewo metsi nyuie o.
• Zi geɖe la, woate ŋu ade dzesi esia to foto siwo wowɔ do ŋgɔ na vidzidzi me .
• Togbɔ be atike aɖeke meli na esia o hã la, atike aɖewo li siwo dzi woato aɖu dzesiawo dzi eye woana vidzĩa navo .
• Esi womenya nusi tututu gbɔ wòtso o ta la, ele vevie be woawɔ afɔɖeɖe siwo woatsɔ akpɔ wo ɖokui tae, abe alesi woaƒo asa na aɖinuwo le fufɔɣi ene.
• Ƒome siwo dze ŋgɔ nɔnɔme sia ate ŋu akpɔ ŋusẽ gã aɖe tso ɖɔktawo, aɖaŋuɖolawo, kple kpekpeɖeŋunahawo gbɔ .

Ne nya bubu aɖewo gale asiwò ku ɖe esia ŋu la, taflatse ƒo nu kple wò ɖɔkta. Woana nyatakaka kple mɔfiame siwo katã nèhiã la wò.

` Hydranencephaly, ahɔhɔ̃ ƒe dɔmawɔmawɔ nyuie, vidzidzi ƒe gbɔdzɔgbɔdzɔ, vidzĩ ƒe lãmesẽ, ahɔhɔ̃meka me tsi, tsi ƒe tagbɔdɔ, dɔléle si wokpɔna do ŋgɔ na vidzidzi